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New Member Waiting On Test Results...
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I am a new member here waiting to get back blood test results for celiac. I am 36 years old and live in Ontario canada.

For the last 8 months I have been having extreme stomach issues when I eat Oats or wheat. My symptoms include:

cramping

extreme diahrea

fatigue

muscle pain

headaches

numbness in hands and feet

mild eczema and rosecaea on face

My mother has IBS, has had cancer and was just diagnosed with Osteoporosis.

Before I started getting symptoms of celiacs, I was prone to constipation. I have to wait 5 days to get results back and its driving me crazy. I was told not to change my diet until after i have been diagnosed but i have cut out alot of stuff that really bothers me like cream of wheat and oatmeal. Will that matter? I just can't bring myself to eat something that I know will kill my stomach in 30 minutes. I know no one can diagnose me over a forum but in your opinion does it sound like celiac? Any input would be appreciated.

Also when I do have diahrea it starts off soft like mud and then gradually increases to water with little hair like bits that float, as well as a film of gasoline like stuff that floats on top. Is this typical? I know that was probably too much info but i figure we have all been there! Any response would be greatly appreciated.

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i am waiting on results to come back as well. about a year or so ago i researched via internet what the "gasoline swirls" could be an indication of and it said excess proteins. (i get them when i pee). unfortunately i don't recall which site i found that on. when i asked my doctor about it, they said they had never heard of such a thing. my kidney/urine labs came back normal and i've actually had it daily for years so i know its not an infection. maybe it will clear up after gluten is no longer a part of my diet ... another piece to the puzzle?!

i have had all my labs done so the only thing left to do is go gluten free which i officially started yesterday. that seems to be the most popular advice here - to go gluten free no matter what the labs say. your body will show healing and better health. only time will tell!

best wishes while you wait on your results! :)

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Sounds like it very well could be celiac, especially with those symptoms.

I had awful headaches, cramps, HORRIBLE constipation(my doctor had me on SIX laxatives!) and had lost a lot of weight unintentionally.

I was tested through my doctor twice, negative. I was tested once through a gi doctor, negative.

Then we were really frustrated. So we tested thru enterolab.com, positive. Although it isnt a real diagnosis, it told me i was reacting to gluten and thats all i needed to change. All my symptoms are gone, only 5 months into the diet!

So what im trying to say is, if you get a negative result, it might be a false negative. So depending on your results, you may want to try the diet on your own for 2 months, and see what improves. Be sure you stay vigilent(watch for hidden gluten in natural flavors and malt, etc)

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i am waiting for enterolab results and i am curious as to what you mean by "not a real diagnosis"? i tested through them because of all i read about their integrity and accurate testing.

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I am waiting on test results also but because I live in Alaska, I have to wait 10 days!! I had serious digestive issues for a year before I started to realize that something wasn't right. I tried doing food combining...blah, blah, blah, nothing was working. My stomach would become really nauseous after eating and I was constipated. I get migraines but have since I was 19. I also stumbled upon an email newsletter from a naturopath in Chicago that was talking about adult acne, which I have and how it could be a symptom of gluten sensitivity and so my journey started. It made a lot of sense to me because NOTHING worked to get rid of the extremely painful acne. Plus I have very fair skin, not a great combo. This last summer I decided to go off of gluten and also knew that going off of dairy would be beneficial. This has helped me realize that I am also dairy intolerant. I thought I was self managing okay but am still feeling ill. I bought the book Dangerous Grains and saw that there were things that I was eating that had gluten hidden in it like 'natural flavors'. I decided to find a doctor and get tested.

One way that I can tell that I have eaten something that I shouldn't have is because I get constipated. I can't forget the disgusting room clearing gas! My whole digestive system gets messed up and it takes me a couple of days to get regular again. Then as a delayed reaction my face breaks out into lovely, painful acne. I am hoping because I am still having these symptoms that my test will not be too affected by my mostly gluten free diet for the last 6 months. Even if the test comes back negative I am going to be gluten free forever!

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    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
    • I think that we have to remember that celiacs often develop intolerances due to our  damaged guts.  Our guts do not ncessarily heal either (usually adults) for  a variety of reasons even if their symptoms improve (see links below).   Nuts are just plain hard to digest.   I can not tolerate almonds, but can handle walnuts and cashews in small amounts.  I can eat peanuts too, but resort to Peanutbutter after a Glutening as it is easier to digest (maybe I have to learn to chew better!  😀)  My nut symptoms have  nothing to do with gluten as I have purchased certified gluten-free nuts and suffered with the same symptoms.  .   https://www.verywell.com/celiac-disease-when-will-your-small-intestine-recover-562341 http://www.cureceliacdisease.org/treatment/ http://www.ncbi.nlm.nih.gov/pubmed/23936873 i call the manufacturer when I suspect the manufacturer is sharing the line or if I just want to know.  I bought some Black English walnuts and called the company.  Those are the only nuts they process and they do not have any flavored nuts.   if you really want to test your theory out, buy some nuts from Nuts.com (certified gluten-free).   See if you get a reaction or ask your GI to retest your antibodies (which should be done annually anyway).   I just hate to have Planters get a bum rap when you do not really know for sure.......😥    
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