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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Folgers Coffee - Can This Be Possible ?!?!?!?!?
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10 posts in this topic

I'm on vacation in Az and it has not been good - I had 4 days of wicked nausea & lots of D, esp. first thing in the morning. We went away to Vegas for a few days & I recovered. Well, now we're back @ relatives in Az and I'm sick again. Thing is, I haven't eaten anything yet this morning but I had two cups of coffee (as is my usual routine)...my intestinal tract is now emtpy :rolleyes: and I am fighting nausea. I felt fine when I got up.

So I googled Folgers and gluten and it comes up as gluten-free but my gut says otherwise. However, how can plain ol' coffee have gluten ?

I felt fine last night - absolutely no nausea.

Am I doomed ? We have 5 more days here...I will buy a different coffee for tomorrow, maybe even instant. I dunno. I'm at that point where I just want to cry - I thought I was over this mess but it's back. I'm so tired and had to take some pepto for a couple of those days...helped a little (and lots of tylenol).

Any help is so greatfully appreciated !

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Ads by Google:

not preggers.......?

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Possible cross contamination?

I will have to buy a new coffee maker before I can make coffee again. I'm guessing my coffee maker got contaminated sitting out on a counter top close to flour, bread, etc. Also, the basket for the coffee filter got washed with other dishes so most likely that is cc also. I'm just doing without coffee now.

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We drink Folgers coffee, it's gluten free. But, just a thought, does their coffee/breakfast area include a toaster and bread crumbs? Are the coffee cups, creamer, sugar et. kept near the toaster?

While buying fresh coffee maybe little packets of anything you put in it would be a good idea.

I drink mine black, in my own special cup, that no one else is allowed to touch.

Oh yeah, if your mother-in-law has used her coffee maker for a flavored coffee the machine may be glutened.

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my thought was also the kitchen counters, etc. I wipe mine down alot as hubby and son are not gluten-free and the toaster and counters are often in use making sandwiches, etc. The flavored coffee idea is a good one also. And if cleaning the coffee pot doesn't include a good hot dishwasher, perhaps things such as wash rags with bread crumbs and such would be involved. So sorry you are so sick!!

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:huh: I think I may have figured it out...

Lucerne brand fat free half and half

????

It has natural flavors in it & is not on the Safeway gluten free list (only the regular half & half is). Have you seen the ingredients in this ?

Anyone know ?

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You're right, it's not on their gluten-free list, so I wouldn't trust it further than I could throw it, which isn't far. ;)

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I would suggest you call the company that makes the product instead of guessing.

richard

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I was okay with Folgers for a several months, but then I got a bad can...nausiated right after and dizzy. Same with walmart's brand but newer package, coffee,(the old was fine), Shurfine dark roast really bad reaction right away, most recently Cafe Bustelo. Off my list before I knew I had celiac's was Maxwell house, 8-oclock beans and ground red package, and most green mountain beans...also flavored coffee..I thought with flavored I was having a chemical poisoning!!! I'm pretty sure it is the brand of coffee, not coffee itself--this last time I did a pretty extensive elimination, including coffee. As soon as I had a cup...I got sick all over again.

I get the same kind of reaction as if I had gluten...except not as bad GI. I get stomach growling, brainfog (bad), bone pain, morning stuffiness, morning lethargic, cold limbs, acne break out, intense scalp itch. I just bought plain organic beans...so freaked out over this I actually rinsed them before grinding...no reaction so far...it's been 2 days.

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this thread is 2 years old. Might be more recent info. Most coffee doesn't but it can be hard on your stomach.

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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