Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Feeling Worse

mangomagic

By mangomagic
in Coping with Celiac Disease

Recommended Posts

mangomagic Newbie
mangomagic
Posted

So I've been gluten free now for a little over 3 weeks and I'm really sick, in fact I am worse than before. Every day I have nausea (generally in the morning), pain in my stomach area, and diarrhea. I also get these sharp pain behind my right eye every few days/ I've been really careful and mostly eating at home. The doctor did say that I also have reflux which is caused by a small valve or something but i'm been taking medication to help it. I also tried switching my stomach medication and that still didn't help. I don't understand how I'm worse, i've never been this sick before, before the symptons were every now and then not every day. I've tried paying attention to what I eat because I am eating more rice, corn and soy but it seemed to happen regardless of what I eat.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


horsegirl Enthusiast
horsegirl
Posted

I'm sorry to hear you're not feeling well! Many of us have found, either through trial & error, or testing, that we cannot tolerate soy, dairy, or other foods. Try sticking with a very simple diet, with meats, veggies (cook them if raw aren't tolerated), fruits. Other people will probably have ideas too, but that's what helped me at first. I've had very similar symptoms lately, & some on here think it may be corn, or lectins, so unfortunately this journey sometimes seems never-ending!

Good luck, & keep coming here for support & advice. It helps.

Link to comment
Share on other sites
horsegirl Enthusiast
horsegirl
Posted

Oh - and did you make sure the medications you're on are also gluten-free? That could be a source of hidden gluten you may not know about.

Link to comment
Share on other sites
AmyT Newbie
AmyT
Posted

I felt great at for the first couple of weeks too. Now it is much harder for me to string together a few good days in a row. My new issue is dairy products. Ugh, here I sit now, it a fog, feeling literally hungover. Had a great gluten free (home made) pizza with a small amount of cheese. And I can barely function right now. Feels like I have been glutened but now it is the dairy!!!

I hope I don't get more sensitive to other things too.

I would suggest cutting out dairy too. Good luck!

Link to comment
Share on other sites
T.H. Community Regular
T.H.
Posted

I'd second what everyone else has said: it could be other foods.

Celiac folk are more likely to have other food issues, and be more sensitive to dyes and additives in our foods.

I was horribly ill after I went gluten free, too. Nausea, headaches, earaches, etc...

One thing that helped me was this:

1 - cut my diet to the bone. Fresh fruits and veggies and meats and a couple whole grains like rice, so I knew I wasn't having anything 'contaminated.'

2 - wrote down what I ate, and what i was feeling, at what times.

And that helped me figure out what was causing me problems, because suddenly, I was only getting sick every few days, and I could track it to specific foods.

One thing that might help, as well?

Most newly diagnosed celiacs are lactose intolerant, at least a little bit, until they heal up. So knocking dairy off your diet might help.

Some newly diagnosed celiacs start reacting to other grains that are related to wheat, like rice, corn, etc... (amaranth, quinoa, and buckwheat aren't closely related, by the way). So if there is a grain you eat everyday, you might want to space it out to see if that might be causing the problem.

Hope you feel better soon!

So I've been gluten free now for a little over 3 weeks and I'm really sick, in fact I am worse than before. Every day I have nausea (generally in the morning), pain in my stomach area, and diarrhea. I also get these sharp pain behind my right eye every few days/ I've been really careful and mostly eating at home. The doctor did say that I also have reflux which is caused by a small valve or something but i'm been taking medication to help it. I also tried switching my stomach medication and that still didn't help. I don't understand how I'm worse, i've never been this sick before, before the symptons were every now and then not every day. I've tried paying attention to what I eat because I am eating more rice, corn and soy but it seemed to happen regardless of what I eat.

Link to comment
Share on other sites
mangomagic Newbie
mangomagic
  • Author
Posted

Thanks for all of your suggestions!

I gave up dairy years ago because it was making me sick. I'm going to see my specialist tomorrow and will ask if I can be tested for other allergies.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748
    Aventine
    Newest Member
    Aventine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      50 YO Male Recently Diagnosed with Celiac Disease

      By trents · Posted

      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Recently Diagnosed Celiac- Need advice

      By Anmol · Posted

      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
    • Tanner L
      Bad Reaction To Regular Ruffles Cheddar and Sour Cream

      By Tanner L · Posted

      Constantly! I don't want everything to cost as much as a KIND bar, as great as they are.  Happy most of the info is available to us to make smart decisions for our health, just need to do a little more research. 
    • ekelsay
      50 YO Male Recently Diagnosed with Celiac Disease

      By ekelsay · Posted

      Today, I received the results of my Tissue Transglutaminase (tTG) Ab, IgA test. I am not sure how to interpret the results. I have left a message for the doctor that requested the test but have not heard back. The results stated that the normal range is from 0.00 - 4.99 FLU. My results came back at 92.08. Is this concerning? This seems extremely high for someone who has reached the age of 50 before finding out he has celiac disease.  The reason that I was administered the test in the first place is due to bloating issues that started about a year ago. I met with a Gastroenterologist and after a short question and answer session she wanted to test me for celiac disease and a bacteria test via the H. Pylori Breath Test. She seemed more concerned with the fact that I am a healthy male suffering from Anemia. Is it possible the anemia could be a result of celiac disease? I have been on an iron supplement for the better part of 5 years.      
×
×
  • Create New...