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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Calling All Insulin Pump Users... . . . .......
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4 posts in this topic

I've been a type one diabetic for most of my life, and for many years have kept tight blood sugar control with syringe delivery of my insulin. For this reason I've never really explored the idea of changing to an insulin pump. The other reason is my lack of enthusiasm for the idea of a box, even if it is small, always being attached to me, with all the involved tubing and a constant injection site that remains prone to infection. Needles have always been so easy for me.

In the last year, my blood sugars have suddenly become more difficult to predict and control. It is likely due to impending perimenopause, or added life stressors, or simply having had the disease for so long and things are finally starting to catch up. I know that the latest pumps offer great options for watching things closely, and can be a valuable tool for tightening the screws. I'm hoping to hear from diabetics who have been using needles for a long time, and changed to a pump. Even more interesting would be diabetics who were on the pump and switched back to syringes. As I mull things over and do my research, it is good to hear from people who are in the know, and living it!

I have been watching closely the story of the Omnipod, a pump that I would immediately buy and try to incorporate into my life were it available in Canada. This one uses a patch as a delivery system, like a nicotine patch I would imagine. I wait with bated breath for our Health Department to approve its sale here, but things such as this tend to be conservatively slow up here.

Any info/insight would be much appreciated! :)

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I've been on an insulin pump for over 7 years and it has made a world of difference. I take a break for a day or two every now and then and go back to the shots. That never lasts long because it just reminds me of the reasons I went on the pump in the first place. There are so many options for insulin delivery that allow for such a personalized approach to your diabetes. Nights were always a struggle for me before the pump but they're much more stable now. It is also so much more convenient and practical. You might have something physically attached to you but I don't think it's any worse than having to carry insulin and syringes everywhere. In fact, it's very nice to not have to find a clean place to give an injection in public. Expense shouldn't be a concern since Ontario now covers pumps and supplies for Type 1 diabetics. You get used to it very quickly and will soon forget it's there. I usually wear mine on a leg strap around my calf so no-one even notices i. I've never had an infection and that shouldn't be an issue if you change your sites regularly. I leave mine on for up to a week and no problems at all. I like my Minimed because you can get the sensors and glucose transmitter with it. The sensors are great when you need to establish what your patterns are. Feel free to ask me any questions I haven't answered.

Btw, did your celiac disease have any effect on your blood sugar levels before you were diagnosed?

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Thanks for the response, Smoly. I went off gluten four years ago, and I always knew before that time that heavy starches caused my blood sugar to rise, often quickly with their high GI number - - so I've always limited my consumption of grains, corn, rice, potato, etc. But in hindsight, I think the glutinous sources in that list caused the biggest disruption of all. Rice causes a need for a little more insulin, but wheat pasta required a BIG shot of extra. So yes, the extra insulin I was taking was due in great part to the gluten I was unable to tolerate, and therefore the undiagnosed celiac.

The inconvenience of giving myself shots while out and about has never really been a problem for me. For many, many years I have only been on two shots a day, and they are at convenient times - -when I get up in the morning and right before supper (the very odd time there is a third shot at some point in the day due to a rare jump in blood sugar). My insulin requirements are low due to my exercise regimen, which is unfailingly carried out every single morning. I treat exercise like an insulin injection - - I must do it, every day. This brings me to another question about pump use: I'm wondering how the mechanics are affected by things like vigorous movement and copious sweat. I am soaked, every morning, after my 45 minute cardio. I assume that would be a time that I would take it off. I need to know more about the Omnipod and its patch delivery system, and whether or not it can be peeled off and back on.

I must say that the new pumps that have constant blood sugar readouts sound fantastic - - this in itself could be reason enough to convert, for it is the five blood tests a day that really are a pain!

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Thanks for the response, Smoly. I went off gluten four years ago, and I always knew before that time that heavy starches caused my blood sugar to rise, often quickly with their high GI number - - so I've always limited my consumption of grains, corn, rice, potato, etc. But in hindsight, I think the glutinous sources in that list caused the biggest disruption of all. Rice causes a need for a little more insulin, but wheat pasta required a BIG shot of extra. So yes, the extra insulin I was taking was due in great part to the gluten I was unable to tolerate, and therefore the undiagnosed celiac.

The inconvenience of giving myself shots while out and about has never really been a problem for me. For many, many years I have only been on two shots a day, and they are at convenient times - -when I get up in the morning and right before supper (the very odd time there is a third shot at some point in the day due to a rare jump in blood sugar). My insulin requirements are low due to my exercise regimen, which is unfailingly carried out every single morning. I treat exercise like an insulin injection - - I must do it, every day. This brings me to another question about pump use: I'm wondering how the mechanics are affected by things like vigorous movement and copious sweat. I am soaked, every morning, after my 45 minute cardio. I assume that would be a time that I would take it off. I need to know more about the Omnipod and its patch delivery system, and whether or not it can be peeled off and back on.

I must say that the new pumps that have constant blood sugar readouts sound fantastic - - this in itself could be reason enough to convert, for it is the five blood tests a day that really are a pain!

I've never seen the Omnipod in action so I don't know much about how it stands up to sweating and how easily it's removed. I disconnect my Minimed when I shower swim and the site stays really secure. You can always put some extra tape on tape if you want some extra security though. Movement shouldn't affect the pump since many athletes use them on a daily basis. I wouldn't drop it or use it in a martial arts class but it's a pretty tough little device.

One thing to note about the Continuous Glucose Monitoring System (CGMS) is that you still have to test your sugars the old-fashioned way at least 4 times a day to calibrate the machine. It's also advised to test whenever you have a result that is high or low. The CGMS is meant to show you trends and alert you to upcoming changes as there can be a delay between the CGMS and real-time blood sugar results. There is a great forum called Insulin Pumpers that can answer just any question you might have about pumping. It was invaluable when I first started on a pump.

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    • Week late aftershock!?
      I had a similar problem, I was glutened after a meal out at the beginning of April and am still experiencing problems, obviously not as bad now, but bad enough.  I have also become intolerant to  xanthan gum since, which cuts down the foods I can eat even more. I'm already intolerant to dairy, soya, and a whole lot of other stuff.  Cyclinglady is right about the auto-immune disorders, and I've noticed I have similar problems to her.  I too, eat easy to digest foods until the glutening symptoms pass. The sinus infection might also be a reaction to the glutening, it effects people in different ways.
    • celiac disease is psychosomatic
      Thanks, I'll check out the information in the link. Do you remember how long you were on a gluten-free diet before your vertigo disappeared? I have been on the diet for 2 years, but I might be glutened from time to time since I am not an expert food label reader. My dizziness still persists.
    • celiac disease is psychosomatic
      Thank you, Arlene, for making tea come out my nose!  I should have known not to read your post while drinking......
    • celiac disease is psychosomatic
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    • Can treatment for Giardia reverse active Celiac
      SugarCube, I saw your other posting today.  I can not believe that I missed your original posting!  Maybe I was doing something super fun that week (oh, my parents were visiting!).   Your celiac blood panel was positive and you had intestinal damage that was caused by both celiac disease and Giardia?  After treating the Giardia, your CD resolved or went into remission?  Are you consuming a diet containing gluten still?  Have you had a follow-up biopsy?   I read your link to the study, but that feature just one patient (a child).  Have you found any other larger studies?  Inquiring minds want to know!       
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