Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Any Celiac Teens Out There?
0

77 posts in this topic

I'm 19, been diagnosed for a year now :) Anybody in BC, Canada? I'd really like to meet some Celiacs, I feel so alone..

Hi i'm shelby. I'm 17 and was diagnosed two weeks ago. It's been a hard adjustment and I'm still not feeling that well. Was it like this for you?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'm 19 and I live in the Seattle, WA area.. I've been very strict on my gluten free and dairy free diet since I was 14 when I was diagnosed celiac, but I was diagnosed with a wheat allergy when I was 8... I always want to go to the Seattle Meet up for celiacs but I'm kinda afraid it's gonna be all "adults" lol

anybody have problems with boyfriends/girlfriends that don't understand, or think celiac is funny..?

talk to meee (:

Emma

0

Share this post


Link to post
Share on other sites

Hey, I'm 19 and from MA

Oh and RideAllWays, BC, Canada is where it's at...best city in Canada

BC is a province with lots of cities.. :D But yes, it's lovely!

0

Share this post


Link to post
Share on other sites

Names Brandon, im 18 from New Jersey. I was diagnosed 17 years ago. been on Celiac diet my whole life. Its not bad at all to be honest. im actually the healthiest person in my family lol

so you've had it since you were 1?

i love new jerseyy, do you go to bamboozle?

0

Share this post


Link to post
Share on other sites

Hi!

I'm 20, female, live in Kansas.....

I was diagnosed September of last year, there is only one other person in my family with celiac disease, and we aren't close. (2nd cousin...)

I guess that's about it....

0

Share this post


Link to post
Share on other sites




Names Brandon, im 18 from New Jersey. I was diagnosed 17 years ago. been on Celiac diet my whole life. Its not bad at all to be honest. im actually the healthiest person in my family lol

Thats what I tell everyone. I known for 7 years, and since then a ton of my family has found out they have to eat gluten free. My mom now has THE best gluten-free baking business in BC, Canada, so I have it pretty good. But it is getting easier, people are really starting to understand...at least the people that I have met.

0

Share this post


Link to post
Share on other sites

Hi

I am the mom of a 17 year old who diagnosed herself about a month ago after talking to a teacher at her school who had the same problems. My daughter is a competive irish dancer (about 8- 10 hrs practice a week) and has had exercise induced asthma about 10 years and stomach problems all her life. She was told two years ago she definitely had irritable bowel syndrome and to change her diet. Add more fibre they said. She felt somewhat better but couldn't get her exercise induced asthma under control changing from one puffer to another. A top child respirologist had no solution. She would dance in a competition coming off stage doubled over, gasping for air and wanting to throw up. FIVE DAYS without gluten she went in a competition came off stage short of breath because she had worked hard but besides that she was fine. Unbelievable!! She has increased her stamina and doesn't require her puffer nearly as much!

hi iam a dad with a 15 yr old daughter she was diagnosed this past july.what a life changing experiance.she was good for awhile and now is having issues again i think she just got cross contaminated.it took 3 yrs and alot of er visits.we were both at our wits ends.no help from anyone u feel so alone very depressing docs were cluless.there r no support groups for teens in our area so its hard on my baby.support group here is old peeps.she also has asthema, weight gain,stomach pain eye sight lose it goes on and on so i will tell her i found this to see if she can find teens to chat with hope to hear from any and all that can help a dad and his daughter ty

0

Share this post


Link to post
Share on other sites

hi iam a dad with a 15 yr old daughter she was diagnosed this past july.what a life changing experiance.she was good for awhile and now is having issues again i think she just got cross contaminated.it took 3 yrs and alot of er visits.we were both at our wits ends.no help from anyone u feel so alone very depressing docs were cluless.there r no support groups for teens in our area so its hard on my baby.support group here is old peeps.she also has asthema, weight gain,stomach pain eye sight lose it goes on and on so i will tell her i found this to see if she can find teens to chat with hope to hear from any and all that can help a dad and his daughter ty

Hi, I am 17 yrs. old and live in B.C., Canada. If your daughter wants to email me, I would love to talk to her.

I know how it feels, like most of the teens on this site, to be a young Celiac. It really sucks at first, but for me, it got easier. I have been on the diet for 7 years and I still get cross-contamination, I have also found out about a lot more foods that I am sensitive to. Celiac disease is and auto-immune disease, so your body attacks itself, and the first place to get hit, for most people, is the gut. When you eat gluten-free, your gut gets the chance to heal, and sometimes, people like me, discover other foods that they cannot eat. So, the fact that your daughter is still getting sick could be that she is getting some gluten in her diet somewhere, or her gut is in the healing process and is reacting to more foods that her body doesn't like. One way to find out, is to keep a food diary. It is annoying and hard, but it really does help. Get her to write down everything she eats during the day, and how she feels after.

Let her know that she is not alone, and that there are hundreds and hundreds of other teens dealing with the exact same situation as she is.

Good Luck

0

Share this post


Link to post
Share on other sites

hey my name is mikaela and i am almost sixteen too!! i started getting sick when i was eight then after three years of tests i found out i have celiac. i never really liked baked goods so it wasen't very hard to go off gluten. i am getting fed up with having to read all the lables on the packages though. but my friends have been really good and always have something gluten free in the cupboard for me. do you know of a good bread company cuz i am having a hard time finding good gluten-free bread??

0

Share this post


Link to post
Share on other sites

when did you find out you had celiac??

0

Share this post


Link to post
Share on other sites

Hey, I'm 18 and have been diagnosed with gluten intolerance for about 3 years. Once I was diagnosed I tried my best to avoid it but I started eating wheat again 2 summers ago because I was getting sick of my family not making gluten-free meals since i'm the only one in the family intolerant. When I started to eat wheat again i thought things were going well..just kept getting dizzy because my hypoglycemia. Until I noticed I was getting horrible acne in my facial cheek area only. I thought it was just because I was stressed out from college. Then I noticed it started getting really worse when I ate certain foods. I didn't really notice the correlation between my allergies and my body until recently. For the past few months, I have been to the ER numerous times because feelings of lightheadness/passing out, abdominal pain, and other reasons. Finally, I took the initiative to go on a strict diet (avoiding wheat, dairy, eggs, sugar) for about 2 1/2 weeks now and i feel SO MUCH BETTER and my skin is gradually clearing up. It's amazing what food can do to your body. I feel much more energetic, focused, and happier. I think avoiding wheat/gluten is the best thing to do for anyone in my opinion because of all the additives they put in foods these days such as gliadin.

0

Share this post


Link to post
Share on other sites

I'm 19 and I live in the Seattle, WA area.. I've been very strict on my gluten free and dairy free diet since I was 14 when I was diagnosed celiac, but I was diagnosed with a wheat allergy when I was 8... I always want to go to the Seattle Meet up for celiacs but I'm kinda afraid it's gonna be all "adults" lol

anybody have problems with boyfriends/girlfriends that don't understand, or think celiac is funny..?

talk to meee (:

Emma

Hey, my name is Jessica, I'm 18. I also live in the Seattle area. I was diagnosed with 25 food allergies in middle school (wheat, dairy, cheese, eggs, sugar cane...). In middle school, I felt lightheaded on a daily basis. I also was diagnosed with hypoglyceamia. In middle school I avoided all the food allergies. Though, almost 2 years ago(junior year highschool) I had a hard time avoiding it. I thought it was fine eating wheat again but i noticed It has gradually built up to acne/rash residing only in my facial cheek areas, passing out, and severe abdominal pain. I went to the ER numerous times these past three months because of severe reactions of passing out, and abdominal pain. Recently, I have been on a strict gluten free/dairy free diet for the past 2 1/2 weeks and I definately feel better so far. My boyfriend is somewhat understanding of what i'm going through. He said that he honestly hates how i have all these food allergies because it makes it hard for us to go out to eat somewhere.

0

Share this post


Link to post
Share on other sites

I'm 14 -I was diagnosed almost 2 years ago...

I am 15 and was diagnosed just a few months ago...you say you are a Jesus freak! Well, let me tell you, I love Jesus too and I don't think I'd be able to get through this without Him!!!!

1

Share this post


Link to post
Share on other sites

Hi I am 14 and has been diagnosed for about 7 months.

0

Share this post


Link to post
Share on other sites

Hey my names kimberlie . I've been a celiac for almost a year now . I live in cali . Contact me :) I need some celiac friends. I know of only one other celiac Wich is my best friends Grammy .

0

Share this post


Link to post
Share on other sites

Hey!! I have Celiac n ive had it 4. . .6 years now i think. . .i was little when i got it so i dont remember so much about it, but lately it's been challenging and i kept being like "SERIOUSLY?!" when my bros got a cookie or treat and i couldnt hav it, but lately its been a lot better. :) i realize that ive had it to long now to hav a reason to be whine. . . ;P

0

Share this post


Link to post
Share on other sites

hey my name is mikaela and i am almost sixteen too!! i started getting sick when i was eight then after three years of tests i found out i have celiac. i never really liked baked goods so it wasen't very hard to go off gluten. i am getting fed up with having to read all the lables on the packages though. but my friends have been really good and always have something gluten free in the cupboard for me. do you know of a good bread company cuz i am having a hard time finding good gluten-free bread??

hey i am the oppistie-i LOVE baked goods!! i have found a lot of good types of muffins, bagels, and bread from a brand named Udi's. I really like it and reccomend u try it!! Hope that helped :D

0

Share this post


Link to post
Share on other sites

Hi, my name is Danielle and I live in Brazil. I was officially diagnosed last week but have been gluten free for about 3 months now. I'm kind of new to all of this and would really appreciate some help. I have accidentally screwed up and eaten gluten a couple of times already and just feel very discouraged at times. Feel free to contact me! I could really use someone to talk to.

0

Share this post


Link to post
Share on other sites

Hi, my name's Julia and I'm almost 15. I was diagnosed right after I turned 3, so I've been on the gluten free diet pretty much all my life. Before diagnosis, I weighed 19 pounds. I was skin and bone with a distended stomach. I was diagnosed at children's hospital in Boston, MA. My mom had to order everything online and even there wasn't much. She made my bread, which everyone here knows doesn't last very long unless frozen and then toasted. As I grew up things got slightly easier. My aunt was diagnosed at age 43 and that was when we knew it was my moms side with the gene. I didn't know anyone my age with celiac. I met one girl at a camp for two weeks but never saw her again. By middle school celiac was much more common. And now, as a freshman in a private high school, I have two friends with gluten intolerance (one has the parents who created and own 'cherrybrook farms' mixes and some cookies), another friend who has celiac and even a teacher with celiac. And this is all at the same school!!!

Now everyone makes mistakes, especially a celiac. My reaction to gluten is much more violent than it used to be as a child. I've taken a bite of a cookie, realized it was wheat, spit it all out, and I've still gotten sick. My most recent slip-up was my mom's mistake. She made french toast and instead of using the canyon cinnamon raisin bread in a clear and purple package, she used the Vermont company bread in a clear and purple package. I had 5 slices, my biggest amount of exposure to gluten since my age three diagnosis. It takes my body about two hours to realize the wheat needs to get out and then throwing up for 2-4 hours. I could never purposely cheat on the diet because of my reaction

0

Share this post


Link to post
Share on other sites

Hi, I'm Kelly. I've been a celiac for about eight years now. I've never had a friend with it, so I was hoping to meet some teens on here that also have Celiac's. (:

My name is Kelly also. Kelly Nolan. I'm from Down Under! I've been coeliac for 13 years and have yet to meet anyone else my age who is 'truly' gluten free. What I mean is: not just a 'fad' dieter (I've met some of these from time to time) but never anyone else on a "TRUE" gluten free diet! :(

I feel so alone, too!

0

Share this post


Link to post
Share on other sites

Hey I'm alex, and I'm from ontario, canada. I'm 20 years old and was diagnosed a few months ago just before my 20th birthday. Its been so hard and I keep accidently eating gluten! Its even more difficult in university when everyone eats out all the time. I too don't know anyone with celiac so nobody I know really understands it. If anyone else is in college too or has any advice that'd be awesome!

0

Share this post


Link to post
Share on other sites

Hi I'm Brianna 13 and live in Oregon

0

Share this post


Link to post
Share on other sites

Hey, I'm Sarah. I'm 17 and I'm from Seattle, WA.

I was diagnosed 3 times. Once in 8th grade, once in 10th grade, and about a month ago. When I was younger, a lot of stuff happened and doctors went on and off if I was really allergic or not. One doctor had a heart attack because the test results were so high, a different doctor read the same report and told me I was fine. To say it's been confusing is an understatement....but anyway, now I have been off of gluten for a month and I feel a lot better. I get REALLY bad shoulder pain, my stomach becomes upset, my asthma gets worse, my skin breaks out in rashes.

Anyway, it's nice to know I"m not alone. :)

0

Share this post


Link to post
Share on other sites

i have been recently diagnosed with celiac disease about two weeks ago. its kinda hard to switch at first, but i guess ill get use to it. ive also noticed that im a lot more sensitive when i accidently eat gluten, even though its only been two weeks.

0

Share this post


Link to post
Share on other sites

Hi, I'm 12 almost 13 and I started having problems when I was 5 and like you went to ER, Even the famous Cook Children

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined