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Round Pebbles
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Hi, I am new to this site ..I was diagnosed w/fibromyalgia last year but after doing some research have begun to wonder about celiac. I have many round pea sized, hard areas (cysts maybe?) in my outer thighs and upper arms. Does anyone else have this? thanks, paula

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I am not a doctor, and I assume that you have seen a doctor for this, but it sounds like it may be swollen lymph nodes. Have you been checked for a general infection? It doesn't appear to be a symptom specific to Celiac, but it could be a sign that your body is fighting off some sort of illness. I hope you are able to find out what is wrong. What are your other symptoms?

God bless,

Mariann

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Hi, I wish it were as simple as swolen lymph nodes, unfortunately there are way too many..some doctors think that people with fibromyalgia have phosphate deposits and that is what they are but I havent had them biopsied so I dont know for sure.

I have heart burn, fatigue, sensitivity to heat, muscle pain, spasms and weakness, depression, dry skin issues, B12 deficiency, chronic low white blood cells, constipation and diarhea, urgent bowel movements, chronic sinus infections, hypothyroid....I think that is it. Paula

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Paula,

I'm not a doctor, but it sounds to me like these lumps may be lipomas, which are benign (non-cancerous) tumors composed of fat cells. I'm not sure how they can be treated. You may want to discuss this possibility with your doctor. It sounds like you are going through the wringer at the moment! I hope your doctor cooperates with testing you for celiac disease, and I hope that going gluten-free produces significant improvement in your various conditions. Good luck!

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I have one pea sized hard little bump under my skin near my wrist (like the kind that I think you're speaking of) and I think they are calcium blobs or something??? My mother has a bunch of them - If you find out what they are, please post the answer - my mother told me that they are normal (she asked her doctor about her own little bumps) - I thought I had cancer when I first saw/felt mine :lol:

I think they're nothing to worry about, but I don't know what causes them - and I'm only relying on secondhand information, so go and ask your doctor just to be safe!

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Paula,

I had one on my hip, that has gone away after cutting all the gluten out of my diet, and one very small one on the roof of my mouth. I kept picking at the one in my mouth, and when it started to go away it didn't disappear all the way. I think it built up scar tissue.

I thought I had fibromyalgia at first also. Most all my symptoms have gone away except the joint pain. I

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Would you review this on Find Me Gluten free?  You can  use the app or just go to it on line. If the restaurant isn't listed, there is a way to suggest it.  I have done that and it works.  Many of us look at that site/ app
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