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Wahoo! :) :) :)
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Hey guess what?? There was a cancellation and now I get to have my endoscopy tomorrow morning rather than next Thursday! Wahoo!! Now I can get off gluten and be happy!!! Yay!!!

I just wanted to tell all of you this cool stuff :) I am so happy :D

I don't have to gluten binge anymore! I can start taking care of myself! Yay!!!

I love you guys!!!

- Michelle :wub:

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Yay...good luck! :D. We love you, too :lol:;)

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That's awesome!!! Good luck and keep us all posted. We all love ya 2 :D

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Good Luck! We love you muchly, and even if the test comes back negative, you know that you have to do gluten free anyway! :)

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Yipie! Good luck from me, too. We all love you! :lol:

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Me too! Good luck and let us know how it goes.......

Luv ya too! :D

Karen

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Thank you all so much :)

Please send me healing/happy vibes around 8:45 a.m. mountain time ;) That's when I'll be having the procedure done and I will probably need them!

No wait! Don't send them too me until after about 9:30a.m. mountain time - we don't want to screw up the biopsy labs ;) Go ahead and send me nasty intestinal vibes earlier so that we can get a definitive diagnosis!

I talked to a gastroenterologist tonight and he said that (with my symptoms) he would be really surprised if my villi don't present celiac disease. I hope that he's right - just because I want this waiting game to end. That will absolutely suck if they tell me I don't have it after I am so sure that I do!

Those crazy villi. I wonder what's left of them..?

I will let you all know as soon as I find out!

You are wonderful, wonderful, wonderful people. I'm so glad I've had the chance to see that such fabulous people are out there :)

Wish me luck!

- Michelle :wub:

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Okay! Right now it's...about 5 your time, so I'll make sure not to think anything until about 11:30 ET... LOL...no good intestinal vibes before, though.

Good luck! Just not intestinal yet :lol:

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Hi guys,

I am home and it went really well. Thanks for any positive vibes you may have sent me.

It was completely painless and effortless and now it's over and I can go gluten-free! Yay!

Life is wonderful :)

Now I am going to go and pass out in my bed. I'm so so so sleepy! -_-

Thank you again for all of the sweet thoughts you wrote and sent me. I love you all very much :)

- Michelle :wub:

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I'm glad to know everything went well. Welcome to the gluten free club.

Laura

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Congratulations :D. Now add to your signature: gluten-free since May 11, 2005! ;)

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Good idea! Thanks celiac3270 ;)

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glad to hear it went well and you are home and resting. I hope you start feeling better very soon!

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Hey guys- how do I make my signature? On my posts, ya know, where it says how long I've been gluten-free? Sorry-I'm a little computer retarded. Thx- EG

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Go up to my controls and then hit edit signature and type what you want :D

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Michelle,

So glad you are home and it is over with and now you can start a whole new phase of your life!

Get some rest now!

Karen

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Hi Michelle,

I'm glad it went so well, too :) . As soon as you get the results you have to tell us...

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Hey I just found the outpatient papers that they sent home with my parents (nice that they told me about 'em, eh? <_< ) !

Findings:

- The examined esophagus was normal (yay!)

- The entire examined stomach was normal (yay!)

- Diffuse moderately erythematous and atrophic mucosa without active bleeding and with no stigmata of bleeding was found in the 2nd pare of the duodenum and in the 3rd part of the duodenum. Biopsies were taken with a cold forceps for histology.

Impression: Erythematous atrophic duodenopathy. Consistent with celiac sprue.

Recommendations: Await pathology results.

So, there we go - just waiting for the labs now.

- Michelle :wub:

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Congratulations ;) sorta...I mean, while you'd be better off w/o celiac disease, at least this answers your questions :D

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Thanks celiac3270 :)

Hey, I am having these really weird pains today. I feel like someone is pinching me *really hard* a little to the right of my belly button. Is this normal?

Am I gonna die??? :o

(If so, please sue the University of Utah hospital as fellow Celiac patients and use the money to get some research done)

(Then put lots of gluten-free flowers on my grave)

- Michelle :wub:

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Waw, are you really scared? :( If so, contact a dr. You'll be fine and we're thinking of you ;)

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Sorry, Michelle, I don't think you are going to die. I had the same kind of pains after my biopsy, I just figured it was because samples were "cut" out of my intestines. Try eating a soft, low-residue diet for a week. It helped me muchly to eat that way!

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Nope I didn't die ;)

I think I must have some kind of special purpose in this life ... :wacko:

Thanks for caring ;)

- Michelle :wub:

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Hey my doctor called me today to discuss the biopsy:

Him: "So, you were thinking that you had Celiac Sprue..?"

Me: Yes..

Him: "Well... You're right!"

Me: So how damaged are the villi?

Him: "They're flat."

So, anyway, he told me that his nurse will call me in the next couple of days to set up an appointment so that we can "talk about it for a long time" ;) Then he said, "But you probably already know a lot about it just from the internet, huh?"

I'm lucky I have such educated friends ;)

So - there we go. A definitive diagnosis. Not that I really questioned it, but now no one else can argue with me about it ;)

Thanks guys!!

- Michelle :wub:

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Now you can finally get on the road to good health.

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    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
    • I have been on a gluten-free diet for exactly one-year. During that time, I have had no stomach issues or problems when I inadvertently ingested gluten. The other day, I had GI discomfort (no vomiting or diarrhea) and my blood pressure spiked t0 200/98 (normally 119/75). As my GI discomfort subsided, my pressure crept back to normal. This took about 16-hours. I know that I ingested something with gluten, which I had thought was gluten-free.  It never bothered me before. Should I expect that the longer I'm gluten-free, the more susceptible I will be to having a pronounced reaction to inadvertent gluten exposure? Has anyone else had similar experiences with blood pressure spikes?
    • If this is helpful: My local public library had a copy of Breaking the Vicious Cycle by Elaine Gottschall.  There is a Facebook group, I believe it is easily found by searching SCD Diet, and it's a closed group.  If you go directly to the official website of Breaking the Vicious Cycle, there's lots of information for free available, including the basics about the intro diet and beyond.  I would go to the original source of this diet rather than go to other groups/books who have perhaps veered away from Elaine Gottschall's fundamentals. Best wishes to you!
    • AdrienJ, thank you so much! I dream of traveling more one day. I have spondylitis too. I'm so glad that a gluten free and casein free diet is helping you feel your best!
    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
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