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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Round Pebbles
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6 posts in this topic

Hi, I am new to this site ..I was diagnosed w/fibromyalgia last year but after doing some research have begun to wonder about celiac. I have many round pea sized, hard areas (cysts maybe?) in my outer thighs and upper arms. Does anyone else have this? thanks, paula

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I am not a doctor, and I assume that you have seen a doctor for this, but it sounds like it may be swollen lymph nodes. Have you been checked for a general infection? It doesn't appear to be a symptom specific to Celiac, but it could be a sign that your body is fighting off some sort of illness. I hope you are able to find out what is wrong. What are your other symptoms?

God bless,

Mariann

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Hi, I wish it were as simple as swolen lymph nodes, unfortunately there are way too many..some doctors think that people with fibromyalgia have phosphate deposits and that is what they are but I havent had them biopsied so I dont know for sure.

I have heart burn, fatigue, sensitivity to heat, muscle pain, spasms and weakness, depression, dry skin issues, B12 deficiency, chronic low white blood cells, constipation and diarhea, urgent bowel movements, chronic sinus infections, hypothyroid....I think that is it. Paula

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Paula,

I'm not a doctor, but it sounds to me like these lumps may be lipomas, which are benign (non-cancerous) tumors composed of fat cells. I'm not sure how they can be treated. You may want to discuss this possibility with your doctor. It sounds like you are going through the wringer at the moment! I hope your doctor cooperates with testing you for celiac disease, and I hope that going gluten-free produces significant improvement in your various conditions. Good luck!

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I have one pea sized hard little bump under my skin near my wrist (like the kind that I think you're speaking of) and I think they are calcium blobs or something??? My mother has a bunch of them - If you find out what they are, please post the answer - my mother told me that they are normal (she asked her doctor about her own little bumps) - I thought I had cancer when I first saw/felt mine :lol:

I think they're nothing to worry about, but I don't know what causes them - and I'm only relying on secondhand information, so go and ask your doctor just to be safe!

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Paula,

I had one on my hip, that has gone away after cutting all the gluten out of my diet, and one very small one on the roof of my mouth. I kept picking at the one in my mouth, and when it started to go away it didn't disappear all the way. I think it built up scar tissue.

I thought I had fibromyalgia at first also. Most all my symptoms have gone away except the joint pain. I

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    • 3 months gluten-free still feeling cramps
      Glad to help!   Never stop advocating for your health.  Be patient (that's the really hard part), but it is possible to feel well and recover from celiac disease.  Of course, you'll always have to avoid gluten as if it were rat poisoning, but there are worst things to worry about!    It is nice to have a resource like Celiac.com.  It is anonymous, so you don't have to be embarrassed about asking what you may think are dumb questions.   Hang in there!  
    • Ghirardelli Chocolate Chips
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    • Ghirardelli Chocolate Chips
      They seem to be good about saying things may contain wheat when their products are made on shared equipment, for example their ground chocolate which I no longer use.   This is the reply I got a year ago (March 2015) when asking about their 60% cacao chips. "Dear Consumer, There is no wheat in our 60% chips and no wheat in our chips facility, as such, no wheat is run on the same line as any of our chips. Sincerely, Consumer Affairs Response Team"  
    • 3 months gluten-free still feeling cramps
      Thank you so much for the info, I did replace all my cooking wares and I did just recently stop dairy (about 3 weeks ago). I guess I have to keep it going, thank you once again, this give me more courage to continue my quest in feeling better.
    • Ghirardelli Chocolate Chips
      Hey guys,  I emailed Ghirardelli to ask about their updated allergen information because I had heard that people stopped recommending most of their products. I was specifically asking about their chocolate chips because my understanding is that they are free of gluten and not made on the same lines as that one bar/square that contains barley. This is what I received back:
      "Thank you for contacting Ghirardelli Chocolate Company.  We appreciate your interest in finding out about the ingredients in our products and your interest in a gluten free product.

      At this time we do not offer any "gluten free" products, but appreciate your interest in seeing whether Ghirardelli offers one.  Our products are not certified as being gluten free. FDA requires products to be tested to confirm that gluten level is below 20ppm. Currently, Ghirardelli products have not been tested to this requirement and therefore, we do not make any gluten free claims for our products. Please reference the ingredient information, on our packaging for any Ghirardelli product that you are interested in, to determine if it is suitable for you.

      Please know you are a valued consumer and we do appreciate your interest in our products.

      Sincerely,

      Consumer Affairs Response Team"   I asked them to please clarify - are your products testing over 20ppm? Or you don't test them at all? I also asked about the lines that the chocolate chips are made on because the ingredients do not indicated any problems. The customer service rep sent me the exact same message back with one of the lines underlined. I emailed again, and they don't seem to want to disclose any more information.   Has anyone else had any luck talking with them lately? Insights on the chocolate chips?
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