Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Need Help Deciphiring Results
0

11 posts in this topic

OK, I got the first test results back...I wasnt eating the recommended amount of gluten before testing because I didnt know anything about it, so I am going to be going for testing again later. However, is THIS set of testing, I was neg for celiac, BUT my Ige was way out of range. The reference was 87.0 and my Ige level was 320.0. What does this mean????? Thanks for anyone who can help me. I am really worried and OFCOURSE its the weekend and I cant call the doctor or anything.

Sabrina

0

Share this post


Link to post
Share on other sites


Ads by Google:

Elevated IgE indicates that you are having an allergic response to something. It could be something in the air, or something your eating, or a medication, etc.

It is a good idea to get together with your allergist next week and try to figure out what it is that is causing this allergic response so that you can avoid it in the future. As long as you are not having an anaphylactic response, then it is nothing to worry about. If however you start to have trouble I would get to an ER pretty quick.

I have elevated IgE everytime they test me. But then, I am mildly allergic to almost all pollens and such. I am severely allergic to alfalfa and house dust. Well, I live in a farming community, so there is alfalfa grown around here, and house dust is a little hard to avoid...I also react badly to the cotton when they are growing it here, although everyone keeps telling me that it is the defolients that cause the allergies, not the plant. I guess the chemicals they use cause a reaction from many people. All I know is that as soon as the cotton pops open aroung Sept/Oct until they harvest it in November I have horrible allergies!

As far as food goes, they only tested me for the top 8 allergens, and I am allergic to soy. I get severely itchy skin if I eat anything that contains the soy protein in it. I am okay with soy lecithin and soy bean oil, but I limit that anyhow, just to be sure.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Thanks, Mariann. I am just a nervous wreck about all the new "health problems" I have been having over the last 2 years. I just want to feel healthy again and I dont know what to do. It is so over whelming because I have a 21 month old and a 9 month old to take care of, and its so hard with all the problems Ive been having. It seems like I keep getting all these abnormal test results, and the doctors dont really explain things to me. Im wondering, since the allergist diagnosed me with idiopathic angioedema, if that could be whats causing the IgE level to be elevated. Its really scary to me..I hopefully will be able to get in to see him sometime next week, and I will post my findings.

Thanks again! Oh, I also remember that I was eating alot of maple syrup then, and EVERYTIME I ate real maple syrup after the first couple of times, I would get a huge headache and extremely foggy headed. Im assuming I am probably allergic to it. Isnt that awful?? I could eat the FAKE maple syrup, but apprantly the good stuff affects me. I am going to see if they can rast test me for maple syrup, though I have never heard of anyone being allergic to it.

Sabrina

0

Share this post


Link to post
Share on other sites

Oh by the way...could it be possible that it was the gluten causing the allergic response, but not enough of it in my system to cause a postive celiac blood test?

0

Share this post


Link to post
Share on other sites

IgE responses are classic allergies - usually described as watery eyes, itchy nose, etc. It is the immune response associated with histamine release in the body, and generally treated by antihistamines when appropriate. The celiac response does not use this immune pathway, it uses the IgG and IgA pathways instead. So, the two tests are not related, they check entirely different things. (You can't, for example, say anything about the brake fluid in your car based on the amount of gas in the gas tank.)

0

Share this post


Link to post
Share on other sites




OK, I see. Well, I guess I better get whatever is causing it under control. I am actually on 2 daily prescription antihistimines, so I dont understand why my IgE is so high...I am also going to be seeing an immunologist next month, so maybe he can help...Only a few days back on gluten and already I am more irritable, and extremely gassy!! Also already getting headaches again....oh how fun! Thanks for your help guys..

Sabrina

0

Share this post


Link to post
Share on other sites

Antihistamines won't change your IgE results - they simply "sop up" the excess histmaine in the blood. The histamine is released from mast cells when they are activated by IgE antibodies in the bloodstream. Antihistamines treat the symptoms, not the cause.

0

Share this post


Link to post
Share on other sites

Its just so aggravating because I dont know what could be causing it..and even more aggravating that the stupid doctors office didnt bother to call me and tell me about it, so I still may be consuming, or still may be around whatever is causing the allergic response. I had to CALL them and get them to mail me my results because I had not heard anything. UGH. I just cant wait to get all this under control. THanks for clarifying that for me

Sabrina

0

Share this post


Link to post
Share on other sites

I had an allrgic reaction to millet today. Even after the epipen by body came up with hives all over it (90 % even under my hair)

My IGE is in the 300s too. My Dr. wants to do the scratch test on me. I told him no because I have had the scratch test done before and it was H@@@.

Now, I don't think I have an option. The pin test, has anyone had this done?

0

Share this post


Link to post
Share on other sites

Hi everyone,

I've had really bad allergies over the last three years also. I've always had allergic rhinitis but after the birth of my child I started having anaphylatic reactions. I really feel for anyone who has gone through this because it's sooo scary. On my worse days I would have more than one reaction. I had the prick tests done on my back and ID's done on my arms. With the ID's that give you a small shot right under the skin. I actually thought the ID's were less painful than the prick tests. My daughter had the prick test on her back but another Dr. just had us do the RAST test to make sure that the prick test was accurate.

I started taking anti-IgE anti-body injections a year ago. The shot has helped me so much. We had to expierment with the dose because of side effets. The medicine hasn't been on the market very long and has a few questions about safety. I am also taking allergy shots for my inhalent allergies. I hope that I can go off the anit-IgE shots after I reach my full dosage of my allergy serum.

I hope you find the answers and get relief really soon!

0

Share this post


Link to post
Share on other sites

A member, Robert_the_Bruce tried to post, but used the report button, rather than the add reply button at the bottom of the page:

I have all the classic symptoms of Celiac, & went off Gluten for 2 weeks and felt amazing... I rang to make appt to confirm Celiac disease, and the doctor said I needed to be eating Gluten.  I went back on gluten for 1 week & had my test done, is this enough time as my results came back negative?  I was only off gluten for 2 weeks... can anybody help?
0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,910
    • Total Posts
      919,605
  • Topics

  • Posts

    • Are M&Ms Gluten Free?
      Olivia....what country are you located in?  I just bought a bag of regular M&M's from the vending machine at work. They are the milk chocolate ones and it is a 1.69 oz. bag.  The allergy warning states: Contains milk and soy. May contain peanuts.  The "best before" date on it is for April of 2017 so this is a recent bag.  
    • New to this gluten-free life
      Getting a diagnosis like celiac an be overwhelming because it's so complex and there's a lot to learn. If you're unhappy with your doctor, switching to a new one and/or getting a second opinion are options. It's really important to find someone you feel comfortable with who listens to your concerns. That being said, as you're preparing for your next appointment, take time to write down any questions that come up as you go about your day beginning to manage your condition and track any symptoms you're experiencing. Did your doctor discuss lifestyle changes and treatment options with you? Here are some examples of things to ask: What tests do I need? What treatment options are available? Should I take nutritional supplements? Are there any dietary restrictions that I need to follow? How will I learn which foods contain gluten? Should I see a dietitian? Can you recommend nutritionists who work with celiac patients? The Celiac Foundation is another resource. Their website has lots of information and resources. There's also the Celiac Support Association – they have local chapters, or the National Foundation for Celiac Awarenes. And check out magazines like Gluten-Free Living, Delight Gluten-Free and Living Without.  
    • Kidney disease question
      Icelandgirl and I often remark, "There's always something [to be worried about]"! Whilst  is obviously important to have all these tests and there is good reason to check them (one reads that very occasionally doctors miss something) it has done my health anxiety absolutely no favours having blood test after blood test!    
    • Celiac Night Vision
      On 4th June I posted on the ehealth vision forum under the title seasonal night vision scotomas, but there were no replies. I have just had my eyes tested by an optometrist. Acuity is 20/25. She did field testing and Topcon tomography and did not find anything alarming for my age. However in dim lighting against a light background I can sometimes see a round slightly greenish area about 20 degrees across with lateral extensions to the blind spots. Shutting the eyes suddenly makes it a light area. The scotomas occur within this area. I can also see those intriguing blue arcs of the retina with both eyes (though they always look violet to me). Trying to identify what causes migraine, scotomas and possible celiac symptoms is notoriously difficult which is why there are no good papers on how to do it. I continue to keep a daily record of foods, symptoms and anything else which seems relevant listing what is being avoided and highlighting possible clues. notme! - we are eating tomatoes and potatoes this year! Good luck to other celiac detectives!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,956
    • Most Online
      1,763

    Newest Member
    Sass
    Joined