New Member Waiting On Test Results...
Posted 09 January 2010 - 03:56 PM
For the last 8 months I have been having extreme stomach issues when I eat Oats or wheat. My symptoms include:
numbness in hands and feet
mild eczema and rosecaea on face
My mother has IBS, has had cancer and was just diagnosed with Osteoporosis.
Before I started getting symptoms of celiacs, I was prone to constipation. I have to wait 5 days to get results back and its driving me crazy. I was told not to change my diet until after i have been diagnosed but i have cut out alot of stuff that really bothers me like cream of wheat and oatmeal. Will that matter? I just can't bring myself to eat something that I know will kill my stomach in 30 minutes. I know no one can diagnose me over a forum but in your opinion does it sound like celiac? Any input would be appreciated.
Also when I do have diahrea it starts off soft like mud and then gradually increases to water with little hair like bits that float, as well as a film of gasoline like stuff that floats on top. Is this typical? I know that was probably too much info but i figure we have all been there! Any response would be greatly appreciated.
Posted 12 January 2010 - 03:49 AM
i have had all my labs done so the only thing left to do is go gluten free which i officially started yesterday. that seems to be the most popular advice here - to go gluten free no matter what the labs say. your body will show healing and better health. only time will tell!
best wishes while you wait on your results!
Posted 12 January 2010 - 07:00 AM
I had awful headaches, cramps, HORRIBLE constipation(my doctor had me on SIX laxatives!) and had lost a lot of weight unintentionally.
I was tested through my doctor twice, negative. I was tested once through a gi doctor, negative.
Then we were really frustrated. So we tested thru enterolab.com, positive. Although it isnt a real diagnosis, it told me i was reacting to gluten and thats all i needed to change. All my symptoms are gone, only 5 months into the diet!
So what im trying to say is, if you get a negative result, it might be a false negative. So depending on your results, you may want to try the diet on your own for 2 months, and see what improves. Be sure you stay vigilent(watch for hidden gluten in natural flavors and malt, etc)
Posted 13 January 2010 - 05:26 AM
Posted 16 January 2010 - 11:27 PM
One way that I can tell that I have eaten something that I shouldn't have is because I get constipated. I can't forget the disgusting room clearing gas! My whole digestive system gets messed up and it takes me a couple of days to get regular again. Then as a delayed reaction my face breaks out into lovely, painful acne. I am hoping because I am still having these symptoms that my test will not be too affected by my mostly gluten free diet for the last 6 months. Even if the test comes back negative I am going to be gluten free forever!
Summer 08: Knew something wasn't right but not sure what
Summer 09: Stumbled across some literature that made me suspect that I am gluten intolerant
Took self off gluten & dairy but unknowingly still being exposed to hidden gluten
January 10: Blood tested for celiac (celiac panel) and various other food & seasonal allergies
**all test came back negative but I haven't eaten gluten in 6 months. Next step is to
get the genetic test & go from there**
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