Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Test Results Confusion


Wondering1

Recommended Posts

Wondering1 Newbie

Ok, My older brother was just diagnosed with celiacs disease- he was off the charts, he advised that I go in and get testing based of my medical issues such as still births, miscarriages, radical thymectomy due to the starts of myasthenia gravis. So, I went on Monday and got my results today- the Dr. said it was negative: I am however confused on the findings.

I am 34 years old, here is the results given: Can any of you help me with this- do I have it or not?

Deamidated Gliadin Peptide Ab IgA mine was a 4

Deamidated Gliadin Peptide Ab IgG mine was a 7

Tissue Transglutaminase Ab, IgA mine was a 19 they said the range for this is from 0-19

Tissue Transglutaminase Ab, IgG mine was a 6

so according to the other numbers they are low representing negative, but the Ab,IgA has me confused: I went to my primary care dr. there is no way I have the money right now to get the endo. What are your opinions and or what does this mean, I am SO confused.

Thanks

Can anyone please help me with my test results.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wondering1 Newbie

Is there anyone out there who will help me with the test results? I really am confused and would like some insight to this..

Link to comment
Share on other sites
Jestgar Rising Star

You need to include the reference ranges when you post results. Every lab is different.

Link to comment
Share on other sites
nora-n Rookie

maybe the normal range is from 0-10 and 11-19 ia grey zone, and 20 definitely positive.

In early celiac, the damage is patchy and about 50% test negatiive. That is because the blood test are designed to only turn positive when there is a lot of damale, like total villous atrophy....they really want to avoid getting positive reaults for people that are just at the beginning of celiac.

I think this has to do with Europe, like in many countries patietns get money from the government if diagnosed celiac.

So the rules have to be strict and apply to all the world.

So they set the cutoff of the blood tests very high to only catch very ill celiacs.

So I think your result of 19 really means something, and that they should do a biopsy.

Your other symptoms , and the fact that your brother was diagnosed, really suggest celiac.

The most important celiac test here amongst all the tests, is the Ttg IgA test.

In many countries that is the only one they run (together with the total IgA to check if people make enought IgA at all so the test is valid or not, otherwise they do the IgG version)

Link to comment
Share on other sites
ravenwoodglass Mentor

I would strongly advise you to try the diet after you have finished all the testing you want to have done. There are false negatives on testing, I was the sickest person in my family and always showed a false negative on testing but all my other family members, including ex-husband showed positive. A good strict trial of the diet may be of more value for you.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,093
    • Most Online (within 30 mins)
      7,748

    Eva Ann
    Newest Member
    Eva Ann
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...