Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Sleep and Celiac Disease
0

18 posts in this topic

I wanted to add to the topic of sleep and celiac disease.

I was diagnosed with celiac disease in 1982 after being extremely thin for 38 years. To be diagnosed I ended up in the hospital for 40 days and finally they did exploratory surgery, found the intestine was covered in ulcers, and put me on a gluten free diet.

As for the problem with the legs and sleepiness, I have both. I tested for sleep apnea because I would find myself holding my breath and would have to tell myself to breathe. The doctor said that I did not have apnea because I stopped breathing 6 times an hour and not the 10 required. He has prescribed ritilin for the daytime sleepiness. It has helped but when it stops working I have to go off the ritilin for 2 weeks and can then go back on the ritilin. He told me that he never diagnoses narcolepsy which is what I think that I have. Maybe because of the problems encountered with the diagnosis.

I sleep at least 8 hours a night because I have fibromyalgia and restless leg. I have been taking amitriptyline for over 20 years and that helps the fibromyalgia. Then I was diagnosed with the restless leg. I take clonopin at night for rls. I tried to cut the amount of amitriptyline in half but found I was waking up at night so I had to go back to the full dose again.

If I sleep during the day my legs, arms or trunk of my body have twitched (?) at one time or another.

I have many other medical problems also. Does someone know of a study being done on all of the health issues of celiacs? I would love to find out more about why I have all of the health issues that I have.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi! I see this was your first post. Welcome! :)

I don't know of any studies currently going on for Celiac disease, but that does not mean that there aren't any. You may want to Google the idea and see what comes up. Also, you may be able to ask your gastro. if s/he knows of anything.

I understand your frustration with wanting to know if all of your health problems are inter-related. Wanting answers and to be healthy is very reasonable. I'm in a similar place with my health too.

Good luck to you! -Julie B)

0

Share this post


Link to post
Share on other sites

Have you had your iron levels tested? RLS is commonly associated with iron deficiency - which also affects a lot of people with celiac disease. Be sure to have this checked if you haven't done so already.

Another suggestion I have is to consider magnesium supplementation. Magnesium prevents muscle spasms and it also helpful/necessary to get adequate sleep. It has a fabulous calming effect. If you need help sleeping at night - you might try soaking a hot bath with epsom salts before you get into bed. The epsom salts will increase your magnesium levels and the hot bath will help to prepare your body for sleep.

Here is a good article on Restless Leg Syndrome:

http://www.Lame Advertisement/p/articles/mi_...201247#continue

Working in a health food store for years, I talked to a lot of people with problems sleeping. Magnesium was helpful for many of them. If you aren't getting 600 mg/day - you might think about trying to get that amount.*

Good luck!

- Michelle :wub:

*These statements have not been evaluated by the Food and Drug Administration :P

0

Share this post


Link to post
Share on other sites

I have the FMS as well. I know that there are currently some studies with that but not directly related to the celiac disease. Be sure to check your version of klonopin if it is generic. Not all are gluten-free. If the klonopin starts failing you, see if your doc will consider gabitril. It has helped a lot with the spasticity. I also take mag sulfate shots at night before bed and they help a lot with the RLS. An oral calcium magnesium supplement may help, but not if you are having a problem with malabsorption through the digestive tract.

If you are struggling to breathe at night, try sleeping on your side. Use a tennis ball sewn into the back of a shirt or a fluffy pillow to keep you from turning over once asleep. These suggestions were given to us for my spouse who has sleep apnea and tries hard not to use that blasted CPAP machine. I lay awake at night nudging him when he stops breathing. I don't have to if he uses the machine or sleeps on his side.

0

Share this post


Link to post
Share on other sites

To check for any studies being done go to clinicaltrials.gov. If it's being done, they'll list it. But last time I checked they weren't doing any celiac related studies.

0

Share this post


Link to post
Share on other sites




I wanted to add to the topic of sleep and celiac disease. 

I was diagnosed with celiac disease in 1982 after being extremely thin for 38 years.  To be diagnosed I ended up in the hospital for 40 days and finally they did exploratory surgery, found the intestine was covered in ulcers, and put me on a gluten free diet.

As for the problem with the legs and sleepiness, I have both.  I tested for sleep apnea because I would find myself holding my breath and would have to tell myself to breathe.  The doctor said that I did not have apnea because I stopped breathing 6 times an hour and not the 10 required.  He has prescribed ritilin for the daytime sleepiness.  It has helped but when it stops working I have to go off the ritilin for 2 weeks and can then go back on the ritilin.  He told me that he never diagnoses narcolepsy which is what I think that I have.  Maybe because of the problems encountered with the diagnosis.

I sleep at least 8 hours a night because I have fibromyalgia and restless leg.  I have been taking amitriptyline for over 20 years and that helps the fibromyalgia.  Then I was diagnosed with the restless leg.  I take clonopin at night for rls.  I tried to cut the amount of amitriptyline in half but found I was waking up at night so I had to go back to the full dose again. 

If I sleep during the day my legs, arms or trunk of my body have twitched (?) at one time or another. 

I have many other medical problems also.  Does someone know of a study being done on all of the health issues of celiacs?  I would love to find out more about why I have all of the health issues that I have.

<{POST_SNAPBACK}>

I was diagnosed with a "mild" case of narcolepsy in 1981. I spent the night at a sleep disorders center because I was always falling asleep at work, and my PCP had an EEG(?) done which indicated further testing was needed. I was on Ritalin for a short time after that but I did not like the way it made me feel, so I discontinued it.

Over the years I too suffered from a lot of pain that no doctor could explain. They kept telling my what it wasn't but they would never tell me what it was. My back, neck, wrists, hips, etc.... I was going to the massage therapist 3 times a week. I walked with a limp, sometimes I couldn't even turn my head. I finally found a good chiropractor that has reduced a great deal of that pain and I no longer limp. And they have had me try numerous antacids over the years for my stomach. Recently (within the past few years I was told I may have IBS). I also suffer from migraines, depression/anxiety, and restless leg syndrome. Did I mention I have asthma? :rolleyes:

I know how you feel! It all has to be related somehow.

Shortly after going gluten-free in May I was surprised when my hip and shoulder pain that had been bothering me disappeared! I'm hoping that eventually there will be a positive effect on my migraines (no more please!) and I would love to get off of the antidepressants! :)

Maureen

0

Share this post


Link to post
Share on other sites
Shortly after going gluten-free in May I was surprised when my hip and shoulder pain that had been bothering me disappeared!  I'm hoping that eventually there will be a positive effect on my migraines (no more please!) and I would love to get off of the antidepressants! :)

Maureen

<{POST_SNAPBACK}>

I had severe depression since the age of 13, and the gluten-free diet and treating my hypothyroidism took it away completely. So, there is hope that yours will end as well.

0

Share this post


Link to post
Share on other sites
I had severe depression since the age of 13, and the gluten-free diet and treating my hypothyroidism took it away completely.  So, there is hope that yours will end as well.

<{POST_SNAPBACK}>

That would be wonderful! I would love to be depression-free, although it's kind of a scary thought, I've had it for so long, I'm not sure I'd know what to do without it.! :D

0

Share this post


Link to post
Share on other sites

Does anyone know if celiac disease may lead to a higher incidence of foot cramps at night?

0

Share this post


Link to post
Share on other sites

I think I heard something about restless leg syndrome being related to Celiac. I've been having a problem staying asleep lately. I'll wake up at the slightest noise. I wonder if there's a vitamin that could help with this?

0

Share this post


Link to post
Share on other sites

I take Valerian before bed to stop my RLS, but I when I was exercizing and taking my calcium/magnesium supplement I did not need it as often. I have to get back to that...

0

Share this post


Link to post
Share on other sites

I've had a similar experience with sleep and doctors, etc. Last year I was tested for sleep apnea - the results were positive (held my breath for over a minute a couple of times), but they were more concerned because I was waking up something like 240 times in the night (not fully conscious- they were arousals, ie. coming out of deep sleep). I was so excited to finally know what was wrong with me. I'd been seeing doctors for fatigue since I was 15 and they never found anything. I moved soon after that, and had to have another sleep test so that could fit the breathing aparatus, or set the levels. The next sleep test said I didn't have sleep apnea (didn't reach the 10 episodes a night thing). The doctor decided to test me for narcolepsy, so I had another 24 hour sleep test and those came out negative too. So they sent me to a psychiatrist, who wanted to put me on a ton of medication. I said no way - went to see a nutritionist and she helped my figure out that I have celiac disease. Since being gluten-free I've slept better, and feel better during the day, but still wake up knowing that I haven't been breathing. I lost all my faith in doctors after that. Anyway, that's my story with sleep disorders. I wouldn't be surprised if there's a tie between celiac disease and narcoleptic/sleep apneaic symptoms.

Hope you're feeling better!

Mariah

0

Share this post


Link to post
Share on other sites

I feel it's obvious that there is absolutley a relationship between sleep distrubances and Celiacs. We know without a doubt that having celiac disease can and will affect the brain and central nervous system. Having Periferal Neuropothy, fibromyalgia, and restless leg syndrom are all connected to the central nervous system. It's all about nerve damage really. And that, in the celiacs case, comes from malnutrition. Lack of folic acid, B-vitamins, calcium, magnesium and potassium. Depression can also cause sleep disturbances and depression can be linked to malnutrition, as well as bi-polar disorder, ADHD, ADD, brain fog, confusion and even schitsophrenia, (SP).

I suffered terribly from sleeplessness, getting as little as 1 or 2 hours of sleep a night. I would toss and turn with excrutiating leg, back and bone pain. I would wake up constantly from cramps, muscle twitching, and charlie horses. When I was diagnosed a celiac and went gluten-free, my stomache problems went away immediatley, but the rest has taken a while. It took about a year or so but the Periferal neuropothy is basically gone. I only feel it again if I have been accidentally glutened, but it's much less. The RLS is pretty well gone too. No more charlie horses and twitching. The fibro is better. I take sublingual B-and folic acid vitamins, eat as much organic as possible, (pesticides can cause sweling of the tissues making you feel more painful) and excersise 3 or 4 times a week.

Hypothyroid is connected to celiacs, and depression also. I was slightly Hypo but my levels went up quite a bit when I went gluten-free.

Something noone has mentioned is to try takeing Omega 3 fallty acids. (fish oil) They help with every system in the body, joint pain, (some studies show it to actually reverse Reumatoid arthritis, and regular arthrits,) heart, cholesterol levels, and definatley help with depression. (even make your skin nicer and your hair shinier) Good Stuff.

Wendy

0

Share this post


Link to post
Share on other sites
I wanted to add to the topic of sleep and celiac disease. 

I was diagnosed with celiac disease in 1982 after being extremely thin for 38 years.  To be diagnosed I ended up in the hospital for 40 days and finally they did exploratory surgery, found the intestine was covered in ulcers, and put me on a gluten free diet.

As for the problem with the legs and sleepiness, I have both.  I tested for sleep apnea because I would find myself holding my breath and would have to tell myself to breathe.  The doctor said that I did not have apnea because I stopped breathing 6 times an hour and not the 10 required.  He has prescribed ritilin for the daytime sleepiness.  It has helped but when it stops working I have to go off the ritilin for 2 weeks and can then go back on the ritilin.  He told me that he never diagnoses narcolepsy which is what I think that I have.  Maybe because of the problems encountered with the diagnosis.

I sleep at least 8 hours a night because I have fibromyalgia and restless leg.  I have been taking amitriptyline for over 20 years and that helps the fibromyalgia.  Then I was diagnosed with the restless leg.  I take clonopin at night for rls.  I tried to cut the amount of amitriptyline in half but found I was waking up at night so I had to go back to the full dose again. 

If I sleep during the day my legs, arms or trunk of my body have twitched (?) at one time or another. 

I have many other medical problems also.  Does someone know of a study being done on all of the health issues of celiacs?  I would love to find out more about why I have all of the health issues that I have.

<{POST_SNAPBACK}>

what do you mean by rest less leg?

0

Share this post


Link to post
Share on other sites

I would like to add that the muscle and joint pains can come from reaction to the deadly nightshade family of plants which include potatoes, tomatos, peppers and eggplants. I had terrible pains in the night which awakened me at 3:00 am so so and when I eliminated these items from my diet I began to be free from those pains and able to sleep more normally. This is documented and may be researched on the web by looking up arthritis information via google or other search engines. The potato flour is often used as a substitute in many glutein free foods so you have to work reallly hard to get this out of the diet. This is a real kick in the head for me as these are some of my favorite foods and I really wasn't ready to give them up.

But I was plenty ready to give up that pain. I was so sleep deprived I was ready to go nuts. It was affecting my health.

Secondly, I was taking specially compounded hormones which were applied as a cream and consulted the pharmacist and she said to be sure to apply them above the waist as they would be much more effective and would work more correctly, not make me sleeply during the day, help me sleep at night if I applied them in the evening and above the waist.

She also advised me to have a very light snack before bedtime to make sure I was not getting hungry which would make me wake up. Bead lady

0

Share this post


Link to post
Share on other sites

I always was woken up in the middle of the night with leg cramps and having to go to the bathroom minimum every half hour. Now since I have been gluten-free for two weeks, I have not had leg cramps and I have maybe got up twice at the very most during the night to go to the bathroom.

0

Share this post


Link to post
Share on other sites

I have always slept lightly waking up once a night, but this year, my sleep has become worse and worse. this coincides with my other symptoms increasing and I've just had positive blood results for celiac disease. I'm looking forward to after the biopsy, so I can go gluten-free - really hoping to have the sleep transformation that so many others here are experiencing. Will keep you posted!

0

Share this post


Link to post
Share on other sites
Does anyone know if celiac disease may lead to a higher incidence of foot cramps at night?

I've only been diagnosed with celiac disease since July '05; however, my nutritionist told me that the foot cramps, "charley horses", if you will, were a result of calcium deficiency, possibly a result of the whole digestive "mess" that is Celiac Disease. She put me on 1500 mg of calcium per day, and the cramps are much less frequent. Ask your doctor or nutritionist about calcium. Couldn't hurt!!! By the way, she also told me to take B6, B Complex, magnesium, zinc, and I get monthly B12 shots. Lots of luck. Sybyl

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,688
    • Total Posts
      921,755
  • Topics

  • Posts

    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
    • Hi everyone, I am doing job in restaurant at evening 5 to 12 during working hours no time to do a dinner. I'm thinking to make a shake but don't know the gluten free vitamin or supplement brand which one is good for me and easily available in Berlin Germany to make me fit cause last one week i feel weak. I'm 28 year old. Sincerely
    • Hey there just wanted to warn anyone that has other allergies- these crackers may not be a good choice! I'm mildly sensitive to MSG- I only react if there's a giant amount like in Chinese food or Ramen noodles, etc.  I literally have a to eat TONS of a the offending food before reacting.  Anyway, I was excited to try these Trader Joes pumpkin crackers, kept hearing about them on the radio .... and they're gluten free!  (I have Hashi's).  I ate about 3/4 of the box last night. Woke up this morning with a red itchy face and nasal congestion, headache, anxiety. Hallmark symptoms for me of high MSG intake. (It does say yeast extract on the side but it's pretty far down the list). So if you're sensitive.... stay away! Apparently these particular crackers are loaded with it. 
    • I admit, my blood panel was "mildly positive" with only the DPG IGA being the positive, yet I had a Marsh Stage IIIB (pathologist report) though my visual on the endoscopy was fine.  celiac disease can be hard to diagnose, that is for sure.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,689
    • Most Online
      3,093

    Newest Member
    Kelly Calcagno
    Joined