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Any Celiac Teens Out There?
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Hi, I'm Kelly. I've been a celiac for about eight years now. I've never had a friend with it, so I was hoping to meet some teens on here that also have Celiac's. (:

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Hi, I'm Kelly. I've been a celiac for about eight years now. I've never had a friend with it, so I was hoping to meet some teens on here that also have Celiac's. (:

Hi! Im 14 and I've had it like 8 months now.. it sucks! But its great to know there are others out there...!! Whats up??:)

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I'm 19, been diagnosed for a year now :) Anybody in BC, Canada? I'd really like to meet some Celiacs, I feel so alone..

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19 - from MA.

I have to say I know how all you guys feel. But I think eventually, I just realized - that we are ALL actually alone. I know that sounds kind of depressing, but it's true. And it certainly does not have to be depressing. After I accepted that, I was actually happier than before I had come to that realization.

By becoming more independent and improving myself - I became more attractive than I've ever been. That in turn boosted my self-confidence, which in turn boosted my happiness.

I know a lot of issues seem to be tied to gluten at first, but eventually you'll realize - a lot of them are just life's problems. And I know it's especially hard for teenagers since most of us are kind of confused anyway (I know I was!) but things do get better. I can promise you that. I have only been gluten-free for 1 year and 3 months and the changes over the past 6 months have been absurd.

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Hi, I'm Kelly. I've been a celiac for about eight years now. I've never had a friend with it, so I was hoping to meet some teens on here that also have Celiac's. (:

Hey! Well I'm Gintare. Normally referred as Gina. I actually have had it since about 5th grade. I remember I went to the ER multiple multiple times due to severe abdominal pain. Not one doctor knew what it was. So I recently started to do some research on my own. And I have come across "celiac disease". It sounded JUST like what I have been phasing with. So actually, just about 2 weeks ago, I went to get tested for the disease. It turns out I have it. Not to mention, I am also lactose intolerant and vegan. What a small range of food now! haha. How depressing. I literally look 8 months pregnant at night after I have foods with gluten in it. Its horrible!! XD

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Gintare me too! My pants won't button at allll... and good luck trying to wear a fitting shirt, right? :lol:

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Hey! Well I'm Gintare. Normally referred as Gina. I actually have had it since about 5th grade. I remember I went to the ER multiple multiple times due to severe abdominal pain. Not one doctor knew what it was. So I recently started to do some research on my own. And I have come across "celiac disease". It sounded JUST like what I have been phasing with. So actually, just about 2 weeks ago, I went to get tested for the disease. It turns out I have it. Not to mention, I am also lactose intolerant and vegan. What a small range of food now! haha. How depressing. I literally look 8 months pregnant at night after I have foods with gluten in it. Its horrible!! XD

Hi, I'm 12 almost 13 and I started having problems when I was 5 and like you went to ER, Even the famous Cook Children

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I am 19 and have had celiac for 9 years. I am now on SCD diet.

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I am 19 and have had celiac for 9 years. I am now on SCD diet.

Hey I'm 17 and I live in B.C. Canada. I've known that I was celiac for 6 years. I live on an island where it is pretty common, because everyone is so intouch with their health. My mom actually runs a gluten-free bakery, so thats sweet, but there are only 2 teens here that know they have it. And I want to meet some more teens who know how it is.

Anyone nearby?

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hey hey

i'm 15 and i've had celiac for almost

my names Anthony and i live in QC Canada... anyone else pleaseee contact me

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Hey,I'm Kasey 17 yrs old. diagnosed for a year. I promise it gets better!! :lol:

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Rebecca, 19. I self-diagnosed in Feb via diet change. No doctor could help so I just started looking myself. I live in Barrie, ON during the summer months, and in St. John's NL for the school year. Anyone in either province??

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Hi

I am the mom of a 17 year old who diagnosed herself about a month ago after talking to a teacher at her school who had the same problems. My daughter is a competive irish dancer (about 8- 10 hrs practice a week) and has had exercise induced asthma about 10 years and stomach problems all her life. She was told two years ago she definitely had irritable bowel syndrome and to change her diet. Add more fibre they said. She felt somewhat better but couldn't get her exercise induced asthma under control changing from one puffer to another. A top child respirologist had no solution. She would dance in a competition coming off stage doubled over, gasping for air and wanting to throw up. FIVE DAYS without gluten she went in a competition came off stage short of breath because she had worked hard but besides that she was fine. Unbelievable!! She has increased her stamina and doesn't require her puffer nearly as much!

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Hey - My name is Taylor.

I am 19 and i was diagnosed about a week ago!

contact me if you want =]]

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Names Brandon, im 18 from New Jersey. I was diagnosed 17 years ago. been on Celiac diet my whole life. Its not bad at all to be honest. im actually the healthiest person in my family lol

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Hi!, I'm 13 and in August I will be gluten-free for A WHOLE ENTIRE YEAR (wow) lol :lol:

I am bein' glutend right now... I look like I should be looking at pacifires and maternity shirts...

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Heyy Girl! :] I'm Helen. I'm 17! I self diagnosed in January of this year, Almost everyone on my moms side has Celiac and one aunt on my dads does and it still took a year to figure out what it was. I have been gluten free for 6 months now and I'm finding that its really not that hard now that i found amazing pizza!! I live in Kentucky and would LOVE to know some people around here with it! Even if your from other places though, I would love to chat..I'm a talker in case you cant tell! :] Hit me up some time!

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My names Helen. Im 17 and was diagnosed january of this year however, I have been suffering with symptoms since May of 2009. I dont know anyone my age thats not family that has Celiac and would love to talk to some people.

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Cassidy, 17&1/2.

I was diagnosed 12 years ago. That's before there was "all purpose gluten free flour". Baking was awful.

Actually, that was before decent bread... Our breadmaker made one very lovely doorstop before it was retired.

I like to talk, and answer questions. Oh, and making friends.

So hi (:

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Hi, im 15 (almost 16) years old boy. I was diagnosed with celiac when i was 10 (one day before my 11th birthday, so that was my birthday gift from a doctor, lol)

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I'm 14 -I was diagnosed almost 2 years ago...

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19 - from MA.

I have to say I know how all you guys feel. But I think eventually, I just realized - that we are ALL actually alone. I know that sounds kind of depressing, but it's true. And it certainly does not have to be depressing. After I accepted that, I was actually happier than before I had come to that realization.

By becoming more independent and improving myself - I became more attractive than I've ever been. That in turn boosted my self-confidence, which in turn boosted my happiness.

I know a lot of issues seem to be tied to gluten at first, but eventually you'll realize - a lot of them are just life's problems. And I know it's especially hard for teenagers since most of us are kind of confused anyway (I know I was!) but things do get better. I can promise you that. I have only been gluten-free for 1 year and 3 months and the changes over the past 6 months have been absurd.

Hey, I'm 19 and from MA

Oh and RideAllWays, BC, Canada is where it's at...best city in Canada

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Aeva, 18

I've had ongoing stomach issues my whole life. I got unofficially diagnosed a few years ago, gave up with no improvement and have now officially been told (yay bloodwork!) that I am, in fact, gluten intolerant. It's been about 4 months now, and I haven't seen that much improvement yet, although I've got a few other minor health things going on too, which prolly don't help.

Oh, and I live about 20 minutes outside NYC.

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My daughter Kelly (14) was diagnosed about a year ago now and is doing much better although we've added IBS (especially dairy) to the mix of "bad" foods. We were given an amazing gluten-free dessert cookbook and she's been baking up a storm for us! chocolate cheesecake, chocolate pecan pie, brownies, banana cream pie, cakes, cookies..... Yum! She wants to open a bakery! Luckily most of her friends are very understanding and helpful, actually make her gluten-free things or check to see what she can eat for sleep-overs. She's gained weight, has so much more energy and personality! You are not alone and lucky to have gotten diagnosed now. I'm 45 and finally got a diagnosis in Feb. of this year after having stomach issues since I can remember. My mom died of a celiac related cancer so I'm so glad I have a fighting chance!

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
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