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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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OK, I got the first test results back...I wasnt eating the recommended amount of gluten before testing because I didnt know anything about it, so I am going to be going for testing again later. However, is THIS set of testing, I was neg for celiac, BUT my Ige was way out of range. The reference was 87.0 and my Ige level was 320.0. What does this mean????? Thanks for anyone who can help me. I am really worried and OFCOURSE its the weekend and I cant call the doctor or anything.

Sabrina

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Elevated IgE indicates that you are having an allergic response to something. It could be something in the air, or something your eating, or a medication, etc.

It is a good idea to get together with your allergist next week and try to figure out what it is that is causing this allergic response so that you can avoid it in the future. As long as you are not having an anaphylactic response, then it is nothing to worry about. If however you start to have trouble I would get to an ER pretty quick.

I have elevated IgE everytime they test me. But then, I am mildly allergic to almost all pollens and such. I am severely allergic to alfalfa and house dust. Well, I live in a farming community, so there is alfalfa grown around here, and house dust is a little hard to avoid...I also react badly to the cotton when they are growing it here, although everyone keeps telling me that it is the defolients that cause the allergies, not the plant. I guess the chemicals they use cause a reaction from many people. All I know is that as soon as the cotton pops open aroung Sept/Oct until they harvest it in November I have horrible allergies!

As far as food goes, they only tested me for the top 8 allergens, and I am allergic to soy. I get severely itchy skin if I eat anything that contains the soy protein in it. I am okay with soy lecithin and soy bean oil, but I limit that anyhow, just to be sure.

God bless,

Mariann

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Thanks, Mariann. I am just a nervous wreck about all the new "health problems" I have been having over the last 2 years. I just want to feel healthy again and I dont know what to do. It is so over whelming because I have a 21 month old and a 9 month old to take care of, and its so hard with all the problems Ive been having. It seems like I keep getting all these abnormal test results, and the doctors dont really explain things to me. Im wondering, since the allergist diagnosed me with idiopathic angioedema, if that could be whats causing the IgE level to be elevated. Its really scary to me..I hopefully will be able to get in to see him sometime next week, and I will post my findings.

Thanks again! Oh, I also remember that I was eating alot of maple syrup then, and EVERYTIME I ate real maple syrup after the first couple of times, I would get a huge headache and extremely foggy headed. Im assuming I am probably allergic to it. Isnt that awful?? I could eat the FAKE maple syrup, but apprantly the good stuff affects me. I am going to see if they can rast test me for maple syrup, though I have never heard of anyone being allergic to it.

Sabrina

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Oh by the way...could it be possible that it was the gluten causing the allergic response, but not enough of it in my system to cause a postive celiac blood test?

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IgE responses are classic allergies - usually described as watery eyes, itchy nose, etc. It is the immune response associated with histamine release in the body, and generally treated by antihistamines when appropriate. The celiac response does not use this immune pathway, it uses the IgG and IgA pathways instead. So, the two tests are not related, they check entirely different things. (You can't, for example, say anything about the brake fluid in your car based on the amount of gas in the gas tank.)

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OK, I see. Well, I guess I better get whatever is causing it under control. I am actually on 2 daily prescription antihistimines, so I dont understand why my IgE is so high...I am also going to be seeing an immunologist next month, so maybe he can help...Only a few days back on gluten and already I am more irritable, and extremely gassy!! Also already getting headaches again....oh how fun! Thanks for your help guys..

Sabrina

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Antihistamines won't change your IgE results - they simply "sop up" the excess histmaine in the blood. The histamine is released from mast cells when they are activated by IgE antibodies in the bloodstream. Antihistamines treat the symptoms, not the cause.

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Its just so aggravating because I dont know what could be causing it..and even more aggravating that the stupid doctors office didnt bother to call me and tell me about it, so I still may be consuming, or still may be around whatever is causing the allergic response. I had to CALL them and get them to mail me my results because I had not heard anything. UGH. I just cant wait to get all this under control. THanks for clarifying that for me

Sabrina

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I had an allrgic reaction to millet today. Even after the epipen by body came up with hives all over it (90 % even under my hair)

My IGE is in the 300s too. My Dr. wants to do the scratch test on me. I told him no because I have had the scratch test done before and it was H@@@.

Now, I don't think I have an option. The pin test, has anyone had this done?

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Hi everyone,

I've had really bad allergies over the last three years also. I've always had allergic rhinitis but after the birth of my child I started having anaphylatic reactions. I really feel for anyone who has gone through this because it's sooo scary. On my worse days I would have more than one reaction. I had the prick tests done on my back and ID's done on my arms. With the ID's that give you a small shot right under the skin. I actually thought the ID's were less painful than the prick tests. My daughter had the prick test on her back but another Dr. just had us do the RAST test to make sure that the prick test was accurate.

I started taking anti-IgE anti-body injections a year ago. The shot has helped me so much. We had to expierment with the dose because of side effets. The medicine hasn't been on the market very long and has a few questions about safety. I am also taking allergy shots for my inhalent allergies. I hope that I can go off the anit-IgE shots after I reach my full dosage of my allergy serum.

I hope you find the answers and get relief really soon!

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A member, Robert_the_Bruce tried to post, but used the report button, rather than the add reply button at the bottom of the page:

I have all the classic symptoms of Celiac, & went off Gluten for 2 weeks and felt amazing... I rang to make appt to confirm Celiac disease, and the doctor said I needed to be eating Gluten.  I went back on gluten for 1 week & had my test done, is this enough time as my results came back negative?  I was only off gluten for 2 weeks... can anybody help?
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