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Test Results Confusion
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5 posts in this topic

Ok, My older brother was just diagnosed with celiacs disease- he was off the charts, he advised that I go in and get testing based of my medical issues such as still births, miscarriages, radical thymectomy due to the starts of myasthenia gravis. So, I went on Monday and got my results today- the Dr. said it was negative: I am however confused on the findings.

I am 34 years old, here is the results given: Can any of you help me with this- do I have it or not?

Deamidated Gliadin Peptide Ab IgA mine was a 4

Deamidated Gliadin Peptide Ab IgG mine was a 7

Tissue Transglutaminase Ab, IgA mine was a 19 they said the range for this is from 0-19

Tissue Transglutaminase Ab, IgG mine was a 6

so according to the other numbers they are low representing negative, but the Ab,IgA has me confused: I went to my primary care dr. there is no way I have the money right now to get the endo. What are your opinions and or what does this mean, I am SO confused.

Thanks

Can anyone please help me with my test results.

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Is there anyone out there who will help me with the test results? I really am confused and would like some insight to this..

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You need to include the reference ranges when you post results. Every lab is different.

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maybe the normal range is from 0-10 and 11-19 ia grey zone, and 20 definitely positive.

In early celiac, the damage is patchy and about 50% test negatiive. That is because the blood test are designed to only turn positive when there is a lot of damale, like total villous atrophy....they really want to avoid getting positive reaults for people that are just at the beginning of celiac.

I think this has to do with Europe, like in many countries patietns get money from the government if diagnosed celiac.

So the rules have to be strict and apply to all the world.

So they set the cutoff of the blood tests very high to only catch very ill celiacs.

So I think your result of 19 really means something, and that they should do a biopsy.

Your other symptoms , and the fact that your brother was diagnosed, really suggest celiac.

The most important celiac test here amongst all the tests, is the Ttg IgA test.

In many countries that is the only one they run (together with the total IgA to check if people make enought IgA at all so the test is valid or not, otherwise they do the IgG version)

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I would strongly advise you to try the diet after you have finished all the testing you want to have done. There are false negatives on testing, I was the sickest person in my family and always showed a false negative on testing but all my other family members, including ex-husband showed positive. A good strict trial of the diet may be of more value for you.

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Going gluten free may be beneficial if you're among the roughly 10 percent of people who suffer from celiac disease, a genetic immune disorder, ... View the full article
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