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Severe Itching And No Rash


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#1 MeghanEileenReilly

 
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Posted 05 February 2010 - 04:30 PM

Hi everyone,

I am 24 and 3 years ago, my body started itching all over and I had a prickling sensation all over my body like bugs were crawling on me, but no rash whatsoever. For the past three years, I have been on an endless search from doctor to doctor, blood tests, skin biopsies to no avail. Everything comes up negative and doctors look at me like I am crazy, because I look completely normal. There is no rash, bumps, hives, to see how bad I am suffering. Doctors are absolutely puzzled and don't have any answers. I've been on every anti-histamine, nerve drugs, psychotropic medications, etc and I am still suffering. I feel like my situation is only getting worse. I used to be able to function and carry out my day but it has become so bad, I am unable to work or do anything.

My sister is a celiac and I have recently cut out all gluten/dairy from my diet, even though the doctors said it wouldn't make a difference. I have not noticed any difference yet, so I am discouraged - but it has only been 5 days.

Has anyone else been suffering with this horrible itching all over and NO RASH?? I am going out of my mind and don't know what to do, where to go to get any relief!


ANY HELP IS APPRECIATED!!!! I need to get better and will do anything! :lol:

Meghan Reilly
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Meghan E. Reilly
meghaneileenreilly@gmail.com


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#2 mushroom

 
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Posted 05 February 2010 - 04:50 PM

Hi everyone,

I am 24 and 3 years ago, my body started itching all over and I had a prickling sensation all over my body like bugs were crawling on me, but no rash whatsoever. For the past three years, I have been on an endless search from doctor to doctor, blood tests, skin biopsies to no avail. Everything comes up negative and doctors look at me like I am crazy, because I look completely normal. There is no rash, bumps, hives, to see how bad I am suffering. Doctors are absolutely puzzled and don't have any answers. I've been on every anti-histamine, nerve drugs, psychotropic medications, etc and I am still suffering. I feel like my situation is only getting worse. I used to be able to function and carry out my day but it has become so bad, I am unable to work or do anything.

My sister is a celiac and I have recently cut out all gluten/dairy from my diet, even though the doctors said it wouldn't make a difference. I have not noticed any difference yet, so I am discouraged - but it has only been 5 days.

Has anyone else been suffering with this horrible itching all over and NO RASH?? I am going out of my mind and don't know what to do, where to go to get any relief!


ANY HELP IS APPRECIATED!!!! I need to get better and will do anything! :lol:

Meghan Reilly

Hi, Meghan, and welcome.

Don't be discouraged quite yet, five days is a very short time. Give it another week or two and if it still persists I would start suspecting another food culprit. For me, it was potatoes. Soy also gave me the itchies, but I had a rash with that. But no rash with potatoes. Everyone reacts differently to different things, though, so for you it could be something else, although most likely one of the major allergens.
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#3 Wolicki

 
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Posted 05 February 2010 - 05:13 PM

I used to scratch until I bled- seriously, I had bruises shaped like scratches. It was so bad, especially on my thighs and torso. It's mostly gone away since going gluten free, but it took a couple of months. My doc says its normal with Celiac. He suggested coating myself with Eucerin Calming Cream while still wet after showering, then drying off. It really has helped.
Before going gluten free I had every allergy test known to man, and I was not allergic to anything <_<
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Gluten free is not so bad! If you are new, hang it there, it gets easier!

#4 kareng

 
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Posted 05 February 2010 - 07:29 PM

I know what you mean. I have dry skin but this is a different, almost burning or stinging kind of itch. I saw something that said that some women in menopause get this. I know you are too young but your hormones could be out of whack. I thought that might be why I was having them. I was found to be extremely anemic. After I had been taking massive doses of iron for 4-5 weeks, the itching has gone away. Something to get checked if you haven't.
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#5 MeghanEileenReilly

 
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Posted 06 February 2010 - 12:36 PM

I know what you mean. I have dry skin but this is a different, almost burning or stinging kind of itch. I saw something that said that some women in menopause get this. I know you are too young but your hormones could be out of whack. I thought that might be why I was having them. I was found to be extremely anemic. After I had been taking massive doses of iron for 4-5 weeks, the itching has gone away. Something to get checked if you haven't.


Hi Kareng,

I had my hormones checked because after a lot of research, I found that hormonal imbalances can cause itching - my cortisol was low so I am going on cortisol in the next few days when it arrives from the doctor.

Also, I think I was anemic as a child and wondering what kind of iron you are taking and what dosage & where to get it?? Please let me know, I'd like to try everything!

Hope you have a nice day :P
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Meghan E. Reilly
meghaneileenreilly@gmail.com


#6 ZsaZsa

 
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Posted 08 February 2010 - 11:29 PM

Soy in all it's forms is in almost all processed foods........And if you are consuming soy lecithin, or msg, soybean oil, etc.... THAT can Definately cause severe ITCHING! It always did for me........every time........to where now, I cannot consume any form of soy or any legume without having the severe itch with no rash! No Doctor every found it either....I discovered it myself after keeping a food journal and finding the common denominator; culprit! Good luck. I wish there were more foods that kept the soy out! Gluten free is easy compared to finding foods 'sans' the soy! Soy is dangerous anyway...it was way over touted and people are just now realizing this. Some celiacs can tolerate soy....but I am severely allergic to any and all forms of it. Hope this helps.
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#7 VioletBlue

 
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Posted 09 February 2010 - 12:29 AM

Like someone suggested, I would say give it more time gluten free to see if it gets better. I know that's a hard thing to hear. I know how frustrating non-stop itching can be, I went through that for quite some time. I tend to react to things I'm allergic to by itching. It took a while to weed out all the things that were causing it as there were multiple allergies in my case.

I'm not a big fan of allergy testing, but have you tried that? Allergy testing can be hit and miss with many people, providing both false positives and false negatives. Much as some doctors would like you to believe, allergy testing doesn't always work.

Also consider that if you are itching all the time then you could well be allergic to a substance that is either in something you eat everyday, or is an ingredient in many things. I am allergic to anything sunflower, so when I gave up potato and corn chips which all invariably use some amount of sunflower oil a lot of the itching stopped. When I gave up soy which is in a WIDE VARIETY of pre-packaged foods the occasional itching stopped. So it could be one specific food that you love and eat every day. Or it could be an ingredient like soy or corn or safflower or canola or lactose or peanuts that shows up in a lot of pre-packaged foods.

You might consider taking you diet to the basics for a few days and eating nothing but a simple whole food diet; say plain chicken and rice, to see if that helps. If it does you can then start adding things one at a time back to your diet until you add something back that makes you itch. That's basically an elimination diet. But you've got to try something because I know how the itching can make you crazy. If doctors won't or can't help then you've got to help yourself and diet modification is the first logical step.



Hi everyone,

I am 24 and 3 years ago, my body started itching all over and I had a prickling sensation all over my body like bugs were crawling on me, but no rash whatsoever. For the past three years, I have been on an endless search from doctor to doctor, blood tests, skin biopsies to no avail. Everything comes up negative and doctors look at me like I am crazy, because I look completely normal. There is no rash, bumps, hives, to see how bad I am suffering. Doctors are absolutely puzzled and don't have any answers. I've been on every anti-histamine, nerve drugs, psychotropic medications, etc and I am still suffering. I feel like my situation is only getting worse. I used to be able to function and carry out my day but it has become so bad, I am unable to work or do anything.

My sister is a celiac and I have recently cut out all gluten/dairy from my diet, even though the doctors said it wouldn't make a difference. I have not noticed any difference yet, so I am discouraged - but it has only been 5 days.

Has anyone else been suffering with this horrible itching all over and NO RASH?? I am going out of my mind and don't know what to do, where to go to get any relief!


ANY HELP IS APPRECIATED!!!! I need to get better and will do anything! :lol:

Meghan Reilly


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"My mother always told me, it's okay to play with a man's mind
as long as you put it back where you got it when you're done with it."

#8 Pac

 
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Posted 09 February 2010 - 06:53 PM

It took me 5 months on gluten free diet before the itching got any better, so don't give up. I used to scratch my legs and scalp until there was literally no skin left. But at least I could scratch it. The itching in my feet, palms and worst of all inside my nose/ears/mouth, where no scratching was possible/effective was driving me nuts.
As someone else suggested, you might also try the elimination diet. I'm now getting the terrible itchy feet again, and suspecting soy oil as the culprit.
And maybe look for other possible causes beside your pantry. I wasn't able to use any laundry soap except the real 'no-residue' ones you can buy in sport/outdoors stores (Nikwax or what's the name). Now it seems a bit better, but still have to be very cautious with all these household chemicals, including things like scented toilet paper.
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#9 Cain Rai

 
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Posted 19 April 2012 - 12:03 PM

I know this one condition, I believed this is caused by formication. it is form of paresthesia, you might have gotten it from your previous disease/sickness. I'm pretty sure it's not permanent, i hope.
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#10 JustNana

 
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Posted 20 April 2012 - 01:16 PM

Meghan

My horrible itching had no rash or even redness until I started scratching. Then it changed and I started getting tiny blisters in some places, but only as the itch was well under way. And even then only in a few places at first, especially hands. It is Dermatitis Herpetiformis. I noticed improvement after 2 weeks gluten free.

Please try a bit longer. If it's from Celiac you will be so glad you did. Also, as is the case with many DH celiacs, I had much less intestinal trouble tan others did. (I have none now!)

Whatever it is, I wish you recovery. You are not a head case. :-)
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#11 cait

 
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Posted 22 April 2012 - 11:40 AM

I get itching (no rash) from soy and dairy. If you give gluten free a good try and have no luck, it's definitely worth doing an elimination diet to see if there's something else.
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Dad has Celiac
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Life vastly improved off gluten
Dunno what that makes me, but I'm not going back.
Now corn, soy, and dairy free

#12 Abrooks

 
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Posted 04 October 2012 - 04:20 PM

Meghan,

Word for word, your story and mine are the same. I have called the rash free yet severe , head to toe itching that I've been suffering with "the itchies". They wake me up at night, and keep me up. They are miserable. Ive gone to doctors, and was so mislead up until recently. My sister is also celiac, and she also insisted that Gluten was the cause of my suffering. A few weeks ago, I finally went to her doctor, who advised me to remove all gluten from my diet.

At first, I still would have "the itchies"... But as I learn more and more, I'm discovering that gluten is in WAY more than we realize. Wheat, malt, barley, rye...those are all ingredients used in things that we'd never expect - like the guacamole at Moe's! Salad dressings, tomatoe sauces, corn flake cereal, and the list continues.

So as I eliminated All of those ingredients and became the crazy girl who interviews the chef at every restaurant and now researches EVERY ingredient that I eat/cook with, the itchies have gone away... I'm left rejoicing and so much nicer now that I'm not so sleep deprived.

But then, much to my dismay, I had a few nights of the itchies, despite the fact that id been crazily gluten free, to a T, ....so I believed.

After researching and breaking down everything I'd eaten the previous day, the only thing that I'd consumed that I hadn't confirmed was gluten-free were my vodka drinks.

Being a girl who likes her occasional (or sometimes frequent :-) vodka drink(s), I was also shocked to discover that There are many liquors that are fermented with celiac-UNfriendly grains, such as our arch enemy, wheat.
Now there are two very contrasting schools of thought regarding alcohol and whether or not they are ok for us Celiac-freaks.

celiac groups and doctors alike insist that the distillation process COMPLETELY removes the glutinous protein from liquor, thus being a-okay for us celiacs. The other half of the celiac groups and doctors have the complete polar opposite perspective, declaring that these alcohols fermented with glutinous grains are NOT ok.

My heart sank when I heard that I potentially may have to say good bye to not only my beloved pizzas, croissants , and cakes, but ALSO most liquors and alcohols. But if that was the way to stop my itchies, then by golly I'll do it...
And guess what?
They stopped. Totally.

That is, until I decided that ONE vodka drink would be just fine....(up until recently, I didn't know that vodka didn't only and always use potatoes to ferment...in fact, usually it uses grains). But knowing that the drink I was consuming MAY or may not have at one time been exposed to grains, I thought I'd take the risk and just have the drink.. I go to bed, and 3am hit and then bam, I was jolted awake by the miserable itchies.
the next day I do the research, which confirmed that the type of vodka I drank Was in fact fermented with/in grain.



Over the past week and a half, i have unfortunately subjected myself to my personal study of whether or not g
Alchohols that were fermented in glutinous grains caused my gluten symptoms... And the results have been quite telling.
I am 100% positive that such alcohols should be eliminated from a celiac patient's diet. I'll have a tiny bit of vodka (TINY), and I'll make sure that I do not know if it was distiller with grain or potatoes. Every time I get the itchies, I find out that the vodka I drank was fermented with grains. Every time.
Now I beg of you not to subject yourself to the misery that I hahavoc using yourself as a guinea pig in your own personal gluten study. But I do hope that you maybe take something from my story.

So my point is this: You're probably celiac. I bet if you eliminated absolutely EVERYTHING glutinous, then your itchies will go away. You just need to be psychotically careful and aware. Do your research. Make sure that you're not unintentionally and unknowingly eating gluten. I really wish you so much luck. Best
Brook
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#13 mushroom

 
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Posted 04 October 2012 - 04:43 PM

The reason that the experts are fifty/fifty on the grain alcohols is that probably fifty/fifty of celiacs do or do not react to them. You cannot generalize from yourself as to the way others will react. I have just finished a vodka martini to which I have absolutely no reaction, and I do not tolerate potato or wheat, so for me, enough of whatever has been distilled out to suit my body. I am sorry to hear that your body does not react the same as mine. But you really cannot tell other people how they will react - everyone is different and tolerates different levels.

My itchies were soy and potatoes. :)
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#14 Juliebove

 
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Posted 04 October 2012 - 05:25 PM

I know this is an old post but I too get this sometimes. At one point I thought it was a new shower wash that I had tried. Twice I itched all over from using it. But I had used it one time prior and it was fine. I have since used it and had no problems. So... Maybe it was something my daughter used in the shower prior? I did this to her once. Used oats in the bath. Thought I cleaned the tub out well but, no. In her case there was not only itching but a rash. Sometimes I also think there could be something in the air. Maybe pollen or something.
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#15 mamaupupup

 
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Posted 04 October 2012 - 10:40 PM

Hi there,

I will add another layer: lectins. We have a wonderful little girl who is about to turn 6 who had itching (no rashes) and joint/muscle pain 2-3 times a week. Eventually she was diagnosed Celiac. We took her off gluten and her itching/joint/muscle pain went from 8-12 times a month to about once a month. I mentioned this to my cardiologist this week and he advised us to remove lectins from her diet as well. I have no data yet to report, but thought that might provide another avenue to consider.

Hang in there!!!
Thinking of you!
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