Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

I Want Another Child, But Will He Have Celiac Too?


Leslielu

Recommended Posts

Leslielu Newbie

My mother in law is a diagnosed celiac. She almost died of celiac 6 years ago. They thought she had lupus, cancer, etc, etc, and so on. Basically they didn't know what was killing her but something was. She was 90 lbs. when she was diagnosed. Regardless, when we brought my son home from the hospital he had a lot of major problems, rashes, spitting up, horrible horrible diarrhea, stomach aches, constant crying at night. After being treated like an idiot by many people and doctors, it was suggested by my doula that he might have a food allergy and then it hit me celiac. I went on the diet since he was exclusively breastfed and saw DRAMATIC effects. He ended up also being allergic to casein.

Please bear with me this part is important My mother in laws whole family has symptoms of celiac and gluten intolerance. My husband included, he is one that is more severe and I see his sufferings. (He's in denial though) His sister has just put her whole family on the diet including her twins that she is still breastfeeding as well. Also, his sister has had a positive biopsy and neg. blood test, but is still in denial that she could have this problem as well. After her and her 4 children went on the diet they showed great improvement. No more stomach aches, diarrhea, or mouth sores. (Believe it or not she is still in denial.) My Mother-In-Law said that her mother diet young and suffered the same symptoms she did before being diagnosed. Her brother also has huge bump rashes all over his knees and refuses to believe that it could be gluten. (I'm like whats wrong with these people!! They like to suffer I guess)

So, my point is if someone has it in their family does that mean their child will definitely have it? I want more children, but my mother insists that if I have another child he will have celiac too! And that i would be selfish.

I have been wondering if a parent has it diagnosed or undiagnosed will that child always have an allergy to it. My son also had fetal growth restriction and was born very skinny. As soon as I started the gluten-free diet he was a chunky monkey. :D

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Coleslawcat Contributor

My mother in law is a diagnosed celiac. She almost died of celiac 6 years ago. They thought she had lupus, cancer, etc, etc, and so on. Basically they didn't know what was killing her but something was. She was 90 lbs. when she was diagnosed. Regardless, when we brought my son home from the hospital he had a lot of major problems, rashes, spitting up, horrible horrible diarrhea, stomach aches, constant crying at night. After being treated like an idiot by many people and doctors, it was suggested by my doula that he might have a food allergy and then it hit me celiac. I went on the diet since he was exclusively breastfed and saw DRAMATIC effects. He ended up also being allergic to casein.

Please bear with me this part is important My mother in laws whole family has symptoms of celiac and gluten intolerance. My husband included, he is one that is more severe and I see his sufferings. (He's in denial though) His sister has just put her whole family on the diet including her twins that she is still breastfeeding as well. Also, his sister has had a positive biopsy and neg. blood test, but is still in denial that she could have this problem as well. After her and her 4 children went on the diet they showed great improvement. No more stomach aches, diarrhea, or mouth sores. (Believe it or not she is still in denial.) My Mother-In-Law said that her mother diet young and suffered the same symptoms she did before being diagnosed. Her brother also has huge bump rashes all over his knees and refuses to believe that it could be gluten. (I'm like whats wrong with these people!! They like to suffer I guess)

So, my point is if someone has it in their family does that mean their child will definitely have it? I want more children, but my mother insists that if I have another child he will have celiac too! And that i would be selfish.

I have been wondering if a parent has it diagnosed or undiagnosed will that child always have an allergy to it. My son also had fetal growth restriction and was born very skinny. As soon as I started the gluten-free diet he was a chunky monkey. :D

I don't know what the odds are that your next child would have it, but I can't imagine it's a reason not to have more children. You are already well educated about the gluten free diet and know how to manage it. Your family already eats gluten free so it wouldn't be an extra challenge for you to have your next child be gluten free either. So long as you follow the diet I don't see celiac as a reason to restrict the size of your family. If you were dealing with a condition that doesn't have a cure or treatment then that would be a different concern. Of course it's up to you whether or not you want to take the risk. This next time around you would know to cut gluten out of your diet early on if the next child shows the same symptoms as your first.

Link to comment
Share on other sites
tarnalberry Community Regular

The odds are 1 in 10 he will develop celiac.

But seriously, not being able to eat wheat, rye, barley, and (possibly) oats is a reason to not have a kid? I mean, how many people have food aversions and won't eat, say... tomatoes? or cheese? or chocolate? (Those three happen to be my husband's big three aversions. He has others. :P) Do we say that they shouldn't procreate either, because their kids might not like every food? What about all those kids who hate vegetables, and continue doing so as an adult? Do we say that they shouldn't have kids because they don't like their veggies? Bah! I find the logic spurious at best.

Link to comment
Share on other sites
OptimisticMom42 Apprentice

I could follow your mother's logic if we were talking about down syndrome, cancer, missing limbs.... to intentionally bring a child into the world to live a pain filled life so that you could have your very own baby would be selfish.

But....celiac isn't a anything like that. Yes, the diet takes some getting use to but it's just a diet not chemo or a heart transplant.

This site is full of loving parents who have a houseful of celiac children.

Tell your Mom that you've decided the next child will be muslim and therefore pork free or that the next baby will have different parents! Don't explain, just let her think about it. <_<

Link to comment
Share on other sites
Leslielu Newbie

Thank you guys for responding and for your positive input. It's nice to here what other people think. I think more than anything what is bothering me is my consciouns(sp?).

My mother-in-law (celiac)had the same reaction as you guys. She said it would be different if it was like some sort of birth defect or something severe that didn't have a cure.

My mom is just using this as an excuse for telling me she doesn't think I should have another baby cause she worries about everything. She always tells me you know it'll be easier to just have one.

Whatever...now she has given me a complex about this.... You guys are right, it's not that big of a deal my son is now 18 months old and will never know the difference it won't bother him at all-he'll be healthier

Link to comment
Share on other sites
CeliacMom2008 Enthusiast

It is completely you and your husband's decision. I wouldn't let the fear of having another child with Celiac affect your decision. I will say that I think your mom is right that having one is easier. But that's not just with Celiac in the mix. We have one child and I admit frequently that we have it pretty easy. It's much easier to stay dialed in to one kid, to help one kid with homework, to shuttle one kid to extra-curricular events, and yes, with a child with Celiac it is much easier to be able to provide gluten free treats at school, gluten free parties, etc. with just one; but it's just a fact that more kids take more time - in every aspect of life. With or without Celiac.

But we all know mom's know best ;) and we're not hearing her side. If you almost died in childbirth and your doctor told you additional kids would be very risky or you can barely make ends meet and another kid will put you in the poor house or something else that has your mom justifiably worried, then you might want to listen to her... :)

Link to comment
Share on other sites
karenhockley Apprentice

I feel for situation. I have celiac and quite a bit of my side of the family has celiac. I have 3 children (2,4 and 6)and one of them is showing symptoms of celiac. Follow your heart, if you want another have another. I'd have a house full if I could :D The family is mostly gluten free but I do know that my kids eat healthier than their friends and it has a lot to do with the gluten-free diet. Yes when it's time for you children to go to school you may have a few obstacles than other parents but you can handle it, I believe your given what you can handle. Good luck and don't worry so much.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancy LC Newbie

Seems to me being a celiac in a family of people with gluten issues wouldn't be so bad. At least everyone around you would be eating the way you need to eat. They'd grow up understanding why they can't eat gluten and wouldn't miss it. I didn't give up gluten until my 40's and it really hasn't been a hardship. I suspect I'm a lot healthier than non-celiacs eating gluten.

Link to comment
Share on other sites
sandsurfgirl Collaborator

Celiac isn't a death sentence. And honestly even if something more serious ran in the family, there is no way of telling what your child will or won't have. If you want another child, have another child. I can't believe your mom is meddling in something so personal as the decision about whether or not to have more kids. That's between you and your husband.

Every family has genetic weaknesses. That's just life, until we all become clones or genetically engineered, but then we'll probably all die from no immune system or something weird like that.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,090
    • Most Online (within 30 mins)
      7,748

    Nicole K
    Newest Member
    Nicole K
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
    • trents
      I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives on this test anyway because of anomalies in their immune system but your wife is not one of them. So for her, the tTG-IGA should be sufficient. It is highly sensitive and highly specific for celiac disease. If your wife gets serious about eating gluten free and stays on a gluten free diet for the duration, she should experience healing in her villous lining, normalization in her antibody numbers and avoid reaching a celiac health crisis tipping point. I am attaching an article that will provide guidance for getting serious about gluten free living. It really is an advantage if all wheat products are taken out of the house and other household members adopt gluten free eating in order to avoid cross contamination and mistakes.  
    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
×
×
  • Create New...