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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Help For Dry Skin/rashes
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8 posts in this topic

I do not have DH but I do have terribly dry skin and problems so I thought I'd toss these out.

Johnson & Johnson First Aid Cream is what I use, almost anything else seems to irritate problem areas. It will act as a moisturizer and aids healing, and is not real greasy.

Lanacane has a similar vehicle or base, but contains something that acts like a mild anesthetic.

If the skin is only dry, with no rash or whatever I use Vaseline Intensive Care Lotion - some others seem to bother.

Minimizing contact with water can help also, chlorine acts as a drying agent, and the ph levels of water vary quite a bit - even rinsing my hair daily sends my scalp into orbit.

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I have DH along with the other symptoms but one that hasn't been addressed by anyone else is mouth and back of the throat blisters. Do any of the readers have this exrtreme problem. Chronic

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FOr really dry skin I use Carmol 10

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a friend of mine told me that her son's orthodontist told her...toothpaste has SLS - sodium lauryl sulfate in it. The ortho said that some people get ulcers or sores in their mouths because from the SLS. So switch to a toothpaste that doesn't have SLS in it and see if that helps.

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I have DH along with the other symptoms but one that hasn't been addressed by anyone else is mouth and back of the throat blisters. Do any of the readers have this exrtreme problem. Chronic

Yes have gotten them in my mouth. They are miserable :( . Not sure what to do about them once I get them.

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You should get a biopsy of your mouth. I didn't know I had celiacs until I woke up one morning with the inside of my mouth all enflamed. Long-story-short...

They did a biopsy, discovered I had Oral Lichen Planus, which is chronic, incurable, and only occurs in people whose immune system is compromised. That promted a lot of tests which finally resulted in my being diagnosed with Celiacs. There is no cure or real treatment for either disease, but if you can get the Celiacs under control, and keep your mouth really clean, there's a chance it will go away on its own.

I have found that using normal toothpastes and mouthwashes aggravates it. Alcohol and peroxide inflame it. Sugar seems to feed it.

If you have little white veins in the lining of your cheeks, blisters, and maybe redness or roughness in places along the gum line, you probably have it, but a biopsy is necessary to rule out cancer, and two other similar diseases that are much more dangerous.

If your doctor diagnoses you with Lichen Planus, there isn't much they can do to help you. What has helped me a lot is using Tea Tree Oil toothpaste and mouthwash that I buy at the health food store. I also make sure I brush, floss and gargle several times a day, and take it easy on sweets. It has dialed it way back and seems to keep it in check. I am working on the Celiacs, and as I get better at avoiding Gluten, I think the lichen planus is losing its grip. It appears to be healing slowly, but it's very aggressive. I have to be dilligent about keeping my mouth clean and limiting my sugar intake. Not easy on a diet based on rice.

I hope you don't have it, but you should definitely see a doctor about it.

Foodphobic.

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Yes do rule out mouth/tongue cancer... my brother has no mouth cancer risk factors, has never smoked and is not and has never been a alcoholic and he is battling mouth cancer right now.... it started with just a small white spot on his tongue, its certainly not common, so don't freak out.... but rule out the bad stuff.

Just as an FYI so far my brother is doing ok!

Susan

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Thanks for all the messages concerning mouth blisters. For sure I will ask the Doctor about this problem on Monday.

Sometimes my blisters act like a allergy reaction, or at least during regular allergy outbreak. Come to think about it I have both everyday so this isn't really a viable thought.

Chronic :rolleyes:

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    • Weird Reaction
      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
    • 9 year Old going through testing
      Thank you everyone. I have scheduled a second opinion. He last biopsie came back and he is lactose intolerant.     
    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
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