Endomysial Vs. Transglutaminase Test
Posted 20 May 2005 - 10:38 AM
I have an appt on Tues to go over the lab and probe results and most likely will have another scope procedure for biopsies. What questions should I be asking? We took the new genetic test to rule her out and could not. She has not changed clothing size for over a year, he is 52 inches and 59 lbs.
Any guidance or comments are appreciated.
Posted 20 May 2005 - 02:07 PM
The tTG is extremely sensitive. This is from the book "Dangerous Grains" (my fav. book to quote )
"The tTG test usually identifies about 98% of those who have celiac disease, and it is a very specific test that can be used to rule out celiac disease in 95% of patients. This test appears to be superior to endomysium antibody testing, not only because it is less costly but also because it is a little better at identifying celiac disease and because interpretive bias is reduced by the use of computer scanning."
As for EMA Testing:
"This test is very sensitive, and it will identify 90% or more of those patients with flat intestinal walls, but some evidence suggests that it is less reliable for identifying cases with milder intestinal damage. ... However, a negative EMA blood test has limited value for excluding celiac disease. This test is also limited by the need for individual observation and evaluation of stained blood cells."
I hope that helps
Positive blood tests 4/29/05 (tTG & IgA)
*Osteoporosis (at 32!)
*Lifelong battle w/depression
*Dental enamel didn't form right when I was little (cavities cavities cavities)
*Neuropsych analysis lists all sorts of learning disabilities - which may be attributed to brain injury from an old accident or may be from celiac, who knows!
Had biopsy May 11th, 2005 - villi are FLAT!
gluten-free since May 11th
Posted 20 May 2005 - 02:10 PM
My daughter is 9 (almost 10) and has had problems pretty much since day one. I started getting sick in 2002 and after going the "traditional doctor" route and getting nowhere because all my tests/procedures came back normal I decided to get tested through Enterolab. When my test came back positive I decided to have my daughter tested too. I didn't want to put her through all the tests I went through, her test came back positive too. After going gluten-free she was like a new child, she didn't complain after eating, she wasn't grumpy all the time and seemed to have more energy.
My suggestion to you is, since your daughter's blood tests are positive I would put her on a gluten-free diet. I know some people swear by biopsies but I personally do not think they are necessary if labs are positive or if you improve on a gluten-free diet.
I wish you luck and hope your daughter feels better soon!
Posted 20 May 2005 - 07:13 PM
Here is a website to look at: http://www.cfpc.ca/c...0-may-cme-1.asp
Here is another concerning biopsy reliability.
Good luck and best wishes for your daughter's good health.
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