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Permanent Celiac Cure Upcoming!
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GREAT NEWS!!

http://news.yahoo.com/s/ap/stem_cells

http://sciencenow.sciencemag.org/cgi/content/full/2005/519/1

http://www.npr.org/templates/story/story.php?storyId=4659796

http://english.chosun.com/w21data/html/new...0505200018.html

you can also read the related articles at above article.

I am a south korean celiac disease.

At Seoul, Dr. Hwang Wook Seok said that he can cure the Lougehrig disease first.

I saw the television which showed what their team did....

AMAZING! Permanent Cure for diabetes also possible! YEAH also CELIAC!!

I don't expect any pill can cure our celiac disease permanetly.

Even temporary cure will take more than ten years.

But NOW we have hope!!

He said he will foucs on immune system related disease first.

YEAH, celiac is immune related disease.

He said immune related diseases are the most easy for him to cure among all the diseases.

He and his research team achieved the progress which everyone expected at least a decade. LOOK he did in a year!!!

Probably in 10 years OR sooner, OH GOD I can be cured permanetly!!

At least I have hope now.

My english is not that good and so I can't explain exactly how he can cure immune-related diseases, but he said something like replacing cells.

Because celiac disease is very uncommon disease in South Korea, Dr.Hwang didn't include celiac disease in his work list yet.

Please URGE him to include celiac disease in his work list!!

hwangws@snu.ac.kr

Send email to above email address(Dr.Hwang) and ask to include Celiac Disease in his work list. Lougehrig disease is first, and probably diabets second, and celiac disease should be third!!

If you want to be cured in 10 years, send emails to him!!

REQUEST and ASK. I'd like to be cured!!

Don't be skeptical! Lougehrig patients here expect cure in a few years!!

WHY NOT CELIAC? Unfortunately celiac disease is very uncommon and so he may not feel need of curing celiac disease. WE have to ask and request!!!

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Hello there, welcome to this message board.

I don't know, what to think about this news. But now I know at least, that asians can get celiac disease, too. Because I had an asian friend before, who's daughter had problems with wheat. But she told me, that her doctor said to her, that asians can't get celiac disease. Wow!

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hello :)

It makes me frustrated that there are few celiac disease here.

And thus I can't get any help from doctors and can't get any info from celiac disease patients.

celiac disease has destroyed my life but I have strong belief that I can be cured someday in my life.

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Anyone can get celiac disease. Though it's generally thought to be primarily in Europeans, the highest rate of celiac is actually in certain areas of Africa. Asians are not immune from it.

There will eventually be something for celiacs, but no time soon. Dr. Green is the undisputed celiac expert and has been researching for many years on a $500,000 annual budget...there are currently many different ways they're trying to find that could help celiacs cope with celiac disease. They're hoping to find ways to better prevent celiac disease or make that "miracle pill" that negates the effect of gluten on the body.

Don't expect anything too soon; Dr. Green predicts maybe 10 years before a pill to deal with accidental ingestion of gluten, so a cure would be a LONG time in coming about.

He said he will foucs on immune system related disease first.

YEAH, celiac is immune related disease.

He said immune related diseases are the most easy for him to cure among all the diseases.

Hmm...autoimmune diseases easy....then why are there multiple major celiac centers in the United States, the largest of which with Columbia University that have been unsuccessful? celiac disease will not be cured in one year...

Perhaps a cynical approach to all this, but I've gotten excited before in vain.

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the links are particularly pointing to the success of new methods for developing viable stem cells lines much more easily than in the past. stem cell treatment is generally aimed at making modifications to a disease state at the genetic level, so auto-immune conditions are going to be chemically among the easiest to address in this fashion, because of the limited range of proteins that need to be addressed. other conditions are not as well constrained, chemically, as autoimmune ones. that's the only reason for that sort of statement.

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There's an elephant in the room here. We are talking about stem cell research.

That means there will be a great deal of controversy if this is the way a "cure" comes about. I personally am hopeful that some of the other research provides an equally useful result without the moral issues involved with stem cells.

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I guess that depends upon how you define "cure". If a shot of stem cells means that I now get to eat Twinkies then no thanks, I don't want to be cured. For me a gluten free diet has "cured" me. I went from 250lbs to 170lbs when I went gluten-free. I can now exercise, finish school and hundreds of other things I could only dream about before.

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I personally am a little uncomfortable with people "playing God." I think it's asking for disaster. :blink:

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Donna, there are reportedly ethically produced stem cells.

However -

1.The immune system is about (a major component of) how human beings interact with and experience the world. I don't want my experience changed. Diversity of experience was given us for a reason.

2.I hope this is not being/going to be used as an excuse not to maintain economic and ecological diversity.

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Yes, I just read an article this week on adult stem cell research and how successful it has been. No issues there.

This board is one place where we must all agree to disagree at times about most anything other than the basic celiac disease issues. No way are we all going to have the same thoughts about everything. At least we are able to openly "talk" about it all. There are places in this world where such legitimate discussions would be taboo.

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For those who equate stem cell with aborted fetuses - PLEASE READ ON. That is not what stem cell research or medicine is about.

Stem cells are derived from many sources, including cord cell blood after a baby is born. These are precious cells that can change the lives of thousands on this planet - right now.

Consider the argument of playing God. If a person decides it is okay to treat some diseases and not others, that person is indeed playing God. Every time someone has a heart attack and is resuscitated, are we playing God? Does that mean we let someone die who may just need a pacemaker? Every time a peanut allergic child is exposed and is given an epi pen, are we playing God by saving that child's life? Every time someone is stung by a bee and given treatment, are we playing God?

If you are hit by a car tomorrow, and paralyzed from the waist down, but they can use stem cells to regenerate the damaged nerves, would you say no? What if you were paralyzed from the neck down?

It's easy to play God when it's not you or your children who could be cured of a life-threatening illness, or paralysis, or in my son

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I too have to wonder exactly how do we decide what is and isn't "playing god." Many currently accepted procedures would have been seen as playing god just 50 years ago. How does any individual know whether stem cell research is playing god or yet another tool god has given us to improve our lives?

richard

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celiac disease, Parkinsons, a couple of others...this extended family has them all. If it came down to cure with embryonic stem cells or remain ill, we have discussed it and made the choice to remain ill. Any other options available including other forms of stem cell research are open for us. This is a personal moral choice and does not imply than anyone else must make the same one.

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This is a really big issue for me. My boyfriend was in a car accident 14 years ago and was paralyzed from the chest down. He also has limited use of his hands. Before his accident, he was a serious athlete - competing in mogul skiing, biked 25 miles/day, basketball, swimming, etc. He went from being one of the most active people out there to someone who has no choice but to sit in a wheelchair all day. The ramifications of his paralysis continue to amaze me. We have been together for about 13 months now - but every day I see something new that he has to find a way to deal with.

For *me* - beyond the hope for celiac disease - stem cell research holds amazing promise. I was in a motorcycle accident about 14 years ago (nope, I didn't know my boyfriend until just a year ago!) and it was really bad. I was in a coma for a week, had vast gashes & road rash all over my body, broke a rib, broke a collarbone, broke my nose in 5 places, broke the bone underneath my eye, had my sinuses explode (I didn't even know that could happen!), the upper right side of my lip was torn off, my three front teeth were broken, my lungs collapsed, broken thumb, fractured wrist, fractured ankle, all the skin was torn off my right knee and my left knee and shin, and probably some other things that I'll think of after I post this reply ;) Five plastic surgeries and many years later, I am feeling much better ;) But - I experienced a "traumatic brain injury" and that still haunts me. Because of the brain injury - I see double when I look down, have really funky depth perception, and have been significantly umm... "slowed down" when it comes to intellectual tasks. Last year I had a "neuropsych evaluation" where they run lots of intelligence tests (8 hours worth!) and then determine the extent of your disability. My processing speed is now at the 18th percentile (meaning, 82% of people can process information faster than I can) :( Other notable problems include my "verbal episodic memory" (how well I can remember stories) - after being told a story once, what I remembered (retained information) was at the 5.5 percentile. My learning rate is at the 12.9 percentile. My visual memory skills (after a "long" delay - a few hours, actually) score was at the 2.3 percentile. (I'll let you do the calculations in your head of how much of the population can think faster than I can - I don't want to think about it :( ) There are other things I could tell you but it would make for a long post ;) But - clinically speaking, I am "impaired."

This really sucks because I used to be extremely intelligent! I am lucky because my IQ is high enough (118) that I've been able to not appear disabled. But I am, and I hate remembering what I was capable of and comparing it to now. It takes me sooooo much longer to learn & store information with this injured brain of mine and I would absolutely love to have the intellectual capacity that I used to have. There is no medication that can help me. There is no surgery that can help me. If I am ever to regain what I've lost - it will be through stem cell research.

My boyfriend and I went to a lecture at the University of Utah (by Orrin Hatch) and he has a very "ethical" plan for obtaining stem cells. If you have any questions about stem cells, the University of Utah has a great little site: http://gslc.genetics.utah.edu/units/stemcells/ - Please check it out.

We are obviously huge proponents of stem cell research and would love to have other people see that there is so much promise for giving full lives to people who suffer tremendously every day - like those with paralysis, or burn victims, or people with chronic pain (from a multitude of illnesses). The people who argue that it is "playing God" and disregarding the value of life in embryonic cells ... maybe they should consider the value of life for people who are already living.

- Michelle

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Oh wow... :o With all that you've been going through, you have a terrific attitude and sense of humor...keep it up ;):(

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Ethics here in S.Korea is apparently to cure the dying and the suffering.

For me, it's that simple.

You may think what I said above as far-future-thing.

But I saw TV yesterday and shocked enough to believe it's not that far from now.

There are some dogs which can't move beneath their waists.

After stell cell treatment, all the dogs could walk in 5 months.

In 10 months they run as if they are 'normal'.

This is not miracle, but 'science'.

This is not done by God, but by the scientists who study and work 18 hours a day without any holiday in a year.

It was recorded last year and the technology have progressed more.

Today I got the news that the treatment test with the monkeys will begin in July.

What next? needless to say, human.

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I agree with the post that distinguished the difference between stem cells from an embryonic source, or from another source. I am against embryonic stem cell research for reasons that deal with my relationship with God and faith ~ this is not the place to go into ALL the issues with stem cell research... but just wanted to add my 2 cents! IF the stem cells were NOT from an embryonic source, then that is another story. I am more than happy to keep on a gluten-free diet... or wait for God to cure me!! :D;)

P.S. I always tell people that in heaven I will be the person behind the stack of doughnuts!! :rolleyes:

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I support stem cell research but totally understand that we all get to make our own choices about what is "right" and that there are people who don't think stem cell research is. However... I think a lot of people don't totally understand it or where it comes from (a variety of sources). My boyfriend was against it but hadn't really read much about it, just what he got from the mainstream media.

I asked him to look into it further... I didn't even send him links to read because I felt that would be weighing the issue in my favor, I just asked him please to do more research before he really decided. He did and he was shocked at how much different it is then he thought. He's now in favor of certain sorts of stem research. I really hope everyone does some serious homework before they decide about such an important and far reaching issue.

I too have a family member that could be helped perhaps by stem cell discoveries and I'd never be against something that could save his life. In our modern lives we play "god" every single day and its difficult to decide which god role is acceptable and which isn't. Many of the modern medical techniques that we use every single day in hospitals just 50 years ago would have been called playing god.

Personally, with issues like this (ones that could be considered "god" playing) I am almost always for them, because I don't have a direct line to god I truly don't really know what he wants, therefore, I feel its up to each individual to decide. Yes I'm sure I have my limits but they are pretty far reaching thats for sure... I may not choose to do every medical discovery or advancement we make, but I refuse to take that right away for you. You get to pick, I'm not putting my morality on anyone, its mine, you decide yours.

Just my opinion. Oh and to relate this to Celiac, personally if they came up with a stem cell cure for it, I'd be in line to get it.

Susan :)

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Regardless of where the stem cells come from I still wouldn't do it. I have been forced to change my life in so many ways and all for the better. Knowing that i can't eat certain things and get very ill if I do forces me to eat better foods and take better care of myself in general. To me the disease has really been a blessing in disguise. A quick fix just so I can eat things that I shouldn't be eating anyway just isn't the right way for me.

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Well that wouldn't be a huge issue for me... I never did eat junk (well on rare occasion) and thats what I still do, I've eaten healthy since I was young and that's how I like to eat so for me being able to be "cured" of Celiac would just allow me more freedom. I travel extensively and its very hard to get food on the run and in some of the areas I travel to that is gluten-free.

On friday I was stuck in Providence, RI airport for 7 hours... my flight was delayed due to weather and for some reason half the eating places were closed in the terminal (its a small airport) and there was nothing for me to eat there... I was lucky that I had a few health bars with me to munch on.

Life would just be easier to be non-Celiac. However I don't think if I could eat pizza or bread that I'd go out and eat them every day. I eat them now, very occasionaly, as a Celiac (gluten-free pizza and bread of course) and thats what I did before.

Susan

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:)

The issue absolutely isn't: stem cell or no stem cell.

The Utah pages were carefully worded to sidestep the real ethics, as is most TV, newspapers, etc.

One is given three examples of actual applications, all rather like mini-transplants: provided the donor is witting and willing and is left with more than enough of the tissues concerned that is ethical.

Umbilical tissues are mentioned as an actual source, also ethical.

Then fetal and embryonic cells (both are the same, unborn young people) are introduced into the debate, apparently in connection with an as yet unknown future, without mentioning this is human experimentation without consent.

If we need better nerves, kidneys, blood, we can develop the relevant research with ethically produced, i.e adult and umbilical cells and I understand this is already being done in a number of locations.

Our Korean friend may or may not have wished to imply anything, but was mentioning some info that has come on the television there (in the way it was presented on TV) in the light of not coping very well with celiac disease as yet.

Hence the issue is: ethical or non-ethical stem cell research, and the Utah pages like other sources, appear to seek to blur that.

celiac777, what this condition is really about is what we're going to eat today and the next day, so I hope you can find lots of useful recipes in the recipe section here.

Korea is in the East, do you have rice there? (forgive me if that sounds patronising) Meat and veg.

As for feeling like you are in a small minority, I thank God for the message forum, it's only since I joined I feel less isolated. (Albeit estimates for how common this condition is in the UK range from 1 person in 80 to 1 in 30 - and is known to be 1 person in 16 in Western Sahara - we just don't meet and talk about it enough)

(I don't watch the telly, it only used to make me worry)

When you make useful practical discoveries, let us know by posting them in the 'Asia' section of the forum.

People feel the way you do all over the world, run a "search" throughout all the sections of the forum on topics of interest to you but I particularly recommend the recipe pages.

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I'm new here but not new to the disease..only recently did I realize that I have had a wheat/gluten intolerance for the last 56 years..I was convinced that this world was trying to deliberately poison me with every meal I ate and doubling over from all of them..Two bowel obstruction surguries and scare tissue to add to the problem..It is good to find out that I can drink water now and not feel discomfort..

However, the focus of this thread is not on my particular condition but the possible cure..

Ever think that just maybe we don't have a disease at all? Perhaps we are like coal miner's canaries, sending out a warning to the rest of the species.

For four million years this humans lived as hunters/gatherers and never consumed any wheat or gluten. When the Neolithic Revolution came along, the Khong San tribes in Africa rebelled against it, claiming that farming would make them enemies with elephants and giraffes who they hold dearly as friends..They still reject any agricultural products to this day. Their women only menstrate 9 times in a lifetime and they suffer none of our brain or intestinal diseases..They don't overpopulate and the life expectancy is as long as any.

While I don't have plans of moving to that part of the world, we should take note that nothing might be wrong with us...Our bodies just refuse to digest poison properly like all those so-called "lucky" ones out there..

Medicine tells us we have I.B.S. I think that the last 2 letters describe what many here feel they were told..I fully recognize that their training is inadequate, but right now I need to blow off a little steam..I've never known what it was like to relax my gut or walk down the street without pain..I lucked out like many here have..

Yet, I am grateful in a way to this condition...it gave me the self discipline and perserverance and patience and the ability not to fear death or being alone with one's thoughts that so many others seem to have...

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Canaries in a coal mine, makes sense to me. Just today I had a coworker tell me his adult son had been very ill for quite some time. He told his son about my condition and his son got tested for celiac and tested positive. Every since I turned my health and life around by going gluten-free it is starting to rub off on people around me. a number of them have quit eating wheat or greatly reduced their intake and they all say they feel better and have lost weight. It will take time but if we continue to lead by example many others will see the light.

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Blueshift & Ianm,

I think both of you have made excellent points. Just the other day I started to wonder, "Why do they call this a disease? Maybe it's just that our bodies are never meant to have gluten. Our bodies can be well without it - so why do they act like their is something "wrong" with our bodies?"

In the minute amount of time that I've been gluten free I have noticed that I am eating so much better than I ever did before. Because gluten so often partners with sugar in processed foods, I am eating so much less of the unhealthy foods. It is great! I am actually a bit happy that I have this because I have never been able to show much self-control in diets, but now it's no longer an option - and I am "forced" to eat healthy.

This is one of those blessings in disguise for me.

The other night in my journal I wrote:

"I have had this my whole life so I don't know what it's like to *not* be sick. I wonder who I am... deep down, underneath this autoimmune disorder. I wonder if I'm an incredibly cheerful girl who is full of energy and laughter. I wonder if I am terribly clever - or if I have a clear mind - or if I am an athlete."

Now that I know what my body needs - and what harms it - I know how to create health for myself.

I wonder who I will become.

- Michelle :wub:

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