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Back Again 8 Years Later


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4 replies to this topic

#1 SusanL

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Posted 16 January 2010 - 12:22 PM

Hi all- I was diagnosed gluten sensitive and wheat allergy 8 years ago. I never experienced any symptoms and was diagnosed based upon IGA level abnormal (141) and a positive reaction to wheat under my skin during testing. Also, I have the DQ8 marker. Anyway, I was told then that I could eat gluten if I wanted to since it wasn't doing anything at the time. Fast forward 8 years- I think I need to go on a gluten free diet to help with some symptoms I have been experiencing.

My question is what is new in the gluten free world that I don't know about yet. IE - yummy bread, mainstream foods, thoughts etc.

I really am starting from scratch. I was on a gluten-free diet for a year 8 years ago but things were different then. Back then the list of mainstream food was free on this website!
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#2 ravenwoodglass

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Posted 16 January 2010 - 01:59 PM

Welcome back.
Do check out the products section of the board as there is a lot of info there.
The world of gluten free food is expanding daily and much more edible than 8 years ago.
Some good brands to look for: Kinnickinnick makes good breads and ready made pizza shells, bagels, doughnuts etc. Gluten Free Pantry has some great mixes. Cakes, breads, and a French bread mix that makes great pizza dough. Bakery on Main makes good granola if you like it. There are many more great products out there than these. If you have a favorite ask on the product board or in recipes what folks do as a sub.
Some companies are good at not hiding gluten, Kraft and Unilever are 2.
Many companies also put gluten info on their websites now so sometimes a quick search will give you the answer.
If you live near a Wegmans they label all their gluten free stuff with a circle G. I shop there all the time.
Health food stores are another good source.
To start some find it easiest to go with whole unprocessed food as much as possible. You will heal fastest that way.
Ask any questions you need to. Hopefully you will be feeling great soon.


Hi all- I was diagnosed gluten sensitive and wheat allergy 8 years ago. I never experienced any symptoms and was diagnosed based upon IGA level abnormal (141) and a positive reaction to wheat under my skin during testing. Also, I have the DQ8 marker. Anyway, I was told then that I could eat gluten if I wanted to since it wasn't doing anything at the time. Fast forward 8 years- I think I need to go on a gluten free diet to help with some symptoms I have been experiencing.

My question is what is new in the gluten free world that I don't know about yet. IE - yummy bread, mainstream foods, thoughts etc.

I really am starting from scratch. I was on a gluten-free diet for a year 8 years ago but things were different then. Back then the list of mainstream food was free on this website!


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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 SusanL

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Posted 17 January 2010 - 01:40 PM

Welcome back.
Do check out the products section of the board as there is a lot of info there.
The world of gluten free food is expanding daily and much more edible than 8 years ago.
Some good brands to look for: Kinnickinnick makes good breads and ready made pizza shells, bagels, doughnuts etc. Gluten Free Pantry has some great mixes. Cakes, breads, and a French bread mix that makes great pizza dough. Bakery on Main makes good granola if you like it. There are many more great products out there than these. If you have a favorite ask on the product board or in recipes what folks do as a sub.
Some companies are good at not hiding gluten, Kraft and Unilever are 2.
Many companies also put gluten info on their websites now so sometimes a quick search will give you the answer.
If you live near a Wegmans they label all their gluten free stuff with a circle G. I shop there all the time.
Health food stores are another good source.
To start some find it easiest to go with whole unprocessed food as much as possible. You will heal fastest that way.
Ask any questions you need to. Hopefully you will be feeling great soon.




Thank you for your reply. I know I used to like Kinnickinnick's white sandwich bread years ago. It was the closest thing to regular bread I could find. I remember Pamela's fudge brownies too. Yumm! The hardest thing for me will be finding a natural food store near my new house. THere was a great one where I used to live. So I have to go searching again. I don't believe there is a Wegmans near by but I am going to check. Again thanks for the great info and support. I am sure I will be asking many questions as I get back in the swing of things!
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#4 MySuicidalTurtle

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Posted 17 January 2010 - 02:13 PM

I find a lot of gluten-free foods on Amazon, too. Sometimes it is cheaper on there than buying them at my local health food stores.
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#5 sandsurfgirl

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Posted 18 January 2010 - 03:49 PM

Betty Crocker has gluten free brownies, yellow cake and chocolate chip cookie mix. We made the brownies and they taste exactly like the real thing. My husband and son could not tell the difference at all and neither could I. My local Stater Bros. carries all of them. I live in So Cal, so I'm not sure if they carry them everywhere.

I like Udi's bread. It's overpriced and a tiny loaf, but still it tastes good. I don't think it's amazing but it doesn't fall apart for a sandwich.

Tinkyada rice pasta is very good. I'm Italian and was really freaked about pasta but that one is pretty good.
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!


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