Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Frustrated


stillight

Recommended Posts

stillight Rookie

Hi I'm new to the boards. I am a 24 year old female and about 3 weeks ago I went on a gluten free diet under the suspicion I have some sort of intolerance.

Before going on the diet my symptoms were:

  • - left side bloating under my ribs with some pain
  • - clicking ribs on left side
  • - left side gurgling noises
  • - foggy thinking
  • - white spots on skin on left side of ribs
  • - undigested food in my bowel movements that were usually loose
  • - clear urine (even while taking vitamins)
  • - hopelessness/slight depression at times
  • - rash on elbows
  • - gas

I went to the doctor and was sent for an abdominal ultra-sound which was normal, a chest x-ray and an abdominal x-ray, both of which were normal. I also had blood testing which was normal except I had low iron. I have an appointment with a specialist, but not until July.

I went on the gluten free diet and the results were as follows:

  • - left side bloating under my ribs is almost rare, and seems to be tied in with eating gluten, though I can't always identify the source
  • - left side gurgling noises are pretty much gone
  • - still have clicking ribs on left side, though it seems to be less frequent
  • - I now think clearly
  • - white spots on skin on left side of ribs are still present
  • - bowel movements are fully digested, though occasionally a little bit hard
  • - urine is back to normal
  • - only very rarely feel depressed or hopeless
  • - rash on elbows comes and goes
  • - rare gas only when I think I have eaten gluten

Some unexpected results:

  • - weight loss, 5 pounds so far (I have been overweight for years)
  • - pimples on face cleared up

Does this sound pretty typical? My family is skeptical and thinks that a lot of this is in my head and I'm sort of a hypochondriac. Or that the results are simply due to eating less processed and packaged foods.

I am still planning to attend my specialist appointment in July, I just had to do something now because July is really very far away, and I think I am on the right track, but I'm still a little unsure. Thank You.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nora-n Rookie

I lost weight off gluten too.

Sounds suspicious for celiac or something.

What blood tests excactly were done?

Now that you have gone off gluten, it might be very hard to get a diagnosis.

Link to comment
Share on other sites
stillight Rookie

I'm not sure which blood tests were done actually. I know I was tested for mono and for diabetes, aside from that I am not sure. I should have paid closer attention.

Link to comment
Share on other sites
nora-n Rookie

Sometimes they order the wrong tests, we havwe seen that here, and there have even been postiive test results they did not understand.

One hospital said the tests sere negative but when the parent looked them up from the lab, the hospital had the ranges wrong and the tests were definitely positive.

They ended up having to write to a lot of patietns that the tests actually were positive....

Sometimes the doctors get it srong, like the doctor who said the gene test was not postive unless one had both DQ2 and DQ8, both of them.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,190
    • Most Online (within 30 mins)
      7,748

    Daiichi Ramen Kailua
    Newest Member
    Daiichi Ramen Kailua
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      This might be helpful - from Coeliac UK.   https://www.coeliac.org.uk/information-and-support/coeliac-disease/getting-diagnosed/blood-tests-and-biospy/#:~:text=Usually%2C a biopsy of the,more about diagnosis of children.
    • Scott Adams
      Yes, wheat is common in most soy sauces now because it speeds up the fermenting process.
    • JoeBlow
      For 16 years I have relied on the website glutenfreedrugs.com to determine if a pharmaceutical is gluten-free. The website has been down for at least a week. Does anyone have any information about this outage, the status of the website founder and maintainer pharmacist Steven A. Plogsted or a phone number? I did not get a response for my email to glutenfreedrugs@gmail.com in October of 2022. Steven did respond to my emails in 2012. Thanks.
    • Beverage
      Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster.  I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
    • Beverage
      Is soy sauce in Korea also made from wheat like it usually is in US? I'd be concerned that even if asking about gluten, they would not be aware of or think of some like that. 
×
×
  • Create New...