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Doctor In Oklahoma City?
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13 posts in this topic

I had a Celiac Sprue test done by my GI doctor and he said it came back negative. He said it's IBS but I don't think so. I've been in constant pain for two months now. I have lyme disease and many lyme patients are gluten intolerant.

Is this test 100% accurate?

Anyone know of a good GI doctor (or any doctor) in OKC that knows about Celiac disease?

Thanks!

Gary

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I had a Celiac Sprue test done by my GI doctor and he said it came back negative. He said it's IBS but I don't think so. I've been in constant pain for two months now. I have lyme disease and many lyme patients are gluten intolerant.

Is this test 100% accurate?

Anyone know of a good GI doctor (or any doctor) in OKC that knows about Celiac disease?

Thanks!

Gary

Hi Gary! I'm from Norman so it is nice to see others from Oklahoma. I am new to this as well I wish I could be of more help with doctors and such but I did want to say hi.

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I had a Celiac Sprue test done by my GI doctor and he said it came back negative. He said it's IBS but I don't think so. I've been in constant pain for two months now. I have lyme disease and many lyme patients are gluten intolerant.

Is this test 100% accurate?

Anyone know of a good GI doctor (or any doctor) in OKC that knows about Celiac disease?

Thanks!

Gary

Hi Gary Im from okc too, im only 3 weeks in to gluten free, i went to the dds they also told me it was ibs, they pretty much blew me off, ilm on the same mission right now trying to find a doc...good luck ill let u know if i find someone

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Hi Gary Im from okc too, im only 3 weeks in to gluten free, i went to the dds they also told me it was ibs, they pretty much blew me off, ilm on the same mission right now trying to find a doc...good luck ill let u know if i find someone

I am from a small rural town south of okc, and I am looking for a good doctor knowledgable about celiac. I visited by family doctor today and got nowhere. Have you been successful in your search for a good doctor in OK?

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I had a Celiac Sprue test done by my GI doctor and he said it came back negative. He said it's IBS but I don't think so. I've been in constant pain for two months now. I have lyme disease and many lyme patients are gluten intolerant.

Is this test 100% accurate?

Anyone know of a good GI doctor (or any doctor) in OKC that knows about Celiac disease?

Thanks!

Gary

I am also looking for a good dr in the central OK area. My GI doctor did a biopsy suspecting Chron's but it came back with Celiac. My blood test was negative, and from what I have read there is a change of negative blood tests and if Celiac is still suspected then they should do a biopsy. However you should talk to your dr to see if you chould be gluten free or if you need to still consume gluten in order to get accurate test results.

While my dr seem to be pretty good and diagonising, I am having issues with communication. His nurse called to tell me that biopsy showed Celiac, didnt give me any other information and that was it. I dont see the dr until Sept 15, so I am a little upset that I have to naviagte this on my own for now.

Good luck to you all!

Alysia

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I am also looking for a good dr in the central OK area. My GI doctor did a biopsy suspecting Chron's but it came back with Celiac. My blood test was negative, and from what I have read there is a change of negative blood tests and if Celiac is still suspected then they should do a biopsy. However you should talk to your dr to see if you chould be gluten free or if you need to still consume gluten in order to get accurate test results.

While my dr seem to be pretty good and diagonising, I am having issues with communication. His nurse called to tell me that biopsy showed Celiac, didnt give me any other information and that was it. I dont see the dr until Sept 15, so I am a little upset that I have to naviagte this on my own for now.

Good luck to you all!

Alysia

did you every find anyone? and who was your dr? that sounds about like our experience. i'd really like to be able to find someone who is knowledgeable on this to help us navigate this!

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I'm in same boat in Norman! I wonder how many of us there are.

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There has to be a physician somewhere on the OKC area familiar with celiac disease / gluten intolerance and nutritional issues related to these disease processes. I am 49 and have had severe problems off and on depending on my diet. I've been gluten free for over 6 months and all the gross symptoms have resolved. However I continue with the others such as chronic fatigue and have been basically blown off with go see a psychiatrist for depression or it's IBS deal with it. The funny is I'm a psychiatric professional lol! Let me know if anyone has luck finding a physician!

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I'm in same boat in Norman! I wonder how many of us there are.

I'm from norman also. And like many of you dealing with this on my own so far. I have yet to find a dr other than my dentist willing to listen to my concerns. I am preparing to go Gluten-Free but was hoping for some validation before doing so. Although, I am hoping that my GYN will listen even though this is not their specialty but this disease does affect fertility, hormones, cysts etc...so I am hoping he will listen and order the tests. It is good to see others here in the same area that I am in!

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I am in Edmond. Looking for a doctor for our daughter, 8 years. So far we have seen our family doc, allergist, and a pediatrician recommended by a celiac friend. So confused by her symptoms that seem to be celiac after doing my own research, but docs say no (she should have diarrhea not constipation; thin not weight gain). If anyone finds a good doc in OKC please post!

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Hey guys, just a thought. I am in NYS but I saw this thread and I know if you call the nearest Celiac Support Group and ask them--they usually have a good celiac-savvy GI doc on their advisory board.

this info may be outdated (I found it here on c.com) but there may be forwarding info.

Oklahoma

Norman - Resource

Contact: Kate Martin

Norman, OK

Tel: (405)364-5612

email: one4life@swbell.net

Internet: http://katesceliac.blogspot.com

Oklahoma City - Support Group

Contact: Heather Cline

Oklahoma Celiac Sprue Support Group (CSA)

1403 Classen Drive, Oklahoma City, OK 73106

Tel: (405) 235-1715

E-mail: HMCline@aol.com

Internet: http://www.OKceliac.com

Hope this helps!

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I am in Edmond. Looking for a doctor for our daughter, 8 years. So far we have seen our family doc, allergist, and a pediatrician recommended by a celiac friend. So confused by her symptoms that seem to be celiac after doing my own research, but docs say no (she should have diarrhea not constipation; thin not weight gain). If anyone finds a good doc in OKC please post!

Did you ever find a doctor? I live in Edmond as well and by process of elimination found Dr. Susan Redwine. She is so savvy in regards to Celiac. Literally changed our lives. My kids are 8 and 6 and both have celiac

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We live in Oklahoma.  A couple years ago, we discovered Faye Elahi, a nutritionist located in Plano, Texas that is an authority on gut issues.  After an affordable phone consultation with Faye, we received testing kits through the mail.  UPS returned the kits and specimens to Enterolab in Dallas, Texas.  Within days, we were positively diagnosed for having gluten sensitivity and other food allergies. (We received a copy of our test results via email.)  We also learned, due to the food allergies, that we were very malnourished.  After adjusting our diets (it isn't as difficult as we first thought), and taking various supplements, we feel like different people.  

 

Faye has a couple websites that may enlighten you:  www.specialneedsnutrition.com and www.glutenfreenutritionforlife.com.  She also has an informative book that may be purchased from Amazon.com.  It's titled: Ready, Set, Eat!  Gluten-Free Nutrition Basics.  Enterolab also has an informative website at:  www.enterolab.com.   Read the Testimonials.  

 

We learned that stool testing is the most reliable type of test.  Enterolab sends the kit and the discrete return packaging directly to your home.  It is best to consult a nutritionist, such as Faye Elahi, for ordering the appropriate test and for interpreting the test results.  By the way, some insurance companies recently started covering part of these tests!!  Yippee!!  

 

I can't express how thankful we are to have found a nutritionist (Faye Elahi) that has had similar dietary issues as ours.   Not only is she knowledgeable, but she is very kind.  I'm confident she may have saved our lives.   

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    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
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