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How Long Does It Take To Feel Better?
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Hi. I was just diagnosed with celiac (endoscopy) and have been gluten free for almost a month now. I still don't feel any better. How long should it take to start seeing an improvement?

Also, my migraines have gotten really out of control in the last couple of weeks. My chiropractor thinks that my body is detoxing and kind of freaking out. What are everyone else's opinions?

I'm so glad I found this website.

Thanks!

Christina

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I also have just been officially diagnosed with Celiac via blood test. I have had stomach aches, cramps, and irregular digestion for longer than I can remember; at least 5 years if not more. I have had 3 miscarriages and wonder if they were related to undiagnosed celiac. I have read cookbooks on what to eat, I have read lists of those hidden ingredients to avoid that whisper gluten as opposed to the ingredients that shout gluten, I am not shy at a restaurant and I my blackberry is my best friend when it is lunch time and I am out an about and it is meal time and I am 45 minutes away from home. My doctor originally verbally diagnosed me with Candida. My take on that was that it was an attempt to just give up everything that "might" bother me in an attempt to find out if food was the issue. I started my quest to find out for sure then. Candida, as it was presented to me, dictates avoiding....well it is easier to list what you can eat: fresh flesh meat, vegetables (only fresh, avoid any deteriorating parts-browning, decay etc), one cup of beans a day or less, and nuts (but not peanuts as they are technically a legume, not a nut.) I dropped almost 10 pounds in a week. I didn't really feel "better" per se, but my headaches lessened and my digestion seemed to be a better experience. I had sort of "forgotten" (accidentally on purpose) that I was not supposed to have dairy or coffee, and continued to have my venti latte with skim milk every morning. I didn't seem to have any affects from that. So, I researched which ice creams are gluten free and my local Baskin Robbins had a patron back. Fruit was the last bastion and when that fell, I was convinced (after having a banana for breakfast again) that it must be the gluten/celiac. 3 weeks ago I asked the doctor to "do the test." 3 weeks and 3 days of phone tag, I received my results: yes, you have celiac. My grandmother had it and her uncle had it (but he was undiagnosed.) My grandmother lived into her 90's and she was diagnosed about 10 - 15 years prior to her death. I remember making her gluten free chocolate chip cookies her 90th birthday. She was ecstatic.

Well, now it is my turn, and my grandmother is gone so I cannot get any tips, hints, or answers from her. My biggest question is; HOW LONG DOES IT TAKE TO FEEL BETTER?

I don't see to feel "bad" after eating something. I get feverish after the digestive process is over and I release the waste. It is not every time and this biological process is still not regular. Is this normal? It is so bad all I can do is curl up into a fetal position and moan. My gut gets distended like the malnourished children they show on TV and I have almost a 100 degree temperature. This last for anywhere from 24 to 48 hours, then it is gone and I am back to my "normal." I have noticed that this happens after eating particularly spicy foods ~ 3 days later or highly acid foods~any where from 1 to 3 days later. Now, I have experienced the "right after eating it" misery. My husband, shortly after being told that I might have Candida, made dinner for us. It included a pre-marinated chicken breast. OOOOh, not good. 1 hour after eating it I was out for the count. We had 3 more in the freezer; I gave them away the next weekend to my parents for them to enjoy.

I really would love to know when, how, why, what to expect now. I want gory details; I want to hear what people have experienced to match them with mine. Will I have to keep curling up in bed for months, years? How long?

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Wapondi, do a search here for gluten withdrawl. I did not personally experience it, but what you're dealing with sounds like a lot of what I've read others describe.

Pink Zebra, you mention spicy and acidic foods. Do you keep a food diary? Once I had the gluten out of my system I discovered that I also have an intolerance (which I am PRAYING is temporary) to nightshade vegetables. My worst reaction was to eggplant, but that's not something I use often anyway, but potatoes are almost as bad as a gluten reaction, and tomatoes and peppers are similar but weaker reactions. Because you mentioned spicy and acidic I just wondered whether it might be a nightshade intolerance causing your current reaction.

I don't usually have a fever, but the 3-4 day delay for the worst of it sounds familiar. I will have small reactions within an hour or two of eating (sore joints, feeling slightly off balance, vision out of focus) but the more severe digestive symptoms such as bloating, gas, and diarrhea may take a few days to develop. For me, once those show up I'm almost through it and usually within a day or so I will have a massive bowel movement and then start to feel better again. I know others have said their reaction can last a week or two, so maybe it all depends on how sluggish your system is.

The good news is that it does get better. I've been gluten-free for 10 mos now and only make mistakes rarely instead of once or twice a week like it was at the beginning. I think my lingering tiredness is due to being anemic (and having some trouble finding an iron supplement that doesn't upset my stomach), but even taking it less often than I should I do seem to be getting some benefit and am starting to perk up again. :)

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Wapondi, do a search here for gluten withdrawl. I did not personally experience it, but what you're dealing with sounds like a lot of what I've read others describe.

Pink Zebra, you mention spicy and acidic foods. Do you keep a food diary? Once I had the gluten out of my system I discovered that I also have an intolerance (which I am PRAYING is temporary) to nightshade vegetables. My worst reaction was to eggplant, but that's not something I use often anyway, but potatoes are almost as bad as a gluten reaction, and tomatoes and peppers are similar but weaker reactions. Because you mentioned spicy and acidic I just wondered whether it might be a nightshade intolerance causing your current reaction.

I don't usually have a fever, but the 3-4 day delay for the worst of it sounds familiar. I will have small reactions within an hour or two of eating (sore joints, feeling slightly off balance, vision out of focus) but the more severe digestive symptoms such as bloating, gas, and diarrhea may take a few days to develop. For me, once those show up I'm almost through it and usually within a day or so I will have a massive bowel movement and then start to feel better again. I know others have said their reaction can last a week or two, so maybe it all depends on how sluggish your system is.

The good news is that it does get better. I've been gluten-free for 10 mos now and only make mistakes rarely instead of once or twice a week like it was at the beginning. I think my lingering tiredness is due to being anemic (and having some trouble finding an iron supplement that doesn't upset my stomach), but even taking it less often than I should I do seem to be getting some benefit and am starting to perk up again. :)

Nightshades. I have heard of that before, but I guess I need to do some more research. thanks for the lead and a possible direction to go in.

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Thanks for the head's up on the Nightshades. I have found that tomatoes, peppers both sweet and spicy, and some potato products do "mess" me up. Potatoes, not so much. I found a website that listed the amount of the ingredient/component in the night shade family that interacts with people and the potato had the lowest amount. Eggplant, I believe was at the top of the list, and I don't eat those anyway so that was good. Tomatoes and Peppers (both hot and sweet) are some of my favorite things so I am learning to use other things in my salads like cooked then cooled asparagus, yellow carrots, different types of cucumbers, and jicama. For a good filling meal, I take cooked chicken chopped up and throw it on top of all the cold fresh veggies and call it lunch with some home made dressing.

But, now I have another question. I had some strawberries this morning. My "stomach" (intestinal area) started to feel the same way as after eating nightshades. They aren't listed as night shades but after reading some posts from different websites some people have a reaction due to them being grown in wheat straw, but other say that should not affect it. This was the first time I have eaten them plain and felt icky; I usually have them with oranges and bananas in a fruit salad as breakfast.

Anyone any have a reaction to Strawberries?

Thanks!!

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Hi. I was just diagnosed with celiac (endoscopy) and have been gluten free for almost a month now. I still don't feel any better. How long should it take to start seeing an improvement?

Also, my migraines have gotten really out of control in the last couple of weeks. My chiropractor thinks that my body is detoxing and kind of freaking out. What are everyone else's opinions?

I'm so glad I found this website.

Thanks!

Christina

I, too, am very thankful I discovered this website. I think it should be recommended to any newly-diagnosed celiac. Anyways, I was dagnosed (and went gluten free) 2 months ago, and like you still have symptoms (rib/intestinal discomfort, bouts of muscle weakness, low-grade headaches, twitching muscles, low energy, and difficulty concentrating). I, too, had frequent and intense migraines for 6 weeks after going gluten-free, and I'd never even had a headache before in my life! Now 2 weeks without a migraine and counting . . .(lol). Because of the lingering symptoms, I decided to go lectin-free (which includes beans/lentils, grains, milk, eggs and nightshades) about 2 weeks ago, and I have been slowly (a new one every week) adding in one of those foods (or a single food from the food group) back in. I've since added back milk (lactose-free, to be safe) and eggs, and now I'm adding in rice. I'm keeping a food diary through all this, and my hope is that I'll have an "ah-ha! moment" where I can identify the culprit that is causing the lingering symptoms (such as by my noticing an increase in severity of symptoms (or diarrhea or something else obvious) after ingesting a particular food after a few days (no luck so far :( ). It's a "stab in the dark", as they say, but I will try anything to get better! BTW - I'm also eating only whole/pure foods (nothing processed, no sauces, etc. even if they are "gluten-free"), and I think this can't hurt either ;)

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
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