Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New Member Waiting On Test Results...
0

5 posts in this topic

I am a new member here waiting to get back blood test results for celiac. I am 36 years old and live in Ontario canada.

For the last 8 months I have been having extreme stomach issues when I eat Oats or wheat. My symptoms include:

cramping

extreme diahrea

fatigue

muscle pain

headaches

numbness in hands and feet

mild eczema and rosecaea on face

My mother has IBS, has had cancer and was just diagnosed with Osteoporosis.

Before I started getting symptoms of celiacs, I was prone to constipation. I have to wait 5 days to get results back and its driving me crazy. I was told not to change my diet until after i have been diagnosed but i have cut out alot of stuff that really bothers me like cream of wheat and oatmeal. Will that matter? I just can't bring myself to eat something that I know will kill my stomach in 30 minutes. I know no one can diagnose me over a forum but in your opinion does it sound like celiac? Any input would be appreciated.

Also when I do have diahrea it starts off soft like mud and then gradually increases to water with little hair like bits that float, as well as a film of gasoline like stuff that floats on top. Is this typical? I know that was probably too much info but i figure we have all been there! Any response would be greatly appreciated.

0

Share this post


Link to post
Share on other sites


Ads by Google:

i am waiting on results to come back as well. about a year or so ago i researched via internet what the "gasoline swirls" could be an indication of and it said excess proteins. (i get them when i pee). unfortunately i don't recall which site i found that on. when i asked my doctor about it, they said they had never heard of such a thing. my kidney/urine labs came back normal and i've actually had it daily for years so i know its not an infection. maybe it will clear up after gluten is no longer a part of my diet ... another piece to the puzzle?!

i have had all my labs done so the only thing left to do is go gluten free which i officially started yesterday. that seems to be the most popular advice here - to go gluten free no matter what the labs say. your body will show healing and better health. only time will tell!

best wishes while you wait on your results! :)

0

Share this post


Link to post
Share on other sites

Sounds like it very well could be celiac, especially with those symptoms.

I had awful headaches, cramps, HORRIBLE constipation(my doctor had me on SIX laxatives!) and had lost a lot of weight unintentionally.

I was tested through my doctor twice, negative. I was tested once through a gi doctor, negative.

Then we were really frustrated. So we tested thru enterolab.com, positive. Although it isnt a real diagnosis, it told me i was reacting to gluten and thats all i needed to change. All my symptoms are gone, only 5 months into the diet!

So what im trying to say is, if you get a negative result, it might be a false negative. So depending on your results, you may want to try the diet on your own for 2 months, and see what improves. Be sure you stay vigilent(watch for hidden gluten in natural flavors and malt, etc)

0

Share this post


Link to post
Share on other sites

i am waiting for enterolab results and i am curious as to what you mean by "not a real diagnosis"? i tested through them because of all i read about their integrity and accurate testing.

0

Share this post


Link to post
Share on other sites

I am waiting on test results also but because I live in Alaska, I have to wait 10 days!! I had serious digestive issues for a year before I started to realize that something wasn't right. I tried doing food combining...blah, blah, blah, nothing was working. My stomach would become really nauseous after eating and I was constipated. I get migraines but have since I was 19. I also stumbled upon an email newsletter from a naturopath in Chicago that was talking about adult acne, which I have and how it could be a symptom of gluten sensitivity and so my journey started. It made a lot of sense to me because NOTHING worked to get rid of the extremely painful acne. Plus I have very fair skin, not a great combo. This last summer I decided to go off of gluten and also knew that going off of dairy would be beneficial. This has helped me realize that I am also dairy intolerant. I thought I was self managing okay but am still feeling ill. I bought the book Dangerous Grains and saw that there were things that I was eating that had gluten hidden in it like 'natural flavors'. I decided to find a doctor and get tested.

One way that I can tell that I have eaten something that I shouldn't have is because I get constipated. I can't forget the disgusting room clearing gas! My whole digestive system gets messed up and it takes me a couple of days to get regular again. Then as a delayed reaction my face breaks out into lovely, painful acne. I am hoping because I am still having these symptoms that my test will not be too affected by my mostly gluten free diet for the last 6 months. Even if the test comes back negative I am going to be gluten free forever!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,645
    • Total Posts
      918,444
  • Topics

  • Posts

    • New to this--first gluttened exp. How to feel better?
      Great advice above. It's not certain you were glutened and even if you were don't be hard on yourself. I do that way too much myself and it's not productive. Sometimes it will happen however careful you are.  Whilst your healing, why not look into making bone broths?  I make both soup and stock from them and they're supposedly very good for healing your gut. I also had a go at sauerkraut, not very successfully! When I ask for a salad now I ask for it without any dressing, just a bottle of olive oil and, should they have it, cider vinegar. It tastes fine to me and I don't have to worry about what may have made it into the dressing. Your tastes adjust over time. These days I don't want lots of different complex flavours, I stick to whole foods where possible and the fewer variables the better.  Good luck
    • How effective is HD skin biopsy after being gluten free for a year
      Looks like you got some good info from previous posters.   I don't understand why you and your doctor think that dairy contains gluten?  Lactose is a sugar not a protein like gluten.  I think you have some other issues.  
    • Question on posting
      I made an informative video for Celiac Awareness Month that demonstrates how small 20ppm is. Am I allowed to post a vimeo link? Thanks!
    • Celiac Awareness on NBC Nightly News
      http://www.nbcnews.com/nightly-news/video/celiac-disease-affecting-millions-of-americans-often-goes-undiagnosed-692131907739   This was on last Tuesday. So happy that a popular national news program is spreading good information!
    • The US Preventative Services Task Force needs our help - tell them why Celiac screening is important!
      I am so angry. I am all about universal screening for Celiac Disease. It is a tricky disease to diagnose. Your only symptoms may be joint pain, depression, or weak nails, which people will try to cure with medication or a good manicure. With roughly 80% of the Celiac population remaining undiagnosed, universal screening could save thousands of lives. This article popped up in my twitter feed regarding US physicians who are unsure whether universal screening would provide “health benefits” for those who exhibit no symptoms (http://www.reuters.com/article/us-health-celiac-screening-idUSKCN0XU2G6?utm_content=buffer3ed50&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer) First of all, no symptom is a symptom! There is something called “Silent Celiac Disease”, and I personally know several people who have it. They experience no outward symptoms caused by gluten consumption, but their insides are being torn apart. If they eat gluten, they may not feel it, but they are highly at risk for long term complications such as cancer, miscarriages, and osteoporosis, just to name a few. Also, let’s consider the non-GI related symptoms of Celiac. Doctors, how many times does someone walk into your office and say, “Gee, Doc, could you test me for Celiac Disease? I have (insert one of the following)”: asthma bladder infections dental problems dandruff high blood pressure headaches blurred vision leg cramps back pain pale skin brittle nails acne bad bread mood swings ADD Anxiety Depression a short temper night terrors panic attacks irrational anger sinus pressure Those are just a few of the symptoms that people don’t think to associate with Celiac Disease, and I’m sure that you, Mr. Doctor, will not test someone with Celiac Disease if they have dandruff. This is why so many people are undiagnosed! People do not recognize the symptoms and doctors won’t think to give them a blood test. This is why I always say – You cannot know that you do not have Celiac Disease until you get tested. “One concern with widespread screening is that biopsies aren’t risk-free and may confirm cases of celiac disease that weren’t causing problems for patients and didn’t necessarily require treatment, Krist noted.” WHAT?????? First of all, most Celiac screening starts with a gene test or a blood test. That aside, ALL confirmed cases of Celiac Disease require treatment!! Untreated Celiac Disease can cause many problems in the future. “Guidelines for gastroenterologists recommend celiac screening for people with a close relative with celiac and for diabetics who are at increased risk for the disease, Murray said by email.” I was the first person in my family to be diagnosed. 80% of Celiacs don’t know they have it. I would have never been diagnosed if my gastroenterologist said, “Well you don’t have diabetes and no one in your family has it….” No one in my family had heard about Celiac Disease, let alone had been tested for it. And we have all of the tradition GI symptoms. This is not a rare disease. About 1% of the population has Celiac Disease. Take a look at your facebook friends list – have 500 friends? Odds are that you know four or five friends with Celiac. MAYBE one of them will be diagnosed. Maybe. The others will be suffering in silence. “The USPSTF, a government-backed independent organization that reviews medical evidence, issues recommendations that are closely watched by doctors and insurers. This is the first time the USPSTF has weighed in on screening for celiac disease, and the task force will accept public comments until May 30 before releasing final guidelines.” This brought me to the USPSTF website. In their draft, here is what is listed as “Potential Harms” of screening in asymptomatic populations. I’ve included my response: False positive – there are rarely false positives Unnecessary serologic tests and biopsies – umm…only do a biopsy if you have a positive blood test. And what’s so bad about a blood test? Anxiety of complications from testing – I had much more anxiety in my pre-Celiac days, not knowing if I would poop my pants at work. “Some patients with positive serology who do not undergo histologic confirmation may embark on efforts to avoid dietary gluten, which can increase costs and burdens and may result in decreased quality of life” “– I’m glad that you think my life is so terrible. “Limited evidence from long-term followup studies have shown that some persons with biopsy-confirmed celiac disease may never develop symptoms or complications” – I’m not going to risk getting cancer, are you??? The USPSTF is taking public responses to their draft, all of which must be submitted by May 30th. I highly urge you to write in and explain why universal screening is important. My Celiac diagnosis saved my life. If universal screening can do the same for a huge portion of the population – I am all for it. This could be the most important thing you do for Celiac Awareness Month. Read the draft and write to the USPSTF here. http://www.uspreventiveservicestaskforce.org/Page/Document/draft-recommendation-statement150/celiac-disease-screening
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,738
    • Most Online
      1,763

    Newest Member
    Ladywolf
    Joined