Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Need Help Deciphiring Results
0

11 posts in this topic

OK, I got the first test results back...I wasnt eating the recommended amount of gluten before testing because I didnt know anything about it, so I am going to be going for testing again later. However, is THIS set of testing, I was neg for celiac, BUT my Ige was way out of range. The reference was 87.0 and my Ige level was 320.0. What does this mean????? Thanks for anyone who can help me. I am really worried and OFCOURSE its the weekend and I cant call the doctor or anything.

Sabrina

0

Share this post


Link to post
Share on other sites


Ads by Google:

Elevated IgE indicates that you are having an allergic response to something. It could be something in the air, or something your eating, or a medication, etc.

It is a good idea to get together with your allergist next week and try to figure out what it is that is causing this allergic response so that you can avoid it in the future. As long as you are not having an anaphylactic response, then it is nothing to worry about. If however you start to have trouble I would get to an ER pretty quick.

I have elevated IgE everytime they test me. But then, I am mildly allergic to almost all pollens and such. I am severely allergic to alfalfa and house dust. Well, I live in a farming community, so there is alfalfa grown around here, and house dust is a little hard to avoid...I also react badly to the cotton when they are growing it here, although everyone keeps telling me that it is the defolients that cause the allergies, not the plant. I guess the chemicals they use cause a reaction from many people. All I know is that as soon as the cotton pops open aroung Sept/Oct until they harvest it in November I have horrible allergies!

As far as food goes, they only tested me for the top 8 allergens, and I am allergic to soy. I get severely itchy skin if I eat anything that contains the soy protein in it. I am okay with soy lecithin and soy bean oil, but I limit that anyhow, just to be sure.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Thanks, Mariann. I am just a nervous wreck about all the new "health problems" I have been having over the last 2 years. I just want to feel healthy again and I dont know what to do. It is so over whelming because I have a 21 month old and a 9 month old to take care of, and its so hard with all the problems Ive been having. It seems like I keep getting all these abnormal test results, and the doctors dont really explain things to me. Im wondering, since the allergist diagnosed me with idiopathic angioedema, if that could be whats causing the IgE level to be elevated. Its really scary to me..I hopefully will be able to get in to see him sometime next week, and I will post my findings.

Thanks again! Oh, I also remember that I was eating alot of maple syrup then, and EVERYTIME I ate real maple syrup after the first couple of times, I would get a huge headache and extremely foggy headed. Im assuming I am probably allergic to it. Isnt that awful?? I could eat the FAKE maple syrup, but apprantly the good stuff affects me. I am going to see if they can rast test me for maple syrup, though I have never heard of anyone being allergic to it.

Sabrina

0

Share this post


Link to post
Share on other sites

Oh by the way...could it be possible that it was the gluten causing the allergic response, but not enough of it in my system to cause a postive celiac blood test?

0

Share this post


Link to post
Share on other sites

IgE responses are classic allergies - usually described as watery eyes, itchy nose, etc. It is the immune response associated with histamine release in the body, and generally treated by antihistamines when appropriate. The celiac response does not use this immune pathway, it uses the IgG and IgA pathways instead. So, the two tests are not related, they check entirely different things. (You can't, for example, say anything about the brake fluid in your car based on the amount of gas in the gas tank.)

0

Share this post


Link to post
Share on other sites




OK, I see. Well, I guess I better get whatever is causing it under control. I am actually on 2 daily prescription antihistimines, so I dont understand why my IgE is so high...I am also going to be seeing an immunologist next month, so maybe he can help...Only a few days back on gluten and already I am more irritable, and extremely gassy!! Also already getting headaches again....oh how fun! Thanks for your help guys..

Sabrina

0

Share this post


Link to post
Share on other sites

Antihistamines won't change your IgE results - they simply "sop up" the excess histmaine in the blood. The histamine is released from mast cells when they are activated by IgE antibodies in the bloodstream. Antihistamines treat the symptoms, not the cause.

0

Share this post


Link to post
Share on other sites

Its just so aggravating because I dont know what could be causing it..and even more aggravating that the stupid doctors office didnt bother to call me and tell me about it, so I still may be consuming, or still may be around whatever is causing the allergic response. I had to CALL them and get them to mail me my results because I had not heard anything. UGH. I just cant wait to get all this under control. THanks for clarifying that for me

Sabrina

0

Share this post


Link to post
Share on other sites

I had an allrgic reaction to millet today. Even after the epipen by body came up with hives all over it (90 % even under my hair)

My IGE is in the 300s too. My Dr. wants to do the scratch test on me. I told him no because I have had the scratch test done before and it was H@@@.

Now, I don't think I have an option. The pin test, has anyone had this done?

0

Share this post


Link to post
Share on other sites

Hi everyone,

I've had really bad allergies over the last three years also. I've always had allergic rhinitis but after the birth of my child I started having anaphylatic reactions. I really feel for anyone who has gone through this because it's sooo scary. On my worse days I would have more than one reaction. I had the prick tests done on my back and ID's done on my arms. With the ID's that give you a small shot right under the skin. I actually thought the ID's were less painful than the prick tests. My daughter had the prick test on her back but another Dr. just had us do the RAST test to make sure that the prick test was accurate.

I started taking anti-IgE anti-body injections a year ago. The shot has helped me so much. We had to expierment with the dose because of side effets. The medicine hasn't been on the market very long and has a few questions about safety. I am also taking allergy shots for my inhalent allergies. I hope that I can go off the anit-IgE shots after I reach my full dosage of my allergy serum.

I hope you find the answers and get relief really soon!

0

Share this post


Link to post
Share on other sites

A member, Robert_the_Bruce tried to post, but used the report button, rather than the add reply button at the bottom of the page:

I have all the classic symptoms of Celiac, & went off Gluten for 2 weeks and felt amazing... I rang to make appt to confirm Celiac disease, and the doctor said I needed to be eating Gluten.  I went back on gluten for 1 week & had my test done, is this enough time as my results came back negative?  I was only off gluten for 2 weeks... can anybody help?
0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,116
    • Total Posts
      919,451
  • Topics

  • Posts

    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,155
    • Most Online
      1,763

    Newest Member
    AndiR
    Joined