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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Major Bloating
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13 posts in this topic

I'm really bloated again. SIGH. I've been 10 days gluten free and was doing well with the bloating for a few days in there. Maybe I'm getting gluten and don't know it. Hmmmm. How long does it normally take for the bloating to disappear? Should I stay away from fibre? Before going gluten free, dairy free I was having sometimes 7 stools per day...it's down to about 1-3 now, but maybe this is b/c of less fibre in the diet? Today has been a big poop day. Grrr. Anyone know a good link for an elimination diet??? I'm thinking of fasting and then slowly adding in foods to see if there are any other allergies/intolerances.

Skar

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Bloating was a major symptom for me too. Going gluten-free has helped a lot but until I quit ingesting Aspartame I still had some bloating. I was drinking two and sometimes four bottles of diet soda a day with aspartame, since I switched to splenda flavored drinks (diet-rite cola) no more bloat. Might just be me but it's worth a try.

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Hi Skar.

Bloating used to be a big problem for me too before going gluten-free ten months ago, but it's a non-factor now. I'm 5' 8, 115 lbs. and for some reason, it took me forever to realize that it was unusual for me to be the only one who had to unbutton her pants when sitting down to a meal. Duh. My favorite outfit to wear when going to dine was a jumper with no waistline because that way, I could be more comfortable. My bloating only lasted as long as it took to recover before the start of the next meal, and then it was more of the same. I'm no authority, but I suspect that since you are new to the diet, you might be taking in gluten, unawares. Read those labels. Assume nothing.

Hope you are feeling better real soon. :)

Paula

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Other foods can - innocently - cause bloating as well, particularly the gassier vegetables and beans. It may just take your body some time to adjust, or you may need to investigate pinning down what foods are causing this problem.

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Hi,

Congrats on going gluten-free, as tough as it is the diagnosis and gluten-free diet make life easier. At only 10 days gluten-free your body is still doing a lot of adjusting so it just may be that. However, bloating is one of the signs that I get indicating I may have accidently consumed gluten. Most of the time I "just" ;) get "D" and horrid stomach cramps, but sometimes no "D"/stomach cramps instead just huge bloating. Have you de-glutened your kitchen? Maybe you are getting gluten from your pans, dishes, or utensils? Or kissing a gluten consumer just after they ate? Lots of potential sources. You'll figure it out with time.

Best Wishes! :)

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Thank you for all of your replies!! It is nice to get some answers. Are the pans and utensils really that important? I had never thought of that and my doc hadn't mentioned it (but then again he also said that it didn't matter if my birth control pills had gluten in them after I'd asked....they don't, btw...I checked with the manufacturer...Diane 35).

I have a couple of questions in case anyone wants to take a shot at them...

1. Any ideas on a good breakfast protein? I had been eating chick peas until now, but I think I'll let my intestines heal before I have such hardcore fibre....I think it's contributing to the bloating.

2. I have always had floating stools until going gluten free (didn't realize that this was not normal). If I ever see this again does it mean that I have take in gluten, or can having a cold/flu cause them to float?

Interesting story for those who care: 3 years ago I went into the doctor's office because I had caught some sort of a bug...had bad rash all over my body...I had taken a stool sample to be tested and the doctor mentioned that the tests showed that there was alot of fat in my stool. Neither one of us thought much of it and I stupidly replied that I eat alot of olive oil. LOL. Little did I know it was celiac. I since have a much better doctor!!

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One thing that seems to help with my bloating is to eat very small meals about 4-6 times throughout the day. No more than 2 cups worth of food total in one meal. For me if the portions go beyond a certain amount then I start to get bloated. I also don't get the full feeling when I eat either so it is real easy for me to over eat. I haven't been able to determine if it is caused by a particular food. I don't get nearly as bloated as when I eat gluten. For some reason portion size has something to do with bloating with me.

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for breakfast protein I actually stick with scrambled eggs and sausage or bacon. I do a lot of work involving using my muscles so I need LOTS of protein, and my dr. said as long as my cholesterol levels remain good, I can continue to eat them. I eat them maybe 4 days a week. On the other days I stick with gluten-free cereals, yogurts and fruit, or gluten-free pancakes or muffins or Kinnikinnick bagels with cream cheese.

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I have a few ideas for eating more protein at breakfast:

tofu

Silk Soy Milk

hummus-the bean is already partially broken down and they come in so many tasty varieties!

Eggs, boiled, fried, scrambled, omelettes(Omelettes are great for adding veggies and garlic to them)

gluten-free Protein Drinks (I think ALL in One is a gluten-free drink mix??)

Turkey burgers with your favorite gluten-free fixings, mushrooms or onions or bacon or salt and pepper or chili powder!

And sometimes I eat nitrite free, gluten-free hotdogs

it beats eating tofu everyday

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Anyone know which sausage brands are gluten free?

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To go along with the gluten-free sausage question, what is the deal with seasonings and condiments? I am new and waiting for my nutritionist appt., so I am kinda winging it here. I've read so many different things about seasonings, what are the most common trade names for gluten I should be looking for other than the obvious?

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Hello again, Skar.

Jimmy Dean makes sausage that is gluten-free, but not all the varieties. I know that the fresh, bulk sausage in the rolls that you have to cut up yourself, is safe. We eat it a couple of times a week. They make original, hot, maple, sage and Italian...that much I can tell you is gluten-free.

Although, I remember reading that because Celiacs have difficulty digesting fatty foods, that in the beginning while your body is most delicate from the damage endured on a gluten-laden diet, it is said to be a good idea to avoid high fat foods like sausage.

I went maybe a month or so, I think, before starting to eat bacon and sausage. Listen to your body, and take it from there.

Paula

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Bloating is a major issue with me, I still struggle with it after 14 months on the diet. But certian foods make it worse, like dairy (which I avoid) and sugar. I also usually get gas along with it.

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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