Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Wahoo! :) :) :)


  • Please log in to reply

30 replies to this topic

#16 Canadian Karen

 
Canadian Karen

    That Crazy Canuck!

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,554 posts
 

Posted 12 May 2005 - 01:01 AM

Michelle,

So glad you are home and it is over with and now you can start a whole new phase of your life!

Get some rest now!

Karen
  • 0
Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

Celiac.com Sponsor:

#17 stef_the_kicking_cuty

 
stef_the_kicking_cuty

    Stef and Luke

  • Advanced Members
  • PipPipPipPipPipPip
  • 925 posts
 

Posted 12 May 2005 - 10:25 AM

Hi Michelle,

I'm glad it went so well, too :) . As soon as you get the results you have to tell us...
  • 0
Stef

Next goals:
Results for 2011:
1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting
August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)
gluten-free since 07/21/2004
Shermans Dale, PA

#18 bean

 
bean

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 476 posts
 

Posted 13 May 2005 - 11:29 AM

Hey I just found the outpatient papers that they sent home with my parents (nice that they told me about 'em, eh? <_< ) !

Findings:

- The examined esophagus was normal (yay!)

- The entire examined stomach was normal (yay!)

- Diffuse moderately erythematous and atrophic mucosa without active bleeding and with no stigmata of bleeding was found in the 2nd pare of the duodenum and in the 3rd part of the duodenum. Biopsies were taken with a cold forceps for histology.

Impression: Erythematous atrophic duodenopathy. Consistent with celiac sprue.

Recommendations: Await pathology results.

So, there we go - just waiting for the labs now.

- Michelle :wub:
  • 0
~~~~~~~~~~~~~~~~~~~~~

Michelle :)

Positive blood tests 4/29/05 (tTG & IgA)
*Osteoporosis (at 32!)
*Heartburn/Reflux (*ouch!*)
*Lifelong battle w/depression
*Dental enamel didn't form right when I was little (cavities cavities cavities)
*Neuropsych analysis lists all sorts of learning disabilities - which may be attributed to brain injury from an old accident or may be from celiac, who knows!

Had biopsy May 11th, 2005 - villi are FLAT! :(
gluten-free since May 11th :)

#19 celiac3270

 
celiac3270

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,263 posts
 

Posted 13 May 2005 - 11:48 AM

Congratulations ;) sorta...I mean, while you'd be better off w/o celiac disease, at least this answers your questions :D
  • 0

#20 bean

 
bean

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 476 posts
 

Posted 13 May 2005 - 12:35 PM

Thanks celiac3270 :)

Hey, I am having these really weird pains today. I feel like someone is pinching me *really hard* a little to the right of my belly button. Is this normal?

Am I gonna die??? :o

(If so, please sue the University of Utah hospital as fellow Celiac patients and use the money to get some research done)

(Then put lots of gluten-free flowers on my grave)

- Michelle :wub:
  • 0
~~~~~~~~~~~~~~~~~~~~~

Michelle :)

Positive blood tests 4/29/05 (tTG & IgA)
*Osteoporosis (at 32!)
*Heartburn/Reflux (*ouch!*)
*Lifelong battle w/depression
*Dental enamel didn't form right when I was little (cavities cavities cavities)
*Neuropsych analysis lists all sorts of learning disabilities - which may be attributed to brain injury from an old accident or may be from celiac, who knows!

Had biopsy May 11th, 2005 - villi are FLAT! :(
gluten-free since May 11th :)

#21 celiac3270

 
celiac3270

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,263 posts
 

Posted 13 May 2005 - 01:55 PM

Waw, are you really scared? :( If so, contact a dr. You'll be fine and we're thinking of you ;)
  • 0

#22 plantime

 
plantime

    My two handsome grandsons

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,692 posts
 

Posted 14 May 2005 - 11:54 AM

Sorry, Michelle, I don't think you are going to die. I had the same kind of pains after my biopsy, I just figured it was because samples were "cut" out of my intestines. Try eating a soft, low-residue diet for a week. It helped me muchly to eat that way!
  • 0
Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25

#23 bean

 
bean

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 476 posts
 

Posted 14 May 2005 - 12:22 PM

Nope I didn't die ;)

I think I must have some kind of special purpose in this life ... :wacko:

Thanks for caring ;)

- Michelle :wub:
  • 0
~~~~~~~~~~~~~~~~~~~~~

Michelle :)

Positive blood tests 4/29/05 (tTG & IgA)
*Osteoporosis (at 32!)
*Heartburn/Reflux (*ouch!*)
*Lifelong battle w/depression
*Dental enamel didn't form right when I was little (cavities cavities cavities)
*Neuropsych analysis lists all sorts of learning disabilities - which may be attributed to brain injury from an old accident or may be from celiac, who knows!

Had biopsy May 11th, 2005 - villi are FLAT! :(
gluten-free since May 11th :)

#24 bean

 
bean

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 476 posts
 

Posted 19 May 2005 - 05:44 PM

Hey my doctor called me today to discuss the biopsy:

Him: "So, you were thinking that you had Celiac Sprue..?"

Me: Yes..

Him: "Well... You're right!"

Me: So how damaged are the villi?

Him: "They're flat."

So, anyway, he told me that his nurse will call me in the next couple of days to set up an appointment so that we can "talk about it for a long time" ;) Then he said, "But you probably already know a lot about it just from the internet, huh?"

I'm lucky I have such educated friends ;)

So - there we go. A definitive diagnosis. Not that I really questioned it, but now no one else can argue with me about it ;)

Thanks guys!!
- Michelle :wub:
  • 0
~~~~~~~~~~~~~~~~~~~~~

Michelle :)

Positive blood tests 4/29/05 (tTG & IgA)
*Osteoporosis (at 32!)
*Heartburn/Reflux (*ouch!*)
*Lifelong battle w/depression
*Dental enamel didn't form right when I was little (cavities cavities cavities)
*Neuropsych analysis lists all sorts of learning disabilities - which may be attributed to brain injury from an old accident or may be from celiac, who knows!

Had biopsy May 11th, 2005 - villi are FLAT! :(
gluten-free since May 11th :)

#25 ianm

 
ianm

    Metal God

  • Advanced Members
  • PipPipPipPipPipPip
  • 849 posts
 

Posted 19 May 2005 - 05:48 PM

Now you can finally get on the road to good health.
  • 0
If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.
Nobody cares about losers and quitters never win. If you fail with the cowards then what's the message you send?
Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.
Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.

#26 Guest_nini_*

 
Guest_nini_*
  • Guests
 

Posted 19 May 2005 - 06:18 PM

Way to go Michelle!!! Today is the first day of the rest of your (gluten free) life!!! Cheers and hears to good health!

I know that feeling of "finally they KNOW what is wrong with me, and I can do something about it!!!" Yay for you for getting a definitive answer.
  • 0

#27 mommida

 
mommida

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,937 posts
 

Posted 19 May 2005 - 06:23 PM

I am so glad you have a definate diagnoses. I hope you will remember it as your liberation day!
Laura
  • 0
Michigan

#28 stef_the_kicking_cuty

 
stef_the_kicking_cuty

    Stef and Luke

  • Advanced Members
  • PipPipPipPipPipPip
  • 925 posts
 

Posted 19 May 2005 - 06:30 PM

Hey, I'm really glad for you. Now it will all get better. You'll see :lol:
  • 0
Stef

Next goals:
Results for 2011:
1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting
August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)
gluten-free since 07/21/2004
Shermans Dale, PA

#29 KaitiUSA

 
KaitiUSA

    Be the change you wish to see in the world!

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,583 posts
 

Posted 19 May 2005 - 06:32 PM

That's great to have a clear cut answer B) Now nobody can tell you "it's all in your head" :D
  • 0
Kaiti
Positive bloodwork
Gluten-free since January 2004
Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

#30 celiac3270

 
celiac3270

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,263 posts
 

Posted 20 May 2005 - 03:37 AM

Congratulations! I saw this last night, but I was too tired to reply -_-
  • 0




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: