Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Everyday Products On Hands?
0

11 posts in this topic

Hello and good morning.

I usually stay on POFAK, but as I have my own issue with gluten, I came to ask you this question. We know for sure that my kid reacts to gluten. I started to have terrible itchy excema during my first pregnancy, and since aug 2004 I'm on gluten free diet for the sake of my BF baby.

I had a few "slips" in my diet, and in the past months, I have had some killing-me itchy excema on my middle finger. I immediatly changed my rings (platinum) so it could heal, but it just get worse and worse.

It started as tiny tiny no-color bumps, it was SO itchy that I was scartching during my sleep, and the burn of scatching would wake me up.

As few days later, the skin neatly broke like clean cuts

For the past month, it's layers upon layers of thin skin pealing away and bleeding...

I dont know what to do anymore.

:wacko: I mjust read that the cortisone cream I use might actually contain gluten and worsen it???

:wacko: I start to question everything, and I wonder how I can choose what touches the sores... washing the dishes? washing my hair? washing my hands?

Please help... I dont even know where to start....

Sophie

0

Share this post


Link to post
Share on other sites


Ads by Google:

Have you been tested for celiac disease? You could have DH, what you described sounds similar to what I get. It starts as tiny little flesh-colored bumps that grow into blisters, then I scratch them and they turn into big raw patches that weep profusely. The itch is sometimes so unbearable that it really becomes a threat to my sanity.

I don't do dishes anymore, as it seems to make the patches on my hands much worse. I have also switched to gluten-free everything; lotion, shampoo, you name it.

I've been gluten-free for about 3 weeks now, and haven't really noticed a difference yet. It was really out of control recently (I literally had it head to toe, on my scalp, face, all over my entire body) and I went on prednisone for 6 days. Took care of it right away, but of course the first day off it started coming back.

I also avoid seafood and iodized salt, and have now gone totally organic in hopes that it will help my skin.

0

Share this post


Link to post
Share on other sites

It sounds like you are coming in contact with gluten and reacting which happens to people with DH.

You need to get all gluten free products...shampoos, makeup, soaps, lotions...just as said in the previous post.

Good luck and if you need any help feel free to contact me :D

0

Share this post


Link to post
Share on other sites

Thanks for those kind replies.

no we have not been tested. We started an emergency gluten free diet when my son was 6weeks old, and any tiny amount of gluten simply kills us (me -> this rash, him terrible diarrhea).

I read and read about testing, and nothing seems apealing to me: either it's not *accurate*, either it requires gluten loaded diet, something I REFUSE to do it on my kid (or the doc would at least pay with his own money for 4weeks of total child care as I cannot stand the screams anymore), and I'm reluctant on myself...

Ped and allergist are both OK with breast milk diagnostic: baby reacts to BM, and we can repeat and predict the test and results. So I do not know if we deal with celiac, with gluten intolerence, with DH, .. but we DO know that gluten-free diet solves 95% of our problems.

I'm pretty much in control of ingested gluten-free food. But for shampoos and like..

How do you find the info? Do you need to phone everywhere? are they lists anywhere?

I found the topic on makeup (not that I wear any, but I'll clean my cabinet anyway), but I dont know for the rest. Should I only avoid gluten? or certain food coloring? certain cleaning products?

Does wearing latex gloves solve the dishes problem? or is this something that I should give to hubby?

Does it make sense that I react to *water* when the sores are bleeding? (ie the water *burns* just like alcool or vinegar on cuts)

thanks again....

(I'll try to read more on this forum, but it takes time....)

0

Share this post


Link to post
Share on other sites

We have found the info about the gluten free products by calling companies and emailing companies. Alot of people on here have done extensive research and know what brands to get and then we share the info.

There is a huge Delphi list that just came out a few weeks ago and it is a 79 page list of some gluten free products. It doesn't contain all products that are gluten free but I think it would definitely help you out.

celiac3270 posted about it a few weeks ago in the product section that gave these instructions on how to get it...it is free

1) Go to the website, http://forums.delphiforums.com/celiac/start

2) Click on "messages" or "start reading"

3) Select the folder "gluten-free Product List"

4) Click on the topic called "Downloadable files word"

5) Of the four options, choose the one in the upper right.

If you need brands of soaps, shampoos, makeup, etc you can find info on the forum

If that takes to much time just contact me about products you would like that are gluten free and I can help you out with brands.

0

Share this post


Link to post
Share on other sites




celiac3270 posted about it a few weeks ago in the product section

thank you so much....

That's the kind of start I needed.

Yes, it's a lot of reading, but the work pulled together to produce such a file is :huh::huh::huh::huh: and I'd better start there!

many thanks, and if you know celiac3270, please transmit my thanks too... :wub:

Sophie

0

Share this post


Link to post
Share on other sites

You're welcome :D;) -- I didn't do the work, though, I just notified people here about it :lol:

0

Share this post


Link to post
Share on other sites

I forgot to add this earlier, but it's a biggie for me: NO scents or colors in your lotion, soap or laundry detergent. I don't think it has anything to do with the DH, but it really irritates my skin (even before I had DH).

0

Share this post


Link to post
Share on other sites

When we are broken out, even water can trigger a round of miserable itching. We have to be extra careful of anything that comes into contact with the skin. Check even your dishwashing liquids and powders. We use All Free and Clear for clothes. One thing we have found to be a life saver is Shaklee's Basic H household cleaner. Not only do we not break out with it, but we can use 1/2 tsp in a tub of water to bathe and it helps ease the itching and keep down the secondary infections. The sores even look better once we get out of the tub.

0

Share this post


Link to post
Share on other sites

Thanks for all your answers...

I wanted to keep you posted on great improvment:

We have been (me and nursed baby) on gluten-free diet since august.

On the 9th of may, I had some B'Day cake, and I had that immediate rxn and my baby flared. We have been on strict gluten-free diet since.

Today is the 20th, my finger is much much better... nearly healed, and 99% itch free. My baby is still itching (he needs ~14days - by experience - to clear his system)

I'm still studying the great list you gave me, but I guess the only way to go for us is a strict food diet - and I'l keep checking now and then shampoos and likes, but I'm just not up to gluten-hunt ALL my environment - yet...

This little event, and your great answers, are also a turning point for me, as I decided that I'm gluten sensitive too, and after weaning my baby, I MUST keep gluten-free dieting for myself - which might mean gluten-free dieting for the whole family as my gluten-free cooking improves.

Many many thanks,

Sophie and baby Martin.

0

Share this post


Link to post
Share on other sites

Thanks for the info on the Delphi list. I have been looking for something like that!

The only thing that works for me on my fingures is plan old petro jelly.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,625
    • Total Posts
      918,379
  • Topics

  • Posts

    • glutened by lays potato chips?
      I ate some baked lays last night and felt very sick all night and haven't been feeling great all day today. Other than that I didn't eat anything different from what I normally eat and there was no risk of cross contamination with anything.. These were the only thing I had that was different. They're labeled gluten free so I figured it would be okay, but I started feeling sick pretty soon after eating them. I'm not sure if it's another ingredient in them or what (and i know it's not the soy).. Has anyone else had a reaction to lays potato chips?
    • Symptoms In Toddlers?
      Welcome Ashley! Here are the current tests.  The DGP versions seem to work a bit better than the TTG in small children.  So, ask for the complete panel (and get it all in one stick....my 15 year still hates to get blood drawn ! http://www.cureceliacdisease.org/screening/ Your doctors are wrong!  They must be reading old medical text books.  Not all kids or people have failure to thrive!  You can even be symptom free!. I was anemic and had no intestinal issues when I was diagnosed.  celiac disease affects everyone differently and that's probably why so many folks are not diagnosed. Your kids (parents, siblings too) should be tested every few years (sooner if symptoms develop) per all the leading celiac researchers/doctors if a first-degree relative has celiac disease (like you!)  celiac disease can develop at any age! Hope this helps!   
    • amalgam dental fillings - remove or not?
      Do you have celiac disease?  This is a celiac forum and that's what we are most knowledgeable about. http://www.cureceliacdisease.org/screening/ Amalgam fillings do not have lead that I know.  What you read was probably mercury.  You could have them removed, but only by a dentist who has the knowledge and skill.   I think you need to do some more research so that you can make an informed decision. I wish you well. 
    • Newly diagnosed and totally overwhelmed
      Welcome! Go ahead and rant!  Scream and holler!  Weep.  It is totally normal to go through a grieving process.  We have all been there!  You are NOT alone! When you pick yourself off the floor, start researching.  Learn about the gluten free diet.  Start with easy-to-digest foods that are naturally gluten free (meat, fish, veggies, fruit, etc.).  You may have to give up dairy for a short time until your villi heal (the villi tips release enzymes that help digest lactose (milk sugars).  Skip all the processed foods until you are improving.  That will give yourself time to forget what bread really tastes like.  Avoid eating out for a few months -- it's easy to get cross contamination.  Best to explain your gluten-free needs when you, yourself, "get it".  Read our Newbie 101 thread under "Coping" for valuable tips.   You can go out and drink with your friends.  You might have to avoid alcohol for a few months.  But when healed you can drink!  Just no beers, malted beverages.  Most distilled liquor (e.g. volka) is gluten free.   So, is wine.  Skip the gluten free beer for a long time.   Find other celiacs in your area.  In the meantime, visit with us.  It does get better.        
    • amalgam dental fillings - remove or not?
      Hi everyone, I'm going through some health issues right now and when searching for possible causes of my symptoms and blood test results, I see lead poissoning popping up quite a few times. Now, I have many amalgam fillings in my mouth since childhood, so naturally I'm thinking if that might play a role and if removing them would make a difference. But from what I read online removing the amalgam fillings is not recommended and does not bring any health benefits. I have mixed feelings about this issue and would really appreciate some advice. Thanks in advance for any comments. Greetings from Mexico. :-)
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,716
    • Most Online
      1,763

    Newest Member
    Acomys
    Joined