Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Wahoo! :) :) :)
0

31 posts in this topic

Hey guess what?? There was a cancellation and now I get to have my endoscopy tomorrow morning rather than next Thursday! Wahoo!! Now I can get off gluten and be happy!!! Yay!!!

I just wanted to tell all of you this cool stuff :) I am so happy :D

I don't have to gluten binge anymore! I can start taking care of myself! Yay!!!

I love you guys!!!

- Michelle :wub:

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yay...good luck! :D. We love you, too :lol:;)

0

Share this post


Link to post
Share on other sites

That's awesome!!! Good luck and keep us all posted. We all love ya 2 :D

0

Share this post


Link to post
Share on other sites

Good Luck! We love you muchly, and even if the test comes back negative, you know that you have to do gluten free anyway! :)

0

Share this post


Link to post
Share on other sites

Yipie! Good luck from me, too. We all love you! :lol:

0

Share this post


Link to post
Share on other sites




Me too! Good luck and let us know how it goes.......

Luv ya too! :D

Karen

0

Share this post


Link to post
Share on other sites

Thank you all so much :)

Please send me healing/happy vibes around 8:45 a.m. mountain time ;) That's when I'll be having the procedure done and I will probably need them!

No wait! Don't send them too me until after about 9:30a.m. mountain time - we don't want to screw up the biopsy labs ;) Go ahead and send me nasty intestinal vibes earlier so that we can get a definitive diagnosis!

I talked to a gastroenterologist tonight and he said that (with my symptoms) he would be really surprised if my villi don't present celiac disease. I hope that he's right - just because I want this waiting game to end. That will absolutely suck if they tell me I don't have it after I am so sure that I do!

Those crazy villi. I wonder what's left of them..?

I will let you all know as soon as I find out!

You are wonderful, wonderful, wonderful people. I'm so glad I've had the chance to see that such fabulous people are out there :)

Wish me luck!

- Michelle :wub:

0

Share this post


Link to post
Share on other sites

Okay! Right now it's...about 5 your time, so I'll make sure not to think anything until about 11:30 ET... LOL...no good intestinal vibes before, though.

Good luck! Just not intestinal yet :lol:

0

Share this post


Link to post
Share on other sites

Hi guys,

I am home and it went really well. Thanks for any positive vibes you may have sent me.

It was completely painless and effortless and now it's over and I can go gluten-free! Yay!

Life is wonderful :)

Now I am going to go and pass out in my bed. I'm so so so sleepy! -_-

Thank you again for all of the sweet thoughts you wrote and sent me. I love you all very much :)

- Michelle :wub:

0

Share this post


Link to post
Share on other sites

I'm glad to know everything went well. Welcome to the gluten free club.

Laura

0

Share this post


Link to post
Share on other sites

Congratulations :D. Now add to your signature: gluten-free since May 11, 2005! ;)

0

Share this post


Link to post
Share on other sites

Good idea! Thanks celiac3270 ;)

0

Share this post


Link to post
Share on other sites

glad to hear it went well and you are home and resting. I hope you start feeling better very soon!

0

Share this post


Link to post
Share on other sites

Hey guys- how do I make my signature? On my posts, ya know, where it says how long I've been gluten-free? Sorry-I'm a little computer retarded. Thx- EG

0

Share this post


Link to post
Share on other sites

Go up to my controls and then hit edit signature and type what you want :D

0

Share this post


Link to post
Share on other sites

Michelle,

So glad you are home and it is over with and now you can start a whole new phase of your life!

Get some rest now!

Karen

0

Share this post


Link to post
Share on other sites

Hi Michelle,

I'm glad it went so well, too :) . As soon as you get the results you have to tell us...

0

Share this post


Link to post
Share on other sites

Hey I just found the outpatient papers that they sent home with my parents (nice that they told me about 'em, eh? <_< ) !

Findings:

- The examined esophagus was normal (yay!)

- The entire examined stomach was normal (yay!)

- Diffuse moderately erythematous and atrophic mucosa without active bleeding and with no stigmata of bleeding was found in the 2nd pare of the duodenum and in the 3rd part of the duodenum. Biopsies were taken with a cold forceps for histology.

Impression: Erythematous atrophic duodenopathy. Consistent with celiac sprue.

Recommendations: Await pathology results.

So, there we go - just waiting for the labs now.

- Michelle :wub:

0

Share this post


Link to post
Share on other sites

Congratulations ;) sorta...I mean, while you'd be better off w/o celiac disease, at least this answers your questions :D

0

Share this post


Link to post
Share on other sites

Thanks celiac3270 :)

Hey, I am having these really weird pains today. I feel like someone is pinching me *really hard* a little to the right of my belly button. Is this normal?

Am I gonna die??? :o

(If so, please sue the University of Utah hospital as fellow Celiac patients and use the money to get some research done)

(Then put lots of gluten-free flowers on my grave)

- Michelle :wub:

0

Share this post


Link to post
Share on other sites

Waw, are you really scared? :( If so, contact a dr. You'll be fine and we're thinking of you ;)

0

Share this post


Link to post
Share on other sites

Sorry, Michelle, I don't think you are going to die. I had the same kind of pains after my biopsy, I just figured it was because samples were "cut" out of my intestines. Try eating a soft, low-residue diet for a week. It helped me muchly to eat that way!

0

Share this post


Link to post
Share on other sites

Nope I didn't die ;)

I think I must have some kind of special purpose in this life ... :wacko:

Thanks for caring ;)

- Michelle :wub:

0

Share this post


Link to post
Share on other sites

Hey my doctor called me today to discuss the biopsy:

Him: "So, you were thinking that you had Celiac Sprue..?"

Me: Yes..

Him: "Well... You're right!"

Me: So how damaged are the villi?

Him: "They're flat."

So, anyway, he told me that his nurse will call me in the next couple of days to set up an appointment so that we can "talk about it for a long time" ;) Then he said, "But you probably already know a lot about it just from the internet, huh?"

I'm lucky I have such educated friends ;)

So - there we go. A definitive diagnosis. Not that I really questioned it, but now no one else can argue with me about it ;)

Thanks guys!!

- Michelle :wub:

0

Share this post


Link to post
Share on other sites

Now you can finally get on the road to good health.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,348
    • Total Posts
      917,423
  • Topics

  • Posts

    • Testing After Celiac Disease if IgA deficient
      The DGP IGG and TTG IGG versions of the celiac tests.  
    • Testing After Celiac Disease if IgA deficient
      I am also IgA deficient. My doc took more blood and looked at 2-3 other markers in the blood work , transglutinase, and 2 others. My biopsy showed blunted cilia in sm intestine, but my IgA was low. He suspected Celiac due to cilia so ordered other blood tests. I also presented atypically, burny stomach and reflux...and very little else.
    • Testing After Celiac Disease if IgA deficient
      If you have Celiac Disease, and you are IgA deficient, what do they check on your labs to make sure you are not being "glutened"?
    • Weird Reaction
      Hi again Richie, A lot of coeliacs have a problem with coffee, maybe you do too. It could explain the shakes you describe. I am sensitive to coffee, and haven't touched caffeine since last summer. (The detox lasted for 10 days and it wasn't pleasant, so if you ever give it up, do it gradually).  Sometimes when you're intolerant to something, when you have it, it makes you feel 'better' but it doesn't last and usually end up worse, it's like a drug - and in the case of caffeine it is. I also take a daily probiotic (gluten free and dairy free etc)., which is good for healing the gut.
    • Weird Reaction
      Cristiana and Flowerqueen, I haven't been officially diagnosed as Celiac but I had a DNA test in March 2015 which revealed I had the Celiac gene on both sides so it was advised that I have a test to see if I did have it. I didn't but I went off gluten immediately and haven't "knowingly" eaten it since. Before the DNA test I didn't have the nausea and trembling type feelings that I do now but I occasionally got the shortness of breath which I used to put down to being a smoker. (I quit almost 16 years ago) Anyway, this morning I woke with the nausea feeling, the trembling, loss of appetite, feeling of doom again but it happens so intermittently. I do have some unavoidable stress in my life all of a sudden so maybe it's all connected some how. But on the plus side my bowel movements have returned to normal and I go often especially after waking and having coffee. (Oh, and Cristiana don't worry about tmi with me. You would have to try pretty hard to offend me and nobody has done it yet. haha) I always think the worse to. The internet and Google are great but information overload becomes a real possibility creating some frightening scenarios. It's just interesting that the coffee with the MCT Oil (Brain Octane is the actual name) and butter makes me start feeling better and the nausea, trembling, anxiety seem to be extinguished by it but coffee with low fat milk doesn't although I do get more energy from it. I did read somewhere that MCT Oil was good for gut health though and if I had to describe it it would be like it just smooths over all the bad stuff with a nice soft lining.  It was recommended in my DNA test that I have more fats in my diet and low processed foods but I occasionally have gluten-free biscuits, gluten-free ice-cream (my true weakness) and gluten-free weet-bix. I've checked most of these items ingredients and they are pretty good. There is a lot of gluten free rubbish out there though which I completely avoid. Thanks GFinDC for your reply. I was going to speak to my Naturopath when I see her about Immune Health. My plan usually involves the Liver Tonic I mentioned above and heavy on the L-Glutamine which, apparently, is supposed to be excellent for gastrointestinal health but I'm not going to supplement with anything just yet until I get my blood work done and see if it reveals any deficiencies. I'm suspecting Iron though. Because I've had recent tests all coming back good I'm thinking a possible scenario would be a die-off effect I've heard of where all the bad bacteria have been killed off but your body can't rid itself of them quick enough so you actually feel or get worse before you get better. That's where the detox strategy comes in and I'm assuming replacing them with Good Bacteria via Probiotics. Again, this is what I have read in the past but it does seem to make sense in some cases. I do feel better in having found these forums though.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,484
    • Most Online
      1,763

    Newest Member
    KKJ
    Joined