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Falling Off The Gluten-Free Wagon


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#31 RideAllWays

 
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Posted 18 March 2010 - 03:33 PM

Been gluten free for a year now, flawlessly. It was hard at first, I hesitated at putting ANYTHING in my mouth. You'll start to get more adventurous and creative in your cooking. Are rice cakes available to you? They saved me through the first few months. Rice cakes with peanut butter, tuna, goat cheese, cucumber, whatever else you can think of...

Yet recently I have been so close, much too close, to eating a McChicken from McDonald's. The only thing stopping me is that I know I will be so sick and it's just not worth it. I'm sure every Celiac has thought about cheating, whether or not we actually do it is a different story.

A note on the rice crispies: you said you weren't sure about them, but the killer ingredient is MALT. This is a source of gluten that I didn't know about at the start of my gluten-free adventure. IT WILL GET EASIER, I promise, but it probably will never be easy to watch other people eat yummy and convenient things while we cannot. We just have to eat our own yummy things and figure out new favorites!. My favorite saying is:

Never concentrate on what you CAN'T eat, only think of the many things you CAN eat.

It will get better! :)
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#32 sandsurfgirl

 
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Posted 18 March 2010 - 06:24 PM

Today my kids had those super soft frosted sugar cookies from the grocery store. Those are one of my FAVORITE indulgences. I just sat there smelling them. It was so tempting, but then I remember the way I feel and the awful GI symptoms and then smelling them is enough. Now I'm on a quest to find a good gluten free sugar cookie recipe and create something similar myself.
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

#33 RideAllWays

 
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Posted 18 March 2010 - 10:16 PM

Today my kids had those super soft frosted sugar cookies from the grocery store. Those are one of my FAVORITE indulgences. I just sat there smelling them. It was so tempting, but then I remember the way I feel and the awful GI symptoms and then smelling them is enough. Now I'm on a quest to find a good gluten free sugar cookie recipe and create something similar myself.


I have an amazing sugar cookie recipe if you want it. I may have posted it here around Christmas time, but if you can't find it email me at d.hoholuk@hotmail.com!
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#34 kareng

 
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Posted 20 March 2010 - 08:34 PM

I have been gluten-free about 5 weeks. The first few days I tried some of the gluten-free products like Udis bread, pasta & pizza crust. Hated them! It was too close to when I had the "real" versions. This past week tried them again & liked them. Wasn't as easy to compare them in my taste memory. Some are better then others & I have found that its sometimes personal preferences. Still don't like Quinoa pasta but did like rice pasta.
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#35 serenajane

 
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Posted 21 March 2010 - 04:50 AM

Eating gluten-free is a choice. If a bowl of cereal is worth feeling as you do, then how can any of us change your mind?



I must say at first glance the comment seems a bit lacking in the compassion area.
However it is really hard to know how someone's tone is intended with typed words.
I don't think they intended to discourage or to be hurtful.

For me I was sad when my diagnosis came about.
BUT I know that I can choose to live a better life doing it gluten free or I can be in pain and uncomfortable all the time.

Celiac disease has put a damper on my relationship with my husband 5+ years before diagnosis. When the bathroom is the first thing you visit in the morning and the last thing in the evening it kinda kills the romance.

It looks to me the person who "feel off the wagon" felt like she had no food options available. That is an awful feeling.

This has been a great place for me to vent my gluten frustrations please feel free to continue as well we are all in the same boat.
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#36 serenajane

 
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Posted 21 March 2010 - 04:53 AM

Today my kids had those super soft frosted sugar cookies from the grocery store. Those are one of my FAVORITE indulgences. I just sat there smelling them. It was so tempting, but then I remember the way I feel and the awful GI symptoms and then smelling them is enough. Now I'm on a quest to find a good gluten free sugar cookie recipe and create something similar myself.

I had gluten free snicker doodles they were soft and they were yummy. I think made by enjoy life. I found them in the bread and cookie isle of my local grocery store
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#37 BackTalk

 
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Posted 21 March 2010 - 09:58 AM

Here is something to consider. IT WILL KILL YOU! I was gluten-free for almost 3 years. It was a struggle and it wasn't easy. I had had enough. I hauled my butt to Mc Donald's, ordered a quarter pounder and never looked back. It made me feel like crap but I stayed with it and got to the point where it didn't bother me. I went for another year and a half eating anything I wanted. About 4 months ago I started getting stomach cramps but was able to blow it off for a few weeks. I ended up on the floor of a pizza place with such bad cramps I was out of my mind with the pain. I was taken to the hospital, and thank God, just in time. My intestine perforated and blew out. They took out 2 feet of destroyed intestine. I am now the proud owner of a Colostomy. If you don't know what that is, look it up. Long story short, I poop in a bag now that is attached to my stomach. Again only by the grace of God mine can be reversed and I can be put back together in a few more months.I haven't posted on this forum in a long time but your post got to me. If you were told you need to go gluten-free, you better do it. If a bowl of cereal is worth having, keep eating it. You will enjoy the bag on your side when it gets bad enough. But what the heck, it may take years.Jess
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#38 Yoshi

 
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Posted 21 March 2010 - 01:11 PM

The gluten-free lifestyle isn't easy, especially when you live in a home with other people who don't have to eat the way you do. Several years ago, when I was diagnosed with Crohns, the doctor told me I could also be gluten-intolerant. I didn't pay a lot of attention to that, as I felt dealing with Crohns was hard enough. I attributed my nearly-constant digestive problems to the Crohns. I tried, briefly, to cut out the wheat, not fully understanding there was more to it. I felt it was too hard and quit trying. Fast forward to 3 years ago. My gall bladder abscessed and ruptured. The area of my liver around the gall bladder had started developing abscesses. I was extremely ill and almost died. After I got out of the hospital, even though I still didn't think about the possibility of all of that being caused by gluten intolerance, I was very careful with my diet, leaning more towards low-carb and not eating wheat or other grains. Gradually, though, I started slipping back into old habits and eating wheat-based products and having health problems that just kept getting worse.

A little over a month ago, I tested positive for gluten intolerance. I took it serious. For the first 3 weeks, I felt fantastic. Then, I started not feeling so good, again. It's hard to stick with this diet when you're feeling lousy and wanting comfort food, and you haven't developed a taste yet for new comfort foods. To make things worse, I broke a back molar and can't get into the dentist for a couple of weeks. It hurts a lot, and I'm feeling really vulnerable and wanting to call it quits -- with the gluten-free stuff and the Crohns and the diabetes (yes, that's also a result of the infection from 3 years ago). I want to give up, but I can't. I have a developmentally disabled son who needs me, and I don't want to end up sick and in the hospital like 3 years ago or dead. That's why I take my insulin every day, even though I hate needles with a passion. That's why I stay away from gluten, even though I could really go for a McDonalds fish sandwich right now.

Hang tough. Falling off the wagon hurts a lot more than staying on it.
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#39 Shannonlass

 
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Posted 22 March 2010 - 04:59 AM

I completely understand that for some people one fall off the wagon leads to staying off the wagon for months/years as in going back to eating gluten-containing products permanently. Surely there are some of you out there that had a relapse, one incident where you had the donut or the carrot cake or the whatever just because you wanted it really badly and right away got back on the gluten-free bandwagon???? Or is it all doom and gloom. One mistake and that's it, back eating gluten permanently? I understand it's preferable to stay gluten-free rather than give yourself that emotional (not to mention physical) hardship.

My nan was a smoker for years. She gave up smoking when my Grandfather developed angina but once in a blue moon when her sister, a smoker visited she'd light up and have a couple. Then off them again for another few years. I always wondered at her restraint not to go back on them. Sometimes I wonder if I'd be able to do the same with gluten (not that I'm planning it or anything!!!)
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Digestive issues since childhood
Unexplained anemia since 1999
Eating-related nausea for over 4 years
Tested positive for H.pylori and was treated
Unexplained elevated liver enzymes since 2008
Condition deteriorated badly upon moving to Middle East July 2009
Severe diarrhea and vomiting
Positive antibody tests February 2010
Positive endoscopy March 2010
Gluten free since 21st February 2010

#40 twe0708

 
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Posted 22 March 2010 - 06:45 AM

I've been gluten free for a week, and I already slipped. I love cold cereal with milk, and I miss it so much! Last night, I ate rice krispies. I'm pretty sure it's not gluten free, but I figured since it's made from rice, it wouldn't be as bad as some others. I have terrible insomnia right now, and late at night is the hardest time to stay on the diet. I don't know how I'm going to do this the rest of my life. It's especially hard because here in Saudi Arabia there's no gluten free food available, and I haven't ordered anything online yet. I'm so frustrated. Just starting to have a reaction to what I ate last night. It's been about 18 hrs, and I'm starting to have face flushing, hives, and what I think is kidney pain. I started getting it lately when I'm sick. It's so not worth it! Please help if you have any suggestions for kicking gluten for good...

Also, I've read a lot about people having problems with corn. Last night, I ate some popcorn with just salt at the movies, and I started coughing a lot. I always do, and I always thought it was just because of the husks in the popcorn, but now I'm wondering if I have a problem with corn. Any thoughts?


If you need cereal then have Fruity Pebbles or Coco Pebbles. Just bc you need to be gluten free doesn't mean you need special gluten free foods only. Think of all the really good things you like (like ice cream) and keep those in the house. You can have black beans/kidney beans with brown rice or white rice and tomatoes and cheese. The is good gluten free pasta out there that you can make with turkey meat and spaghetti sauce that taste really good. Pistachios are nice snack but watch how much you eat. I started keeping sugar free jello in the fridge and choch. dove candies. Pamela's pancake mix makes a great Gluten Free pancake. I hear what you are saying and it's hard. sometimes I just want to fold and enjoy a good old fashion cheeseburger with the bun. We went to P.F. Changes the other night and it was hard for me to turn down the fried green beans. Fajitas are also good to make for lunch and dinner. Buy a good iron skillet. Good luck!
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#41 twe0708

 
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Posted 22 March 2010 - 06:47 AM

Today my kids had those super soft frosted sugar cookies from the grocery store. Those are one of my FAVORITE indulgences. I just sat there smelling them. It was so tempting, but then I remember the way I feel and the awful GI symptoms and then smelling them is enough. Now I'm on a quest to find a good gluten free sugar cookie recipe and create something similar myself.


Try making your own sugar cookies. I made some with my daughters over Christmas and they were so good. Couldn't even tell they were gluten-free. I will send the recipe today when I get home.
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#42 kare101

 
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Posted 22 March 2010 - 08:26 AM

Here is something to consider. IT WILL KILL YOU! I was gluten-free for almost 3 years. It was a struggle and it wasn't easy. I had had enough. I hauled my butt to Mc Donald's, ordered a quarter pounder and never looked back. It made me feel like crap but I stayed with it and got to the point where it didn't bother me. I went for another year and a half eating anything I wanted. About 4 months ago I started getting stomach cramps but was able to blow it off for a few weeks. I ended up on the floor of a pizza place with such bad cramps I was out of my mind with the pain. I was taken to the hospital, and thank God, just in time. My intestine perforated and blew out. They took out 2 feet of destroyed intestine. I am now the proud owner of a Colostomy. If you don't know what that is, look it up. Long story short, I poop in a bag now that is attached to my stomach. Again only by the grace of God mine can be reversed and I can be put back together in a few more months.I haven't posted on this forum in a long time but your post got to me. If you were told you need to go gluten-free, you better do it. If a bowl of cereal is worth having, keep eating it. You will enjoy the bag on your side when it gets bad enough. But what the heck, it may take years.Jess





So sorry to hear what you've gone through, and I appreciate your sharing. Don't worry. I jumped right back on the wagon, and haven't gone off since. Don't plan to ever--even more now that I've heard your story, and another. Thanks. Take care of yourself!
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#43 BackTalk

 
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Posted 22 March 2010 - 08:57 AM

So sorry to hear what you've gone through, and I appreciate your sharing. Don't worry. I jumped right back on the wagon, and haven't gone off since. Don't plan to ever--even more now that I've heard your story, and another. Thanks. Take care of yourself!


Hang in there. You will be fine.
Good luck
Jess
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#44 kareng

 
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Posted 22 March 2010 - 10:14 AM

Try making your own sugar cookies. I made some with my daughters over Christmas and they were so good. Couldn't even tell they were gluten-free. I will send the recipe today when I get home.


Me too! Me too!
Please?
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Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
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#45 GFinDC

 
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Posted 23 March 2010 - 04:01 PM

Here is something to consider. IT WILL KILL YOU! I was gluten-free for almost 3 years. It was a struggle and it wasn't easy. I had had enough. I hauled my butt to Mc Donald's, ordered a quarter pounder and never looked back. It made me feel like crap but I stayed with it and got to the point where it didn't bother me. I went for another year and a half eating anything I wanted. About 4 months ago I started getting stomach cramps but was able to blow it off for a few weeks. I ended up on the floor of a pizza place with such bad cramps I was out of my mind with the pain. I was taken to the hospital, and thank God, just in time. My intestine perforated and blew out. They took out 2 feet of destroyed intestine. I am now the proud owner of a Colostomy. If you don't know what that is, look it up. Long story short, I poop in a bag now that is attached to my stomach. Again only by the grace of God mine can be reversed and I can be put back together in a few more months.I haven't posted on this forum in a long time but your post got to me. If you were told you need to go gluten-free, you better do it. If a bowl of cereal is worth having, keep eating it. You will enjoy the bag on your side when it gets bad enough. But what the heck, it may take years.Jess


Hi Jess (Backtalk),

Thanks for posting your story. That's one heck of a hard lesson to learn. Hopefully others who are struggling with commitment to the gluten-free diet will get motivation from your story. There have been a number of posters who find it hard to stick to the diet for various reasons. But in the end run the reason doesn't matter, when the result is pain and suffering. I disagree about them enjoying a bag on their side though. My younger brother had a colostomy and bowel re-section years ago and he didn't enjoy it at all. Another thing people might want to do is read some of the signature lines of posters on the forum. Some of them have other autoimmune conditions brought on by celiac before they were diagnosed.

I hope you get better soon Jess!
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul




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