Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Hearing Voices?
0

15 posts in this topic

My nine-year old son has been gluten-free (and mostly cf) for 10 weeks due to a suspected intolerence -- he tested negative for Celiac. His symptoms are numerous: history of diarrhea/constipation, anxiety with panic attacks, ADD, nightmares, difficulty sleeping, tics, depression. Since going gluten free his sleep has been sounder between wakings, panic attacks disappeared and anxiety/depression is much improved. Two days ago he had his first obvious "glutening" -- lots of movie theater popcorn. Since then, he has tossed and turned constantly in his sleep, has had a panic attack, and has screamed in terror after hearing voices in his bed. Has anyone heard of gluten causing auditory hallucinations like this? Any idea when things might return to the status quo? As bad as I feel for my son, the magnitude of his reaction to this gluten infraction makes me feel like I'm doing the right thing for him. (Haven't felt that way very often lately!)

0

Share this post


Link to post
Share on other sites


Ads by Google:

Oh my. I don't think I have anything to add, only that my thoughts and prayers are with you. That must be horrible. It's always worse when it is your baby. I would educate, educate, educate, to make sure he doesn't get accidental gluten. Poor guy. Maybe a visit to the Ped is in order, too. I am praying it gets better soon!

0

Share this post


Link to post
Share on other sites

Yes gluten sure can cause all kinds of neurological issues including the ones you have mentioned. I am very glad to hear that he is doing so much better on the diet. Hopefully the effects of his glutening will resolve soon. Talk to him and explain that is what it is and that it is a limited effect and will go away. Perhaps that will help him to feel better about what is going on. I know it helps me to get through those patches after a glutening to know that they will go away soon.

1

Share this post


Link to post
Share on other sites

Oh I'm so sorry for what your son has been going through, and you as well. My son is only 4 and has major attentional issues, some sensory and health issues. Since having him gluten free he's almost like a different child. He told me he would hear things and cover his ears. When we got out of the car at night his hands would literally be plastered to his ears because he was afraid of the crickets and frogs, even when there weren't any. Now, I don't know if that was more sensory oriented as he is so young.

I can tell you about my own experience prior to being diagnosed. Over the past year I gradually got worse and worse mentally. I was in a complete fog. I was getting SOOO anxious over things that cause me no anxiety now. I had what I can only describe as static in my head, an almost constant noise. I do remember hearing things, noises. I never heard voices but I did hear things that I knew weren't real. I also have to tell you that I have silent migraines as well, which may have been part of my symptoms. I didn't find that out until Sept 09. I started treatment for those which helped a bit. The only thing that's truly helped is being gluten-free. My silent migraines and most of my other symptoms are almost gone.

It sounds like you're on the right track with your son. It took my son and me a while to get to this answer too. I would definitely talk to his doctor about it. Also, in my experience, if they don't agree with you about the gluten, just trust your gut. Go to a different dr if you need to or just trust that you are doing what is best for him. You are his mom. You know him the best and you are his advocate. Hope he starts feeling better soon. :)

1

Share this post


Link to post
Share on other sites

My nine-year old son has been gluten-free (and mostly cf) for 10 weeks due to a suspected intolerence -- he tested negative for Celiac. His symptoms are numerous: history of diarrhea/constipation, anxiety with panic attacks, ADD, nightmares, difficulty sleeping, tics, depression. Since going gluten free his sleep has been sounder between wakings, panic attacks disappeared and anxiety/depression is much improved. Two days ago he had his first obvious "glutening" -- lots of movie theater popcorn. Since then, he has tossed and turned constantly in his sleep, has had a panic attack, and has screamed in terror after hearing voices in his bed. Has anyone heard of gluten causing auditory hallucinations like this? Any idea when things might return to the status quo? As bad as I feel for my son, the magnitude of his reaction to this gluten infraction makes me feel like I'm doing the right thing for him. (Haven't felt that way very often lately!)

I am sorry to hear about your and your childs trials re gluten. I have a 14.5 yo daughter and for over a year she has heard 'breathig' all over our home, it used to frighten her but now she is i think almost accepting of it. Last week she told me that she heard gnashing/chewing sounds coming from under her bed i know it unsettled her but she tries to keep up a brave front.

It's been very hard to convince her it is gluten related but i think she may be coming around to it. Her stomach pains are unbearable with diarrea and sweats, she is litterally exausted after that kind of episode and sometimes needs to lie down.

Funny thing is when we did the Celiac panel she tested in the low end and so officially it means she does not have, it but i know better.

In any case i wish you luck and perserverance it's very hard, i am a single mom also dealing with my own firbromyalgia and candida/milder celiac issues.

I want to post this site so perhaps if you take it to a doctor is could be of assistance.

******************************************

720 North Tustin Avenue

Suite 104

Santa Ana, CA 92705-3606

Phone: (714) 565-1032

Fax: (714) 565-1035

The Celiac Disease of Mental Illness

(derived in large part from a lecture James V. Croxton, M.A. summer 2002)

Although often referred to as "wheat allergy," Celiac Disease (also called Celiac Sprue) is not an "allergy" but rather an intolerance to the protein in gluten, a substance found in wheat and other grains. For susceptible people, gluten injures the small intestinal lining (called

2

Share this post


Link to post
Share on other sites




I am sorry to hear about your and your childs trials re gluten. I have a 14.5 yo daughter and for over a year she has heard 'breathig' all over our home, it used to frighten her but now she is i think almost accepting of it. Last week she told me that she heard gnashing/chewing sounds coming from under her bed i know it unsettled her but she tries to keep up a brave front.

It's been very hard to convince her it is gluten related but i think she may be coming around to it. Her stomach pains are unbearable with diarrea and sweats, she is litterally exausted after that kind of episode and sometimes needs to lie down.

Funny thing is when we did the Celiac panel she tested in the low end and so officially it means she does not have, it but i know better.

In any case i wish you luck and perserverance it's very hard, i am a single mom also dealing with my own firbromyalgia and candida/milder celiac issues.

I want to post this site so perhaps if you take it to a doctor is could be of assistance.

******************************************

720 North Tustin Avenue

Suite 104

Santa Ana, CA 92705-3606

Phone: (714) 565-1032

Fax: (714) 565-1035

The Celiac Disease of Mental Illness

(derived in large part from a lecture James V. Croxton, M.A. summer 2002)

Although often referred to as "wheat allergy," Celiac Disease (also called Celiac Sprue) is not an "allergy" but rather an intolerance to the protein in gluten, a substance found in wheat and other grains. For susceptible people, gluten injures the small intestinal lining (called

0

Share this post


Link to post
Share on other sites

Thank you for this!

I am sending copies to all the teachers and parents I know!

0

Share this post


Link to post
Share on other sites

It is also possible that what he experienced was a hypnagogic hallucination, which is related to the onset of sleep (or wakefulness), when the body is awake but the brain has entered a dream-like state. I have these all the time, mostly when falling asleep--I'll see things, like bugs or lobsters on the ceiling or something, hear voices or actually TALK to people who aren't there, or have strange thoughts like "ack I'm in someone else's house I need to get out" and run into the hall... only to "wake up" minutes later and realize that nothing is out of the ordinary. These are different from dreams in that your eyes are actually open, you're seeing things that are really there on top of things that aren't, and your body is usually not paralyzed yet so you will move to react to what you see/hear/think.

I think that this may be more likely considering that he was in bed at the time, presumably falling asleep. I wouldn't be too worried about it unless it happened again when sleep was not involved.

0

Share this post


Link to post
Share on other sites

Great info. Do you by any chance have a link to a webpage for this. I would love to bookmark it not only for further reference but also to take copies to my psychiatrist who is very interested in material of this sort.

I am very glad that it was of use, and here is the website :

www.drkaslow.com/html/gluten-brain_connection_.htm

Take care, Kurzemiete.

0

Share this post


Link to post
Share on other sites

Thank you for this!

I am sending copies to all the teachers and parents I know!

You're welcome :)

I really like your quote .."then just eat meat".!

I am finding myself in a similar place in my life, only meats and fats seem to keep my stable and so on.

0

Share this post


Link to post
Share on other sites

I am very glad that it was of use, and here is the website :

www.drkaslow.com/html/gluten-brain_connection_.htm

Take care, Kurzemiete.

Thanks. The address needed tweaking so I did so and have given a link.

http://www.drkaslow.com/html/gluten-brain_connection_.html

0

Share this post


Link to post
Share on other sites

Thanks. The address needed tweaking so I did so and have given a link.

http://www.drkaslow.com/html/gluten-brain_connection_.html

Thank you :) ! When i put the link up it looked 'funny' like yours does :blink: , well i am not such a pro when it comes to links and how they appear abbreveated , so i truncated it. I am glad you got it up in proper form :lol:

I love your quote very much about courage it's important to remember that, sometimes all it takes is for us to keep coming back.

I know it's totally off topic but there is avery nice song called "courage is"

the link is

Take care,

Kurzemiete

0

Share this post


Link to post
Share on other sites

Kurzemiete,

Oh my gosh! That is a very beautiful song! Thank you.

Thanks for liking my quote, seems I do better as a carnivore than anything else. :D

1

Share this post


Link to post
Share on other sites

considering that I "woke up" at 3:30 AM last night with my shirt off in the bathroom, looking for bugs on my chest, I want to reiterate the possibilty of hypnagogia being involved in this somehow.

My chest itched at night, and in my half-asleep state I thought I had fleas and got up into the bathroom to look for them before I "woke up."

I also see and hear things when I am in a state like this. If this only happens when your son is falling sleep or waking up, it is something to consider. If it happens at other times as well, then this is less likely.

0

Share this post


Link to post
Share on other sites

Kurzemiete,

Oh my gosh! That is a very beautiful song! Thank you.

Thanks for liking my quote, seems I do better as a carnivore than anything else. :D

I am so glad you like it :)

I too seem to do better when eat proten ~ unprocessed good, fats,eggs etc and low glycemic veggies.

All the best to you.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,314
  • Topics

  • Posts

    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined