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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anyone In Mobile, Al Area?
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6 posts in this topic

I recently moved to the Mobile, AL area and I'm in deseprate need of a doctor that is open minded and educated enough to test for celiac disease. I've had typical celiac symptoms over the last 12 years and have been diagnosed with IBS, depression, stress, possible food allergy, it's all in your head, etc., etc. Recent routine lab results showed that my liver enzymes are elevated for some reason, and in doing research of possible causes, celiac disease was listed. Upon researching celiac disease, I felt like the articles had been written about me! I am convinced that this may be the culprit of so many of my vague digestive problems over that last 12 years. But, I can't seem to find a doc in the area that takes me seriously. I came home very frustrated yesterday after seeing a gastroenterologist that within 10 minutes of meeting me told me that I did not have celiac disease because I didn't fit the profile. He was very rude and condescending and would not agree to run a celiac panel that I had requested. Please, if there are any celiacs in the Mobile, AL area, please let me know who you are seeing for a physician. Thanks!

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Have you had any luck finding a dr? i want to get tested but dont know where to start. A dermatologist took a culture of one of my "blisters" on my leg and said it was inconclusive, then said it was granuloma annulary and there is nothing you can do for it. The pics of DH look EXACTLY like what I have and it is not pretty. Do you go to gasto, internal medicine or allergist??

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We have not had ANY luck with doctors in Mobile for our two young daughters. We have had to travel to Birmingham to have anyone take us seriously. Our 5yr old was vomiting at almost every meal, crying from stomach pain, stuggling with constipation one day and diarrhea the next; the baby refused to nurse from about 2 weeks old, cried all the time, had explosive diarrhea, and fell off the growth charts. We went to 3 different pediatric GIs in Mobile and Pensacola; everyone of them told us there was no problem.

I finally talked with a local GI (who, unfortunately, does not treat pediatric cases) who told me I really needed to take them to UAB. While we are still struggling for a "medical diagnosis" we've at least found a GI in Birmingham who is working with us to control their symptoms. The GI in Mobile that pointed me in the right direction was Dr. Benjamin Siegel. I taught his son last year, and always felt very welcome to call him with any questions. He's actually the one that suggested I look into celiac.

Hope you can find some help soon.

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We have not had ANY luck with doctors in Mobile for our two young daughters. We have had to travel to Birmingham to have anyone take us seriously. Our 5yr old was vomiting at almost every meal, crying from stomach pain, stuggling with constipation one day and diarrhea the next; the baby refused to nurse from about 2 weeks old, cried all the time, had explosive diarrhea, and fell off the growth charts. We went to 3 different pediatric GIs in Mobile and Pensacola; everyone of them told us there was no problem.

I finally talked with a local GI (who, unfortunately, does not treat pediatric cases) who told me I really needed to take them to UAB. While we are still struggling for a "medical diagnosis" we've at least found a GI in Birmingham who is working with us to control their symptoms. The GI in Mobile that pointed me in the right direction was Dr. Benjamin Siegel. I taught his son last year, and always felt very welcome to call him with any questions. He's actually the one that suggested I look into celiac.

Hope you can find some help soon.

Thank you for your post. I think I'm just going to head to B'ham, I have been given a couple of doc's names there (Shallcross and Halama) that are supposed to be very educated in celiac disease. Good luck to you with your children, I hope you find the solutions you need.

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I have had a terrible time locating a good GI doctor for my celiac disease in Mobile. I went to the head of the GI department from our local medical school and he was horrible. He was rude, had no interest in treating me, and told me that even though I definitely have celiac disease I should just keep eating gluten because I'm "still going to end up getting lymphoma one day." What a jerk!!! He was a accompanied by another younger GI doctor who told me to ignore his his boss's stupid recommendation (after he left the room). I went to another doctor at Providence Hospital who also had no clue how to treat celiac disease. It's been 4 years since I was diagnosed and I've had no follow up care to check on my progress. If anyone has any recommendations for doctors in southern Alabama, I'd greatly appreciate it!!

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I see that no one has posted here since 2012 but thought I would give it a shot. Any Celiacs in the Mobile Surrounding area that is interested in a Kids Support Group? I am thinking of starting one and was wondering if there was interest. I have an 8 yr old with Celiac Disease. I have signed up under ROCK (raising our celiac kids) to start a group. I tried a few years ago but there was no interest.

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    • Itchy skin
      Cool compresses may help a bit. Hot baths or showers used to really aggravate my itchy skin so go with warm or cool ones to see if it helps. Keep well hydrated both inside and out. Be sure to check and make sure any lotions you use are gluten free. Shea butter, olive or coconut oil may help. Since you say this is not DH, no blisters etc. I would not advise Dapsone. It is quite a toxic med but if you do talk to your doctor about it make sure that they do blood work before prescribing and frequently during the time you are on it.  Some celiacs have liver impact and Dapsone can be damaging to the liver. I also had both DH and the all over itchies. Being strictly gluten free and avoiding obvious sources of iodine like iodized salt or iodine in supplements will help you heal. I hope you get some relief soon.
    • Where do I start??
      I will be going for my endoscopy on Februry 19. The other day in reading about Celiacs, I read about the strange rashes often associated with celieacs and gluten intolerrance. About six months ago, a rash exactly as you describe showed up on the backs of my knees. The doctor didn't know what it was, hought maybe it was ringworm, and gave me some topical medicine, and the spots did go away with time. However, I've had the same type of spots show up in other places occassionally. I know for a fact they were not ringworm.
    • Advice on reintroducing dairy.
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      Here is a link that explains why you should get tested (completely) for celiac disease: https://celiac.org/celiac-disease/diagnosing-celiac-disease/diagnosis/ As far as the link to the functional doctor....why?  If you get a celiac diagnosis, chances are you will heal on a gluten free diet.  As you have probably seen on this forum, most of us encourage newly diagnosed members to eat a whole-foods, easy-to-digest (a.k.a "cooked to death")  gluten-free diet to speed healing.  Going Paleo might not be the best right now, if you have celiac disease.  Eating lots of nuts, raw fruits and veggies can be tough on a damaged gut.  You can try that diet later!   Everyone is different due to various degrees of damage, so some may have temporary intolerances  (e.g. lactose).  You just have to experiment.   Save your money and spend it on good wholesome food.  I heartily support getting away from the SAD (Standard American Diet).   Celiac disease is the one autoimmune disorder that is healed by avoiding a food -- gluten!  
    • Itchy skin
      I have DH and itchy skin is a symptom.     Your Dermatologist could write a script for Dapsone, provided you're not allergic to Sulphur.     Expect blood labs to go with using Dapsone.      You need to study everything that goes in your mouth for possible gluten content, including all meds.
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