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Glutened Agin
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Remember that poster back in the 70's (those of you who are old enough) of the guy with his head melting onto the table, titled "Stoned Agin"? Well, I'm glutened agin. Don't know what happened, been eating exactly the same foods I've been eating. But last night, whamm-o! Still suffering the consequences today.

Drat.

The only thing I can come up with is CC in the kitchen. My DH is a gluten eater (glutenator? sounds like Terminator!) so maybe I picked up a crumb somewhere. I've been symptom-free for weeks now, so this is really discouraging, especially since I don't know how it happened.

For those of you with glutenators in your household, do you get glutened regularly? I mean... how careful do you have to be NOT to get cc'd? I have my own knives, cutting board, toaster, cooking utensils, etc. We do share plates and silverware, but I wash everything very carefully. I always clean the countertops and go through a roll of paper towels every 3 days. Well, that's a bit of an exaggeration, but I use them a LOT. I have my own shelf in the pantry and my own shelf in the fridge, above any of the poisonous gluten products.

What am I missing?

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Have you been making out while he eats toast?

My girlfriend went gluten-free for me, bless her heart, and even chose to give up her favorite body lotion because it had wheat.

Contamination is the hardest part of being gluten-free, because it's so hard to control and you often don't know you messed up until after you get sick.

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Remember that poster back in the 70's (those of you who are old enough) of the guy with his head melting onto the table, titled "Stoned Agin"? Well, I'm glutened agin. Don't know what happened, been eating exactly the same foods I've been eating. But last night, whamm-o! Still suffering the consequences today.

Drat.

The only thing I can come up with is CC in the kitchen. My DH is a gluten eater (glutenator? sounds like Terminator!) so maybe I picked up a crumb somewhere. I've been symptom-free for weeks now, so this is really discouraging, especially since I don't know how it happened.

For those of you with glutenators in your household, do you get glutened regularly? I mean... how careful do you have to be NOT to get cc'd? I have my own knives, cutting board, toaster, cooking utensils, etc. We do share plates and silverware, but I wash everything very carefully. I always clean the countertops and go through a roll of paper towels every 3 days. Well, that's a bit of an exaggeration, but I use them a LOT. I have my own shelf in the pantry and my own shelf in the fridge, above any of the poisonous gluten products.

What am I missing?

oh i know. it has been over a month for me and then i somehow ate something a couple of days ago because i am miserable. i just want to cleanse my system. i don't know if someone didn't clean something properly or what. i'm the only one gluten free but i'm afraid the husband or boys might have not been as careful as i would be cleaning up. i absolutely feel miserable and don't know how to make it better fast enough. i'm drinking lots of water but are you or is it possible to eat or do something to cleanse the system faster??

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Remember that poster back in the 70's (those of you who are old enough) of the guy with his head melting onto the table, titled "Stoned Agin"? Well, I'm glutened agin. Don't know what happened, been eating exactly the same foods I've been eating. But last night, whamm-o! Still suffering the consequences today.

Drat.

The only thing I can come up with is CC in the kitchen. My DH is a gluten eater (glutenator? sounds like Terminator!) so maybe I picked up a crumb somewhere. I've been symptom-free for weeks now, so this is really discouraging, especially since I don't know how it happened.

For those of you with glutenators in your household, do you get glutened regularly? I mean... how careful do you have to be NOT to get cc'd? I have my own knives, cutting board, toaster, cooking utensils, etc. We do share plates and silverware, but I wash everything very carefully. I always clean the countertops and go through a roll of paper towels every 3 days. Well, that's a bit of an exaggeration, but I use them a LOT. I have my own shelf in the pantry and my own shelf in the fridge, above any of the poisonous gluten products.

What am I missing?

Is DH brushing his teeth, mouthwash, etc. before kissing you after performing as THE GLUTENATOR?

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Is DH brushing his teeth, mouthwash, etc. before kissing you after performing as THE GLUTENATOR?

Good thought but.... yes, he is.

Performing as the glutenator.... I'm getting mental pictures... :D

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Is DH brushing his teeth, mouthwash, etc. before kissing you after performing as THE GLUTENATOR?

Performing is such a loaded word in this instance. You are cracking me up! :lol::lol:

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Performing is such a loaded word in this instance. You are cracking me up! :lol::lol:

Always happy to provide giggles.

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Remember that poster back in the 70's (those of you who are old enough) of the guy with his head melting onto the table, titled "Stoned Agin"? Well, I'm glutened agin. Don't know what happened, been eating exactly the same foods I've been eating. But last night, whamm-o! Still suffering the consequences today.

Drat.

The only thing I can come up with is CC in the kitchen. My DH is a gluten eater (glutenator? sounds like Terminator!) so maybe I picked up a crumb somewhere. I've been symptom-free for weeks now, so this is really discouraging, especially since I don't know how it happened.

For those of you with glutenators in your household, do you get glutened regularly? I mean... how careful do you have to be NOT to get cc'd? I have my own knives, cutting board, toaster, cooking utensils, etc. We do share plates and silverware, but I wash everything very carefully. I always clean the countertops and go through a roll of paper towels every 3 days. Well, that's a bit of an exaggeration, but I use them a LOT. I have my own shelf in the pantry and my own shelf in the fridge, above any of the poisonous gluten products.

What am I missing?

My husband is not totally gluten-free but it has only caused one gluten hit for me in 5 years and it was my fault...forgot to wash my hands after making him a sandwich. The only dedicated appliance I have is the toaster. We share everything except the few cooking utensils, which are the wooden ones, he uses for his occasional pot of spaghetti. I have Le Creuset cookware, which is enamel coated, so there is no problem with CC there unless someone doesn't wash it correctly. That never happens...my husband is awesome with his knowledge of CC. If you wash everything well, there should be no issue with CC.

I am as sensitive as a Celiac comes and this is not a problem for us at all. All foods are stored in glass containers in the fridge and I do not have a dedicated shelf for myself...no need to. I think because we have no kids, it makes this so much easier. The only things which are separate, as far as food is concerned, are peanut butter, jams or anything dipped into in a jar. I am totally asymptomatic and every blood test I have had repeated comes back with really, really low numbers so I am comfortable with this routine.

I don't think you can expect to live out the rest of your life with no gluten incidents. I have only had a few in the past 5 years and don't sweat it.

It won't impede your recovery. I hate being sick and feel awful if it happens but, compared to what things were like pre-gluten-free, I can handle 2-3 days of feeling bad. Don't drive yourself batty trying to figure it out...unless it happens again soon and then it may be easier to retrace your steps and figure it out.

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    • Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
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