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Hearing Voices?


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14 replies to this topic

#1 katco

 
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Posted 22 March 2010 - 08:27 AM

My nine-year old son has been gluten-free (and mostly cf) for 10 weeks due to a suspected intolerence -- he tested negative for Celiac. His symptoms are numerous: history of diarrhea/constipation, anxiety with panic attacks, ADD, nightmares, difficulty sleeping, tics, depression. Since going gluten free his sleep has been sounder between wakings, panic attacks disappeared and anxiety/depression is much improved. Two days ago he had his first obvious "glutening" -- lots of movie theater popcorn. Since then, he has tossed and turned constantly in his sleep, has had a panic attack, and has screamed in terror after hearing voices in his bed. Has anyone heard of gluten causing auditory hallucinations like this? Any idea when things might return to the status quo? As bad as I feel for my son, the magnitude of his reaction to this gluten infraction makes me feel like I'm doing the right thing for him. (Haven't felt that way very often lately!)
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#2 Wolicki

 
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Posted 22 March 2010 - 09:06 AM

Oh my. I don't think I have anything to add, only that my thoughts and prayers are with you. That must be horrible. It's always worse when it is your baby. I would educate, educate, educate, to make sure he doesn't get accidental gluten. Poor guy. Maybe a visit to the Ped is in order, too. I am praying it gets better soon!
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Gluten free is not so bad! If you are new, hang it there, it gets easier!

#3 ravenwoodglass

 
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Posted 22 March 2010 - 10:27 AM

Yes gluten sure can cause all kinds of neurological issues including the ones you have mentioned. I am very glad to hear that he is doing so much better on the diet. Hopefully the effects of his glutening will resolve soon. Talk to him and explain that is what it is and that it is a limited effect and will go away. Perhaps that will help him to feel better about what is going on. I know it helps me to get through those patches after a glutening to know that they will go away soon.
  • 1
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#4 Mac55

 
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Posted 22 March 2010 - 11:27 AM

Oh I'm so sorry for what your son has been going through, and you as well. My son is only 4 and has major attentional issues, some sensory and health issues. Since having him gluten free he's almost like a different child. He told me he would hear things and cover his ears. When we got out of the car at night his hands would literally be plastered to his ears because he was afraid of the crickets and frogs, even when there weren't any. Now, I don't know if that was more sensory oriented as he is so young.

I can tell you about my own experience prior to being diagnosed. Over the past year I gradually got worse and worse mentally. I was in a complete fog. I was getting SOOO anxious over things that cause me no anxiety now. I had what I can only describe as static in my head, an almost constant noise. I do remember hearing things, noises. I never heard voices but I did hear things that I knew weren't real. I also have to tell you that I have silent migraines as well, which may have been part of my symptoms. I didn't find that out until Sept 09. I started treatment for those which helped a bit. The only thing that's truly helped is being gluten-free. My silent migraines and most of my other symptoms are almost gone.

It sounds like you're on the right track with your son. It took my son and me a while to get to this answer too. I would definitely talk to his doctor about it. Also, in my experience, if they don't agree with you about the gluten, just trust your gut. Go to a different dr if you need to or just trust that you are doing what is best for him. You are his mom. You know him the best and you are his advocate. Hope he starts feeling better soon. :)
  • 1
Diagnosed with Celiac through blood work Feb 2010
Gluten-free/dairy-free Feb 2010

Mom to 2 gluten sensitive boys

#5 Kurzemiete

 
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Posted 23 March 2011 - 12:01 AM

My nine-year old son has been gluten-free (and mostly cf) for 10 weeks due to a suspected intolerence -- he tested negative for Celiac. His symptoms are numerous: history of diarrhea/constipation, anxiety with panic attacks, ADD, nightmares, difficulty sleeping, tics, depression. Since going gluten free his sleep has been sounder between wakings, panic attacks disappeared and anxiety/depression is much improved. Two days ago he had his first obvious "glutening" -- lots of movie theater popcorn. Since then, he has tossed and turned constantly in his sleep, has had a panic attack, and has screamed in terror after hearing voices in his bed. Has anyone heard of gluten causing auditory hallucinations like this? Any idea when things might return to the status quo? As bad as I feel for my son, the magnitude of his reaction to this gluten infraction makes me feel like I'm doing the right thing for him. (Haven't felt that way very often lately!)




I am sorry to hear about your and your childs trials re gluten. I have a 14.5 yo daughter and for over a year she has heard 'breathig' all over our home, it used to frighten her but now she is i think almost accepting of it. Last week she told me that she heard gnashing/chewing sounds coming from under her bed i know it unsettled her but she tries to keep up a brave front.

It's been very hard to convince her it is gluten related but i think she may be coming around to it. Her stomach pains are unbearable with diarrea and sweats, she is litterally exausted after that kind of episode and sometimes needs to lie down.

Funny thing is when we did the Celiac panel she tested in the low end and so officially it means she does not have, it but i know better.

In any case i wish you luck and perserverance it's very hard, i am a single mom also dealing with my own firbromyalgia and candida/milder celiac issues.

I want to post this site so perhaps if you take it to a doctor is could be of assistance.


******************************************

720 North Tustin Avenue
Suite 104
Santa Ana, CA 92705-3606
Phone: (714) 565-1032
Fax: (714) 565-1035

The Celiac Disease of Mental Illness

(derived in large part from a lecture James V. Croxton, M.A. summer 2002)



Although often referred to as "wheat allergy," Celiac Disease (also called Celiac Sprue) is not an "allergy" but rather an intolerance to the protein in gluten, a substance found in wheat and other grains. For susceptible people, gluten injures the small intestinal lining (called “villi”) that takes in nourishment. The mental disorders that Celiac brings to a child and adult are due to both the malnutrition caused by the damage to the small intestine and to the by-products of gluten metabolism.

Professor F. C. Dohan of the University of Pennsylvania was the first researcher to use this concept, beginning in the late 1960’s. He quoted from earlier researchers in his article published in The Biological Basis of Schizophrenia (Hemmings, ed; MTP Press; London, 1980).



Celiac disease may present with psychiatric symptoms, which, in association with other symptoms, may be of diagnostic help... Kaser (1961) described celiac children as showing definite symptoms in all cases. The children are conspicuously quiet, turned, inward, often weepy, often discontented or surly and apparently lack all joy in living. They can take on negativistic and schizoid characteristics and may execute ceaseless stereotyped movements. Paulley wrote in 1959: many (adult celiacs) showed extreme obsessional neuroses, suffering delusions, frequently believing they had cancer. Paranoid ideas were also frequent and many were considered psychotic or near psychotic.



In the 1960’s and 70’s it was thought that there were only about five infants out of 10,000 born with this strongly genetic disorder. The idea that that very small could account for many of the large number of schizophrenics in the general population did not appear reasonable. So the “celiac model” for explaining the development of schizophrenia did not catch on. The incidence of this disease has changed, however, and estimates now are stated to be as high as 1 in 250 in the American population.



If the increase in celiac disease is real, it might be because there is more gluten being consumed: “gluten enteropathy” is another term for this illness. Gluten is useful in cooking because it promotes a resistant, “chewy” mouth-feel to many foods including baked goods. Also, as the amount of convenience foods increases (such as pizza) we probably consume more foods with gluten-containing grains as ingredients. Another factor exists which does not have to do with our food intake: the diagnostic criteria for celiac disease have changed over the years. Twenty and thirty years ago, the “gold standard” for diagnosing this illness was to do a biopsy of the small intestine. Now it is being realized that there are individuals with celiac disease who do not have typical intestinal biopsies that show atrophy of the villi or other signs of tissue damage in the gut-wall.



A different factor in the celiac model emerged in the late 1990’s based on newly appreciation roles of glial cells in the brain - those cells which make up about one-half of the brain’s mass. Before the last decade the glia were characterized as “support cell” with no clear functions. It is now appreciated that glia are capable of being activated as immune system agents. Glia do engage in “signaling” activity (sending “messages” to each other and perhaps even to neurons). Glia have “conversations” with each other and have the potential for neuronal signaling.



This change in appreciation of glial cells’ importance is a bit like “not seeing the forest for the trees.” Consider the brain’s neurons are like the trees in a forest, they have received the bulk of research over the years. The other entities in the forest (the underbrush, the ferns, the ground-cover plants) were harder to see and had more subtle effects on the total system. (Actually, glial cells did not take the early stains well and were much more difficult to see and to study.) Today we are more sensitive to the challenge of understanding the complexities of the brain as an ecosystem.



Recent successes with two kinds of therapy provide some indirect support for the connection of celiac disease with mental illness. Gluten-free diets (sometimes combined with dairy-free) have been used for autism, depression and schizophrenia. When troublesome proteins, especially alpha-gliadin in gluten and casein in milk are avoided, marked improvement has been reported by a number of individuals with these brain biochemistry disorders. The other therapy is to use essential fatty acids (emphasizing Omega 3, “cold-water fish” oils) with the same illnesses. The NIH has funded studies for these therapies.



Many adult celiacs who have not been diagnosed and are not following a strict gluten-free diet have some of the same symptoms as persons diagnosed with schizophrenia and other mental, psychological, or emotional disorders. Perhaps those symptoms- some of which were present to a lesser degree in childhood- are exacerbations of the earlier, weaker ones. Of course a large number of social factors are also relevant and or many seem work against them. The loss of friends and relatives who no longer show care and affection cannot be ignored.



In “sensitive” people who are genetically predisposed to this celiac disease, malabsorption of significant nutrients including B vitamins, essential fatty acids, some minerals (calcium and zinc, for instance) compound the mental and emotional component. Malabsorption can stunt the stature of children, slow the maturation rate, create an over-sensitive or irritable brain tissue, and perhaps alter the learning styles (sensory perception issues) of these children. Because gluten enteropathy is, in part, an immune system disorder originating in the wall of the small intestine, any amount of gluten from wheat, rye, barley, and oats keeps the immune system activated, which in turn may result in “spreading” of symptoms. It is hypothesized that organ systems not apparently involved during childhood become involved as the child ages. What began in the gut seems to move through the body, affecting lung function, the skin, and even the brain. Again, evidence to support such a theory is based on the effect of gluten avoidance – less mucus and bronchial symptoms, clearer skin, improved cognition, stabilization of mood, etc.



In addition to the biochemical and immune effect of gluten, the loss of nutrients would result in loss of some of the supportive tissue (glial cells) which would lead to larger cerebral ventricles (they would expand by default into areas where the glia have been lost), deeper sulci (the crevices apparent in the cortical surface of the brain), narrower gyri (the humps on the cortical surfaces), and perhaps the disarrangement of neurons positioned in infancy and early childhood.



Since the fats and oils we eat become both structural and functional components of the “barrier” membranes in our bodies, such as the cell membranes, gut wall and the blood-brain barrier, another result of lipid malabsorption could be a less-reliable blood-brain barrier. In those parts of the brain where the blood-barrier is purposely “thin,” such as areas close to the middle of the brain (parts of the hypothalamus and the pituitary gland - the paraventricular regions) the insufficient or imbalanced lipid components certainly would be expected to affect many functions. These areas of the brain have much to do with basic motives and behaviors dealing with food intake, thirst, sexuality, sleep regulation, etc.



Another factor is related to the concept “cerebral allergy.” This is a concept supported by just a few hundred medical doctors and psychiatrists. It became increasingly apparent in the 1990s that there are immune system defenses in the brain, and that the microglia can be recruited and even reprogrammed to do the work. Experiments show that microglia can be stimulated to “change roles” and produce a cascade of cytokines (the “cell-movers” that can produce, maintain and increase the inflammation response. Because we cannot feel brain tissue - it is not “engineered” to signal to us its own changes - hence there is no pain, itching, etc. Inflammation involves swelling, increased blood flow, increased temperature, itching or pain or both - none of this can be felt in the brain unless severe. This must be one of the strongest reasons for people with brain-based disorders denying that anything is wrong with their brains.



The cerebral allergy concept depended on the assumptions of clinicians who believed that brain tissue is subject to “local Inflammation” and that this caused unusual or abnormal symptoms. The “allergens” could be proteins in foods such as alpha-gliadin in wheat, volatile gases such as fumes of toluene, certain chemicals in perfumes or cosmetics, and so on. The symptoms could be very diverse: unusual behaviors (paralleling symptoms of toxic psychosis), altered motivations (changes in hunger or sexuality), sudden emotional upsets (intense, unreasonable jealousy or inexplicable grief), etc. Any of these, along with altered perceptions and thinking, can happen. Neurons and glia function differently (“abnormally”) when disturbed by heat, pressure, pH changes and cytokine effects.



In this hypothesis, celiac disease could be a specific kind of cerebral allergy, with ongoing disruption in gut tissue, and increasingly intense and diverse symptoms involving depression, paranoia, hallucinations and delusions (but not all of these at once). The good news is that celiac disease, when identified early enough, is controlled with a very careful diet. You never get over the illness, but you also never get over being glad you found out what it was.

From an informal survey of about 20 people with gluten related sensitivity, >90% reported improvement from a gluten-free diet. All spoke of delayed learning prior to a gluten free diet either in themselves or their children. Some of the physiological, cognitive, and emotional symptoms they reported with dietary avoidance of gluten included:

Improved ability to learn
Improved interest in school
Improved concentration
No more meds for depression problems
No more avoidance of meeting people
Expected full recovery of ataxia problems (inability to coordinate muscle movements)
Improved gross motor skills (was delayed in some cases)
Improved physical growth (was smaller than expected)
Went from bottom of class to the top of his class after 3 months on diet
Found a "hunger" for learning after avoiding gluten
Improved mood with less “crossness” and “crankiness”
Improved development to catch up with peers
Improved intellect with definite increases in intelligence
Grade point average went from 2.5 to 3.9
Many have acquired college degrees with high gpa after going gluten-free
Came alive academically
Improved ability to meet daily challenges
Improved speed of learning ("quicker" in her studies)
Absenteeism no longer a problem
Lots of stories about coming out of withdrawn state socially to an outgoing one -- running for student council, more motivated in doing well and meeting people
Increased well-being and better brain chemistry
No more "brain fog"
Improved in reading (“noticeable”)
Improved temperaments in children
Before going gluten-free, students had the following difficulties/complaints:

Daydreaming in school
Difficulty in finishing sentences and finding words
Speech delay
In and out of Special Education classes
Delays in walking and talking
Delayed puberty including menarche
Vitamin deficiencies
Non-epileptic seizures
Arthritis and osteopenia
Short term and long term memory was not good
Many reports of struggles with school but score high in intelligence
Misdiagnosis of fibromyalgia
Visual and auditory delusions
Anxiety problems, tummy aches
Temporary dyslexia
1. K. Horvath, MD, PhD, et al; Gastroenterology, April 1996: “First Epidemiological Study of Gluten Intolerance in the United States”



2. Etty Benveniste, PhD.; American Journal of Physiology 263, 1992: “Inflammatory Cytokines within the central nervous system: sources, function, and mechanism of action”



P.S. – There is a urine test (IAG – AAL #6500) that may give some insight into gluten and casein intolerance based on the metabolic by-products of these grain and dairy components. It can be helpful in identifying hidden gluten in the diet or patients who might be susceptible to the metabolic effects of gluten and dairy.




- Home - Office News - My Approach - Services Offered - Prospective Patients - Staff - Health Topics - Dietary Programs - Toxicity Topics - Supplements - Lab Findings - Contact Us

Copyright 2010 - Jeremy E. Kaslow, M.D. - all rights reserved
  • 2

#6 ravenwoodglass

 
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Posted 23 March 2011 - 04:38 AM


I am sorry to hear about your and your childs trials re gluten. I have a 14.5 yo daughter and for over a year she has heard 'breathig' all over our home, it used to frighten her but now she is i think almost accepting of it. Last week she told me that she heard gnashing/chewing sounds coming from under her bed i know it unsettled her but she tries to keep up a brave front.

It's been very hard to convince her it is gluten related but i think she may be coming around to it. Her stomach pains are unbearable with diarrea and sweats, she is litterally exausted after that kind of episode and sometimes needs to lie down.

Funny thing is when we did the Celiac panel she tested in the low end and so officially it means she does not have, it but i know better.

In any case i wish you luck and perserverance it's very hard, i am a single mom also dealing with my own firbromyalgia and candida/milder celiac issues.

I want to post this site so perhaps if you take it to a doctor is could be of assistance.


******************************************

720 North Tustin Avenue
Suite 104
Santa Ana, CA 92705-3606
Phone: (714) 565-1032
Fax: (714) 565-1035

The Celiac Disease of Mental Illness

(derived in large part from a lecture James V. Croxton, M.A. summer 2002)



Although often referred to as "wheat allergy," Celiac Disease (also called Celiac Sprue) is not an "allergy" but rather an intolerance to the protein in gluten, a substance found in wheat and other grains. For susceptible people, gluten injures the small intestinal lining (called “villi”) that takes in nourishment. The mental disorders that Celiac brings to a child and adult are due to both the malnutrition caused by the damage to the small intestine and to the by-products of gluten metabolism.

Professor F. C. Dohan of the University of Pennsylvania was the first researcher to use this concept, beginning in the late 1960’s. He quoted from earlier researchers in his article published in The Biological Basis of Schizophrenia (Hemmings, ed; MTP Press; London, 1980).



Celiac disease may present with psychiatric symptoms, which, in association with other symptoms, may be of diagnostic help... Kaser (1961) described celiac children as showing definite symptoms in all cases. The children are conspicuously quiet, turned, inward, often weepy, often discontented or surly and apparently lack all joy in living. They can take on negativistic and schizoid characteristics and may execute ceaseless stereotyped movements. Paulley wrote in 1959: many (adult celiacs) showed extreme obsessional neuroses, suffering delusions, frequently believing they had cancer. Paranoid ideas were also frequent and many were considered psychotic or near psychotic.



In the 1960’s and 70’s it was thought that there were only about five infants out of 10,000 born with this strongly genetic disorder. The idea that that very small could account for many of the large number of schizophrenics in the general population did not appear reasonable. So the “celiac model” for explaining the development of schizophrenia did not catch on. The incidence of this disease has changed, however, and estimates now are stated to be as high as 1 in 250 in the American population.



If the increase in celiac disease is real, it might be because there is more gluten being consumed: “gluten enteropathy” is another term for this illness. Gluten is useful in cooking because it promotes a resistant, “chewy” mouth-feel to many foods including baked goods. Also, as the amount of convenience foods increases (such as pizza) we probably consume more foods with gluten-containing grains as ingredients. Another factor exists which does not have to do with our food intake: the diagnostic criteria for celiac disease have changed over the years. Twenty and thirty years ago, the “gold standard” for diagnosing this illness was to do a biopsy of the small intestine. Now it is being realized that there are individuals with celiac disease who do not have typical intestinal biopsies that show atrophy of the villi or other signs of tissue damage in the gut-wall.



A different factor in the celiac model emerged in the late 1990’s based on newly appreciation roles of glial cells in the brain - those cells which make up about one-half of the brain’s mass. Before the last decade the glia were characterized as “support cell” with no clear functions. It is now appreciated that glia are capable of being activated as immune system agents. Glia do engage in “signaling” activity (sending “messages” to each other and perhaps even to neurons). Glia have “conversations” with each other and have the potential for neuronal signaling.



This change in appreciation of glial cells’ importance is a bit like “not seeing the forest for the trees.” Consider the brain’s neurons are like the trees in a forest, they have received the bulk of research over the years. The other entities in the forest (the underbrush, the ferns, the ground-cover plants) were harder to see and had more subtle effects on the total system. (Actually, glial cells did not take the early stains well and were much more difficult to see and to study.) Today we are more sensitive to the challenge of understanding the complexities of the brain as an ecosystem.



Recent successes with two kinds of therapy provide some indirect support for the connection of celiac disease with mental illness. Gluten-free diets (sometimes combined with dairy-free) have been used for autism, depression and schizophrenia. When troublesome proteins, especially alpha-gliadin in gluten and casein in milk are avoided, marked improvement has been reported by a number of individuals with these brain biochemistry disorders. The other therapy is to use essential fatty acids (emphasizing Omega 3, “cold-water fish” oils) with the same illnesses. The NIH has funded studies for these therapies.



Many adult celiacs who have not been diagnosed and are not following a strict gluten-free diet have some of the same symptoms as persons diagnosed with schizophrenia and other mental, psychological, or emotional disorders. Perhaps those symptoms- some of which were present to a lesser degree in childhood- are exacerbations of the earlier, weaker ones. Of course a large number of social factors are also relevant and or many seem work against them. The loss of friends and relatives who no longer show care and affection cannot be ignored.



In “sensitive” people who are genetically predisposed to this celiac disease, malabsorption of significant nutrients including B vitamins, essential fatty acids, some minerals (calcium and zinc, for instance) compound the mental and emotional component. Malabsorption can stunt the stature of children, slow the maturation rate, create an over-sensitive or irritable brain tissue, and perhaps alter the learning styles (sensory perception issues) of these children. Because gluten enteropathy is, in part, an immune system disorder originating in the wall of the small intestine, any amount of gluten from wheat, rye, barley, and oats keeps the immune system activated, which in turn may result in “spreading” of symptoms. It is hypothesized that organ systems not apparently involved during childhood become involved as the child ages. What began in the gut seems to move through the body, affecting lung function, the skin, and even the brain. Again, evidence to support such a theory is based on the effect of gluten avoidance – less mucus and bronchial symptoms, clearer skin, improved cognition, stabilization of mood, etc.



In addition to the biochemical and immune effect of gluten, the loss of nutrients would result in loss of some of the supportive tissue (glial cells) which would lead to larger cerebral ventricles (they would expand by default into areas where the glia have been lost), deeper sulci (the crevices apparent in the cortical surface of the brain), narrower gyri (the humps on the cortical surfaces), and perhaps the disarrangement of neurons positioned in infancy and early childhood.



Since the fats and oils we eat become both structural and functional components of the “barrier” membranes in our bodies, such as the cell membranes, gut wall and the blood-brain barrier, another result of lipid malabsorption could be a less-reliable blood-brain barrier. In those parts of the brain where the blood-barrier is purposely “thin,” such as areas close to the middle of the brain (parts of the hypothalamus and the pituitary gland - the paraventricular regions) the insufficient or imbalanced lipid components certainly would be expected to affect many functions. These areas of the brain have much to do with basic motives and behaviors dealing with food intake, thirst, sexuality, sleep regulation, etc.



Another factor is related to the concept “cerebral allergy.” This is a concept supported by just a few hundred medical doctors and psychiatrists. It became increasingly apparent in the 1990s that there are immune system defenses in the brain, and that the microglia can be recruited and even reprogrammed to do the work. Experiments show that microglia can be stimulated to “change roles” and produce a cascade of cytokines (the “cell-movers” that can produce, maintain and increase the inflammation response. Because we cannot feel brain tissue - it is not “engineered” to signal to us its own changes - hence there is no pain, itching, etc. Inflammation involves swelling, increased blood flow, increased temperature, itching or pain or both - none of this can be felt in the brain unless severe. This must be one of the strongest reasons for people with brain-based disorders denying that anything is wrong with their brains.



The cerebral allergy concept depended on the assumptions of clinicians who believed that brain tissue is subject to “local Inflammation” and that this caused unusual or abnormal symptoms. The “allergens” could be proteins in foods such as alpha-gliadin in wheat, volatile gases such as fumes of toluene, certain chemicals in perfumes or cosmetics, and so on. The symptoms could be very diverse: unusual behaviors (paralleling symptoms of toxic psychosis), altered motivations (changes in hunger or sexuality), sudden emotional upsets (intense, unreasonable jealousy or inexplicable grief), etc. Any of these, along with altered perceptions and thinking, can happen. Neurons and glia function differently (“abnormally”) when disturbed by heat, pressure, pH changes and cytokine effects.



In this hypothesis, celiac disease could be a specific kind of cerebral allergy, with ongoing disruption in gut tissue, and increasingly intense and diverse symptoms involving depression, paranoia, hallucinations and delusions (but not all of these at once). The good news is that celiac disease, when identified early enough, is controlled with a very careful diet. You never get over the illness, but you also never get over being glad you found out what it was.

From an informal survey of about 20 people with gluten related sensitivity, >90% reported improvement from a gluten-free diet. All spoke of delayed learning prior to a gluten free diet either in themselves or their children. Some of the physiological, cognitive, and emotional symptoms they reported with dietary avoidance of gluten included:

Improved ability to learn
Improved interest in school
Improved concentration
No more meds for depression problems
No more avoidance of meeting people
Expected full recovery of ataxia problems (inability to coordinate muscle movements)
Improved gross motor skills (was delayed in some cases)
Improved physical growth (was smaller than expected)
Went from bottom of class to the top of his class after 3 months on diet
Found a "hunger" for learning after avoiding gluten
Improved mood with less “crossness” and “crankiness”
Improved development to catch up with peers
Improved intellect with definite increases in intelligence
Grade point average went from 2.5 to 3.9
Many have acquired college degrees with high gpa after going gluten-free
Came alive academically
Improved ability to meet daily challenges
Improved speed of learning ("quicker" in her studies)
Absenteeism no longer a problem
Lots of stories about coming out of withdrawn state socially to an outgoing one -- running for student council, more motivated in doing well and meeting people
Increased well-being and better brain chemistry
No more "brain fog"
Improved in reading (“noticeable”)
Improved temperaments in children
Before going gluten-free, students had the following difficulties/complaints:

Daydreaming in school
Difficulty in finishing sentences and finding words
Speech delay
In and out of Special Education classes
Delays in walking and talking
Delayed puberty including menarche
Vitamin deficiencies
Non-epileptic seizures
Arthritis and osteopenia
Short term and long term memory was not good
Many reports of struggles with school but score high in intelligence
Misdiagnosis of fibromyalgia
Visual and auditory delusions
Anxiety problems, tummy aches
Temporary dyslexia
1. K. Horvath, MD, PhD, et al; Gastroenterology, April 1996: “First Epidemiological Study of Gluten Intolerance in the United States”



2. Etty Benveniste, PhD.; American Journal of Physiology 263, 1992: “Inflammatory Cytokines within the central nervous system: sources, function, and mechanism of action”



P.S. – There is a urine test (IAG – AAL #6500) that may give some insight into gluten and casein intolerance based on the metabolic by-products of these grain and dairy components. It can be helpful in identifying hidden gluten in the diet or patients who might be susceptible to the metabolic effects of gluten and dairy.




- Home - Office News - My Approach - Services Offered - Prospective Patients - Staff - Health Topics - Dietary Programs - Toxicity Topics - Supplements - Lab Findings - Contact Us

Copyright 2010 - Jeremy E. Kaslow, M.D. - all rights reserved


Great info. Do you by any chance have a link to a webpage for this. I would love to bookmark it not only for further reference but also to take copies to my psychiatrist who is very interested in material of this sort.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#7 eatmeat4good

 
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Posted 23 March 2011 - 06:43 AM

Thank you for this!

I am sending copies to all the teachers and parents I know!
  • 0
Healing is a matter of time, but it is sometimes also a matter of opportunity.
--Hippocrates

#8 Strawberry_Jam

 
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Posted 23 March 2011 - 08:20 AM

It is also possible that what he experienced was a hypnagogic hallucination, which is related to the onset of sleep (or wakefulness), when the body is awake but the brain has entered a dream-like state. I have these all the time, mostly when falling asleep--I'll see things, like bugs or lobsters on the ceiling or something, hear voices or actually TALK to people who aren't there, or have strange thoughts like "ack I'm in someone else's house I need to get out" and run into the hall... only to "wake up" minutes later and realize that nothing is out of the ordinary. These are different from dreams in that your eyes are actually open, you're seeing things that are really there on top of things that aren't, and your body is usually not paralyzed yet so you will move to react to what you see/hear/think.

I think that this may be more likely considering that he was in bed at the time, presumably falling asleep. I wouldn't be too worried about it unless it happened again when sleep was not involved.
  • 0

gluten-free 25 Feb 2011
soy-free 30 March 2011

dairy-free 30 August 2011 (roughly)

25 yrs old
diagnosed Celiac through biopsy and blood test (WAY positive) as of 25 Feb 2011


#9 Kurzemiete

 
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Posted 23 March 2011 - 12:48 PM

Great info. Do you by any chance have a link to a webpage for this. I would love to bookmark it not only for further reference but also to take copies to my psychiatrist who is very interested in material of this sort.



I am very glad that it was of use, and here is the website :

www.drkaslow.com/html/gluten-brain_connection_.htm

Take care, Kurzemiete.
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#10 Kurzemiete

 
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Posted 23 March 2011 - 12:55 PM

Thank you for this!

I am sending copies to all the teachers and parents I know!



You're welcome :)

I really like your quote .."then just eat meat".!

I am finding myself in a similar place in my life, only meats and fats seem to keep my stable and so on.
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#11 ravenwoodglass

 
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Posted 23 March 2011 - 03:03 PM

I am very glad that it was of use, and here is the website :

www.drkaslow.com/html/gluten-brain_connection_.htm

Take care, Kurzemiete.


Thanks. The address needed tweaking so I did so and have given a link.

http://www.drkaslow....onnection_.html
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#12 Kurzemiete

 
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Posted 23 March 2011 - 11:41 PM

Thanks. The address needed tweaking so I did so and have given a link.

http://www.drkaslow....onnection_.html



Thank you :) ! When i put the link up it looked 'funny' like yours does :blink: , well i am not such a pro when it comes to links and how they appear abbreveated , so i truncated it. I am glad you got it up in proper form :lol:

I love your quote very much about courage it's important to remember that, sometimes all it takes is for us to keep coming back.

I know it's totally off topic but there is avery nice song called "courage is"
the link is



Take care,
Kurzemiete
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#13 eatmeat4good

 
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Posted 24 March 2011 - 12:21 AM

Kurzemiete,

Oh my gosh! That is a very beautiful song! Thank you.

Thanks for liking my quote, seems I do better as a carnivore than anything else. :D
  • 1
Healing is a matter of time, but it is sometimes also a matter of opportunity.
--Hippocrates

#14 Strawberry_Jam

 
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Posted 24 March 2011 - 08:08 AM

considering that I "woke up" at 3:30 AM last night with my shirt off in the bathroom, looking for bugs on my chest, I want to reiterate the possibilty of hypnagogia being involved in this somehow.

My chest itched at night, and in my half-asleep state I thought I had fleas and got up into the bathroom to look for them before I "woke up."

I also see and hear things when I am in a state like this. If this only happens when your son is falling sleep or waking up, it is something to consider. If it happens at other times as well, then this is less likely.
  • 0

gluten-free 25 Feb 2011
soy-free 30 March 2011

dairy-free 30 August 2011 (roughly)

25 yrs old
diagnosed Celiac through biopsy and blood test (WAY positive) as of 25 Feb 2011


#15 Kurzemiete

 
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Posted 25 March 2011 - 09:59 PM

Kurzemiete,

Oh my gosh! That is a very beautiful song! Thank you.

Thanks for liking my quote, seems I do better as a carnivore than anything else. :D



I am so glad you like it :)

I too seem to do better when eat proten ~ unprocessed good, fats,eggs etc and low glycemic veggies.

All the best to you.
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