Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Back Again 8 Years Later

SusanL

Recommended Posts

SusanL Newbie
SusanL
Posted

Hi all- I was diagnosed gluten sensitive and wheat allergy 8 years ago. I never experienced any symptoms and was diagnosed based upon IGA level abnormal (141) and a positive reaction to wheat under my skin during testing. Also, I have the DQ8 marker. Anyway, I was told then that I could eat gluten if I wanted to since it wasn't doing anything at the time. Fast forward 8 years- I think I need to go on a gluten free diet to help with some symptoms I have been experiencing.

My question is what is new in the gluten free world that I don't know about yet. IE - yummy bread, mainstream foods, thoughts etc.

I really am starting from scratch. I was on a gluten-free diet for a year 8 years ago but things were different then. Back then the list of mainstream food was free on this website!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome back.

Do check out the products section of the board as there is a lot of info there.

The world of gluten free food is expanding daily and much more edible than 8 years ago.

Some good brands to look for: Kinnickinnick makes good breads and ready made pizza shells, bagels, doughnuts etc. Gluten Free Pantry has some great mixes. Cakes, breads, and a French bread mix that makes great pizza dough. Bakery on Main makes good granola if you like it. There are many more great products out there than these. If you have a favorite ask on the product board or in recipes what folks do as a sub.

Some companies are good at not hiding gluten, Kraft and Unilever are 2.

Many companies also put gluten info on their websites now so sometimes a quick search will give you the answer.

If you live near a Wegmans they label all their gluten free stuff with a circle G. I shop there all the time.

Health food stores are another good source.

To start some find it easiest to go with whole unprocessed food as much as possible. You will heal fastest that way.

Ask any questions you need to. Hopefully you will be feeling great soon.

Hi all- I was diagnosed gluten sensitive and wheat allergy 8 years ago. I never experienced any symptoms and was diagnosed based upon IGA level abnormal (141) and a positive reaction to wheat under my skin during testing. Also, I have the DQ8 marker. Anyway, I was told then that I could eat gluten if I wanted to since it wasn't doing anything at the time. Fast forward 8 years- I think I need to go on a gluten free diet to help with some symptoms I have been experiencing.

My question is what is new in the gluten free world that I don't know about yet. IE - yummy bread, mainstream foods, thoughts etc.

I really am starting from scratch. I was on a gluten-free diet for a year 8 years ago but things were different then. Back then the list of mainstream food was free on this website!

Link to comment
Share on other sites
SusanL Newbie
SusanL
  • Author
Posted

Welcome back.

Do check out the products section of the board as there is a lot of info there.

The world of gluten free food is expanding daily and much more edible than 8 years ago.

Some good brands to look for: Kinnickinnick makes good breads and ready made pizza shells, bagels, doughnuts etc. Gluten Free Pantry has some great mixes. Cakes, breads, and a French bread mix that makes great pizza dough. Bakery on Main makes good granola if you like it. There are many more great products out there than these. If you have a favorite ask on the product board or in recipes what folks do as a sub.

Some companies are good at not hiding gluten, Kraft and Unilever are 2.

Many companies also put gluten info on their websites now so sometimes a quick search will give you the answer.

If you live near a Wegmans they label all their gluten free stuff with a circle G. I shop there all the time.

Health food stores are another good source.

To start some find it easiest to go with whole unprocessed food as much as possible. You will heal fastest that way.

Ask any questions you need to. Hopefully you will be feeling great soon.

Thank you for your reply. I know I used to like Kinnickinnick's white sandwich bread years ago. It was the closest thing to regular bread I could find. I remember Pamela's fudge brownies too. Yumm! The hardest thing for me will be finding a natural food store near my new house. THere was a great one where I used to live. So I have to go searching again. I don't believe there is a Wegmans near by but I am going to check. Again thanks for the great info and support. I am sure I will be asking many questions as I get back in the swing of things!

Link to comment
Share on other sites
MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I find a lot of gluten-free foods on Amazon, too. Sometimes it is cheaper on there than buying them at my local health food stores.

Link to comment
Share on other sites
sandsurfgirl Collaborator
sandsurfgirl
Posted

Betty Crocker has gluten free brownies, yellow cake and chocolate chip cookie mix. We made the brownies and they taste exactly like the real thing. My husband and son could not tell the difference at all and neither could I. My local Stater Bros. carries all of them. I live in So Cal, so I'm not sure if they carry them everywhere.

I like Udi's bread. It's overpriced and a tiny loaf, but still it tastes good. I don't think it's amazing but it doesn't fall apart for a sandwich.

Tinkyada rice pasta is very good. I'm Italian and was really freaked about pasta but that one is pretty good.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed...
    2. trents
      - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    3. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    4. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    5. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748
    Suzi374
    Newest Member
    Suzi374
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Lots of tests

      By plumbago · Posted

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Lots of tests

      By trents · Posted

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...