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How Long After Ingesting Do Symptoms Appear?


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#1 lisaloo

 
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Posted 09 January 2010 - 01:35 PM

I have CFS and wonder if I have Celiac disease. Tests show neg but I don't eat enough bad foods before testing to cause a positive. My allergy tests are fine.

Sometimes I eat bread or pasta, don't feel tired after. Sometimes, 1-2 days later I feel more tired.

I never have diaharrea or the usual symptoms.

Is this normal?
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#2 T.H.

 
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Posted 10 January 2010 - 08:12 AM

Sounds like it could be, or it could be allergies, or intolerances or sensitivities that don't show up on allergy tests. Did you have prick test allergy tests or blood test ones? But a delayed reaction is how gluten hits my dad. Sensitivities tend to hit later, too.

I'll share my symptoms for comparison, see if they help?

I was tired a lot, depressed often, caught little colds and such fairly often, had no diarrhea or any gut symptoms, I tested negative for food allergies on prick tests. When I would up my gluten intake - trying to eat healthy, so I'd have more pasta - I would feel a bit more tired a few days later, maybe, but usually didn't even notice that much.

Once I was diagnosed positive for celiac disease, it didn't help a lot. I was worse, actually, once I went gluten free. Then my GI doc told me that people with the gene to get celiac disease, even if it hadn't triggered, are much more prone to food allergies, and sensitivities, and intolerances. So he tested me with a blood test, and it came back positive for quite a few foods. However, he also told me that they weren't completely accurate because - as you've noticed - you have to have eaten enough of the food beforehand to make it an accurate test. And they tell you nothing about foods that you are intolerant to, or sensitive to.

So, I've gone off a ton of foods since my diagnosis (it's only been 5 months now). I kept a food log, kept to a small list of foods and wrote down all the ingredients and my reactions, etc... Picked out any foods that seemed like they had a pattern and dropped 'em. Which happened quickly. Once I went off foods, suddenly, the other reactions were spaced out, instead of my feeling miserable all the time.

And all the symptoms disappeared. Not tired all the time, no depression...even physical problems like carpal tunnel and back aches are simply gone.

I know a lot of people who test positive for food issues OR celiac disease have been previously diagnosed with CFS, so that's pretty normal as well. Frustrating as heck, but normal.

I wish you good luck in finding out what's going on with your body! Best wishes.

I have CFS and wonder if I have Celiac disease. Tests show neg but I don't eat enough bad foods before testing to cause a positive. My allergy tests are fine.

Sometimes I eat bread or pasta, don't feel tired after. Sometimes, 1-2 days later I feel more tired.

I never have diaharrea or the usual symptoms.

Is this normal?


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T.H.

Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease

23 years with undiagnosed sulfite sensitivity

25 years with undiagnosed mast cell activation disorder (MCAD) 

 

Daughter: celiac and MCAD positive

Son: gluten intolerant
Father, brother: celiac positive


#3 lisaloo

 
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Posted 11 January 2010 - 12:38 PM

Sounds like it could be, or it could be allergies, or intolerances or sensitivities that don't show up on allergy tests. Did you have prick test allergy tests or blood test ones? But a delayed reaction is how gluten hits my dad. Sensitivities tend to hit later, too.

I'll share my symptoms for comparison, see if they help?

I was tired a lot, depressed often, caught little colds and such fairly often, had no diarrhea or any gut symptoms, I tested negative for food allergies on prick tests. When I would up my gluten intake - trying to eat healthy, so I'd have more pasta - I would feel a bit more tired a few days later, maybe, but usually didn't even notice that much.

Once I was diagnosed positive for celiac disease, it didn't help a lot. I was worse, actually, once I went gluten free. Then my GI doc told me that people with the gene to get celiac disease, even if it hadn't triggered, are much more prone to food allergies, and sensitivities, and intolerances. So he tested me with a blood test, and it came back positive for quite a few foods. However, he also told me that they weren't completely accurate because - as you've noticed - you have to have eaten enough of the food beforehand to make it an accurate test. And they tell you nothing about foods that you are intolerant to, or sensitive to.

So, I've gone off a ton of foods since my diagnosis (it's only been 5 months now). I kept a food log, kept to a small list of foods and wrote down all the ingredients and my reactions, etc... Picked out any foods that seemed like they had a pattern and dropped 'em. Which happened quickly. Once I went off foods, suddenly, the other reactions were spaced out, instead of my feeling miserable all the time.

And all the symptoms disappeared. Not tired all the time, no depression...even physical problems like carpal tunnel and back aches are simply gone.

I know a lot of people who test positive for food issues OR celiac disease have been previously diagnosed with CFS, so that's pretty normal as well. Frustrating as heck, but normal.

I wish you good luck in finding out what's going on with your body! Best wishes.


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#4 lisaloo

 
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Posted 11 January 2010 - 12:42 PM

Thanks TH.

I was tested for celiac disease via the blood test.

I was tested for gluten allergies via prick tests, and blood tests, both immediate and delayed, no issues. I did eat gluten the weak before the blood allergy tests.

I wonder why you felt worse after going gluten free for awhile. That's interesting.

I try to track my foods, and avoid those I know I have delayed allergies too. But when so many allergies are delayed, it's hard to tell what's causing the reaction, or even if the reaction (more fatigue) is due to a food. I've had my husband look at my charts and he has a hard time.
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#5 CSU Grad

 
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Posted 11 January 2010 - 02:35 PM

I have CFS and wonder if I have Celiac disease. Tests show neg but I don't eat enough bad foods before testing to cause a positive. My allergy tests are fine.

Sometimes I eat bread or pasta, don't feel tired after. Sometimes, 1-2 days later I feel more tired.

I never have diaharrea or the usual symptoms.

Is this normal?


This is, actually, pretty normal.... this has a lot to do with how much carbohydrates you eat normally, and if you are overloading on them and sugar when you eat the bread or pasta....you may just be coming down from a "sugar high"...

Simply getting tired a few days after eating a really high carb diet is not indicative of celiacs at all. It is more indicative of a need to balance your carb intake so that it is more even-keel.

If I were to suggest anything to you, as far as testing is concerned, I would suggest getting tested for any blood sugar issues long before wasting time an engery on testing for celiacs....really.
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#6 CSU Grad

 
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Posted 11 January 2010 - 02:38 PM

Sounds like it could be, or it could be allergies, or intolerances or sensitivities that don't show up on allergy tests. Did you have prick test allergy tests or blood test ones? But a delayed reaction is how gluten hits my dad. Sensitivities tend to hit later, too.

I'll share my symptoms for comparison, see if they help?

I was tired a lot, depressed often, caught little colds and such fairly often, had no diarrhea or any gut symptoms, I tested negative for food allergies on prick tests. When I would up my gluten intake - trying to eat healthy, so I'd have more pasta - I would feel a bit more tired a few days later, maybe, but usually didn't even notice that much.

Once I was diagnosed positive for celiac disease, it didn't help a lot. I was worse, actually, once I went gluten free. Then my GI doc told me that people with the gene to get celiac disease, even if it hadn't triggered, are much more prone to food allergies, and sensitivities, and intolerances. So he tested me with a blood test, and it came back positive for quite a few foods. However, he also told me that they weren't completely accurate because - as you've noticed - you have to have eaten enough of the food beforehand to make it an accurate test. And they tell you nothing about foods that you are intolerant to, or sensitive to.

So, I've gone off a ton of foods since my diagnosis (it's only been 5 months now). I kept a food log, kept to a small list of foods and wrote down all the ingredients and my reactions, etc... Picked out any foods that seemed like they had a pattern and dropped 'em. Which happened quickly. Once I went off foods, suddenly, the other reactions were spaced out, instead of my feeling miserable all the time.

And all the symptoms disappeared. Not tired all the time, no depression...even physical problems like carpal tunnel and back aches are simply gone.

I know a lot of people who test positive for food issues OR celiac disease have been previously diagnosed with CFS, so that's pretty normal as well. Frustrating as heck, but normal.

I wish you good luck in finding out what's going on with your body! Best wishes.



Also, be aware, please, you could feel more tired after cutting out wheat, because you have suddenly dropped the majority of your carbohydrate intake! You must supplement your diet with some other carbohydrate source similar to what the wheat provided you or you will most definitely feel really tired after dropping wheat!!
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#7 lisaloo

 
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Posted 11 January 2010 - 04:25 PM

This is, actually, pretty normal.... this has a lot to do with how much carbohydrates you eat normally, and if you are overloading on them and sugar when you eat the bread or pasta....you may just be coming down from a "sugar high"...

Simply getting tired a few days after eating a really high carb diet is not indicative of celiacs at all. It is more indicative of a need to balance your carb intake so that it is more even-keel.

If I were to suggest anything to you, as far as testing is concerned, I would suggest getting tested for any blood sugar issues long before wasting time an engery on testing for celiacs....really.


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#8 lisaloo

 
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Posted 11 January 2010 - 04:26 PM

I probably only eat gluten about 5 times a month though, it's evenly split between whether I feel worse and more tired later or not. And I don't go on a binge of none, then days in a row, so I don't think it's blood sugar or a problem of carb balencing.

My blood sugar is pretty stable in testing. I stay away from starches, eat regular meals, with small snacks.

So I'm still confused if it's celiac or not.
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#9 lisaloo

 
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Posted 12 January 2010 - 01:05 PM

I realized looking at my food charts that I always get tired 30-40 hours after eating gluten, so is that Celiac?
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#10 CSU Grad

 
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Posted 14 January 2010 - 01:39 PM

it's evenly split between whether I feel worse and more tired later or not.



Statistically speaking then, you have a 50/50 chance of feeling tired after eating gluten, is what you are saying. Thus, mathematically, we can show that these two are not correlated. In other words, just doing the math here, the gluten is not causing your tiredness.

That doesn't mean you don't have celiac disease, necessarily, but what you have stated here can not support a conclusion of a relationship with gluten.

The interesting thing to note here, as well, is that you say that you only eat gluten about 5 times a month. This really means that your body is not used to having it in your system. Any reactions you may have to it, if at all, will be disproportionately weighted by this fact.
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#11 CSU Grad

 
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Posted 14 January 2010 - 01:41 PM

I realized looking at my food charts that I always get tired 30-40 hours after eating gluten, so is that Celiac?



30 to 40 hours is a long time with regard to a reaction to a food. Your reactions should be much more immediate.

You mentioned "food charts"....care to elaborate on them?

Are you eating exactly the same types, (i.e. simple carbs, complex carbs, proteins of the same type, etc), of foods and proportions every day? Also, are you missing meals ever or eating at inconsistent times?

A little more information would be helpful.
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#12 Jestgar

 
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Posted 14 January 2010 - 07:09 PM

CSU, if you are going to start claiming things as facts, you will need to start providing references.
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#13 mhsamsim

 
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Posted 03 September 2012 - 04:48 PM

Sounds like it could be, or it could be allergies, or intolerances or sensitivities that don't show up on allergy tests. Did you have prick test allergy tests or blood test ones? But a delayed reaction is how gluten hits my dad. Sensitivities tend to hit later, too.

I'll share my symptoms for comparison, see if they help?

I was tired a lot, depressed often, caught little colds and such fairly often, had no diarrhea or any gut symptoms, I tested negative for food allergies on prick tests. When I would up my gluten intake - trying to eat healthy, so I'd have more pasta - I would feel a bit more tired a few days later, maybe, but usually didn't even notice that much.

Once I was diagnosed positive for celiac disease, it didn't help a lot. I was worse, actually, once I went gluten free. Then my GI doc told me that people with the gene to get celiac disease, even if it hadn't triggered, are much more prone to food allergies, and sensitivities, and intolerances. So he tested me with a blood test, and it came back positive for quite a few foods. However, he also told me that they weren't completely accurate because - as you've noticed - you have to have eaten enough of the food beforehand to make it an accurate test. And they tell you nothing about foods that you are intolerant to, or sensitive to.

So, I've gone off a ton of foods since my diagnosis (it's only been 5 months now). I kept a food log, kept to a small list of foods and wrote down all the ingredients and my reactions, etc... Picked out any foods that seemed like they had a pattern and dropped 'em. Which happened quickly. Once I went off foods, suddenly, the other reactions were spaced out, instead of my feeling miserable all the time.

And all the symptoms disappeared. Not tired all the time, no depression...even physical problems like carpal tunnel and back aches are simply gone.

I know a lot of people who test positive for food issues OR celiac disease have been previously diagnosed with CFS, so that's pretty normal as well. Frustrating as heck, but normal.

I wish you good luck in finding out what's going on with your body! Best wishes.



Most doctors that are not specialists don't know about gluten sensitivity and celiac, after having celiac a lot of times you have leaky gut what this means is that some food escapes your gut into your blood stream, you immune system attacks these foods and sees them as a foreign object this is why you test positive for a lot of foods, your allergies should go away after your gut is healed.. also after stopping gluten you should have stools samples to check for good and bad bacteria in body since it usually is messed up for celiac patients. please watch Dr vikki's videos on youtube for a lot of interesting informations


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#14 psawyer

 
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Posted 03 September 2012 - 05:24 PM

Most doctors that are not specialists don't know about gluten sensitivity and celiac, after having celiac a lot of times you have leaky gut what this means is that some food escapes your gut into your blood stream, you immune system attacks these foods and sees them as a foreign object this is why you test positive for a lot of foods, your allergies should go away after your gut is healed.. also after stopping gluten you should have stools samples to check for good and bad bacteria in body since it usually is messed up for celiac patients. please watch Dr vikki's videos on youtube for a lot of interesting informations


This thread is more that two and a half years old. I'm not sure why it is being resuscitated.

As a reminder, the original topic was, "How Long After Ingesting Do Symptoms Appear?"

If you have a few minutes to spend, you could watch this. It is off topic. Vikki Peterson has lots of video out there. This one has a couple of sentences that are related to the topic, once you have watched the first five minutes--which are not.
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