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How Long Before Improvement?


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4 replies to this topic

#1 concernedmamma

 
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Posted 06 April 2010 - 07:14 PM

Hello everyone!

How long were you gluten free before you saw improvement? We received confirmation of Celiac for my son (age 4.5) on March 25. We have been doing our best to be strictly gluten free since then. His main symptom is diarrhea and we have seen no improvement in this department whatsoever! One day he did have a somewhat 'normal' stool, only to be followed by some of the worst diarrhea that we have ever experienced!!

We are switching is multivitamin since the ever-so-not helpful company will not give me an answer whether or not it is gluten free. Other than that, I can't imagine where he would be getting gluten. I was hoping we would see some improvement over Spring break so I would have a bit of an idea if he was getting gluten at school.

Am I being too impatient or do you think we are getting cross contamination from somewhere?

Thanks for your help!

Kim
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Kim
Son1-lifelong diarrhea and generally unwell. Diagnosed March 2010 with positive blood work end endoscopy-finally feeling better August 2011
Son2-Diagnosed August2011 Bloodwork only.
Me-Positive bloodwork October 2011, Endoscopy booked November 15th.
Daughter1-no symptoms, negative bloodwork twice
Daugher 2- no symptoms, no bloodwork yet.

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#2 rachel_gf

 
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Posted 07 April 2010 - 10:31 AM

For me: mentally felt better within a week. Intestines felt better within 2-3 weeks. 2 months later: significantly improved. But my celiac tests are negative.

I think it depends on what other issues you have and how severe your damage is.

I tried to speed up my recovery by taking vitamin D, vitamin B complex, magnesium, and calcium.
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#3 pufffee

 
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Posted 07 April 2010 - 12:09 PM

Hello everyone!

How long were you gluten free before you saw improvement? We received confirmation of Celiac for my son (age 4.5) on March 25. We have been doing our best to be strictly gluten free since then. His main symptom is diarrhea and we have seen no improvement in this department whatsoever! One day he did have a somewhat 'normal' stool, only to be followed by some of the worst diarrhea that we have ever experienced!!

We are switching is multivitamin since the ever-so-not helpful company will not give me an answer whether or not it is gluten free. Other than that, I can't imagine where he would be getting gluten. I was hoping we would see some improvement over Spring break so I would have a bit of an idea if he was getting gluten at school.

Am I being too impatient or do you think we are getting cross contamination from somewhere?

Thanks for your help!

Kim


gluten-free for three weeks now and stools are on and off and far as substance. I mainly go once a day. I am confirmed celiac through blood and Endo. My issue is belly being constantly bloated and gurgling. That has yet to subside. Working on new strategies for that though like lowering lactose intake.
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#4 masterjen

 
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Posted 08 April 2010 - 06:33 AM

From what I have learned, children and adults often respond very differently during the recovery phase, in the sense that adults can take much longer to recover and are more likely to have more damage to their small intestines as well as other health complications (because they've been experiencing various symptoms for a much longer time before finally being diagnosed). I think it would not be valid to ask adults how long it took them to recover and use this as a guide to apply to your son. For what it's worth, I'm in my 6th week, and no where near recovered. But, having said that, I am in my 40s, and therefore have likely been experiencing symptoms of celiac for a very long time before I got so sick I finally sought medical help.
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Life throws us curve-balls sometimes, but if we didn't have challenges we would become too complacent and forget to respect the value of life itself.

#5 WheatChef

 
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Posted 08 April 2010 - 07:41 AM

If you saw symptoms get worse then you're on the right path! I know it sounds weird but a large number of people who go gluten free go through a withdrawal period while their body is adapting to a new non-poisonous environment. It varies from person to person but gluten can throw many different hormonal/regulatory systems off balance and they don't all immediately swap back to the "normal" levels when you remove the trigger.

That multivitamin sounds really suspect, if a company is giving you the run around on any of their ingredients then that is a company that is not safe for anyone to consume from. Try store brands, most major supermarket chains can provide you with a list of all of their gluten-free store brand items.
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Receiving a qualified diagnosis of Irritable Bowel Syndrome is as useful as a Psychiatrist giving you a diagnosis of "Doesn't Think Right".




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