Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Gluten Free=malt Free? How Do I Find Malt In Ingredients? Frustrated And Confused!


confused1

Recommended Posts

confused1 Newbie

So I was experiencing symptoms that I suspected to be related to celiacs (never been tested for it), just had an allergy test done today and tested positive for MALT allergy but negative for WHEAT allergy... I cant find anything on malt allergies, food lists, ingredient names and hidden ingredients. My question is do I just go on a gluten free diet to go malt free, are there foods that are malt free that arent gluten free? I have no idea what I should/shouldnt eat unless it clearly lists malt on the ingredients.....ANY HELP WOULD BE GREATLY APPRECIATED!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Barley malt is the problem for Celiacs.

Link to comment
Share on other sites
woodnewt Rookie

Were you actually tested for celiac disease or just wheat allergy?

Although a person with celiac can be allergic to wheat/barley, etc, celiac disease is NOT an allergy.

Link to comment
Share on other sites
confused1 Newbie

i was given 26 injections for different food allergens, one of which was wheat which was negative, and malt which was positive. I have been eating a strict gluten free diet for the past 3-4 months just as my own experiment. I was having constant constipation, bloating, belching, hearthburn, abdominal pains/discomfort. Even after eating gluten free i am still experiencing some but not all of these problems. My confusion is that some gluten-free foods contain corn malt, so I am assuming that some gluten-free foods are not malt free? I have searched endlessly for some info on this and have come up empty handed. I just need to know what to look for that indicates malt in an ingredient, and also if something contains wheat does that automatically indicate it contains malt. The doctors office provided me with a VERY vague description of malt, i will type it word-for-word so you will see where my confusion comes from:

FOODS THAT CONTAIN MALT:

All baked goods, bread, pancake and waffle mixes, biscuit mixes, soda crackers, confections, wheat flour, ice cream, candy, cake, baby cereals, malted milk, infant formulas, cooked breakfast cereal, dry breakfast cereal, potato chips, powdered milk, table syrup, malt extract, malt syrup, malt vinegar, soda fountain drinks, coffee substitutes, coffee and tea.

That was the information they provided me with and my instructions were to eliminate malt from my diet. So I went to my cupboard and pulled out some dry breakfast cereal expecting to see some sort of "malt" listed in ingredients, only to find nothing that came close to that. Pulled out my potato chips, same thing. Maybe someone can help me decipher these ingredients or give me some sort of a lead to someone or somewhere I can find out. Thanks for your replies and any help you can give me, it is VERY appreciated.

Link to comment
Share on other sites
confused1 Newbie

Forgot to add, I was not and have not been tested for celiacs.

Link to comment
Share on other sites
psawyer Proficient

First, your list of foods that "contain malt" should be foods that might possibly contain malt, which might be from barley. When we talk about malt here, we are usually referring to malted barley.

Barley malt is commonly used as a sweetener, but it is almost always declared in the ingredient list as malt flavor. Look for malt extract as well. But certainly not all of the foods on your list contain malt.

Most of us here are sensitive to wheat. There are many foods that contain wheat, but do not contain barley. Are you sure that malt is your problem and not gluten in general?

Link to comment
Share on other sites
GFinDC Veteran

Hi confused,

I think Peter has it right, the list of doc's foods may contain barley malt, not that all of those foods absolutely do contain barley malt.

It sounds like they did the skin testing for your allergies? That's where they put just a small amount of the allergen right under the skin to test for reactions. I don't think the skin tests will tell you about food intolerances. For celiac they would draw blood samples and send them to a lab to check for antibodies. Some people do have both a food allergy and a food intolerance though.

For celiacs wheat, rye and barley are the main food intolerances. You could ask your doctor for a celiac panel test. There are 4 or so different antibodie types they check. You need to stay on a regular gluten diet until the blood is drawn though. Quest labs and Prometheus Labs do blood tests, and Enterolab does a stool test. There are other labs that do testing these are just some I remember.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 years later...
Dollee Newbie

I was diagnosed with malt, whole grain and egg allergies about 5 months ago. I have no wheat allergy. I have suffered from most of the same "tummy" troubles as you for several years.  I have found that gluten free does Not mean malt free. Malt is hidden in foods under several names. my experience has been that the more processed a food is, the more ingredients it has and usually malt. i stick to fresh made foods, lots of fruit and veggies. I understand your frustration, it seems like malt shows up in places where it doesn't  need to be.

below is a list of names for malt. I hope it helps you

 

 

 

Malt

Malted barley (or corn, etc)

Malt Flavoring

Malt Extract

Malt Vinegar

Maltodextrin

Maltose

Malt Syrup

Ethyl Maltitol

Isomalt

Hydrogenated isomaltitol

Isomaltitol Maltitol

Maltol

Malt Sugar

 

Link to comment
Share on other sites
Dollee Newbie

oh i also forgot that many snack foods that are flavored usually have malt i.e. bbq potatochips and the like. 

i have found a couple of organic soups and breakfast cereals that are malt-free, so look for foods in that direction. bread is troublesome

good luck. 

Link to comment
Share on other sites
kareng Grand Master

I was diagnosed with malt, whole grain and egg allergies about 5 months ago. I have no wheat allergy. I have suffered from most of the same "tummy" troubles as you for several years. I have found that gluten free does Not mean malt free. Malt is hidden in foods under several names. my experience has been that the more processed a food is, the more ingredients it has and usually malt. i stick to fresh made foods, lots of fruit and veggies. I understand your frustration, it seems like malt shows up in places where it doesn't need to be.

below is a list of names for malt. I hope it helps you

Malt

Malted barley (or corn, etc)

Malt Flavoring

Malt Extract

Malt Vinegar

Maltodextrin

Maltose

Malt Syrup

Ethyl Maltitol

Isomalt

Hydrogenated isomaltitol

Isomaltitol Maltitol

Maltol

Malt Sugar

Actually, many of these do not contain barley malt. Just because it has the four letters MALT in it does not mean it has barley in it.

These do not have barley malt in them:

Maltitol in all the ways you listed it

Maltodextrin

Maltol

Isomalt

Just to add - "Gluten Free" should and does mean barley malt free. "Wheat free" does not mean barley malt free. But a "wheat free" product might not have malt or any other gluten in it.

Link to comment
Share on other sites
psawyer Proficient

I was diagnosed with malt, whole grain and egg allergies about 5 months ago. I have no wheat allergy. I have suffered from most of the same "tummy" troubles as you for several years.  I have found that gluten free does Not mean malt free. Malt is hidden in foods under several names. my experience has been that the more processed a food is, the more ingredients it has and usually malt. i stick to fresh made foods, lots of fruit and veggies. I understand your frustration, it seems like malt shows up in places where it doesn't  need to be.

below is a list of names for malt. I hope it helps you

 

 

 

Malt

Malted barley (or corn, etc)

Malt Flavoring

Malt Extract

Malt Vinegar

Maltodextrin

Maltose

Malt Syrup

Ethyl Maltitol

Isomalt

Hydrogenated isomaltitol

Isomaltitol Maltitol

Maltol

Malt Sugar

Well, that list is not accurate. Some, but not all, of those ingredients are an issue. Some of them are safe. I'm guessing somebody who did not really understand the question listed everything they could imagine that contained the letters m-a-l-t and assumed that they were malt. That just isn't so. I'll respond to each thing on your list:

Malt - Unsafe (assume barley unless stated otherwise)

Malted barley (or corn, etc) - Unsafe if barley, Safe if corn or rice

Malt Flavoring - Unsafe (assume barley unless stated otherwise)

Malt Extract - Unsafe (assume barley unless stated otherwise)

Malt Vinegar - Unsafe

Maltodextrin - Safe, regardless of source

Maltose - A sugar - Safe

Malt Syrup - Unsafe (assume barley unless stated otherwise)

Ethyl Maltitol - A synthetic, gluten-free flavoring agent, also known as Maltitol

Isomalt - Safe - A sugar replacement made from beets

Hydrogenated isomaltitol - Safe - see Ethyl Maltitol above

Isomaltitol Maltitol - Safe - see Ethyl Maltitol above

Maltol - Safe - A synthetic, gluten-free flavoring agent, similar to Maltitol

Malt Sugar - Another name for maltose, a safe ingredient

I took a long time to compose this...

Link to comment
Share on other sites
Kamma Explorer

I was diagnosed with malt, whole grain and egg allergies about 5 months ago. I have no wheat allergy. I have suffered from most of the same "tummy" troubles as you for several years.  I have found that gluten free does Not mean malt free. Malt is hidden in foods under several names. my experience has been that the more processed a food is, the more ingredients it has and usually malt. i stick to fresh made foods, lots of fruit and veggies. I understand your frustration, it seems like malt shows up in places where it doesn't  need to be.

below is a list of names for malt. I hope it helps you

 

 

 

Malt

Malted barley (or corn, etc)

Malt Flavoring

Malt Extract

Malt Vinegar

Maltodextrin

Maltose

Malt Syrup

Ethyl Maltitol

Isomalt

Hydrogenated isomaltitol

Isomaltitol Maltitol

Maltol

Malt Sugar

 

 

That's interesting, Dollee.  If I'm understanding you correctly, you're allergy is based on the malting process in which enzymes develop the starches into sugars no matter what the source material is. 

Link to comment
Share on other sites
  • 4 weeks later...
jmryan83 Rookie

I'm still learning about all the different hidden meanings in reading food labels. So I don't have any more information to add, except if you try something (because your not sure, and think it's OK) and you have a reaction, you'll have an answer.

 

I suspect I have either Celiac or gluten sensitivity. I've been gluten free for a week and it's been going GREAT. I made a mistake though and ate a Kellog Rice Crispie treat today though and I didn't see "wheat" listed, I missed the "malt flavoring". I got a terrible attack. It took hours to get over it. So now I know, hard lesson, but well learned.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - BluegrassCeliac replied to lasthope2024's topic in Food Intolerance & Leaky Gut
      7

      This forum might be the last hope I have in my life. Please I beg you

    2. - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    3. - Nacina posted a topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    4. - trents replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    5. - Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,067
    • Most Online (within 30 mins)
      7,748

    myneckmybackmyceliac
    Newest Member
    myneckmybackmyceliac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
    • trents
      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
×
×
  • Create New...