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Congratulations To Me!
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20 posts in this topic

I am so excited...I am able to walk a little around my house again! As long as I am barefoot and don't try to do too much, I have been able to move around my house some. If I try to put shoes on, I can't lift that left leg enough to move it without stumbling, but maybe I will get there. Right now, just being out of that wheelchair a little is feeling pretty wonderful.

To those of you out there with neuropathy, spasticity, FMS, etc. there is hope. Now my biggest challenge may be to take it slowly enough so I don't put myself back into it full time again.

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Donna-

So glad to hear about your victory :) You are always in my prayers. Hopefully someone will keep you accountable on not too doing much... How's the wedding coming? What day is it?

"Give up the nonsensical and punishing quest for perfection that dogs too many of us through too much of our lives. It is a quest that causes us to doubt and denigrate ourselves, our true selves, our quirks and foibles and great leaps into the unknown, and that is bad enough." -Anna Quindlen

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Congratulations Donna :) You deserve every victory you get ;)

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Congratulations and best wishes for continued success!

Cleveland Bob B)

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Yay! :D My sincere congratulations. That's such a great step! ;)

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Donna- That's so great! Now don't overdo it! Treat yourself well, but God you must feel so happy! Yeah! Beverly

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Donna-that's wonderful news!!! Congrats!

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Donna, that is such wonderful news!!!! :)

Take one day at a time, that's all we can ask ourselves to do......

Hugs.

Karen

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I knew that you guys, of all people, would understand my small but important victory. I have been stuck in this wheelchair since 1998. I had just begun to move around a little last year when I got glutened by a restaurant. It has been nine months of gradual and painful effort to get back to this point. I do so want to be able to get around at least using a walker again. The docs are talking about maybe letting me get another AFO to help that left foot lift up. I could once again have the problem of needing a size 8 women's right shoe and a size 8 men's left shoe--and I could get excited about such a problem!

The wedding is June 3. I am trying right now to work out the logistics of the deli meat. Did you all know that several of Kroger's Private Selection deli meats are gluten-free if you don't get them from the deli? (Cross contamination) 60lbs of deli meat is a lot of meat! Oh yeah, I need to add this info to the other post don't I. I am so overwhelmed right now.

For those of you who pray, keep me in them this next few days. Tomorrow is home school day at Six Flags, Saturday my youngest has to be on the ball field by 9:30 a.m. and then my mom is coming in from out of town, and Sunday is another wedding shower. My fatigue levels are going to skyrocket and we are in the last few weeks of school for the year and a wedding is almost upon us. My biggest fear now is that I will overdo it and set myself back again. Needless to say my kids, husband, mom, and friends are all on my case to be careful. They would not even let me go to church Wednesday night for fear I won't make it through this weekend. The last time I took my kids to Six Flags, they remember me walking around with them. They are really excited about tomorrow. Jenn's reaction to our most recent accidental glutening has finally kicked in so she has had "loads of fun" (facetious, not sarcastic) this last week. (Look it up if you aren't sure of the difference! The teacher in me kicks in regularly around here...yesterday it was a discussion of the word genre and its appropriate usage.) She is bound and determined to make it tomorrow, so she has been extra good this week.

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Donna-

Prayers for you... I hope you will not have a sense of dread, but be able to have a sense of joy and anticipation at what's ahead these next few days. Some verses for you...

The Sovereign LORD is my strength; he makes my feet like the feet of a deer, he enables me to go on the heights. Hab 3:19 (I would love for you to have this feeling of going on the heights!!)

O LORD, be gracious to us; we long for you. Be our strength every morning, our salvation in time of distress. Isaiah 33: 2

And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. "Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me." 2 Corinthians 12:9

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Thank you, Jen, for those verses. I am halfway through the weekend. I am stuttering and jerking and tired, but am making it. Can't write more. Too hard.

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Okay, go rest up! ;) We're thinking of you :)

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Donna, glad to hear you are moving a little better. Please don't overdo it. You are in my thoughts sweets. :D

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I made it through. I am tired ("that" tired, you knwo what imean). Sent eerybody else to church without me. Time for bed, biut I think i will be okay with someee sleep.

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I can tell from your post... :) Rest up! ;)

YOU ==> -_- , lol

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Don't overdo it, Donna! Don't reverse all the recent new accomplishments by overdoing it. Take it easy!!!! That's an order! ;)

Karen

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A 24-hour nap later...

I am back in the land of the living (and writing after seeing that last post of mine). It was a wild and hectic weekend, but it is completed now. It will probably take a few days for me to feel rested, but at least I am back in the saddle a little. Thank you all for your encouragement and support.

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Glad to hear you are well Donna !

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You deserve it Donna- Congratulations! By the way Jen - I LOVE your photograph! It's hilarious. Beverly

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Yay! Anything we can do to "help you" through it. I am sincerely thrilled for you...I can't imagine not being able to walk, so this is must be an amazing victory for you. Glad you got through the weekend ;)

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    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
    • If you are one of the approximately 2-3 million Americans with celiac disease, ZyGluten™ may be taken before you eat out at a restaurant or a friend\'s house, as it may help break down any gluten cross-contamination that you might encounter. View the full article
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    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
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       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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