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Anyone Recover From Chronic Insomnia After Going gluten-free?


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72 replies to this topic

#1 carrieanna76

 
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Posted 30 December 2009 - 01:10 PM

hi, i'm new to the forum. i was recently diagnosed with gluten sensitivity and i have been gluten free for about three weeks now. i discovered i was gluten sensitive after going to my naturopath for chronic insomnia, which i've had for the past seven years. as of now, i can see no improvement in my sleep and am worried that gluten is not the cause of my insomnia...
so i'm just wondering if any of you suffered from chronic insomnia before going gluten-free, if going gluten-free cured the insomnia and if so, how long did it take after going gluten-free before you got sleep?

thanks so much! i've really enjoyed this site and look forward to hearing from other gluten intolerants.

carrie
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#2 Tigercat17

 
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Posted 30 December 2009 - 03:13 PM

Hi Carrie,

I've had trouble sleeping for years, too. I thought it was just me. I never took any medication for it, but I was tempted sometimes. It wasn't everyday, but at least three times a week. I would go to work a lot with no sleep at all & feel horrible. I also felt a lot of anxiety & brain fog. Now that I've been gluten free for four months. I think it took about a month or more for my insomnia to go away & then I started sleeping so good & I felt so calm. It was wonderful. Then I was getting glutened again two weeks ago & now , of course, along with all the other GI symptoms, I'm having trouble sleeping again. I think it is getting better, but it just takes a while for the body to recover from the gluten. Just make sure you're on a very strict gluten free diet & recheck everything you're taking -vitamins, medication, hand & face lotion. I realized I was getting glutened from my synthriod medication. It was driving me crazy. It was the last item I thought of & as soon as my doctor changed my medicine I started to feel better. But I still having some brain fog & having a hard time falling to sleep. I do listen to soft music & meditation celiac disease's (BelleRuth Naparstek) right before I go to sleep & that does help me a lot. If you think a mediation celiac disease would help you, you might want to try it. You can buy them on (Company Name Removed - They Spammed This Forum and are Banned). I have a few of her celiac disease''s & they helped it really helps me to relax.- not trying to sell you anything, just trying to help. :)

Hang in there. It'll get better soon.
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Lisa

Infertility since 1995/Endometriosis
Hasimoto Thyroid disease 1998
Enlarged Abdominal Lymph nodes since 2003 - Stable
Thyroid Hurtle Cell Cancer 2008 Stage 1- Total Thyriodectomy 2008
Anxiety/Depression/Insomnia/Fatigue - Gone with gluten free diet
Acid reflux -LPR 7-2009 - Gone with a Strict gluten free diet
Celiac disease - positive upper endoscopy & Blood Test 9-2009
Undiagnosed celiac for 20 years - Gluten free since 9-13-09

#3 carrieanna76

 
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Posted 31 December 2009 - 08:51 AM

thanks so much for the advice! it's encouraging to hear that it took a while for your sleep to improve. just curious, what thyroid medication are you taking now? i started taking Levoxyl recently and i've heard it's gluten-free, but not 100% positive. i too have the brain fog and a bit of depression - really hoping to feel like a normal person soon...

thanks again and good luck on your gluten-free journey!

carrie


Hi Carrie,

I've had trouble sleeping for years, too. I thought it was just me. I never took any medication for it, but I was tempted sometimes. It wasn't everyday, but at least three times a week. I would go to work a lot with no sleep at all & feel horrible. I also felt a lot of anxiety & brain fog. Now that I've been gluten free for four months. I think it took about a month or more for my insomnia to go away & then I started sleeping so good & I felt so calm. It was wonderful. Then I was getting glutened again two weeks ago & now , of course, along with all the other GI symptoms, I'm having trouble sleeping again. I think it is getting better, but it just takes a while for the body to recover from the gluten. Just make sure you're on a very strict gluten free diet & recheck everything you're taking -vitamins, medication, hand & face lotion. I realized I was getting glutened from my synthriod medication. It was driving me crazy. It was the last item I thought of & as soon as my doctor changed my medicine I started to feel better. But I still having some brain fog & having a hard time falling to sleep. I do listen to soft music & meditation celiac disease's (BelleRuth Naparstek) right before I go to sleep & that does help me a lot. If you think a mediation celiac disease would help you, you might want to try it. You can buy them on (Company Name Removed - They Spammed This Forum and are Banned). I have a few of her celiac disease''s & they helped it really helps me to relax.- not trying to sell you anything, just trying to help. :)

Hang in there. It'll get better soon.


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#4 katco

 
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Posted 22 January 2010 - 09:11 AM

Carrie,

I'm wondering if you've seen any improvement in your sleep since you last posted. My son, who has sleep problems, is on day 10 of a Gluten-free Casein-free diet. I know results take a while, but it's hard to be patient!

Kathy
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#5 RiceGuy

 
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Posted 22 January 2010 - 11:35 AM

The best thing I found to cure insomnia is vitamin B12. It makes total sense too, because B12 is vital for the production of serotonin and melatonin, amongst other things. These are critical for regulation of sleep/wake cycles, mood, energy production, and lots more. Also, those with Celiac Disease are very often deficient in B12, so there again it makes sense. I find I sleep quite well now, especially if I take the B12 about 30 minutes or so before I go to bed. The one I prefer is a 5mg methylcobalamin sublingual tablet made by Source Naturals.

Other nutrients are also helpful with sleep. For instance, magnesium is known as the calming mineral. And interestingly, people with Celiac Disease often have a deficiency of magnesium too. A co-enzyme B-complex can also be very helpful, as can a multivitamin/mineral, so I'd suggest these as well.
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#6 jackay

 
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Posted 22 January 2010 - 02:18 PM

Carrie,
Let us know if your sleep improves.

Mine is better now that I am gluten free but I still have issues. I found out I have a lot more food intolerances than gluten so am hoping that by limiting my diet even more that my sleep will continue to get better.

I never know when I go to bed what is in store for me. I have absolutely no sleep pattern. Some nights I go to sleep right away but wake up after a short time and then can't get back to sleep. Some times I am awake most of the night and don't fall asleep until after 3 a.m. Some nights I don't sleep at all. I do get some wonderful nights when I sleep all night. All in all, it is getting better.

I have tried so many approaches with sleep and for now I just stay in bed and rest. I do know that if I get up and do something else, it won't help me get back to sleep later. I am absolutely not able to sleep during the day. I would love a good nap.

Good luck!
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#7 CHARBEEGOOD

 
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Posted 26 January 2010 - 05:32 PM

Carrie,

I didn't think you were alone (and the responses above prove that). I too have experienced sleep problems. I have been "keeping" a gluten-free diet since October and besides the digestive improvement I did experience a sleep improvement. B12 is something to keep your eye one, B12 is absorbed in the colon which is why so many individuals who suffer with celiac or gluten sensitivities end up needing supplements.

I wish you luck and hope that you find the rest you need to heal and function. Remember to talk to your doctor so that he/she is aware of your issues. It is the only way (s)he can help.

char
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Char

#8 bluebonnet

 
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Posted 30 January 2010 - 03:56 AM

The best thing I found to cure insomnia is vitamin B12. It makes total sense too, because B12 is vital for the production of serotonin and melatonin, amongst other things. These are critical for regulation of sleep/wake cycles, mood, energy production, and lots more. Also, those with Celiac Disease are very often deficient in B12, so there again it makes sense. I find I sleep quite well now, especially if I take the B12 about 30 minutes or so before I go to bed. The one I prefer is a 5mg methylcobalamin sublingual tablet made by Source Naturals.

Other nutrients are also helpful with sleep. For instance, magnesium is known as the calming mineral. And interestingly, people with Celiac Disease often have a deficiency of magnesium too. A co-enzyme B-complex can also be very helpful, as can a multivitamin/mineral, so I'd suggest these as well.


i thought the b vitamins were responsible for energy and was surprised to read you take them so close to bed time. i feel like i haven't slept for 13 1/2 years now and hated when night time rolled around because i knew it was gonna be a looooong night. i don't want to take any sleeping meds but i will give the b vitamins a try. it would be so great to look forward to bed time and actually get a full night's rest!
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#9 RiceGuy

 
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Posted 30 January 2010 - 07:19 AM

i thought the b vitamins were responsible for energy and was surprised to read you take them so close to bed time. i feel like i haven't slept for 13 1/2 years now and hated when night time rolled around because i knew it was gonna be a looooong night. i don't want to take any sleeping meds but i will give the b vitamins a try. it would be so great to look forward to bed time and actually get a full night's rest!

Yes, B12 can provide an energy boost. I just haven't noticed that, only how I seem to sleep more deeply if I take the B12 towards the end of the day. Of course, once you're levels are up, the effects may be more evened out. That is, perhaps the boost is more noticeable when the deficiency is more severe. I can only guess at that. I suppose it may vary from person to person too.
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#10 carrieanna76

 
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Posted 31 January 2010 - 10:59 PM

@Kathy – I hate to say anything, because I’m afraid of jinxing myself, but the past few nights I have finally begun to sleep better! I stopped eating gluten in early December, but I have a feeling I let some “hidden” gluten slip into my diet here and there – now I’m pretty diligent at inspecting EVERYTHING that goes in my mouth (soy sauce, salad dressing, anything that is processed), so this may be why I’m seeing changes now. Best of luck to your son! My heart really goes out to him – would love to hear if he finally gets some sleep.


quote name='katco' date='22 January 2010 - 09:11 AM' timestamp='1264180303' post='587992']
Carrie,

I'm wondering if you've seen any improvement in your sleep since you last posted. My son, who has sleep problems, is on day 10 of a Gluten-free Casein-free diet. I know results take a while, but it's hard to be patient!

Kathy
[/quote]
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#11 carrieanna76

 
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Posted 31 January 2010 - 11:01 PM

@Riceguy – thanks for your reply! My naturopath actually prescribed b12 around the same time I went off gluten (along with vitamin d, zinc, and melatonin). happy to hear it works for you and you are sleeping well!

The best thing I found to cure insomnia is vitamin B12. It makes total sense too, because B12 is vital for the production of serotonin and melatonin, amongst other things. These are critical for regulation of sleep/wake cycles, mood, energy production, and lots more. Also, those with Celiac Disease are very often deficient in B12, so there again it makes sense. I find I sleep quite well now, especially if I take the B12 about 30 minutes or so before I go to bed. The one I prefer is a 5mg methylcobalamin sublingual tablet made by Source Naturals.

Other nutrients are also helpful with sleep. For instance, magnesium is known as the calming mineral. And interestingly, people with Celiac Disease often have a deficiency of magnesium too. A co-enzyme B-complex can also be very helpful, as can a multivitamin/mineral, so I'd suggest these as well.


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#12 carrieanna76

 
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Posted 31 January 2010 - 11:03 PM

@Jackay, Char and Bluebonnet – wow, it’s really fascinating that so many of us “gluten intolerants” have sleep issues. My insomnia has been so bad that it prevented me from going to grad school and I could only hold a part-time job, so needless to say, I feel for all of you! Thanks so much for your comments and suggestions. Around the same time I went off gluten, I also discovered I’m hypothyroid, as well as melatonin, vitamin d, zinc and b12 deficient, so this might be contributing to the insomnia as well… Just out of curiosity, do any of you have thyroid issues?

Thanks to all of you and sweet dreams!
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#13 jackay

 
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Posted 01 February 2010 - 10:10 AM

@Jackay, Char and Bluebonnet – wow, it’s really fascinating that so many of us “gluten intolerants” have sleep issues. My insomnia has been so bad that it prevented me from going to grad school and I could only hold a part-time job, so needless to say, I feel for all of you! Thanks so much for your comments and suggestions. Around the same time I went off gluten, I also discovered I’m hypothyroid, as well as melatonin, vitamin d, zinc and b12 deficient, so this might be contributing to the insomnia as well… Just out of curiosity, do any of you have thyroid issues?

Thanks to all of you and sweet dreams!

carrieanna,
About three years ago I had hypothyroid issues. I was medication for it for about two years. I then developed hyperparathyroidism, which is not related to the thyroid but the parathyroid glands. Will doctoring for that, I found out my thyroid was functioning normally so I went off medication. The last time I was checked, my thyroid was still functioning normally.
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#14 jackay

 
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Posted 01 February 2010 - 10:15 AM

Carrie,

I didn't think you were alone (and the responses above prove that). I too have experienced sleep problems. I have been "keeping" a gluten-free diet since October and besides the digestive improvement I did experience a sleep improvement. B12 is something to keep your eye one, B12 is absorbed in the colon which is why so many individuals who suffer with celiac or gluten sensitivities end up needing supplements.

I wish you luck and hope that you find the rest you need to heal and function. Remember to talk to your doctor so that he/she is aware of your issues. It is the only way (s)he can help.

char

Char,
You didn't mention sublinqual B12 supplements but most people using this forum do. If B12 is absorbed by the colon, how does taking it sublinqually help?
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#15 hpymomof3

 
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Posted 01 February 2010 - 11:14 AM

I wonder why so many people who can't have gluten have insomnia. My daughter has had severe debilitating insomnia for about 20 months. We have gone to so many specialists and no one has been able to help her. She went gluten free in October after finding out that she tested positive through Enterolab. We still haven't seen any improvement. She is on several supplements (B12, B6, zinc, b complex to name a few) and nothing is helping her.

It is so bad that I had to pull her out of school last fall and have been teaching her at home. It is even difficult for her to learn at home. She can never fall asleep before 3:00 and often not until 4 or 5. Then she wakes up pretty much every hour and can't get back to sleep. I let her stay in bed until 10:00 but she still isn't getting very much sleep. It is so difficult for her to get through the day.

Any more suggestions?
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