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Specific Carbohydrate Diet?


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#271 Green12

 
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Posted 05 May 2006 - 03:42 PM

If I can stick my nose in this for a second--I know I'm intolerant to corn, and I have been avoiding obvious sources for longer than I've been gluten-free. Just recently (the last week or so) I've gotten more strict with it. I have noticed a reduction in my reflux, as well as the gas :ph34r: . It's really worth it!


jersey, you aren't sticking your nose in! We are all in this together!

I'm glad you're GERD has been reduced, that is nasty stuff.
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#272 dlp252

 
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Posted 05 May 2006 - 03:47 PM

Thanks Christine!

Patti, you've just cemented it for me, lol.

I've been trying to cut out all the usual suspects for GERD too, and have still had it so bad. I wake up in the middle of the night with a burning in my stomach and once I'm awake can't go back to sleep. Dr. R has me taking Prilosec OTC and that has at least kept it at a minimum, but I'm afraid of what's going to happen when I quit taking it (tomorrow is my last day of a 14 day course). I really don't want to take medicine like that forever!
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#273 jerseyangel

 
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Posted 05 May 2006 - 03:51 PM

Thanks Christine!

Patti, you've just cemented it for me, lol.

I've been trying to cut out all the usual suspects for GERD too, and have still had it so bad. I wake up in the middle of the night with a burning in my stomach and once I'm awake can't go back to sleep. Dr. R has me taking Prilosec OTC and that has at least kept it at a minimum, but I'm afraid of what's going to happen when I quit taking it (tomorrow is my last day of a 14 day course). I really don't want to take medicine like that forever!

My dr had me on Prevacid but I stopped after 3 weeks because of the side effects--the reflux was creeping back, and now that I've cut out the corn even further, it is better. I also find that I have to limit raw fruit. The middle of the night stuff is terrible--I hope you get relief soon :)
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#274 Guest_greengirl_*

 
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Posted 05 May 2006 - 03:55 PM

greengirl, what all are you eating and are you taking any supplements? Sometimes I would experience burning in my stomach with my supplements if I took them without food or even just a little food. Don't know if this is the case for you but just a thought.
Some people with corn allergies cross react with bananas, they share a similar protein. But if you took them out and still have the burning, I don't know. Are you peeling your fruit?


I'm only eating SCD legal foods. I was taking Prevacid, but didn't take it today to see if that could be causing something (not sure if that's SCD legal). I still have the burning today, but I probably need to give it more than a day off to see if it has an effect. Lately the fruits I've been eating don't require peeling - watermelon, berries, strawberries, lime juice. I have been peeling apples and cooking them. Maybe the fruits are just too acidic. I have cut out tomatoes because of that (even though they're my favorite!!)

I did take a calcium supplement this morning because I just found out yesterday that I have osteopenia (the step before osteoporosis). Can you believe it?? At age 37, my bones are apparently like that of a 65 year old!! My doctor said it's no surprise given my GI history. I would recommend a bone scan for everyone with gluten intolerance - the earlier the better!!

Christine
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#275 Rachel--24

 
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Posted 05 May 2006 - 04:33 PM

Rachel, that is SO true. I am a complete believer. If you are ingesting a food continually you might have bad symptoms but it's really hard to tell what is what. I have always eaten vegetables and meats and pure fats, etc. but I was having a Food For Life Rice Tortilla every day for lunch (has xanthum gum in it). It wasn't until I eliminated the tortilla and the supplements and the deli turkey meat (I think it had some preservatives in it) that I was able to literally clean my system of all potential allergens. Then 2 weeks later I add in the suspects and bam, an immediate clear as day reaction.


Julie,
OMG.... Back in December I discovered those tortillas and started eating them everyday for a couple weeks. I got so much sicker but I was always sick so couldnt tell what was what but I stopped eating the tortillas. I actually returned an unopened package to the store cuz I just didnt want to eat them anymore. They were good though and I was sad about not being able to eat them....I thought it was something in the oils they used.

Since finding out about corn I've checked out all the stuff I used to eat that gave me reactions and every one of them conatined corn in some form or another. I really react to xanthan gum. It was a reaction to that particular ingredient (in a cake mix) which got me thinking and made me go back and reread Simply's V's post about corn.

I think the tortillas are about the only thing I hadnt went back and looked at the ingredients on....I always do this when I'm shopping. :rolleyes: I've found corn in everything so far but I dont remember seeing xanthan gum when I bought those tortillas...of course I wasnt concerned about corn at the time but I always check ingredients anyway. Is there really Xanthan gum in them cuz that would explain why I got so much worse? I was eating them on Christmas and I got really brain-fogged and the usual headache with veins throbbing. I was getting migraines while I was eating the tortillas but never once suspected them as being the cause. I also got a migraine after eating the cake with xanthan gum in it 3 weeks ago. I got MAJOR symptoms from that cake but probably because the only corn I was getting at the time was in my thyroid pills.





If I can stick my nose in this for a second--I know I'm intolerant to corn, and I have been avoiding obvious sources for longer than I've been gluten-free. Just recently (the last week or so) I've gotten more strict with it. I have noticed a reduction in my reflux, as well as the gas :ph34r: . It's really worth it!


Jersey,
Just recently I started having problems with acid reflux. I dont remember having it before...or at least not this bad. I got it really bad when I ate the cake I just posted about and a couple other times when I messed up on my corn diet. I was asking about GERD on JnkMnky's thread about it...I didnt know if thats what I had but it was a burning pain in my chest and in my throat. It was way worse if I bent over. It was like a really full feeling in my chest and throat...I was also really bloated...it kind of hurt to breathe. Is this GERD? Anyways it hasnt happened again since I've been doing well on the diet. I mentioned it to the GI and he was gonna give me a medication (I think it was Nexium or something like that....started with an N??). I told him I dont want any medicines and I dont need any as long as I dont eat corn. Besides I'm sure the medicine has corn in it!! Does what I described sound like GERD or acid reflux? Are they the same thing or 2 seperate things? :unsure:
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#276 Rachel--24

 
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Posted 05 May 2006 - 04:58 PM

I was getting worried because he said he would call me with results and I didn't hear from him...it turns out that first biopsy report said the growth was benign, but he said he had "another case like mine" and had it rechecked and that's why it took so long to get back to me. The second report came back with pre-cancerous cell changes. He's having it looked at again just to be certain--I see him on Monday to hear the results of that and find out what comes next. He's already told me that if it's precancerous it has to come out, but that he can't do that kind of surgery because it involves the ducts...so I guess he'll be referring me to a surgeon. Anyway, I do really like him.


I hope everything goes well on Monday. I think you are in good hands with him. I really feel I can trust him. My other doctors from Kaiser were nothing like this so I'm still kind of shocked when I see him and he is so thorough. When I was really sick and could hardly stand (pre gluten-free) I was begging Kaiser to send me to Stanford or Davis or *anywhere* since they werent able to figure anything out. Now that I'm doing so much better and not even trying to see any specialists Dr. R. says he's sending a referral to Stanford to see this Celiac doctor. :blink: Totally blows my mind. I wish I would have been seeing him back when I was sick...maybe I could have been properly diagnosed.

Also on the CT scan they saw a cyst or something on my ovary....I guess this is usually not serious but they told me to have my primary look into it. I havent done anything about that yet but he brought it up and asked if I'd taken care of it. Another shocker for me. I'm telling you I've never had this kind of care before.

He also wants to see me again after I go to Stanford to discuss what the specialist had to say. I'm really glad I found this GI and I'm glad for you as well. Keep us posted on how things go.
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#277 miamia

 
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Posted 05 May 2006 - 05:43 PM

It is so great to hear how much cutting out corn has helped everyone. I am still struggling to find things to eat without it. What has everyone been eating? Any suggestions?
Miamia

I hope everything goes well on Monday. I think you are in good hands with him. I really feel I can trust him. My other doctors from Kaiser were nothing like this so I'm still kind of shocked when I see him and he is so thorough. When I was really sick and could hardly stand (pre gluten-free) I was begging Kaiser to send me to Stanford or Davis or *anywhere* since they werent able to figure anything out. Now that I'm doing so much better and not even trying to see any specialists Dr. R. says he's sending a referral to Stanford to see this Celiac doctor. :blink: Totally blows my mind. I wish I would have been seeing him back when I was sick...maybe I could have been properly diagnosed.

Also on the CT scan they saw a cyst or something on my ovary....I guess this is usually not serious but they told me to have my primary look into it. I havent done anything about that yet but he brought it up and asked if I'd taken care of it. Another shocker for me. I'm telling you I've never had this kind of care before.

He also wants to see me again after I go to Stanford to discuss what the specialist had to say. I'm really glad I found this GI and I'm glad for you as well. Keep us posted on how things go.


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#278 Guest_Robbin_*

 
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Posted 05 May 2006 - 06:00 PM

I know I can't eat corn anymore, and have had a lot of problems with the xanthan gum (it even caused my hands to burn and swell when I spilled some) but, I am wondering about the connection with corn? Is it grown on corn? I missed that part in the thread and can't find it :blink:
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#279 Green12

 
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Posted 05 May 2006 - 06:12 PM

Julie,
OMG.... Back in December I discovered those tortillas and started eating them everyday for a couple weeks. I got so much sicker but I was always sick so couldnt tell what was what but I stopped eating the tortillas. I actually returned an unopened package to the store cuz I just didnt want to eat them anymore. They were good though and I was sad about not being able to eat them....I thought it was something in the oils they used.

Since finding out about corn I've checked out all the stuff I used to eat that gave me reactions and every one of them conatined corn in some form or another. I really react to xanthan gum. It was a reaction to that particular ingredient (in a cake mix) which got me thinking and made me go back and reread Simply's V's post about corn.

I think the tortillas are about the only thing I hadnt went back and looked at the ingredients on....I always do this when I'm shopping. :rolleyes: I've found corn in everything so far but I dont remember seeing xanthan gum when I bought those tortillas...of course I wasnt concerned about corn at the time but I always check ingredients anyway. Is there really Xanthan gum in them cuz that would explain why I got so much worse? I was eating them on Christmas and I got really brain-fogged and the usual headache with veins throbbing. I was getting migraines while I was eating the tortillas but never once suspected them as being the cause. I also got a migraine after eating the cake with xanthan gum in it 3 weeks ago. I got MAJOR symptoms from that cake but probably because the only corn I was getting at the time was in my thyroid pills.


omg Rachel, yep it probably was the xanthan gum. I have a package in front of me and here are the ingredients exactly as they read:

Brown rice flour, Filtered water, Tapioca flour, Safflower oil, Rice bran, Vegetable gum (xanthan, cellulose), Sea salt

I think xanthan gum is a real problem, it is in everything, and especially in health food products and products catered towards allergic/sensitive individuals.


I know I can't eat corn anymore, and have had a lot of problems with the xanthan gum (it even caused my hands to burn and swell when I spilled some) but, I am wondering about the connection with corn? Is it grown on corn? I missed that part in the thread and can't find it :blink:



Robbin, I'm not exactly sure but xanthan gum is either derived from corn or somehow corn is used in its manufacturing process.

It is so great to hear how much cutting out corn has helped everyone. I am still struggling to find things to eat without it. What has everyone been eating? Any suggestions?
Miamia



miamia, I'm still learning about what to avoid. Basically I am just eating fresh fruit (waxy skins peeled), vegetables (waxy skins peeled), meats, and avocadoes and olive oil until I figure it all out.
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#280 Rachel--24

 
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Posted 05 May 2006 - 06:30 PM

I know I can't eat corn anymore, and have had a lot of problems with the xanthan gum (it even caused my hands to burn and swell when I spilled some) but, I am wondering about the connection with corn? Is it grown on corn? I missed that part in the thread and can't find it :blink:


Robbin, I believe its grown on corn. I think yeast is grown on corn too. I've read so much in the past 2 weeks its hard to remember everything but I think thats what the deal is with xanthan gum.


Brown rice flour, Filtered water, Tapioca flour, Safflower oil, Rice bran, Vegetable gum (xanthan, cellulose), Sea salt

I think xanthan gum is a real problem, it is in everything, and especially in health food products and products catered towards allergic/sensitive individuals.


Thanks for the ingredients. See how easy it is to miss things when you don't really know what the heck you're trying to avoid in the first place! :lol:

Yeah...it is in everything made for the gluten free diet. No wonder I could never eat a regular gluten free diet. :(
I kept telling my doctor "Am I ever going to eat a regular gluten free diet? What gives...am I going to have to eat meat and vegetables forever?" I thought I just coudnt handle any processed foods because of chemicals or preservatives or whatever. I hate xanthan gum. I cant eat Pamelas cookies. :angry:

It is so great to hear how much cutting out corn has helped everyone. I am still struggling to find things to eat without it. What has everyone been eating? Any suggestions?
Miamia


Like Julie, I'm still trying to figure everything out. Ive been making pancakes alot. I eat tinkyada pasta, potatoes, a tiny bit of fruit, fresh meat from whole foods, fish, Dagoba chocolate, rice, amaranth cereal, tapioca pudding, some vegetables. Not a huge variety yet.
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Posted 05 May 2006 - 06:32 PM

Wow, it's like a vicious, never-ending circle-gluten, corn, yeast, xanthan gum. I wonder if the cause could be from contamination with other grains' pollen and it all goes back to gluten/wheat? Maybe the whole green world is contaminated with the stuff. Ok, I am getting really depressed.....maybe carried away, but it is sooooo frustrating just trying to be well enough to have a life. Thank God for this forum, because everyone else thinks I am a nutcase now with the food intolerances.
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#282 jerseyangel

 
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Posted 06 May 2006 - 03:36 AM

Jersey,
Just recently I started having problems with acid reflux. I dont remember having it before...or at least not this bad. I got it really bad when I ate the cake I just posted about and a couple other times when I messed up on my corn diet. I was asking about GERD on JnkMnky's thread about it...I didnt know if thats what I had but it was a burning pain in my chest and in my throat. It was way worse if I bent over. It was like a really full feeling in my chest and throat...I was also really bloated...it kind of hurt to breathe. Is this GERD? Anyways it hasnt happened again since I've been doing well on the diet. I mentioned it to the GI and he was gonna give me a medication (I think it was Nexium or something like that....started with an N??). I told him I dont want any medicines and I dont need any as long as I dont eat corn. Besides I'm sure the medicine has corn in it!! Does what I described sound like GERD or acid reflux? Are they the same thing or 2 seperate things? :unsure:

Rachel--What you described is acid reflux. The difference between acid reflux (or acid indigestion) and GERD is the frequency. If you get it more than twice a week, and it's persistant, they call it GERD. This can cause damage over time. Since it happened to you, but hasn't happened again, I think the prescription meds are way too much. As I posted, I had major side effects from the Prevacid (including vertigo). :blink: :D
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"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#283 miamia

 
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Posted 06 May 2006 - 04:56 AM

I am so this post was started as well it is such a relief to hear people who sound like me. It is so hard to have food allergies especially multiple ones!!! Sometimes I see people in restaurants or just grabbing abite to eat and I cannot even contemplate what that would be like anymore. Its crazy to think they don't realize how lucky they are!!!
I have had a history of GERD and I really believe like IBS and so many othere commonly diagnosed illneses it is just a symptom of something else. They put me on nexium and kept me on it for years I finally got off of it and never ever will take anything like that again. Those drugs are so bad for you they stop you from producing the acids that are not only bothereing you but the ones you need for digestion. So Rachel your instinct was right. STAY AWAY!!
I have a hard time with brown rice so I have been eating millet and white rice I still know I must be getting corn I am going to really go through what I ma eating and try to figure it out. The problem for me at this point is that my digestion is so compromised and my malabsorbtion isssues are so bad from being misdiagnosed for so long I have problems digesting nearly everything- even things I know I am not allergic too .
Everyones symptoms sound so familar to mine though the bloating the fos its like reading one of my journal entries. Its so nice to hear in one way and then I also hate that everyone is feeling so bad.
Miamia
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#284 dlp252

 
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Posted 06 May 2006 - 05:41 AM

I hope everything goes well on Monday. I think you are in good hands with him. I really feel I can trust him. My other doctors from Kaiser were nothing like this so I'm still kind of shocked when I see him and he is so thorough. When I was really sick and could hardly stand (pre gluten-free) I was begging Kaiser to send me to Stanford or Davis or *anywhere* since they werent able to figure anything out. Now that I'm doing so much better and not even trying to see any specialists Dr. R. says he's sending a referral to Stanford to see this Celiac doctor. :blink: Totally blows my mind. I wish I would have been seeing him back when I was sick...maybe I could have been properly diagnosed.

Also on the CT scan they saw a cyst or something on my ovary....I guess this is usually not serious but they told me to have my primary look into it. I havent done anything about that yet but he brought it up and asked if I'd taken care of it. Another shocker for me. I'm telling you I've never had this kind of care before.

He also wants to see me again after I go to Stanford to discuss what the specialist had to say. I'm really glad I found this GI and I'm glad for you as well. Keep us posted on how things go.


I do feel I can trust him too...none of my previous doctor's have been like him, but I've been having similar good experiences with other doctors in his group. So far I've seen an ENT, an Internist and now him and they all have given me surpurb care...beyond what I thought was normal because no doctor has really ever done that. I did have to laugh when after the biopsy of my small intestine came back with no damage and he declared "you don't have Celiac", lol. Actually though, I really never thought I DID have it because I've never had the true malabsorbtion problem most people have...I do have undigested food once in a while, but my blood counts always come back normal and I never lost weight or anything. So, I've always kind of thought it was intolerance anyway.

I'd take care of the cyst thing...even benign cysts can grow. They are much easier to deal with when they are small. So does this mean you don't have to have the second colonoscopy?? :)
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#285 Rachel--24

 
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Posted 06 May 2006 - 07:38 AM

So does this mean you don't have to have the second colonoscopy?? :)


I don't have to do it now. :D
He feels its not necessary plus I don't wanna go through it again.
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