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New Member Waiting On Test Results...


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4 replies to this topic

#1 Jeanettedianne

 
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Posted 09 January 2010 - 03:56 PM

I am a new member here waiting to get back blood test results for celiac. I am 36 years old and live in Ontario canada.
For the last 8 months I have been having extreme stomach issues when I eat Oats or wheat. My symptoms include:

cramping
extreme diahrea
fatigue
muscle pain
headaches
numbness in hands and feet
mild eczema and rosecaea on face

My mother has IBS, has had cancer and was just diagnosed with Osteoporosis.

Before I started getting symptoms of celiacs, I was prone to constipation. I have to wait 5 days to get results back and its driving me crazy. I was told not to change my diet until after i have been diagnosed but i have cut out alot of stuff that really bothers me like cream of wheat and oatmeal. Will that matter? I just can't bring myself to eat something that I know will kill my stomach in 30 minutes. I know no one can diagnose me over a forum but in your opinion does it sound like celiac? Any input would be appreciated.

Also when I do have diahrea it starts off soft like mud and then gradually increases to water with little hair like bits that float, as well as a film of gasoline like stuff that floats on top. Is this typical? I know that was probably too much info but i figure we have all been there! Any response would be greatly appreciated.
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#2 bluebonnet

 
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Posted 12 January 2010 - 03:49 AM

i am waiting on results to come back as well. about a year or so ago i researched via internet what the "gasoline swirls" could be an indication of and it said excess proteins. (i get them when i pee). unfortunately i don't recall which site i found that on. when i asked my doctor about it, they said they had never heard of such a thing. my kidney/urine labs came back normal and i've actually had it daily for years so i know its not an infection. maybe it will clear up after gluten is no longer a part of my diet ... another piece to the puzzle?!

i have had all my labs done so the only thing left to do is go gluten free which i officially started yesterday. that seems to be the most popular advice here - to go gluten free no matter what the labs say. your body will show healing and better health. only time will tell!

best wishes while you wait on your results! :)
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#3 runningcrazy

 
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Posted 12 January 2010 - 07:00 AM

Sounds like it very well could be celiac, especially with those symptoms.
I had awful headaches, cramps, HORRIBLE constipation(my doctor had me on SIX laxatives!) and had lost a lot of weight unintentionally.

I was tested through my doctor twice, negative. I was tested once through a gi doctor, negative.
Then we were really frustrated. So we tested thru enterolab.com, positive. Although it isnt a real diagnosis, it told me i was reacting to gluten and thats all i needed to change. All my symptoms are gone, only 5 months into the diet!

So what im trying to say is, if you get a negative result, it might be a false negative. So depending on your results, you may want to try the diet on your own for 2 months, and see what improves. Be sure you stay vigilent(watch for hidden gluten in natural flavors and malt, etc)
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'You can't start building a better tomorrow if you wait until tomorrow to start building'

#4 bluebonnet

 
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Posted 13 January 2010 - 05:26 AM

i am waiting for enterolab results and i am curious as to what you mean by "not a real diagnosis"? i tested through them because of all i read about their integrity and accurate testing.
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#5 pearcenalaska

 
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Posted 16 January 2010 - 11:27 PM

I am waiting on test results also but because I live in Alaska, I have to wait 10 days!! I had serious digestive issues for a year before I started to realize that something wasn't right. I tried doing food combining...blah, blah, blah, nothing was working. My stomach would become really nauseous after eating and I was constipated. I get migraines but have since I was 19. I also stumbled upon an email newsletter from a naturopath in Chicago that was talking about adult acne, which I have and how it could be a symptom of gluten sensitivity and so my journey started. It made a lot of sense to me because NOTHING worked to get rid of the extremely painful acne. Plus I have very fair skin, not a great combo. This last summer I decided to go off of gluten and also knew that going off of dairy would be beneficial. This has helped me realize that I am also dairy intolerant. I thought I was self managing okay but am still feeling ill. I bought the book Dangerous Grains and saw that there were things that I was eating that had gluten hidden in it like 'natural flavors'. I decided to find a doctor and get tested.

One way that I can tell that I have eaten something that I shouldn't have is because I get constipated. I can't forget the disgusting room clearing gas! My whole digestive system gets messed up and it takes me a couple of days to get regular again. Then as a delayed reaction my face breaks out into lovely, painful acne. I am hoping because I am still having these symptoms that my test will not be too affected by my mostly gluten free diet for the last 6 months. Even if the test comes back negative I am going to be gluten free forever!
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~Shannon :)


Summer 08: Knew something wasn't right but not sure what
Summer 09: Stumbled across some literature that made me suspect that I am gluten intolerant
Took self off gluten & dairy but unknowingly still being exposed to hidden gluten
January 10: Blood tested for celiac (celiac panel) and various other food & seasonal allergies
**all test came back negative but I haven't eaten gluten in 6 months. Next step is to
get the genetic test & go from there**




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