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Advice For A New Mom?
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Hi everyone,

I'm due on April 8th and of course don't know if my daughter will have Celiac Disease or not. Of course I'm not eating gluten now, and I was told not to feed her gluten until she is at least a year old in hopes of preventing celiac disease. Do any of you have any additional advice?

Thanks!

Emily

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Congratulations! Having a baby is such a blessed event. As far as food introduction, the AAP now officially says to wait until 6 months for any food. Last I knew 6-8 months was the "magic" window for introducing gluten. We threw that out at my house. Both my boys, diagnosed celiac, were introduced at that time. With our third (who's 7 months) we decided to keep her gluten-free. We actually enrolled her in a study. Genetic testing's been done. Because of her age she's in an observational group so we could offer her gluten if we wanted to. But we don't. We're going to wait until she's old enough to let us know if it's bothering her. Besides, our house is mostly gluten-free. Any gluten is brought in from the outside, usually by my husband. And it's not really anything I'd want her eating anyway! If you want any info on the study, I'll be glad to give it to you. It's through the University of Maryland. You could even go directly there and read up on it.

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Congratulations! Having a baby is such a blessed event. As far as food introduction, the AAP now officially says to wait until 6 months for any food. Last I knew 6-8 months was the "magic" window for introducing gluten. We threw that out at my house.

The researched "magic window" so far is actually 4-6months. http://www.ncbi.nlm.nih.gov/pubmed/15900004?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_SingleItemSupl.Pubmed_Discovery_RA&linkpos=1&log$=relatedarticles&logdbfrom=pubmed (2005), http://www.ncbi.nlm.nih.gov/pubmed/17664902?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_SingleItemSupl.Pubmed_Discovery_RA&linkpos=5&log$=relatedreviews&logdbfrom=pubmed (2007)

Why they tested that time frame, when all the recommendations are to avoid solid food when possible before 6 months is beyond me, but that's what the research shows. I'm almost certainly going to wait until after a year, as there are all kinds of other foods I'd rather introduce before grains, and we're probably going to keep the house primarily gluten free, with her only exposure being outside the house (and maybe, eventually, to daddy's oatmeal :) ).

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I'm currently 19 weeks pregnant, and I've been doing a lot of research on this, too. My plan is similar to Tiffany's: I plan to breastfeed for hopefully a year, introduce solids at 6 months or so, and avoid gluten entirely for the first year. Other than the limited gluten that my husband brings into the house, our house is gluten free, so he/she will be eating gluten free, as well, at home. Outside of the house, after a year old, I'll probably allow gluten at that point.

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my only advice is to go on a date! seriously, once the baby is born it will be awhile before you and your hubby have a date:)

hez

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The researched "magic window" so far is actually 4-6months. http://www.ncbi.nlm.nih.gov/pubmed/15900004?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_SingleItemSupl.Pubmed_Discovery_RA&linkpos=1&log$=relatedarticles&logdbfrom=pubmed (2005), http://www.ncbi.nlm.nih.gov/pubmed/17664902?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_SingleItemSupl.Pubmed_Discovery_RA&linkpos=5&log$=relatedreviews&logdbfrom=pubmed (2007)

Why they tested that time frame, when all the recommendations are to avoid solid food when possible before 6 months is beyond me, but that's what the research shows. I'm almost certainly going to wait until after a year, as there are all kinds of other foods I'd rather introduce before grains, and we're probably going to keep the house primarily gluten free, with her only exposure being outside the house (and maybe, eventually, to daddy's oatmeal :) ).

Thanks for the correction. I remembered wrong. Where's my brain? Oh yeah, probably taken away by my 3 little ones! :)

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Just reading this thread and wondering why all these daddy/husbands are bringing gluten in almost gluten free homes...........mine too! lol

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Just reading this thread and wondering why all these daddy/husbands are bringing gluten in almost gluten free homes...........mine too! lol

For us anyway, it's because that's how we decided to do things. My husband is a picky eater, and I trust him to be responsible for his own things. So he has a shelf (that I can't really even reach) for his cereal, granola bars, and oatmeal. He has a toaster and cutting board for frozen waffles and french bread. Everything else is gluten free. It works for us, and though it might not work for everyone, has been fine so far.

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Just reading this thread and wondering why all these daddy/husbands are bringing gluten in almost gluten free homes...........mine too! lol

Mine has a horrible habit of not eating breakfast and even worse, many days at work he ends up skipping lunch because he's so busy. Let's just say he has bad eating habits and leave it at that. :) I'm sure you all know you can't change someone else... And because he eats what I make for dinner, he wants his "gluten" some time (not really gluten, just junkier food, imo, that just so happens to contain gluten). So he'll have bread, frozen pizza or something later at night (he's a night owl). He has a vertical strip in the kitchen to use. A cupboard to store food, a piece of the counter to hold a toaster oven and to prepare his food and a lower cabinet to store pans/other stuff. It works for us. The few times he eats it around the boys we just have to say no. Sometimes they look a little sad but they're getting past that.

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Well, one bit of advice I don't think I read yet. :-)

If you are breastfeeding when you introduce gluten, it increases the chances of at least delaying the onset of celiac disease, if not helping prevent it. However, it can also lessen the symptoms of the disease, which can make it less likely for a doctor to diagnose it.

That's what happened with my kiddo. I introduced gluten while breastfeeding, and my daughter probably developed celiac around 8 years old, but with no gut symptoms. Nothing at all aside from some behavioral issues and a bit of exhaustion, so she didn't get diagnosed until someone else in the family did and I requested that she be tested.

So...just be vigilant, would be my advice! And if you want someone who is gluten knowledgeable, you're more likely to get one in a younger pediatrician. The older doctors were all taught that not only was celiac rare, but that it only happened with gut symptoms. :-(

Take care, and congrats on the upcoming little one!

Hi everyone,

I'm due on April 8th and of course don't know if my daughter will have Celiac Disease or not. Of course I'm not eating gluten now, and I was told not to feed her gluten until she is at least a year old in hopes of preventing celiac disease. Do any of you have any additional advice?

Thanks!

Emily

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    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Is coffee glutem free or not ?  Always wondered about this ............. got to have my coffee... I am new to this  , very new .........
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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