Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Increased Symptoms After Gf Diet
0

13 posts in this topic

I have decided to try the gluten-free diet (without having the biopsy done). Just sick and tired of being sick and tired!! Anyways, it will only be one week today and some of my symptoms have worsened.

My chronic constipation has now changed to D.!!, My joint swelling has flared up, the joint pain has increased, and my brain fog and fatigue up and down throughout the day. I woke up this morning with a huge canker sore in my mouth.

What gives?? Did anybody feel worse when starting out? Does it get better, and how long???

Thanks :blink:

0

Share this post


Link to post
Share on other sites


Ads by Google:

As your body adjusts, it may get worse before it gets better. I wouldn't expect to see drastic results until at least one month into the diet.

0

Share this post


Link to post
Share on other sites

My symptoms of intense stomach pain and bloating got better, but I started getting all sorts of OTHER symptoms you described, like brain fog, tremors, nausea. I NEVER had these before going gluten-free. I really don't get it.

I've been gluten-free for almost 6 months now. I think I am presenting symptoms of another condition related to celiac disease and the docs just haven't figured it out yet.

0

Share this post


Link to post
Share on other sites

It's a little too early to tell. I was gluten free for 3 months before I had a big change and then a few more months to get back to normal. Your body is probably adjusting to the diet right now so give it some time. Feel better soon :D

0

Share this post


Link to post
Share on other sites

I felt the same way after I went gluten-free. I noticed that I actually felt generally worse, with worse symptoms after going gluten-free. It's been almost 2 months for me, and I'm just starting to notice changes, so hang in there! We're here for support.

-Peaches

0

Share this post


Link to post
Share on other sites




I've only been gluten-free for a little over a week and my symptoms got worse too for a little while, but after the first week things calmed down a lot. I'm not saying that I feel exceptional, but better.

Doesn't it take a while to feel better because your intestinal tract needs time to heal so that you can start absorbing nutrients? :huh:

My doctor called me the other day to tell me my biopsy results and after I told him that I'd started the gluten-free diet he said, "Oh, so you are probably feeling better already!" I was like... "Umm.. No." I was really surprised tht he said that. Maybe he's just an overly optimistic kind of guy :rolleyes:

I'm not expecting any miraculous changes - because I've never shown any real GI symptoms (well, until the gluten challenge - then I spent a little more time reading magazines in the bathroom ;)). But, do emotional problems heal slower or faster? :huh:

Nobody really knows, do they? :unsure:

*sigh*

0

Share this post


Link to post
Share on other sites

I think there are several reasons one can feel worse after starting gluten-free Diet:

(1) bacterial overgrowth is fairly common at first. A probiotic is advised for most people, although some MDs like antibiotics for this.

(2) you may still be taking gluten in ways you don't realize (vanilla, med's, spelt etc)

(3) you're not getting enough nutrients. are you replacing the gluten foods with healthier foods and with essential fatty acids?

0

Share this post


Link to post
Share on other sites
  (3)  you're not getting enough nutrients.  are you replacing the gluten foods with healthier foods and with essential fatty acids?

Do you mean to tell me this bag of gluten-free cookies isn't providing all of my essential vitamins?? :blink:

0

Share this post


Link to post
Share on other sites
Do you mean to tell me this bag of gluten-free cookies isn't providing all of my essential vitamins?? blink.gif

Ha Ha - Bean you are too funny, at least I am laughing as I run to the bathroom ;)

Thank you for everybodies support!!!!!!

3) you're not getting enough nutrients. are you replacing the gluten foods with healthier foods and with essential fatty acids?

I quit gulten and dairy at the same time, and basically red meat was already a big no no for me, it always seemed to flare up my endometriosis, and because of the endo, I was pretty big on supplementing and eating a lot of essential fatty acids,by eating fish and taking fish oil supplements and adding flax.

I do have one medicine that I take that I have not been able to confirm if it is gluten free (I hadn't seen it on any list so far but I just got the manufacturers number and was going to call on monday). So not sure if that could be it.

I have heard mention of the probiotics before but wasn't sure, I thought maybe that was dairy????

I think I just need to be more patient, it sounds like it takes from 1-3 to start feeling any improvement. I just wasn't expecting to feel worse off the bat!!!! :(

0

Share this post


Link to post
Share on other sites

ooops, I meant to say 1-3 months, I hit the ole add reply to fast :rolleyes:

0

Share this post


Link to post
Share on other sites

Brother diagnosed with celiac disease 8 weeks ago. Also is Diabetic--lots of problems controlling blood sugar levels.

Also still having major battles with D and vomitting. Hard to get much nutrition when it all comes right back out!! (Just out of hospital with feeding tubes.)

Help.

Anyone out there?

0

Share this post


Link to post
Share on other sites

A couple things to consinder:

* You could have caught a bug - going gluten-free certainly won't prevent that. :-D

* As noted, you might not be getting enough nutrients - particualrly if you're relying on packaged products.

* You've got an additional food sensitivity that is coming to light because you're consuming more of that item now. (Dairy?)

* Cross-contamination if you don't have a gluten-free house or if you eat out.

Just a couple thoughts... it's tough to make much of a conclusion given that it's only been a week.

0

Share this post


Link to post
Share on other sites
Brother diagnosed with celiac disease 8 weeks ago. Also is Diabetic--lots of problems controlling blood sugar levels.

Also still having major battles with D and vomitting. Hard to get much nutrition when it all comes right back out!! (Just out of hospital with feeding tubes.)

Help.

Anyone out there?

When you are new to the diet it's more likely to get gluten into you accidentally because it takes some time to learn how much gluten can be hidden in. He may be getting gluten in him through things he thinks are gluten free. He may be getting cross contamination problems as well. There are alot of ways gluten could be getting into him.

Another thing to consider is when there is damage alot of celiacs have a problem with milk at first until their intestines heal. I had a problem my whole life on and off with milk and after I went gluten free I have no problem.

He should maybe keep a food journal...which may help if he doesn't feel good after anything in particular. Try to keep things in him that are light on the stomach...one of my main symptoms was nausea so I know how hard it is to eat when your not feeling well.

When there is damage that keeps your body from absorbing the nutrients properly which can cause all sorts of symptoms. A liquid vitamin may be good for him to try out because of the way it absorbs to your body. Other things that may help are enzymes and probiotics. These things may help your body fight and give your immune system a bit of a boost.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,354
    • Total Posts
      920,511
  • Topics

  • Posts

    • Welcome!   You were smart to think about cross contamination.  Although it is great that there are so many gluten-free options out there, in the beginning it is best to try a whole foods diet, until your son feels a bit better.  The learning curve for the gluten-free diet is steep.  It is better for you to get everything down before letting others feed him.   When I was diagnosed, my hubby had been gluten free for 12 years.  I thought I knew the drill and converted right over to those gluten-free goodies I baked him.  Turned out, like many of us, I had some food inolerances not related to gluten but as a result of gut damage.  So, additives like Xantham gum made me think I was getting glutened, but I was not.  So, again, try to stick to naturally gluten free foods that are less processed for a while.  When you do venture out, I use "find me gluten free" and read the reviews from celiacs (not a person who thinks gluten-free is a way to lose weight! )   Here are some great tips from out Newbie 101 thread:  
    • I have the same problem. Was told it was psoriasis but no treatments worked even injections. I was daignosed celiac in may, and noticed a year ago the palm of my hand would itch intensely then get small blisters. I believe they are both dh. Have been gluten-free since diagnosis but still have issues with both areas. Thankful digestive issues cleared but would love to know how long before they clear up? I hope we both get feed back and best wishes to you!
    • Yes it most certainly could be a false negative, and I would bet you a dozen donuts that it is (gluten free, of course.   )  At the very least you can be sure it is related to gluten.  These gluten rashes take forever to clear up.  I don't know about you, but whenever I start to doubt my gluten intolerance, I just look at my skin, and the old blood stains on my sheets, and I am reassured that it's not all in my head, and I need to avoid gluten as if it were a bucket of battery acid.
    • Hello, My fiance and I are going to Singapore for our honeymoon next year and I was wondering if anyone knew any cafes/restaurants etc that have gluten-free dishes? We previously went two years ago and enjoyed ourselves so much that we definitely wanted to go back our our honeymoon. Catch is I got diagnosed as being gluten intolerant a few months ago, negative for Coeliac though. If I eat gluten I have bad nausea, bloating, diarrhea etc. Not pretty for a honeymoon :-) I am more than happy to eat fruit at breakfast and make do with steamed rice at dinner etc but if anyone has any ideas on anywhere I can safely eat that would be much appreciated. I don't care how much it costs! Also is it possible for me to bring packaged gluten-free food into Singapore from Australia? I am not sure on the rules. Thank you!!
    • Went in and talked to the manager of our pm and asked about the gluten free pizza, and he told me he can't guarantee its 100% gluten free because of the flour in the air from the other crusts being made.  I value the honesty.   The other employee also mentioned changing gloves.   I was thinking wow great, until I walked out and got to thinking about cross contamination from everyone grabbing the toppings out of the same bins and spreading the sauce with the same utensils.    My son was just diagnosed this week so we are new to the whole lifestyle.   So any help or info is greatly appreciated.    Thanks  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,423
    • Most Online
      1,763

    Newest Member
    Kimmieellis
    Joined