Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Chest Pain Or Costochondritis?


  • Please log in to reply

14 replies to this topic

#1 nyctexangal

 
nyctexangal

    Community Member

  • Banned
  • PipPipPip
  • 35 posts
 

Posted 11 April 2010 - 04:27 PM

Hello amazing community! :D

I've had Costochondritis/pressure in my chest/burning in chest for 3 1/2 years. It hurts to breathe, lift anything, laugh, cough etc. Boooo. After 75 doctors, I finally began to keep a detailed journal and realized that my pain peaked after eating oils, fried foods, breads, diet sodas, meats, anything with fiber,etc..., and a wise doctor was able to lead me to my Celiac diagnoses...I'm SO thankful for this!! Finally a reason for all this pain, yay!!!

So I'm 7 weeks gluten free...and I'm still in a place where just about everything I eat, except bananas, increases my chest pain at this point...gag. But I'm hopeful this will change as time goes on. Has anyone else had chest pain as a Celiac symptom? :blink: Or do you get chest pain when you eat gluten?

Thanks so much in advance!!
  • 0
Daignosed Celiac -Feb 2010
Gluten Free
Dairy Free
Legume Free
Egg Free
Oil Free
Soy Free

Celiac.com Sponsor:

#2 Wolicki

 
Wolicki

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 948 posts
 

Posted 11 April 2010 - 04:52 PM

Yes. I had either costocondritis or pleurisy on and off for almost 10 years. It was debilitating. It went away within 2 days of going gluten free and <knock on wood> hasn't come back with glutening by accident.
If you're sure you're not getting gluten either thru cc or personal products, maybe it's a secondary intolerance giving you symptoms?
  • 0
Gluten free is not so bad! If you are new, hang it there, it gets easier!

#3 nyctexangal

 
nyctexangal

    Community Member

  • Banned
  • PipPipPip
  • 35 posts
 

Posted 11 April 2010 - 05:13 PM

Thanks so much for letting me know you have suffered from this too!! 10 years- Eek! That rocks that it went away. Gives me hope. :D

My pain has gotten a little better- about 25%, but it's still a part of my every breathe. Driving me bonkers. I definitely think I have quite a few other intolerance's that seem to increase the chest pain: oils, dairy, soy etc... is it normal to get "Celiac symptoms" from other intolerance's?

I'm praying that this chest pain ceases when my stomach starts to really heal. I just started on Kefir...took me a while to find the right pro biotic, hopefully this will help. As per the CC,I'm looking at everything I touch and eat...calling all the manufacturer's etc...but I'll keep digging...I could for sure be missing something...this newby still has a lot to learn.

...thanks so much! =)
  • 0
Daignosed Celiac -Feb 2010
Gluten Free
Dairy Free
Legume Free
Egg Free
Oil Free
Soy Free

#4 Wolicki

 
Wolicki

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 948 posts
 

Posted 11 April 2010 - 06:03 PM

Intolerance symptoms vary from person to person, but many here get gluten like symptoms. My main complaint with secondary intolerances were gas, bloating and heartburn. The only thing I could take prior to going gluten free to ease the chest pain was prednisone :blink: That's bad stuff. It would get so bad I couldn't stand it, so I would have to take the steroids, and the pain went away right away.
I think the most common intolerances for Celiacs are corn, soy, dairy, nightshade vegetables (tomatoes, potatoes, eggplant and peppers), nuts, eggs and some grains. You might try a very, very simple elimination diet to see if it helps.
Things to check: shampoo, conditioner, face wash, toothpaste, hand lotion, hair spray. prescription meds, OTC meds, and then of course the toaster, shared condiments, etc. If you have gluten eaters in your house, that could be the culprit.
Janie
  • 0
Gluten free is not so bad! If you are new, hang it there, it gets easier!

#5 Korwyn

 
Korwyn

    Don't forget your towel!

  • Advanced Members
  • PipPipPipPipPipPip
  • 602 posts
 

Posted 11 April 2010 - 06:50 PM

20 years I suffered from intermittent chest pain, starting when I was 19. I had all the classic symptoms of a heart attack, repeatedly. About 8 months before my diagnosis I had a complete stress test, radioactive dye injection with the gamma photographs, etc. All good. When I was 20 they put me on a Holter monitor for a weekend, the EKG came out perfectly normal. I had pain in my chest radiating up into my jaw and neck and down into my arm. Within a few weeks of going gluten-free it was gone completely and has never come back except for once when I got badly glutened.
  • 0
Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#6 nyctexangal

 
nyctexangal

    Community Member

  • Banned
  • PipPipPip
  • 35 posts
 

Posted 11 April 2010 - 07:05 PM

Janie,
Thanks for the tips! Yes, I live with a gluten hubby. lol. So glad you are pain free, gives me hope! Nice to know that others know what this pain is like. And they healed!

Don't Panic,
Thanks for sharing with me that your pain left you as well, hoping I follow the same trail! Yes, the fake heart attacks prior to diagnoses have sent me to the cardiologist and ER on a regular basis...boooo.

I'll go back to the drawing board and check all my products again.., maybe I am really missing something...
Thanks everyone!!! :D
Lauren
  • 0
Daignosed Celiac -Feb 2010
Gluten Free
Dairy Free
Legume Free
Egg Free
Oil Free
Soy Free

#7 seashele2

 
seashele2

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 89 posts
 

Posted 11 April 2010 - 07:12 PM

Hello,

My chest pain/abdominal pain/nausea/possible Costochondritis didn't start until I had been gluten-free for 4 years. In the last 2 years years they have done 2 cardio work-ups, 2 abdominal ultrasounds, and 1 abdominal CT scan with a second scheduled. They come up with nothing each time and I have suggested Costochondritis with no acknowledgment that it might be the problem. I have suggested a food intolerance that we've missed. I have asked to see a gastroenterologist too without success. I am sick and tired of being sick and tired. I hope going gluten-free works for you to relieve the chest pain and pressure though!

Michelle
Western Washington State
  • 0

#8 mushroom

 
mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts
 

Posted 11 April 2010 - 07:34 PM

Hello,

My chest pain/abdominal pain/nausea/possible Costochondritis didn't start until I had been gluten-free for 4 years. In the last 2 years years they have done 2 cardio work-ups, 2 abdominal ultrasounds, and 1 abdominal CT scan with a second scheduled. They come up with nothing each time and I have suggested Costochondritis with no acknowledgment that it might be the problem. I have suggested a food intolerance that we've missed. I have asked to see a gastroenterologist too without success. I am sick and tired of being sick and tired. I hope going gluten-free works for you to relieve the chest pain and pressure though!

Michelle
Western Washington State


I continued to have bloating and chest pain, difficulty breathing, pain in my arms and shoulders, erratic heart beats, etc., etc., up until a month ago. I had been putting two and two together and only coming up with three and a half until someone here posted about lectins and the sums finally added up. I eliminated almost all lectins (a lot of them I already didn't eat like soy, corn, nightshades) There are lectins in gluten, in soy, in dairy, nightshades, legumes, corn, peanuts. I can still eat dairy without problem, but have cut out all the rest and so far (crossing fingers) everything has been behaving pretty well. Google lectins and do some reading. If you have the keyhole(s) for the lectin key(s) they can do some nasty things to ya. :(
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#9 nyctexangal

 
nyctexangal

    Community Member

  • Banned
  • PipPipPip
  • 35 posts
 

Posted 11 April 2010 - 08:09 PM

Michelle,
I'm SO sorry you are walking through this too. I hate that. The pain is terrible. My heart so goes out to you. Hmmm...I am racking my brain to find out what we are missing that is causing this....AHHH!!!! :blink: ....which brings me to-

Mushroom,
Wow, I would NOT have thought of lectins...thank you so much for sharing that! I have been doing lots of research on legumes. But I will totally try lectins this week and see how it goes. I'm SO happy to hear of another Celiac who had this problem and was able to heal from this pain. Trying to figure this out is consuming my thoughts. I just haven't been able to figure out what else is causing this pain besides the Celiac...I'll head down the lectin train.

Everyone, all your info and thoughts are so great- thank you SO much! I am so open to learning anything I can.
Lauren
  • 0
Daignosed Celiac -Feb 2010
Gluten Free
Dairy Free
Legume Free
Egg Free
Oil Free
Soy Free

#10 gary'sgirl

 
gary'sgirl

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 266 posts
 

Posted 11 April 2010 - 09:37 PM

This is just a thought, but I had bad chest pain when I was having gallbladder attacks. One of my docs said that people often think they are having heart attacks when they have the chest pain with gall attacks. Another thing is my GI Dr. said he thought I could be having spasm from my reflux which sometimes goes away with gluten-free diet, but sometimes needs a bit of help.

Gallbladder problems and GERD/reflux are both associated with Celiac Disease.
  • 0

#11 Foraist89

 
Foraist89

    New Community Member

  • Members
  • Pip
  • 3 posts
 

Posted 06 September 2010 - 04:30 AM

Hello amazing community! :D

I've had Costochondritis/pressure in my chest/burning in chest for 3 1/2 years. It hurts to breathe, lift anything, laugh, cough etc. Boooo. After 75 doctors, I finally began to keep a detailed journal and realized that my pain peaked after eating oils, fried foods, breads, diet sodas, meats, anything with fiber,etc..., and a wise doctor was able to lead me to my Celiac diagnoses...I'm SO thankful for this!! Finally a reason for all this pain, yay!!!

So I'm 7 weeks gluten free...and I'm still in a place where just about everything I eat, except bananas, increases my chest pain at this point...gag. But I'm hopeful this will change as time goes on. Has anyone else had chest pain as a Celiac symptom? :blink: Or do you get chest pain when you eat gluten?

Thanks so much in advance!!


Hey,

I have had costo for almost as long.

I have recently started eating anti-inflamatory foods and avoiding inflamatory foods.

There are different foods that increase or decrease the inflammation in the body and i have been a lot better since cutting out as much inflammatory foods as possible.

The foods you mentioned that you react to are all inflamatory foods:

- oils (olive oil is ok, hydrogenatec oils and trans fats are bad - over heated oil creates trans fats)
- fried foods (the oil is inflammatory and so are potatoes)
- breads
- diet sodas (sugar is VERY inflammatory and fake sugar is apparently bad too)
- meats(some meats are inflammatory)

The main thing to avoid is sugar. sugar is very inflammatory in my experience and i get worse pain after eating sugary foods or drinks.

Green tea also really helps the pain as it is anti-inflamatory- like by the time u finish the cup the pain is reduced!

Other anti-inflamatory things:

- tumeric powder!
- ginger
- garlic and cumin (i think)
- pineapple!
- nuts n seeds
- water
- blue berries
- strawberries

Inflammatory things:
- sugar
- tomatoes
- potatoes
- fried foods
- some meats
- caffeine (coffee)
-

I signed up to this forum just so i could reply to your post so please try this stuff out! people cant stay on anti-inflamatory tablets for long and i have tried cortisone injections, ice, etc and this helps so just slowly change your diet and look up anti-inflamatory books and cookbooks on ebay eg. "the anti-inflammation diet and recipe book" by jessica k black N.D. explained this stuff to me + has recipes

If u dont try any of this just CUT OUT SUGAR! and drink green tea (liptons with lemon is nice)

Hope this helps!
  • 0

#12 dragon

 
dragon

    New Community Member

  • Advanced Members
  • Pip
  • 12 posts
 

Posted 06 September 2010 - 01:15 PM

i have this regularly had it all day in fact ant acids dont touch it anything seems to make it kick off
  • 0

#13 txplowgirl

 
txplowgirl

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 648 posts
 

Posted 06 September 2010 - 02:55 PM

I've had chest pains and problems breathing since I was 7. It wasn't until I got rid of everything from the gluten, dairy, soy and finally the nightshades that my asthma went away. That's when I finally started getting relief. I haven't had chest pain in almost 6 months now. It took almost a year for it to go away. This is also the first year since I was 7 that I haven't had asthmatic bronchitis. I used to get it at least twice a year.
Hang in there it does get bettr.
By the way I love your dragon. I'm a dragon lover and I collect dragons, also, have you read the Dragonriders of Pern series by Anne McCaffrey? They are fantastic, I have them all.
Anyway, I hope you get to feeling better soon.
  • 0

Lupus, Connective Tissue Disease with Fibro type symptoms, Anemia, Anxiety, Depression, RA, Rynauds Syndrome, Chronic Fatigue Syndrome, Erosive Gastritis, Osteoporosis, Degenerative Disc Disease, Scoliosis, Bulging discs in lower back and neck, Pinched Nerves.

 

Soy free, MSG free, mostly Dairy free. Endoscopy shows blunted Villi which dr states as gluten sensitivity, so goin back to being gluten free


#14 crimsonviolet

 
crimsonviolet

    Community Member

  • Advanced Members
  • PipPipPip
  • 63 posts
 

Posted 06 September 2010 - 07:50 PM

My costo started around the same time as my DH rash, which was shortly after my 2nd child was born. I never really connected the two until I started researching gluten just a few months ago. I've been close to pain free since eliminating gluten. One of my (many) signs of a glutening is chest pain or a foreboding tightness in my chest.
  • 0

#15 rcroney

 
rcroney

    New Community Member

  • Members
  • Pip
  • 1 posts
 

Posted 19 April 2012 - 07:21 PM

Hi! I am VERY new to this site and the whole gluten free world! I was just diagnosed intolerant, and am going to be checked by my GI next week for celiac. Yipes! i've been "off" gluten for about 3 weeks (i've had 3 cheat days already), and was curious if my costochondritis could be associated with this allergy. I'm 21 and have had this problem with chest pain for about 3 years now. When I was first diagnosed my doctor made it sound like it was something that went away after a few advil and some bengay, but it never did. After a while I noticed i could barely exercise, swim, jog, or even go up and down the stairs quickly without being out of breath. Now I am pretty young and certainly not overweight... I have a very active job and do yoga, but I don't work out all the time. Still, it seemed weird that I was becoming out of breath so quickly. Anyway, I'm very curious to see if this will go away after being off gluten for an extended period of time.

Thanks for all the posts of support... but I am scared to see how many food allergies are related to celiacs!


r
  • 0




2 user(s) are reading this topic

0 members, 2 guests, 0 anonymous users

Celiac.com Sponsors: