Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

San Diego
0

5 posts in this topic

I am going on a road trip with some friends in a couple of weeks. We are going first going to be camping in Sun City California(for 2 days) then we will be going to San Diego for 3 days then Palm Springs. I am currently trying to find some good restaurants to eat or stores where I can find gluten free products and am curious if anyone has any tips for me? Thanks :)

ETA: We will also be going to Disneyland, on the website it says to call ahead of time to reserve a spot at a restaurant but the problem is I have no clue which one would be able to give me the best gluten free meal, and I'd rather not waste my money, which has happened much to often trying to eat out lately. Anyone had any experience with gluten free food in Disneyland??

0

Share this post


Link to post
Share on other sites


Ads by Google:

I rarely eat out because the risk is just too much for me. But, last December, I was pleasantly surprised when we went to Disneyland and Downtown Disney. At the Rainforest Cafe, the manager was familiar with Celiac and knowledgeable about gluten-free preparation. She had them prepare me a fantastic cheeseburger. This may not sound like much, but it was the first time that I had eaten out in three years! :lol:

So while you're at Disneyland, make sure you get to The Rainforest Cafe.

0

Share this post


Link to post
Share on other sites

I rarely eat out because the risk is just too much for me. But, last December, I was pleasantly surprised when we went to Disneyland and Downtown Disney. At the Rainforest Cafe, the manager was familiar with Celiac and knowledgeable about gluten-free preparation. She had them prepare me a fantastic cheeseburger. This may not sound like much, but it was the first time that I had eaten out in three years! :lol:

So while you're at Disneyland, make sure you get to The Rainforest Cafe.

Thank you SO much for the recommendation! I am glad to at least have one place in mind that I can go and eat while we are at disneyland. I don't really want to have to bring too many snacks with me, especially since we will be on rides all day, so that definitely simplifies things!

0

Share this post


Link to post
Share on other sites

I guess I don't need to worry about San Diego anymore! I just ran into this website!

http://www.glutenfreeinsd.com/index.html

Decided I should post it in case anyone else comes on here looking for info on Sand Diego. Most of the info for the restaurants was updated in March so you know you are getting accurate information! I am really excited to try out the gluten free bakery!

0

Share this post


Link to post
Share on other sites

They also have a Disneyland list of gluten free foods that you can find at Disneyland and where you can find them. Even a place with gluten free pizza and a place with gluten-free waffles.

Go here:

http://glutenfreeinsd.com/disneyland.html#Disney

And click on "click here" under disneyland. Says the list was only good until November of 09 but I'm sure it couldn't have changed much. And either way its still a good reference sheet.

I like how I post a question and then end up finding most of the answers myself. LOL. Oh well! I figured posting this info would help someone else out there who may be planning a similar trip!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,385
    • Total Posts
      920,613
  • Topics

  • Posts

    • Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,455
    • Most Online
      1,763

    Newest Member
    JLeigh
    Joined