Posted 03 April 2010 - 10:35 AM
Posted 03 April 2010 - 12:53 PM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 04 April 2010 - 06:13 AM
Posted 04 April 2010 - 12:35 PM
I've been taking it daily in a vitamin supplement called Daily Complete. Doesn't seem to bother me. When I called the manufacturer I was told it should be fine.
I wondered about that. I saw this fruit juice that had wheat grass labeled, but was marked gluten free.
Posted 04 April 2010 - 01:08 PM
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease
celiac disease(positive IgA tTG, no biopsy- 11/2010)
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.
Posted 16 July 2011 - 11:55 AM
Posted 02 August 2011 - 03:14 PM
Sick and tired of being sick and tired....
Posted 02 August 2011 - 04:06 PM
Posted 02 August 2011 - 06:54 PM
Posted 05 September 2012 - 09:31 AM
Posted 05 September 2012 - 11:09 AM
I think I will stay away from it.
HAVE A SUPER SHINY DAY
LTES gem 2014
*BiPolar, Major Depression, Anxiety *Hypothyroidism, *Celiac
*Metastatic Melanoma, *Immunotherapy Mitigated Vitiligo, *General Insanity
"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.
Are We There Yet? and Dad says...All you have to do it ride it out.
Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner
Celiac.com - Celiac Disease Board Moderator
Posted 06 September 2012 - 10:53 AM
gluten-free since June, 2011
Can't eat soy, corn, or foods high in salicylates.
Nightshades now seem to bother me too.
BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!
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