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Help For Dry Skin/rashes
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8 posts in this topic

I do not have DH but I do have terribly dry skin and problems so I thought I'd toss these out.

Johnson & Johnson First Aid Cream is what I use, almost anything else seems to irritate problem areas. It will act as a moisturizer and aids healing, and is not real greasy.

Lanacane has a similar vehicle or base, but contains something that acts like a mild anesthetic.

If the skin is only dry, with no rash or whatever I use Vaseline Intensive Care Lotion - some others seem to bother.

Minimizing contact with water can help also, chlorine acts as a drying agent, and the ph levels of water vary quite a bit - even rinsing my hair daily sends my scalp into orbit.

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I have DH along with the other symptoms but one that hasn't been addressed by anyone else is mouth and back of the throat blisters. Do any of the readers have this exrtreme problem. Chronic

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FOr really dry skin I use Carmol 10

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a friend of mine told me that her son's orthodontist told her...toothpaste has SLS - sodium lauryl sulfate in it. The ortho said that some people get ulcers or sores in their mouths because from the SLS. So switch to a toothpaste that doesn't have SLS in it and see if that helps.

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I have DH along with the other symptoms but one that hasn't been addressed by anyone else is mouth and back of the throat blisters. Do any of the readers have this exrtreme problem. Chronic

Yes have gotten them in my mouth. They are miserable :( . Not sure what to do about them once I get them.

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You should get a biopsy of your mouth. I didn't know I had celiacs until I woke up one morning with the inside of my mouth all enflamed. Long-story-short...

They did a biopsy, discovered I had Oral Lichen Planus, which is chronic, incurable, and only occurs in people whose immune system is compromised. That promted a lot of tests which finally resulted in my being diagnosed with Celiacs. There is no cure or real treatment for either disease, but if you can get the Celiacs under control, and keep your mouth really clean, there's a chance it will go away on its own.

I have found that using normal toothpastes and mouthwashes aggravates it. Alcohol and peroxide inflame it. Sugar seems to feed it.

If you have little white veins in the lining of your cheeks, blisters, and maybe redness or roughness in places along the gum line, you probably have it, but a biopsy is necessary to rule out cancer, and two other similar diseases that are much more dangerous.

If your doctor diagnoses you with Lichen Planus, there isn't much they can do to help you. What has helped me a lot is using Tea Tree Oil toothpaste and mouthwash that I buy at the health food store. I also make sure I brush, floss and gargle several times a day, and take it easy on sweets. It has dialed it way back and seems to keep it in check. I am working on the Celiacs, and as I get better at avoiding Gluten, I think the lichen planus is losing its grip. It appears to be healing slowly, but it's very aggressive. I have to be dilligent about keeping my mouth clean and limiting my sugar intake. Not easy on a diet based on rice.

I hope you don't have it, but you should definitely see a doctor about it.

Foodphobic.

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Yes do rule out mouth/tongue cancer... my brother has no mouth cancer risk factors, has never smoked and is not and has never been a alcoholic and he is battling mouth cancer right now.... it started with just a small white spot on his tongue, its certainly not common, so don't freak out.... but rule out the bad stuff.

Just as an FYI so far my brother is doing ok!

Susan

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Thanks for all the messages concerning mouth blisters. For sure I will ask the Doctor about this problem on Monday.

Sometimes my blisters act like a allergy reaction, or at least during regular allergy outbreak. Come to think about it I have both everyday so this isn't really a viable thought.

Chronic :rolleyes:

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    • I agree, it's very unlikely she doesn't have celiac disease.  Can you find a local celiac group to get a doctor recommendation from?  They might have the best idea of a local doctor who is familiar with celiac disease.  There is also a doctors sub-section of this forum which might help find one.  http://www.celiac.com/gluten-free/forum/6-celiac-disease-doctors/
    • Hi I'm newly diagnosed with coeliacs only 5 days ago so I have had 4 days gluten free , I felt more energised pretty quick but today have gone back to that sluggish feeling lethargic, could this be a withdrawal effect also did anyone have swelling whilst on gluten ?
    • Thank you! I will call and ask for a full panel and see where it leads!!
    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
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