I have struggled with my weight for a long time now. My doctor did not even consider Celiac Disease because I was not thin. Also, I don't think that he believed that I was vomiting on a daily basis because again, I was not thin. I would go through periods of time that I would throw up everything I ate, then, I did lose weight but it would come right back. I am curious, has anyone lost a significant amount of weight after starting the gluten free diet? Could my body's resistance to losing be in any way linked to the celiac disease?
I absolutely lost weight when I started going gluten free. I was devastated and had no idea what to eat. I was always on the go so all I ever ate was fast food. Once that was cut out of my diet I lost about 11 pounds in two weeks (and I was already small). Gradually I started to gain a little once I did research and figured out what I could eat and how to prepare it. I guess everyone's different but weight fluctuation is common when people go on and off a gluten free diet.
I lost about 20 lbs. after going gluten-free. My experience with doctors was similar - they would not consider celiac because I had gained weight. I think I gained weight because I felt like I was starving literally all the time, and would eat and eat and eat (and have about 6-8 bouts of monkeys flying out my butt every day). They only grudgingly let me take the blood test, which didn't show anything, but my endoscopy did. I was able to get tested finally because my mother is celiac, and I had the same symptoms she did. I had loads of horrid symptoms, most of them pretty classic, and they all disappeared upon going gluten-free (within weeks). I had scary dark circles under my eyes that went away, I had more energy (as opposed to none at all), and all around felt amazingly better. And I lost the weight, now feel more like 'me'!
On the contrary... I gained about 30 lbs!! I'd only had symptoms for a few months and hadn't lost weight like so many do. Then I cooked and baked and ate all the gluten free versions of what I was giving up!
People always asked me what the symptoms of celiac disease are and I'd tell them one of the biggest is unexplained weight loss... then I look down at myself and say, "Um... I didn't GET that one!"
I'm eating super healthy and slowly losing... to get back to where I SHOULD be, and I'm not talking bikini wearing here... I'm just talking about fitting into all the clothes I already have!!
Living in the beautiful Ozark mountains in Arkansas
positive blood tests and later, positive biopsy
diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day
Dairy free since July 2010 and NOT happy about it!!
Nope, weight loss didn't happen after I went gluten free. Darn. Well, maybe 2 or 3 pounds. Honestly, I was hoping for that magic to happen, and was disappointed when it didn't. Actually, that made me question my self-diagnosis of gluten sensitivity. But after 15 months of seriously gluten free eating, recently I tried adding a small bit of 'real' bread, 3 days in a row. Intestinal distress and a surge of joint, bone, muscle, and fibromyalgia pain curbed that experiment quickly. I'm wondering now if I'm gluten sensitive or just to wheat. Maybe I'll drink a beer and test it out... But maybe not.
I'm new to this forum, thanks for listening!
Self diagnosed gluten intolerant, gluten free since 12/09.
Diagnosed with fibromyalgia about 15 years ago. Fibro symptoms have improved but not gone away with gluten free living.
Osteoarthritis, mostly in hands and neck and lumbar spine. Not sure if going gluten-free has helped that problem, but it certainly can't hurt. (Am very grateful that so far no sign of the RA that is devastating my mother lately.)
Considering a dairy free trial. Considering.
I have always been overweight since I was 14. I weighed 205 lbs. Kept that weight until I got pregnant at 18 then lost it down to 135. Then after the baby was born shot right back up. Bad Bad Pregnancy.
No matter what diet I tried couldn't lose it. Maybe a couple then right back up. It wasn't until after I went gluten free that the weight started coming off and it's staying off. My profile pic shows me at my heaviest. A week before I went gluten free. I have now lost a total of 40 lbs. Slow but steady about 2 and a half to 3 lbs a month. I can't eat a lot of the processed gluten-free foods because I get a reaction to a lot of them. There's a thread on here somewhere about being supersensitive. I guess i'm one of them. Nothing made that shares facilities with wheat and so on. Plus, I also have problems with dairy, soy and the nightshade vegetables too. What processed foods I do eat I try to make sure that they are not very high in carbs and sugars. I do not eat any gluten-free breads at all. I love brown rice but try to keep that to a low minimum too. I mainly eat meat, chicken, brown rice, corn, green beans, santita's corn chips, Lara bars, Hormel Canned chicken, carrots, sunflower seeds, almonds and walnuts. Lima beans, gluten-free bolthouse ranch dressing with a salad. Anyway, This is just a small sample of what I eat. YUM YUM.
My dr has always told me that for my body heighth and so on I need to be around 117 lbs. I've always laughed because I could not picture mysel getting that small. I can now, but i'm not going that far. If I did I would look like a concentration camp survivor and I know it. I am going to try to get down to about 128 lbs. Then when I get there i'll just add a little more carbs to keep from getting any skinnier. At least that's my plan anyway.
Sorry, I got carried away.
I would cut out a lot of the processed gluten-free foods and go strictly fresh foods. It may take a while but it'll be worth it in the end. Hang in there and I wish you luck.
Good luck and
Lupus, Connective Tissue Disease with Fibro type symptoms, Anemia, Anxiety, Depression, RA, Rynauds Syndrome, Chronic Fatigue Syndrome, Erosive Gastritis, Osteoporosis, Degenerative Disc Disease, Scoliosis, Bulging discs in lower back and neck, Pinched Nerves.
Soy free, MSG free, mostly Dairy free. Endoscopy shows blunted Villi which dr states as gluten sensitivity, so goin back to being gluten free
I've lost 30 lbs. since going gluten-free 10 months ago. It's come off slowly (which is much safer) and easily. I haven't even been paying attention to portion sizes or calories counts and I've lost the weight. I think most of it is that, before going gluten-free, I was hungry CONSTANTLY. I could finish a huge meal the size of a Thanksgiving or Christmas meal and my stomach was literally rolling with hunger 20 minutes later. I just couldn't get enough food to feel satiated. As I said, I don't worry about portion sizes now because the gluten-free foods are satisfying me and I find I don't eat nearly as much as I used to. I also think I've lost the weight because going gluten-free has increased my energy to such a degree that I'm much, much more active. Before, I was so exhausted all the time that I was sleeping 12-14 hours a day and couldn't sustain activity for more than 2 hours at a time.
It may sound strange since so many people are upset about having to go gluten-free and cutting so many things from their diet, but being diagnosed Celiac was one of the best things that's ever happened to me. It truly gave me my life back!
I've only been gluten-free for 3+ weeks. I was in a size 16 pants, now size 14 are a little big on me! For the past 12-15 years I've gained and lost weight for no apparent reason. Over the past two years I've really been trying to lose weight, gym, eating right, etc and nothing has worked. I can't believe the difference after cutting out gluten!! I have to say I'm loving the results! I'm also eating a lot better, so that contributes to it. I have to say though, I've tried eating right and regular exercise with minimal results. So, for me I have to attribute it finally being diagnose with Celiac Disease and going gluten free.
Diagnosed with Celiac through blood work Feb 2010
Gluten-free/dairy-free Feb 2010
I had lost a lot of weight when I was sick and didn't know what was going on. In a matter of few months I started gaining it back with all the gluten free replacement foods. They usually have more calories than their gluten comparison and the bread is smaller ! When I got around 145 pounds (I am 5'4) I decided to ditch the goodies and eat fresh foods ect with maybe one or two peices of udi bread a day. I also power walk 6 days a week and now am at 131. My goal is 125 since I am small boned.
I went gluten-free last June. At that time I weighed about 224 and was eating 800 - 1200 calories a day (all I could eat that last month or so was eggs, yogurt, oatmeal, and an occasional potato because my stomach was so upset everything I ate made me sick). Even eating so little I was not losing weight. After eliminating the gluten I dropped 25 pounds by Thanksgiving (end of Nov). My weight leveled off over the winter, then I gained back about 5 pounds. Now that spring has begun to return I've dropped that 5 pounds in the last couple of weeks and hope to start heading back down again.
In my case, one of the keys to weight loss for me is that I have to make myself eat enough. If I stop when I'm satisfied I'll eat about 1300-1400 calories, and gain weight. If I boost to 1500-1600 I level out. I have to log my food and watch carefully to get 1800 calories consistently to lose. I know it's counterintuitive, but it's what has worked for me. I suspect part of my plateau this winter is because after losing 25 pounds I thought I should drop that level a bit (shouldn't need so many calories now, right?) WRONG. Now that I'm pushing 1800 consistently again, I've lost that 5 I picked back up.
I would strongly suggest logging food. Not only does it help you be aware of how often you eat too much or too little food, but it also can help to pinpoint other dietary sensitivities that may crop up during the healing process. I've discovered, for example, I need to watch nightshades, although I never knew I had a problem with that until the gluten cleared out of my system.
I know some do it manually, but I use Sparkpeople.com Their website has calorie counts of many plain foods, as well as name brands and even many gluten-free products, so I'm not always having to find calorie counts myself. You can also log things like how much water you drink daily, which vitamins you're getting enough of, etc which can be helpful for getting back on top of low levels.
Growing up I was scary thin. At 5'3" it took a lot of effort to maintain a weight of 90 lbs. My parents used to fill me with pasta and milkshakes. They even let me have the occasional beer to fatten me up. Ha! Looking back I don't know how anyone missed it! Then I was able to put on some weight in my 30's and got on the other side of 100 lbs. Still too skinny. Then about 5 years ago the weight just kept coming and coming for no reason. I got to 145. It was an uncomfortable 145, I felt more bloated than chubby. I went from a size 6 (US) to a 14. I was miserable and I was hungry all of the time. If I didn't eat often I felt sick. I tried weight watchers to help me get to 125. In a year all I could manage to get to was 135. I gave up. Now looking back I see that I was filling up on the very foods that my body was reacting to: dairy, gluten, soy. I'm not sure what made me switch from too thin to chubby to close to overweight. The catalyst is unknown. Since going gluten-free/soy free I've seen some major changes. I haven't lost much weight (fluctuates between 5-8 lbs) but I am down to a size 10. People have remarked how thin I look, less bloated, less uncomfortable. I'm no longer starving all the time. My portions are smaller. I'm not trying to lose weight. That can come later. When i suspected I had celiac or crohns the docs would look at me and say no way, without doing any testing. We prove right here that we come in all shapes and sizes. If only the medical community would recognize that as well.
40 year old former foodie on a quest to feel better!
-IgE to oats and rye -Diagnosed with Colitis via endoscopy/colonoscopy Oct '10 -Following FODMAP diet since June '10, Positve SIBO test, July '10 -Diagnosed non-celiac gluten intolerant June '10 (celiac in March '10, endocsocopy in Oct '10 shows no signs of celiac) -Osteopenia June '10 -Gluten free since July '09 & Soy free since December '09 -Dairy free since '06 -IBS & Sjogren's diagnosed '05 -RA diagnosed as a toddler
when i went on my first round of gluten/dairy free diet i lost nearly 30lbs in 5 months. at the time i was 5 months post partum, breastfeeding(burns around 500 calories a day) and working full time on my feet. i was not eating enough fat but i also think a lot of that weight was inflammation. i've been on and off gluten for the last 1.5yrs and gained back about 10lbs.
i've only been gluten free for a few weeks now and have not had any weight change so far. i'm not working and stay home with my kids so i'm able to eat more often and healthier.