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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anyone In Mobile, Al Area?
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I recently moved to the Mobile, AL area and I'm in deseprate need of a doctor that is open minded and educated enough to test for celiac disease. I've had typical celiac symptoms over the last 12 years and have been diagnosed with IBS, depression, stress, possible food allergy, it's all in your head, etc., etc. Recent routine lab results showed that my liver enzymes are elevated for some reason, and in doing research of possible causes, celiac disease was listed. Upon researching celiac disease, I felt like the articles had been written about me! I am convinced that this may be the culprit of so many of my vague digestive problems over that last 12 years. But, I can't seem to find a doc in the area that takes me seriously. I came home very frustrated yesterday after seeing a gastroenterologist that within 10 minutes of meeting me told me that I did not have celiac disease because I didn't fit the profile. He was very rude and condescending and would not agree to run a celiac panel that I had requested. Please, if there are any celiacs in the Mobile, AL area, please let me know who you are seeing for a physician. Thanks!

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Have you had any luck finding a dr? i want to get tested but dont know where to start. A dermatologist took a culture of one of my "blisters" on my leg and said it was inconclusive, then said it was granuloma annulary and there is nothing you can do for it. The pics of DH look EXACTLY like what I have and it is not pretty. Do you go to gasto, internal medicine or allergist??

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We have not had ANY luck with doctors in Mobile for our two young daughters. We have had to travel to Birmingham to have anyone take us seriously. Our 5yr old was vomiting at almost every meal, crying from stomach pain, stuggling with constipation one day and diarrhea the next; the baby refused to nurse from about 2 weeks old, cried all the time, had explosive diarrhea, and fell off the growth charts. We went to 3 different pediatric GIs in Mobile and Pensacola; everyone of them told us there was no problem.

I finally talked with a local GI (who, unfortunately, does not treat pediatric cases) who told me I really needed to take them to UAB. While we are still struggling for a "medical diagnosis" we've at least found a GI in Birmingham who is working with us to control their symptoms. The GI in Mobile that pointed me in the right direction was Dr. Benjamin Siegel. I taught his son last year, and always felt very welcome to call him with any questions. He's actually the one that suggested I look into celiac.

Hope you can find some help soon.

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We have not had ANY luck with doctors in Mobile for our two young daughters. We have had to travel to Birmingham to have anyone take us seriously. Our 5yr old was vomiting at almost every meal, crying from stomach pain, stuggling with constipation one day and diarrhea the next; the baby refused to nurse from about 2 weeks old, cried all the time, had explosive diarrhea, and fell off the growth charts. We went to 3 different pediatric GIs in Mobile and Pensacola; everyone of them told us there was no problem.

I finally talked with a local GI (who, unfortunately, does not treat pediatric cases) who told me I really needed to take them to UAB. While we are still struggling for a "medical diagnosis" we've at least found a GI in Birmingham who is working with us to control their symptoms. The GI in Mobile that pointed me in the right direction was Dr. Benjamin Siegel. I taught his son last year, and always felt very welcome to call him with any questions. He's actually the one that suggested I look into celiac.

Hope you can find some help soon.

Thank you for your post. I think I'm just going to head to B'ham, I have been given a couple of doc's names there (Shallcross and Halama) that are supposed to be very educated in celiac disease. Good luck to you with your children, I hope you find the solutions you need.

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I have had a terrible time locating a good GI doctor for my celiac disease in Mobile. I went to the head of the GI department from our local medical school and he was horrible. He was rude, had no interest in treating me, and told me that even though I definitely have celiac disease I should just keep eating gluten because I'm "still going to end up getting lymphoma one day." What a jerk!!! He was a accompanied by another younger GI doctor who told me to ignore his his boss's stupid recommendation (after he left the room). I went to another doctor at Providence Hospital who also had no clue how to treat celiac disease. It's been 4 years since I was diagnosed and I've had no follow up care to check on my progress. If anyone has any recommendations for doctors in southern Alabama, I'd greatly appreciate it!!

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I see that no one has posted here since 2012 but thought I would give it a shot. Any Celiacs in the Mobile Surrounding area that is interested in a Kids Support Group? I am thinking of starting one and was wondering if there was interest. I have an 8 yr old with Celiac Disease. I have signed up under ROCK (raising our celiac kids) to start a group. I tried a few years ago but there was no interest.

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    • How do you know what's causing what?
      I am in same boat, yesterday my stomach was churning and bloated and I don't know what the cause was.  How about keeping a food diary? Just note what you ate and how you feel. A few days may be sufficient to discern a pattern, either some rogue product or a previously unknown intolerance. I have read that after gluten is removed further intolerances which were hidden can become apparent.  I don't know whether you could cut yourself some slack from a full vegan approach whilst your body heals? If not, maybe you could substitute say milk with coconut milk or similar to give your body a break whilst keeping calcium levels high? If you join coeliac uk you can check your sauces etc on their gluten-free database, they'll also send you a book which became my bible until I got a hang of which brands I could eat safely. Finally, have you excluded cross contamination from pots and pans, toasters, shared condiments etc?  Good luck!
    • Blood results - odd
      My results were similar – Low ferritin but normal B12. Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron. Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t supplemented with vit D and we obviously have less sunshine.
    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
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