Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Possibly Celiacs Disease(?) And Bloodtests
0

6 posts in this topic

Am new to this board and haven't been diagnosed. My problems started several months ago with severe acid reflux and nausea when I eat wheat products and anything with oats. I've had an endoscopy and upper GI. The only thing they could find was a small hiatal hernia. I just went to the doc to get full blood workup today and ironically a coworker just told me about her friend's recent celiac diagnosis. I saw a lot of similarities in my symptoms SO I called my doc to see if they could test me for this. I was told they would test for malnutrition which could be an indicator but that a biopsy was the only way to know for sure.

My question is this- if I'm not malnourished could I still have this? Basically, I need to know what to do next.

Any help is appreciated! Thanks so much!

Tonya

Whoopsie- think I put this in the wrong spot. I also put this in the coping section? Am foggy-headed. Sorry.:)

0

Share this post


Link to post
Share on other sites


Ads by Google:

Am new to this board and haven't been diagnosed. My problems started several months ago with severe acid reflux and nausea when I eat wheat products and anything with oats. I've had an endoscopy and upper GI. The only thing they could find was a small hiatal hernia. I just went to the doc to get full blood workup today and ironically a coworker just told me about her friend's recent celiac diagnosis. I saw a lot of similarities in my symptoms SO I called my doc to see if they could test me for this. I was told they would test for malnutrition which could be an indicator but that a biopsy was the only way to know for sure.

My question is this- if I'm not malnourished could I still have this? Basically, I need to know what to do next.

Any help is appreciated! Thanks so much!

Tonya

0

Share this post


Link to post
Share on other sites

Tonya,

I'm sure you will get lots of replies to your questions from more experienced people than me, but just happened to see this & thought I'd let you know -- there is a whole panel of blood tests for celiac, and biopsy is not the only way to diagnose. Seems like doctors use it as the "gold standard" to confirm the diagnosis, but it's an invasive test, and you can probably find out if you have celiac first by having a reputable lab check the antibodies in your blood, and by seeing if the symptoms go away while on a gluten-free diet.

I've just found out myself, since my blood work showed celiac, that the biopsy does not always reveal intestinal damage, because the biopsies are done randomly in a scattered fashion, and if you don't have severe damage over long-term to your small intestine it might not show up -- which wouldn't mean you don't have it.

If your doctor does not know about these specific blood tests for celiac, I would suggest going to another one who does. This message board has loads of useful information, and there are also a few good books and websites out there if you want to do some research. Good luck.

Ellen

0

Share this post


Link to post
Share on other sites

Can anyone tell me how long have doctors been using the current blood tests to test for gluten sensitivity or celiac disease?

0

Share this post


Link to post
Share on other sites

I just read about this in a magazine, Parents I think, it had an article called the enemy in the kitchen, I think or maybe it was the Pantry? Any way, it sounded eerily familiar in a lot of ways. I will tell you some information about my family first:

I am in my thirties and always have had digestion problems, (irritable bowel/spastic colen, reflux also) My mother has diabeties and Thyroid, but most importantly my children:

My oldest is anemic if not on iron pills, and as a baby she was having lots of trouble gaining weight and reaching milestones. She is fine now that she is older except for being lactose sensitive. My middle child seems fine, never had a problem except it did take her awhile to switch from formula to milk...needed soy milk until 3yrs or she would have diarreha. My baby is not doing so well. At nine months old she can barely sit up and only weighs 14 lbs. 6 oz. She doesn't crawl but rolls good. She is behind in size and milestones, and suffers from major reflux.

Does any of this sound like enough reason to be tested for celiac disease or gluten intolerance?? Or am I just over reacting? What do you recommend?

Any one who reads this please respond. :rolleyes:

0

Share this post


Link to post
Share on other sites




Christina,

Oh, yes! Definitely have your children (and yourself) tested for celiac disease! If only one of your kids had trouble, it would still be worth it to investigate possible celiac disease, but since a whole cluster of family members has suspicious symptoms I (personally) think it's rather likely that celiac disease is the culprit.

It's great that articles like the one in Parents magazine are helping to raise awareness of celiac disease and prompting readers to pursue testing. I wish you and your family the best of luck during the diagnostic process!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,091
    • Total Posts
      920,311
  • Topics

  • Posts

    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,121
    • Most Online
      1,763

    Newest Member
    Sambud
    Joined