Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Permanent Celiac Cure Upcoming!
0

24 posts in this topic

GREAT NEWS!!

http://news.yahoo.com/s/ap/stem_cells

http://sciencenow.sciencemag.org/cgi/content/full/2005/519/1

http://www.npr.org/templates/story/story.php?storyId=4659796

http://english.chosun.com/w21data/html/new...0505200018.html

you can also read the related articles at above article.

I am a south korean celiac disease.

At Seoul, Dr. Hwang Wook Seok said that he can cure the Lougehrig disease first.

I saw the television which showed what their team did....

AMAZING! Permanent Cure for diabetes also possible! YEAH also CELIAC!!

I don't expect any pill can cure our celiac disease permanetly.

Even temporary cure will take more than ten years.

But NOW we have hope!!

He said he will foucs on immune system related disease first.

YEAH, celiac is immune related disease.

He said immune related diseases are the most easy for him to cure among all the diseases.

He and his research team achieved the progress which everyone expected at least a decade. LOOK he did in a year!!!

Probably in 10 years OR sooner, OH GOD I can be cured permanetly!!

At least I have hope now.

My english is not that good and so I can't explain exactly how he can cure immune-related diseases, but he said something like replacing cells.

Because celiac disease is very uncommon disease in South Korea, Dr.Hwang didn't include celiac disease in his work list yet.

Please URGE him to include celiac disease in his work list!!

hwangws@snu.ac.kr

Send email to above email address(Dr.Hwang) and ask to include Celiac Disease in his work list. Lougehrig disease is first, and probably diabets second, and celiac disease should be third!!

If you want to be cured in 10 years, send emails to him!!

REQUEST and ASK. I'd like to be cured!!

Don't be skeptical! Lougehrig patients here expect cure in a few years!!

WHY NOT CELIAC? Unfortunately celiac disease is very uncommon and so he may not feel need of curing celiac disease. WE have to ask and request!!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hello there, welcome to this message board.

I don't know, what to think about this news. But now I know at least, that asians can get celiac disease, too. Because I had an asian friend before, who's daughter had problems with wheat. But she told me, that her doctor said to her, that asians can't get celiac disease. Wow!

0

Share this post


Link to post
Share on other sites

hello :)

It makes me frustrated that there are few celiac disease here.

And thus I can't get any help from doctors and can't get any info from celiac disease patients.

celiac disease has destroyed my life but I have strong belief that I can be cured someday in my life.

0

Share this post


Link to post
Share on other sites

Anyone can get celiac disease. Though it's generally thought to be primarily in Europeans, the highest rate of celiac is actually in certain areas of Africa. Asians are not immune from it.

There will eventually be something for celiacs, but no time soon. Dr. Green is the undisputed celiac expert and has been researching for many years on a $500,000 annual budget...there are currently many different ways they're trying to find that could help celiacs cope with celiac disease. They're hoping to find ways to better prevent celiac disease or make that "miracle pill" that negates the effect of gluten on the body.

Don't expect anything too soon; Dr. Green predicts maybe 10 years before a pill to deal with accidental ingestion of gluten, so a cure would be a LONG time in coming about.

He said he will foucs on immune system related disease first.

YEAH, celiac is immune related disease.

He said immune related diseases are the most easy for him to cure among all the diseases.

Hmm...autoimmune diseases easy....then why are there multiple major celiac centers in the United States, the largest of which with Columbia University that have been unsuccessful? celiac disease will not be cured in one year...

Perhaps a cynical approach to all this, but I've gotten excited before in vain.

0

Share this post


Link to post
Share on other sites

the links are particularly pointing to the success of new methods for developing viable stem cells lines much more easily than in the past. stem cell treatment is generally aimed at making modifications to a disease state at the genetic level, so auto-immune conditions are going to be chemically among the easiest to address in this fashion, because of the limited range of proteins that need to be addressed. other conditions are not as well constrained, chemically, as autoimmune ones. that's the only reason for that sort of statement.

0

Share this post


Link to post
Share on other sites




There's an elephant in the room here. We are talking about stem cell research.

That means there will be a great deal of controversy if this is the way a "cure" comes about. I personally am hopeful that some of the other research provides an equally useful result without the moral issues involved with stem cells.

0

Share this post


Link to post
Share on other sites

I guess that depends upon how you define "cure". If a shot of stem cells means that I now get to eat Twinkies then no thanks, I don't want to be cured. For me a gluten free diet has "cured" me. I went from 250lbs to 170lbs when I went gluten-free. I can now exercise, finish school and hundreds of other things I could only dream about before.

0

Share this post


Link to post
Share on other sites

I personally am a little uncomfortable with people "playing God." I think it's asking for disaster. :blink:

0

Share this post


Link to post
Share on other sites

Donna, there are reportedly ethically produced stem cells.

However -

1.The immune system is about (a major component of) how human beings interact with and experience the world. I don't want my experience changed. Diversity of experience was given us for a reason.

2.I hope this is not being/going to be used as an excuse not to maintain economic and ecological diversity.

0

Share this post


Link to post
Share on other sites

Yes, I just read an article this week on adult stem cell research and how successful it has been. No issues there.

This board is one place where we must all agree to disagree at times about most anything other than the basic celiac disease issues. No way are we all going to have the same thoughts about everything. At least we are able to openly "talk" about it all. There are places in this world where such legitimate discussions would be taboo.

0

Share this post


Link to post
Share on other sites

For those who equate stem cell with aborted fetuses - PLEASE READ ON. That is not what stem cell research or medicine is about.

Stem cells are derived from many sources, including cord cell blood after a baby is born. These are precious cells that can change the lives of thousands on this planet - right now.

Consider the argument of playing God. If a person decides it is okay to treat some diseases and not others, that person is indeed playing God. Every time someone has a heart attack and is resuscitated, are we playing God? Does that mean we let someone die who may just need a pacemaker? Every time a peanut allergic child is exposed and is given an epi pen, are we playing God by saving that child's life? Every time someone is stung by a bee and given treatment, are we playing God?

If you are hit by a car tomorrow, and paralyzed from the waist down, but they can use stem cells to regenerate the damaged nerves, would you say no? What if you were paralyzed from the neck down?

It's easy to play God when it's not you or your children who could be cured of a life-threatening illness, or paralysis, or in my son

0

Share this post


Link to post
Share on other sites

I too have to wonder exactly how do we decide what is and isn't "playing god." Many currently accepted procedures would have been seen as playing god just 50 years ago. How does any individual know whether stem cell research is playing god or yet another tool god has given us to improve our lives?

richard

0

Share this post


Link to post
Share on other sites

celiac disease, Parkinsons, a couple of others...this extended family has them all. If it came down to cure with embryonic stem cells or remain ill, we have discussed it and made the choice to remain ill. Any other options available including other forms of stem cell research are open for us. This is a personal moral choice and does not imply than anyone else must make the same one.

0

Share this post


Link to post
Share on other sites

This is a really big issue for me. My boyfriend was in a car accident 14 years ago and was paralyzed from the chest down. He also has limited use of his hands. Before his accident, he was a serious athlete - competing in mogul skiing, biked 25 miles/day, basketball, swimming, etc. He went from being one of the most active people out there to someone who has no choice but to sit in a wheelchair all day. The ramifications of his paralysis continue to amaze me. We have been together for about 13 months now - but every day I see something new that he has to find a way to deal with.

For *me* - beyond the hope for celiac disease - stem cell research holds amazing promise. I was in a motorcycle accident about 14 years ago (nope, I didn't know my boyfriend until just a year ago!) and it was really bad. I was in a coma for a week, had vast gashes & road rash all over my body, broke a rib, broke a collarbone, broke my nose in 5 places, broke the bone underneath my eye, had my sinuses explode (I didn't even know that could happen!), the upper right side of my lip was torn off, my three front teeth were broken, my lungs collapsed, broken thumb, fractured wrist, fractured ankle, all the skin was torn off my right knee and my left knee and shin, and probably some other things that I'll think of after I post this reply ;) Five plastic surgeries and many years later, I am feeling much better ;) But - I experienced a "traumatic brain injury" and that still haunts me. Because of the brain injury - I see double when I look down, have really funky depth perception, and have been significantly umm... "slowed down" when it comes to intellectual tasks. Last year I had a "neuropsych evaluation" where they run lots of intelligence tests (8 hours worth!) and then determine the extent of your disability. My processing speed is now at the 18th percentile (meaning, 82% of people can process information faster than I can) :( Other notable problems include my "verbal episodic memory" (how well I can remember stories) - after being told a story once, what I remembered (retained information) was at the 5.5 percentile. My learning rate is at the 12.9 percentile. My visual memory skills (after a "long" delay - a few hours, actually) score was at the 2.3 percentile. (I'll let you do the calculations in your head of how much of the population can think faster than I can - I don't want to think about it :( ) There are other things I could tell you but it would make for a long post ;) But - clinically speaking, I am "impaired."

This really sucks because I used to be extremely intelligent! I am lucky because my IQ is high enough (118) that I've been able to not appear disabled. But I am, and I hate remembering what I was capable of and comparing it to now. It takes me sooooo much longer to learn & store information with this injured brain of mine and I would absolutely love to have the intellectual capacity that I used to have. There is no medication that can help me. There is no surgery that can help me. If I am ever to regain what I've lost - it will be through stem cell research.

My boyfriend and I went to a lecture at the University of Utah (by Orrin Hatch) and he has a very "ethical" plan for obtaining stem cells. If you have any questions about stem cells, the University of Utah has a great little site: http://gslc.genetics.utah.edu/units/stemcells/ - Please check it out.

We are obviously huge proponents of stem cell research and would love to have other people see that there is so much promise for giving full lives to people who suffer tremendously every day - like those with paralysis, or burn victims, or people with chronic pain (from a multitude of illnesses). The people who argue that it is "playing God" and disregarding the value of life in embryonic cells ... maybe they should consider the value of life for people who are already living.

- Michelle

0

Share this post


Link to post
Share on other sites

Oh wow... :o With all that you've been going through, you have a terrific attitude and sense of humor...keep it up ;):(

0

Share this post


Link to post
Share on other sites

Ethics here in S.Korea is apparently to cure the dying and the suffering.

For me, it's that simple.

You may think what I said above as far-future-thing.

But I saw TV yesterday and shocked enough to believe it's not that far from now.

There are some dogs which can't move beneath their waists.

After stell cell treatment, all the dogs could walk in 5 months.

In 10 months they run as if they are 'normal'.

This is not miracle, but 'science'.

This is not done by God, but by the scientists who study and work 18 hours a day without any holiday in a year.

It was recorded last year and the technology have progressed more.

Today I got the news that the treatment test with the monkeys will begin in July.

What next? needless to say, human.

0

Share this post


Link to post
Share on other sites

I agree with the post that distinguished the difference between stem cells from an embryonic source, or from another source. I am against embryonic stem cell research for reasons that deal with my relationship with God and faith ~ this is not the place to go into ALL the issues with stem cell research... but just wanted to add my 2 cents! IF the stem cells were NOT from an embryonic source, then that is another story. I am more than happy to keep on a gluten-free diet... or wait for God to cure me!! :D;)

P.S. I always tell people that in heaven I will be the person behind the stack of doughnuts!! :rolleyes:

0

Share this post


Link to post
Share on other sites

I support stem cell research but totally understand that we all get to make our own choices about what is "right" and that there are people who don't think stem cell research is. However... I think a lot of people don't totally understand it or where it comes from (a variety of sources). My boyfriend was against it but hadn't really read much about it, just what he got from the mainstream media.

I asked him to look into it further... I didn't even send him links to read because I felt that would be weighing the issue in my favor, I just asked him please to do more research before he really decided. He did and he was shocked at how much different it is then he thought. He's now in favor of certain sorts of stem research. I really hope everyone does some serious homework before they decide about such an important and far reaching issue.

I too have a family member that could be helped perhaps by stem cell discoveries and I'd never be against something that could save his life. In our modern lives we play "god" every single day and its difficult to decide which god role is acceptable and which isn't. Many of the modern medical techniques that we use every single day in hospitals just 50 years ago would have been called playing god.

Personally, with issues like this (ones that could be considered "god" playing) I am almost always for them, because I don't have a direct line to god I truly don't really know what he wants, therefore, I feel its up to each individual to decide. Yes I'm sure I have my limits but they are pretty far reaching thats for sure... I may not choose to do every medical discovery or advancement we make, but I refuse to take that right away for you. You get to pick, I'm not putting my morality on anyone, its mine, you decide yours.

Just my opinion. Oh and to relate this to Celiac, personally if they came up with a stem cell cure for it, I'd be in line to get it.

Susan :)

0

Share this post


Link to post
Share on other sites

Regardless of where the stem cells come from I still wouldn't do it. I have been forced to change my life in so many ways and all for the better. Knowing that i can't eat certain things and get very ill if I do forces me to eat better foods and take better care of myself in general. To me the disease has really been a blessing in disguise. A quick fix just so I can eat things that I shouldn't be eating anyway just isn't the right way for me.

0

Share this post


Link to post
Share on other sites

Well that wouldn't be a huge issue for me... I never did eat junk (well on rare occasion) and thats what I still do, I've eaten healthy since I was young and that's how I like to eat so for me being able to be "cured" of Celiac would just allow me more freedom. I travel extensively and its very hard to get food on the run and in some of the areas I travel to that is gluten-free.

On friday I was stuck in Providence, RI airport for 7 hours... my flight was delayed due to weather and for some reason half the eating places were closed in the terminal (its a small airport) and there was nothing for me to eat there... I was lucky that I had a few health bars with me to munch on.

Life would just be easier to be non-Celiac. However I don't think if I could eat pizza or bread that I'd go out and eat them every day. I eat them now, very occasionaly, as a Celiac (gluten-free pizza and bread of course) and thats what I did before.

Susan

0

Share this post


Link to post
Share on other sites

:)

The issue absolutely isn't: stem cell or no stem cell.

The Utah pages were carefully worded to sidestep the real ethics, as is most TV, newspapers, etc.

One is given three examples of actual applications, all rather like mini-transplants: provided the donor is witting and willing and is left with more than enough of the tissues concerned that is ethical.

Umbilical tissues are mentioned as an actual source, also ethical.

Then fetal and embryonic cells (both are the same, unborn young people) are introduced into the debate, apparently in connection with an as yet unknown future, without mentioning this is human experimentation without consent.

If we need better nerves, kidneys, blood, we can develop the relevant research with ethically produced, i.e adult and umbilical cells and I understand this is already being done in a number of locations.

Our Korean friend may or may not have wished to imply anything, but was mentioning some info that has come on the television there (in the way it was presented on TV) in the light of not coping very well with celiac disease as yet.

Hence the issue is: ethical or non-ethical stem cell research, and the Utah pages like other sources, appear to seek to blur that.

celiac777, what this condition is really about is what we're going to eat today and the next day, so I hope you can find lots of useful recipes in the recipe section here.

Korea is in the East, do you have rice there? (forgive me if that sounds patronising) Meat and veg.

As for feeling like you are in a small minority, I thank God for the message forum, it's only since I joined I feel less isolated. (Albeit estimates for how common this condition is in the UK range from 1 person in 80 to 1 in 30 - and is known to be 1 person in 16 in Western Sahara - we just don't meet and talk about it enough)

(I don't watch the telly, it only used to make me worry)

When you make useful practical discoveries, let us know by posting them in the 'Asia' section of the forum.

People feel the way you do all over the world, run a "search" throughout all the sections of the forum on topics of interest to you but I particularly recommend the recipe pages.

0

Share this post


Link to post
Share on other sites

I'm new here but not new to the disease..only recently did I realize that I have had a wheat/gluten intolerance for the last 56 years..I was convinced that this world was trying to deliberately poison me with every meal I ate and doubling over from all of them..Two bowel obstruction surguries and scare tissue to add to the problem..It is good to find out that I can drink water now and not feel discomfort..

However, the focus of this thread is not on my particular condition but the possible cure..

Ever think that just maybe we don't have a disease at all? Perhaps we are like coal miner's canaries, sending out a warning to the rest of the species.

For four million years this humans lived as hunters/gatherers and never consumed any wheat or gluten. When the Neolithic Revolution came along, the Khong San tribes in Africa rebelled against it, claiming that farming would make them enemies with elephants and giraffes who they hold dearly as friends..They still reject any agricultural products to this day. Their women only menstrate 9 times in a lifetime and they suffer none of our brain or intestinal diseases..They don't overpopulate and the life expectancy is as long as any.

While I don't have plans of moving to that part of the world, we should take note that nothing might be wrong with us...Our bodies just refuse to digest poison properly like all those so-called "lucky" ones out there..

Medicine tells us we have I.B.S. I think that the last 2 letters describe what many here feel they were told..I fully recognize that their training is inadequate, but right now I need to blow off a little steam..I've never known what it was like to relax my gut or walk down the street without pain..I lucked out like many here have..

Yet, I am grateful in a way to this condition...it gave me the self discipline and perserverance and patience and the ability not to fear death or being alone with one's thoughts that so many others seem to have...

0

Share this post


Link to post
Share on other sites

Canaries in a coal mine, makes sense to me. Just today I had a coworker tell me his adult son had been very ill for quite some time. He told his son about my condition and his son got tested for celiac and tested positive. Every since I turned my health and life around by going gluten-free it is starting to rub off on people around me. a number of them have quit eating wheat or greatly reduced their intake and they all say they feel better and have lost weight. It will take time but if we continue to lead by example many others will see the light.

0

Share this post


Link to post
Share on other sites

Blueshift & Ianm,

I think both of you have made excellent points. Just the other day I started to wonder, "Why do they call this a disease? Maybe it's just that our bodies are never meant to have gluten. Our bodies can be well without it - so why do they act like their is something "wrong" with our bodies?"

In the minute amount of time that I've been gluten free I have noticed that I am eating so much better than I ever did before. Because gluten so often partners with sugar in processed foods, I am eating so much less of the unhealthy foods. It is great! I am actually a bit happy that I have this because I have never been able to show much self-control in diets, but now it's no longer an option - and I am "forced" to eat healthy.

This is one of those blessings in disguise for me.

The other night in my journal I wrote:

"I have had this my whole life so I don't know what it's like to *not* be sick. I wonder who I am... deep down, underneath this autoimmune disorder. I wonder if I'm an incredibly cheerful girl who is full of energy and laughter. I wonder if I am terribly clever - or if I have a clear mind - or if I am an athlete."

Now that I know what my body needs - and what harms it - I know how to create health for myself.

I wonder who I will become.

- Michelle :wub:

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,366
    • Total Posts
      917,513
  • Topics

  • Posts

    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      I don't worry about the same facility, but I check if it is on the same lines. I think it is usually a good idea to find out if things are made on shared lines. And if they are made on the same line as gluten-containing products how good is the cleaning in between? Chocolate is a good example of this. For example, I contacted a company whose chocolate I used to eat before being diagnosed and they outright told me they are not good about cleaning on shared lines and it is not safe for allergies or celiac. I have had this response from other companies as well (especially when it comes to chocolate sadly). I think this is why Godiva is not safe. Its just a good idea to check.
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      Wow you all have more balls than I do. I've been gluten free since 2007 and I'm still afraid of offending people. It gives me lots of troubles, really. I'm more like rockstarkate I guess...the "people pleasing" aspect.  I love how you all just have the flat out rule I Will Not Eat It Unless I or a Celiac Made it. (Or a trusted family member).  I still simper and grovel and cringe and apologetically turn things away.  People still put dishes in my face and say "This should be gluten free..."  and I have to awkwardly not eat it and then seem rude.  I've done the whole...checking the bottles thing too.  I do try to dart out of things more though now. I volunteered in other countries in recent years and I felt as vulnerable as all heck, having to rely on them to make food, as well as definitely feeling like I offended people who didn't get it at all. I was feeling brave when I signed up for those but after the second time I was like okay, the fear/anxiety/stress about the food is too much. I managed to dodge out of getting sick, and for the most part people humored me...but it was pretty difficult because I don't like offending people, especially other cultures, with them trying to be nice and make food for me...pretty sure I did offend people as well as annoy many others.  Anyway...no OP, you are not alone. For sure I have trust issues eating other people's food. They say they know but I do truly doubt they are as strict as I would be.   A few times I will still brave eating something...like some little mozzarella balls with vinegar...though, I did still look at the labels.  Someone had to give me a persuasive speech and show me all ingredients (just salt and pepper) after making me chicken wings once. I do tell people, basically, NOT to make me stuff. But they still do.  Another time a friend had worked really hard and was having a terrible time and offered me a burger patty when I arrived, assuring me it was gluten free. I knew I hadn't been there to watch whether she used the "bun spatula" on it or not...but I just didn't feel like giving her a fight about it since she was having a rough time and hosts like to feel they are feeding guests, blah blah. So I ate it. And got glutened. And wailed and gnashed my teeth haha. Lesson learned.  I need to stick to my guns more. I just always feel like I'm being too "difficult" as it is. But...sigh.  It is refreshing for me to read these empowered no BS responses though. You all remind me of where I'm coming from, and not that I'm just being some kind of high maintenance, rude, crazy person. You'd think after, what, nine years now, I wouldn't still be bothered by it...
    • Mashed potato soup during healing
      I was on pretty much a liquid diet for 8 months waiting for my nausea to go away completely. I mostly had mashed potato soup, 1/2 fat ice cream (mostly whey, not milk), chocolate drink (no added milk) and gummy vitamins. The soup tasted yummy and I'm still alive so I figured I'd share it for people not feeling well in the beginning. I've been noticing people with alot of trouble keeping food down in recent posts. I couldn't have milk or eggs, but the cheese in the recipe didn't bother me at all. Notice the lack of spices. Makes it easy on the stomach.   Mashed potato soup: Boiled yukon gold potatoes (5lb bag) 1 package cauliflower, steamed 4-6 slices of Land O'Lakes white American cheese 4 tablespoons butter salt 16 cups homemade chicken broth, salted   Chop steamed cauliflower into teensy bits (pureed is better). Put in mixer with butter, cheese and a potato or two. Blend while slowly adding potatoes. Keep whipping for a few minutes to insure the cauliflower and potatoes are not lumpy at all. Salt to taste.   Combine 1/2 cup mashed potatoes to 1 cup salted chicken broth. Mix with spoon until mashed potatoes have completely dissolved. Enjoy. Individual servings can be frozen.   Homemade chicken broth: makes 8 - 10 cups of broth   1 organic chicken (regular chickens are too big) 1 stalk celery 1 carrot 1 large bay leaf 1/2 package fresh thyme from the  herb section of the vegetables area   Put all ingredients in pressure cooker along with 1.5 liters water. Bring to pressure. Cook for 35 minutes. Separate broth from solids. Separate broth from fat. Add ridiculous quantities of salt until it tastes like soup. Sorry I use a salt grinder so I don't have precise salt quantities.    
    • I have kidney stones...spent last night at the ER
      Hey ArtG, I saw the urologist today...unfortunately for me they can still see my stones on an xray.  Sigh.  The largest is 3x6 in my right kidney.  He does not believe I can pass this one on my own.   All of my bloodwork came back fine.  Nothing alarming in the urinalysis either. His recommendations...keep drinking tons of water.  I had 4.2 liters of urine output when I tested.  Add in a fish oil supplement.  Decrease sodium intake.  Limit meat to 10 ounces per day.  Increase dietary calcium.   Work at lowering oxalate consumption...my urinary oxalate was 45.  They want it between 20 and 40.  But he gets people that are over 100 so mine is not all that high. 3 options...1. watch and wait.  Recheck in a few months to see if there is stone growth.  2. Shock wave lithotripsy.  3. Let it come out when it decides to and see what happens. I just don't know.  I hate the idea of being put under as they would do for the shock wave thing.  I've had too many surgeries already.  It scares me to be honest.  I also don't want to deal with another episode.   I don't know what I'll do.  We've got a vacation planned at the end of the month and I just want to go and enjoy that.  Not worry about kidney stones. I'm sorry to hear about your upcoming surgery...it really is always something!
    • celiac disease is psychosomatic
      I know what food products are. Probiotics was a recent example I saw on the news about things labeled gluten free that were not gluten free. So, supplement labels in addition to food labels.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,513
    • Most Online
      1,763

    Newest Member
    ajrosales
    Joined