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Any Celiac Teens Out There?
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77 posts in this topic

Hi kelly! I just got diagnosed with Celaic disease late last year and I'm turning 16. I find the diet difficult and all my friend's seem to get anoyed with my special diet needs!

But, some even go out of their way to buy me little snacks and I met a fellow celiac this year at school:)

-Bree

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Hi! Im 14 and I've had it like 8 months now.. it sucks! But its great to know there are others out there...!! Whats up??:)

hey im 13 and i don't know anyone around my age that has it. i have been diagnosed for 2, almost 3 weeks now. :)

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hey my name is mikaela and i am almost sixteen too!! i started getting sick when i was eight then after three years of tests i found out i have celiac. i never really liked baked goods so it wasen't very hard to go off gluten. i am getting fed up with having to read all the lables on the packages though. but my friends have been really good and always have something gluten free in the cupboard for me. do you know of a good bread company cuz i am having a hard time finding good gluten-free bread??

The best one i found is UDI's gluten free bread and they have other products to that are the best lol

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I'm 19, been diagnosed for a year now :) Anybody in BC, Canada? I'd really like to meet some Celiacs, I feel so alone..

I live in BC, Canada (haha where else :P). I am 17 - almost 18 mind you. And I have just been diagnosed 3 weeks ago with celiac. I also feel quite alone because I know no one my age, or around my age with this disease. I would love to meet people or just talk with people closer to my age with it. :)

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I am Cherie. Been celiac for about 3 years now. Self diagnosed 4 weeks ago, been on the gluten free ever since and I have never felt better! I am turning 18 this December and I live in BC, Canada. I am so happy that I have found other teens that I can talk to about this because the only other person I know who has celiac is my step-grandma and she isn't exactly going be going through the same situations as me. Anyone in BC or around it out there?? :) Feel free to message me, I am happy to meet new people :D

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CT??

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Hi I'm 15 and I'm from Canada. I've been diagnosed for 4 years now, and I still sometimes have difficulty explaining it all to friends.

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Hey! I'm Janine, I'm 16, and I've been diagnosed for about 11 1/2 years now. I live in Northern California, so if there's anyone in the area, contact me!

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Rebecca, 19. I self-diagnosed in Feb via diet change. No doctor could help so I just started looking myself. I live in Barrie, ON during the summer months, and in St. John's NL for the school year. Anyone in either province??

Hey, I live in Barrie too! I am 16 and have been gluten free for about 5 months now!

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Hi! I'm Dolan (random Irish last name that my parents decided was a good first name xD). I'm a 15 year old guy from Florida and I've been diagnosed when I was around 6 or 7 I believe.

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hi i'm Nicole i'm 18 and i just started college :mellow: in a different state i've met another student with celiacs (the 1st i ever met) but it is hard being in a different place and having to fend for my self and maintain a gluten-free diet (even if i am cooking all my own food) anyone out there in richmond kentucky id love to find out all the secrite gluten-free spots and stores

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Hello, I'm Katie. I'm 17 and I've only been diagnosed with Celiac for about 3-4 months now. Still challenging and frustrating, but it's getting better! :)

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Hey!

I'm in Ontario, and was diagnosed in May-ish of this year...

This disease seems to be growing by leaps and bounds...this will likely mean that it will improve for us celiacs :) , but really, what is the world coming to?! :blink:

Anyone else have suggestions on how to handle "may contain" foods? (chocolate :rolleyes: ). I'm still newly diagnosed, and my symptoms haven't really relieved themselves yet, so I'm not really sure.

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I wish I could go to the cafeteria and shout: ANY CELIACS IN THE PLACE?

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hey hey

i'm 15 and i've had celiac for almost

my names Anthony and i live in QC Canada... anyone else pleaseee contact me

Anthony! I'm also from QC Canada, we should hang out lol

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I was born with celiac disease, but just discovered I had it last week, I'm 15 years old. It's so hard going Gluten-Free... I'm never full, almost always hungry, I've lost a lot of weight already, and when the class/my friends eat something I can't it's torture! I'm having the worst time getting used to this and I'm not even feeling better yet, it's going to take awhile. I really hate this, but it'll be worth it in the end.

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I'm 18, been diagnosed for 7 years. I go to college in Bc Canada, and iv never met another celiac at my school :P

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Hi there!

 

I've been gluten-free for a good... Nearly two years now (With a summer off for a pointless blood test, worst summer ever. >:- | ) I'm in Northern California, I'd love to talk to anyone else around here that's working through Celiac's! x_X Or any other food allergies, don't get me started on my list, no fun. X- P

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I'm 20, I've reacted since I was old enough to eat solid food, but  I've never been truly diagnosed with celiac. At the age of 2 or 3 I was put on a gluten free diet( among other things) for 2 years and that fixed everything for me. Unfortunately I can't afford to be gluten free and its really messing with my college studies.

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Hey guys. Don't know if this thread is dying but I wanted to introduce myself. I'm Casey (girl) about to turn 18 and I was diagnosed with celiacs about a month ago and enduring that lovely (awful) healing period. I live in northern Cali and I'd love to talk to some other teens with celiacs!!

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Hey my names kimberlie . I've been a celiac for almost a year now . I live in cali . Contact me smile.gif I need some celiac friends. I know of only one other celiac Wich is my best friends Grammy .

Where in Cali? I live in Ukiah (North California)

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Hey I'm Dana, I'm 20 and I think I was diagnosed 2 years ago. Glad to meet others who have celiac/can't eat gluten!

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I'm a college student.  I'm still in the process of a diagnosis but I definitely have a gluten sensitivity as well as sensitivity to oats even if they are certified gluten free.  I have other allergies as well.  Been eating gluten-free for about a year but lately I seem to be becoming more sensitive, used to be able to eat a small amount of gluten every so often (such as some teriyaki sauce) but now that just doesn't cut it.  Cross-contamination is also becoming an issue.    

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Hi! I'm Lauren from Seattle, I am 18 and I have DH Celiac Disease as well as hypothyroidism. It took me about two years to finally diagnose my disease because I never had any stomach issues, instead my Celiac disease presents as a horrible rash all over my body and face. It has been really hard having to go to high school with such a physically different disease and have had to be home schooled this year. I recently missed my senior prom, and am missing graduation this weekend because of how I look. I wish I could be more confident in how I look, but it's really hard seeing yourself as anything other than how you looked with a raging rash all over. Dating and any type of relationship have been hard to make because I rarely leave the house due to how I look. I hope to hear from some other teens dealing with a similar situation because so far I don't know anyone else like me.

xoxo ~ Lauren  :D

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    • She (your PCP)  can order a celiac blood panel.  It might not be a complete panel, but it's a start.  Any medical doctor can order one.  A GI is needed for the endoscopy (ulcers, Celiac disease, h.pylori, etc.), HIDA scan (gallbladder)  or colonoscopy (IBS).   Since you just saw her, email/call/write a letter and ask her to order (lab) the celiac panel.  You could go to the lab before or after work.  Pretty easy!  
    • I just now saw the second reply and I see what you mean. Again, the issue is that I may have to go with the gluten until close to the end of the year.

      However, an idea did just come to mind, and that is, can my primary care doctor do such a test? I had normal blood work done, but they didn't really say anything about testing for celiacs. I can get an appointment with my primary care doctor much sooner than a GI.

      When I was talking to my PCP last, I asked her what I should expect as far as testing goes or what she may have been concerned about. Her reply was about a HIDA scan for the gallbladder but also any test needed in case of IBS or Celiacs. Just the way she threw that in there like an after thought and left me hanging kinda had me worried.
    • I am not a doctor that's for sure.  So, I can't even answer your questions.  If you know you have pre-diabetes, you probably are working with a doctor.  Can you email them and ask for a celiac blood panel?   You can work on the weight loss and diabetes -- that you can handle yourself now and take action.  I have diabetes and my glucose readings are fairly normal now without medication and I'm thin.  Being overweight does not cause diabetes.  It's either autoimmune (type 1) or you become insulin resistant (type 2).  You can cut out all sugar and  processed stuff ASAP to help take action and start walking 10,000 steps (helps with the insulin resistance).    But the prediabetes is not going to kill you in the next year.  Whatever's in your gut is more likely going to get you much sooner.  But heck, I'm not a doctor and I don't even know you!    
    • Hi Steph, Yes, celiac disease can cause a myriad of symptoms and damage to the body,  Have you completed all celiac disease testing?  Usually they do the blood antibodies test first and then do an endoscopy.   You shouldn't go gluten-free until all testing is completed. Gluten is in many processed foods.  But if you stick with whole foods it is not hard to avoid gluten.  Getting used to eating gluten-free may take some time, as we need to adjust our preferences in diet.  But there are many foods that are naturally gluten-free.  Gluten is the protein found in wheat, rye and barley.  Some celiac disease organizations recommend avoiding oats also for the first 18 months of the gluten-free diet. Celiac disease impairs the ability of the body to absorb nutrients (including vitamins).  That can make it hard for the body to maintain itself and heal/repair damage.  So celiac can easily impact any part of the body. Sardines, tuna, mackeral and salmon have good amounts of vitamin D in them.  There are supplements available also, but not all are good.  You can check them at the labdoor website.  Nature Made is a good one and not expensive.  Internal damage from celiac can cause liver issues.  Those will probably clear up after being on the gluten-free diet a while. Recovery from celiac can take  months, and can be a rocky road.  The more you stick with whole foods and avoid cross-contamination issues the sooner you will heal IMHO. You may find that dairy causes problems for your digestion at first.  But it make stop being a problem after you have healed up some. welcome to the forum!
    • Will this be dangerous considering how long I have to wait for any testing? I may not even get a blood test in November but here is hoping. I just worry having to wait so long will cause serious issues, not to mention delay of weight loss which I need for the pre-diabetes. Do ulcers have a chance to cause yellow stools though? I suppose a stool test will be needed for that for any signs of blood in stools but visually it does not seem so. The biggest issue is not knowing what else could be causing the yellow stools as this would not be a diabetic or ulcer thing. And without negative signs on the gallbladder or liver, it is narrowing down the list.

      At the very least this is making me assume I can wait on a final scan of gallbladder and attempt blood tests and endoscopy if they recommend it.
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