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A Big Thanks To All My Gluten Free Buddies!


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2 replies to this topic

#1 Sweetfudge

Sweetfudge

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Posted 07 January 2010 - 10:47 AM

So, I've visited several other forums at various times, and have gotten frustrated with almost all of them...the way some of the members treat other people is crazy! I don't know if it's because we with food intolerances have to have more patience, but whatever the reason, I appreciate all the people here who are always friendly and encouraging in their responses and advice :)
Most recently I've been on a cruise forum, trying to figure out an upcoming trip, and some of the people there are just plain rude! Wow!

I <3 you guys and girls!!

Just wanted to let you all know :D
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Sweetfudge

Born and raised in Portland, OR; Currently living in Provo, UT
Gluten-free since June 2006
Also living with Hypoglycemia since 1991
Dairy-free for good since summer 2008
Started IBS diet and probiotics at GI's recommendation - Fall 2008
Also avoiding: potatoes, beans, crucifers, popcorn, most red meat, coconut milk :(
Started eating a Paleo diet Spring 2011. Love it!

The grass is always greener where you water it.

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#2 ravenwoodglass

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Posted 07 January 2010 - 06:55 PM

We are a pretty special group of folks aren't we! I do agree that what a lot of us have gone through does give us a bit of patience and an empathy that others might not have. We also have great mods who help to keep thing under control too. I wish I knew about this site when I was first diagnosed as everyone is so helpful and there is so much info and support.
I also am thankful for this site and really appretiate all that everyone contributes and the hard work that Scott has done to bring it to us.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 Lisa

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Posted 07 January 2010 - 06:59 PM

Lisa likes. ;)
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Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien


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