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Raging, Inflammed Intestines
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HELP!!! I've followed a gluten-free diet since last Oct.09. Went gluten-free, casein free, egg, soy, yeast free in Dec. 09. Started doing betten at that point. About six weeks ago, I visited my son at college and dined out and must have inadvertantly ingested one of those food proteins. I have NOT recovered from that. I don't know if I keep adding insult to injury or what. I also know that I cannot eat: corn, fresh fruit, fresh veggies or salad--they send me to the bathroom to never emerge AGAIN!! Last night I made turkey stirfry over rice. I guess the veggies weren't cooked long enough since my stomach has been gurgling/rumbling ever since...and I have made many trips to the bathroom--not a pleasant experience. I am at my wits end as to how to get my insides healed to the point that I experience a normal BM. Since I started my gluten-free diet, I have only had a six-day stretch of near normal BM's. Sorry to be so graphic. I have had stool and gene testing; both positive for gluten sensitivity (two glu. sens. genes) with the sensitivites listed above. The Celiac research center at UMBC told me to go get the blood work, the biopsy, and a colonoscopy before they would even give me an appt. I have no insurance to do that. I'm an RN but should I see a nutritionist? I have no problem sticking to a diet that eliminates all the offending food...I am a consistent label reader and I cook all my food. But, nothing seems to help since my insides seem to be revolting no matter what I consume. Should I be fasting for several days to give my gut a rest? Should I be eating nothing but chicken broth for a week? I know if I can get out of this inflammed state...I may be able to get back on the right track. Any suggestions?

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Maybe it is time for a drastic step. I have heard of people who eliminate everything except boiled or grilled chicken and rice until your intestines stabilize then add back one thing at a time.

HELP!!! I've followed a gluten-free diet since last Oct.09. Went gluten-free, casein free, egg, soy, yeast free in Dec. 09. Started doing betten at that point. About six weeks ago, I visited my son at college and dined out and must have inadvertantly ingested one of those food proteins. I have NOT recovered from that. I don't know if I keep adding insult to injury or what. I also know that I cannot eat: corn, fresh fruit, fresh veggies or salad--they send me to the bathroom to never emerge AGAIN!! Last night I made turkey stirfry over rice. I guess the veggies weren't cooked long enough since my stomach has been gurgling/rumbling ever since...and I have made many trips to the bathroom--not a pleasant experience. I am at my wits end as to how to get my insides healed to the point that I experience a normal BM. Since I started my gluten-free diet, I have only had a six-day stretch of near normal BM's. Sorry to be so graphic. I have had stool and gene testing; both positive for gluten sensitivity (two glu. sens. genes) with the sensitivites listed above. The Celiac research center at UMBC told me to go get the blood work, the biopsy, and a colonoscopy before they would even give me an appt. I have no insurance to do that. I'm an RN but should I see a nutritionist? I have no problem sticking to a diet that eliminates all the offending food...I am a consistent label reader and I cook all my food. But, nothing seems to help since my insides seem to be revolting no matter what I consume. Should I be fasting for several days to give my gut a rest? Should I be eating nothing but chicken broth for a week? I know if I can get out of this inflammed state...I may be able to get back on the right track. Any suggestions?

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I am so so sorry for your pain. I have been there. I was sick for six weeks once too and it was one of the worst times ever. It sounds like your gut is really inflamed like you say. Then it doesn't matter what you eat - even if it is stuff you can eat when your gut is not inflamed. I've fasted before and it "helps" but it's not really good for you. None of my doctors has EVER recommended fasting, so while sometimes it makes me feel better, it does weaken me, which probably inhibits healing. SO. I would recommend finding things that are really easy on your gut. No solid food, but it needs to have nutrients your body needs. I am a HUGE fan of gerber rice baby cereal. You can mix with water, rice milk, or whatever. I also get this meal replacement formula called alpha ENF. It's from canada, but it is gluten and casein free, (but I am not sure about the soy) and it's designed specifically for inflamed guts. Chicken broth is good too, but has little in the way of real nutrients. I recommend pedialyte to get your electrolytes in balance after all that diah. Also - all the fresh fruit & veggies are good for you when your gut is healthy, but when it's not, it's actually pretty tough to digest, especially if it's fresh. After just a day or two of "rest" with the other food sources, I sometimes try introducing steamed or boiled carrots - but cooked so that they are really, really soft. I take it one day at a time. When i start feeling better, I usually give myself just one more day before introducing more real foods. Keep us posted.

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I also get this meal replacement formula called alpha ENF. It's from canada, but it is gluten and casein free, (but I am not sure about the soy) and it's designed specifically for inflamed guts.

I looked this up online and found the site with ordering info. What is the taste/texture of this stuff like? I've been looking for something like this for a kid that works for my husband, but I'm concerned he won't eat/drink something that is "yucky."

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Are you sure about the casein, or is it just lactose? I ask this because I was tested as casein intolerant but could eat cheese, yogurt, anything cultured, just fine, so it was not an accurate assessment. I also ask it because I find nothing calms my inflamed intestines like yogurt. I use it as a preferable alternative to the neat scotch I used to use :lol: -- I think that that just shocked it into submission while the yogurt soothes it (but we are all different with our own solutions--just a suggestion).

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That was how I was in the beginning. I get the milder form of that now when I get glutened. I ate chicken, bananas, potatoes and maybe one or two more things for what seemed like two weeks. They were the only things that bothered me minimally. When they stopped, I started adding things little by little. To agree with another poster, find what doesn't bother you, or what bothers you the least and stick with that until things calm down. Which, hopefully won't take too long. :)

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I looked this up online and found the site with ordering info. What is the taste/texture of this stuff like? I've been looking for something like this for a kid that works for my husband, but I'm concerned he won't eat/drink something that is "yucky."

I get the plain, not the vanilla, and I usually blend it with OJ or soymilk and a banana. That sort of mellows out the flavor a bit. If you add more fruits like berries, peaches, it hides it even more. But that depends on how well your gut is holding up. Even though the extra fruit is blended, if your gut is really inflamed I would keep it to the juice/soymilk & banana. The flavor isn't as strong as say, our bean flours are, but it's not nothing. It reminds me a little of chicken broth, but a little sweeter. The texture is a pretty fine powder. You can get clumps if you aren't up on the stirring, but it goes into solution all right nonetheless.

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    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
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       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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