Is Shampoo W/ Gluten Ok?
#1
Posted 07 March 2010 - 09:43 AM
As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's
Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon
Had negative celiac blood work in 02
Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008
Positive for DQ8- 2008
Tested high positive for egg, dairy, soy, ginger, mustard - 2008
Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability
Improved with gluten free diet but still have spastic constipation
#2
Posted 07 March 2010 - 11:36 AM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#3
Posted 07 March 2010 - 12:30 PM
SUE
#4
Posted 07 March 2010 - 12:56 PM
As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's
Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon
Had negative celiac blood work in 02
Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008
Positive for DQ8- 2008
Tested high positive for egg, dairy, soy, ginger, mustard - 2008
Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability
Improved with gluten free diet but still have spastic constipation
#5
Posted 07 March 2010 - 12:57 PM
As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's
Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon
Had negative celiac blood work in 02
Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008
Positive for DQ8- 2008
Tested high positive for egg, dairy, soy, ginger, mustard - 2008
Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability
Improved with gluten free diet but still have spastic constipation
#6
Posted 07 March 2010 - 01:02 PM
SUE
PS How are you doing with treatment for parasites? I hope you're doing well.
#7
Posted 07 March 2010 - 01:36 PM
havent gotten my test results back, hopefully this week so i can start medication
As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's
Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon
Had negative celiac blood work in 02
Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008
Positive for DQ8- 2008
Tested high positive for egg, dairy, soy, ginger, mustard - 2008
Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability
Improved with gluten free diet but still have spastic constipation
#8
Posted 07 March 2010 - 02:50 PM
richard
#9
Posted 07 March 2010 - 02:57 PM
If you're sure you're not getting any shampoo in your mouth, then it shouldn't be a problem. I use gluten-free shampoos and conditioners at home to make absolutely sure (and so I don't have to be so careful), but everyone knows their own level of sensitivity. When I go to the hair salon, I let my stylist use whatever he thinks is right for my hair, I just make sure none of it splashes in my mouth. I do, however, ask him to not use any product on my hair for blow drying/styling.
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Celiac.com - Celiac Disease Board Moderator
#10
Posted 07 March 2010 - 04:13 PM
jasonD2, on 07 March 2010 - 01:36 PM, said:
havent gotten my test results back, hopefully this week so i can start medication
I'm confused. I thought you already received results that indicated you had 5 parasites. Have you already treated those and now await the retest results?
SUE
#11
Posted 07 March 2010 - 05:26 PM
lotion is something I would change. unless you *NEVER* touch your mouth, never pick up a piece of food with your hands, and never handle your utensils and plates directly, there is a chance of transfer from lotion that ends up on the hands (even if it was just on the hands to apply to the arms or knees or feet) ends up on your food and ends up in your mouth. again, a small risk, but why take it if you're having problems?
there are so many gluten free options for both of these items, so my approach is "why not just go the really obvious route?".
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA
#12
Posted 08 March 2010 - 11:39 AM
jasonD2, on 07 March 2010 - 01:36 PM, said:
havent gotten my test results back, hopefully this week so i can start medication
I am wondering why if you think it isn't an issue you asked the question in the first place.
The choice is yours. There are many of us who do avoid it in toiletries. If you are continueing to have gluten issues then drop the stuff and see if it helps.
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#13
Posted 09 March 2010 - 08:15 AM
#14
Posted 09 March 2010 - 08:57 AM
My daughter is contact reactive, but hers is an allergy and not celiac. I accidentally used a bath product with wheat in it on myself and the slight residue left behind gave her a rash. Never again!
IgG, daughter: Wheat, spelt, lentils, peas, peanuts, almonds
#15
Posted 09 March 2010 - 01:44 PM
tarnalberry, on 07 March 2010 - 05:26 PM, said:
lotion is something I would change. unless you *NEVER* touch your mouth, never pick up a piece of food with your hands, and never handle your utensils and plates directly, there is a chance of transfer from lotion that ends up on the hands (even if it was just on the hands to apply to the arms or knees or feet) ends up on your food and ends up in your mouth. again, a small risk, but why take it if you're having problems?
there are so many gluten free options for both of these items, so my approach is "why not just go the really obvious route?".
Hi Tarnelberry!
Any suggestions for lotion?? My skin is brutally dry; I've been using Neutrogena unscented body oil after showers, but also lots of scented stuff. I looked on the web for 3 hours the other night; Burt's Bees has been taken over by clorox(!), and I'm having a heck of a hard time finding something.
Thanks!

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