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Enterolab


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71 replies to this topic

#31 plantime

 
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Posted 16 April 2004 - 04:11 AM

I have gluten sensitivity. I have been reading about it, and believe that is a the beginning stage of celiac disease. I refuse to wait until it becomes fluu-blown celiacs. I am on a gluten-free diet for the rest of my life. I think that I have avoided most of the agony and illness that others have suffered, simply by the early diagnosis of the sensitivity.
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Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25

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#32 Guest_Haypaula_*

 
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Posted 19 April 2004 - 03:13 PM

Hi, I sent a specimen to Enterolab for myself and received results approx. 3 wks. ago...positive, positive, positive right down the line. I then took my 17 yr. old son and 10 yr. old daughter to a gastro in my area and requested testing. Both have had issues and I have the gene. My sons biopsy came back suggestive of celiac but the gastro doesnt want to say positive until he views blood results also which we are still waiting on...however, he did say that he feels that my son has celiac. My ten yr old went to see him last week and just had the bloods drawn since the doc didnt want to do an endoscopy with out first seeing if her cbc, b12 or celiac panel looked suspicious...well, 4 days after her visit she started breaking out in the derma. hep. that comes with celiac...never having had it before. Never any skin issues actually. I took her back to the gastro today to have a look see and he said that it was the derma. hep. that comes with celiac and she is now scheduled for an endoscopy on day after tomorrow and he feels that her blood results will support this step. My point with all of this is....I AM SO THANKFUL TO ENTEROLAB!!! How long might my children have gone on sick and I wouldnt have even known it. I do think that the results are accurate...proven by my children and after I have my third asymptomatic child tested I will schedule an endoscopy for myself just to have a look and make sure that nothing else is going on..the price I paid out of pocket to be tested was so worth it. thanks, Paula
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#33 sc875

 
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Posted 19 April 2004 - 03:34 PM

Hi.
I have been found to have malabsorption (fecal stain with fat and starches). I've lost 15 pounds over the last few years and have low ferritin, BUN.

I had a complete workup for celiac including three antiboidies (anti-gluten, antitissue and antiendomysal) and a small bowel biopsy that was negative.

My doctor now thinks the malabsorption is due to adrenal exhaustion and candida.
However, I am wonderinf if it worth doing the enterlab test. My only worry (besides cost) is that ther may be a high rate of false positives.

I would love to hear from others that have done the test.
Thank You
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#34 sc875

 
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Posted 19 April 2004 - 03:35 PM

Hi.
I have been found to have malabsorption (fecal stain with fat and starches). I've lost 15 pounds over the last few years and have low ferritin, BUN.

I had a complete workup for celiac including three antiboidies (anti-gluten, antitissue and antiendomysal) and a small bowel biopsy that was negative.

My doctor now thinks the malabsorption is due to adrenal exhaustion and candida.
However, I am wonderinf if it worth doing the enterlab test. My only worry (besides cost) is that ther may be a high rate of false positives.

I would love to hear from others that have done the test.
Thank You
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#35 Guest_jhmom_*

 
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Posted 19 April 2004 - 07:53 PM

To my knowledge Enterolab does not have false positive results. Their tests are more sensitive than blood and more accurate.

This is the route I took and received a positive dx and immediately started a gluten-free diet and could see the improvement in my health within a few days. Through my GI doc all of my results (blood and biopsy) came back negative too.

Hope this helps in making your decision. :D
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#36 Guest_jhmom_*

 
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Posted 19 April 2004 - 07:59 PM

Hi Paula - That is awesome to hear. I am glad that your children (and mine) did not have to suffer as some of us on this message board have for years and years.

After all the testing I endured I decided not to put my daughter through it all and had her tested through Enterolab too, her test was positive and after going gluten-free I don't hear "my tummy hurts" all the time and the nurse from her school does not call me to tell me that she is in the clinic complaining of her stomach hurting! The $100.00 I spent on the test was WELL worth it!

I am very happy for you and your kids! :D
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#37 plantime

 
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Posted 20 April 2004 - 05:23 AM

Stacie, I agree: your child's well-being is so worth the money you spent! You also got peace of mind, which is priceless!
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Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25

#38 Sandi

 
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Posted 22 April 2004 - 08:35 AM

HI
My name is Sandi
And I am 46 and have been in pain and all for 6 years I have been going to the Drs. but they say its my weight, yes I am over weight (275) but I am not eating like I look like I would be eating.
I have such pain in my lower intestines and the gas that doesn't want to come out but run the laps around my intestines so that IM in pain. Who wants to eat when you know your going to be in pain. I am very, very anemic and iron defc. My legs are that tingling mess at night. constipation, nausea, bloating, fatigue, weakness, irritability, inability to concentrate, abdominal distention, my teeth are a mess even thought I take care of them, I can go on but you get the idea.
I have gone to Drs. again and they run the basic blood work and blame my weight and say "take Iron Pills." IM a widow with 3 kids, I have to be able to function here for them. At first I thought I had IBS and it was better for a while. Then I tried Atkins
and I got to feeling normal, what a pleasure it was not to be in pain and to sleep somewhat. and not feel like a wet wash rag. I went off the diet and the systems came back worse, nothing I did make me feel better so I was in pain all day and night. I did some research found Celiac and said maybe, I called my Dr. and he wont run any tests, saying you guessed it weight and what ever.
SO I put my self on the Gluten free diet and with in a day I was feeling better, 2 weeks IM almost normal, I have the bloating if I slip up or didn't know I ate gluten, I know, I have a way to go to learn what to eat and all, But I want to know how important is it without a confirmed DX from a dr.
What about this Lab, Money is so tight but I would try to do it if I thought the results were true results and would Drs. believe those results? http://www.enterolab.com/
Is this worth it? Any other advice?
IM sorry this is so long and I don't mean to sound like I am whining but I cant take this pain any more.
thank you sooo much
sandi
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#39 plantime

 
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Posted 22 April 2004 - 11:15 AM

My doctor accepted the diet alone as proof of intolerance. I understand from other posts that Enterolab is quite accurate, but your doctor might not accept the test. You have to be consuming gluten to get a positive result on bloodtests, and have severe damage for a positive biopsy. Many people feel so much better on the gluten-free diet, that they do not want to go back on gluten just for testing. I am not sure how important a dx is, I guess it just depends on personal preference!
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Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25

#40 feedjake92

 
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Posted 26 April 2004 - 03:02 AM

Do you need a doctor's order for these tests?
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#41 plantime

 
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Posted 26 April 2004 - 05:36 AM

No. You can go to www.enterolab.com and order the tests yourself. You have to pay for them when you order them, and they are fairly expensive. If you can get your doctor to order them, maybe your insurance will pay part of it. No guarantees, though. You can always file with your insurance yourself, I guess. I have never tried to, so I don't know how it would work.
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Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25

#42 Phoebe2

 
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Posted 17 May 2004 - 08:17 PM

Hi,

gastro ordered a stool test nad found WBC white blood cells which pointed to inflamation to somewhere in my intestinal tract.

he wants to to a camera down the throat but all my cramps are near my belly button.

i am tired of being put under and would like a test.. ive checked helthcheckusa.com and i dont understand the test they do and i went to www.enterolab.com but i just dont know which test to try. I have very little money and want to make sure i get a definitive answer if i ahve celiac disease... do celiac's usually show inflamation?

i would just rather take a blood test than have any more surgical procedures!!

could someone please help me pick out on that is the cheapest yet best indicator wether i have this disease or not.. im very confused

thanks
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#43 YankeeDB

 
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Posted 18 May 2004 - 06:24 AM

I'm no expert but based on my reading, if you want to have a blood test for celiac disease, ask for a "anti-tissue transglutamase igA" test. If it is negative, ask to be tested for "total serum igA" to see if you are igA deficient which means you would be likely to get a false negative on the first test. If you are igA deficient (not super likely, but possible) then you will need to delve deeper. I think this is the way to go if your insurance will cover the test.

If not, go to enterolab and consult with them about which test is best for you. I have heard they are very helpful there. Explain financial concerns as well.

Unfortunately, with this disease, informing yourself as much as possible and learning to be less reliant on medical professionals seems to be necessary at this point in time.

Best wishes to you!
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#44 taneil

 
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Posted 18 May 2004 - 10:29 AM

I was just tested by Enterolab. I received my results in about four weeks. For $99 you can have the Gluten Sensitivity Stool test and this will tell you if you are senstive to gluten and thus need to go gluten-free. IF you can spend $169 then you can get the Gluten Sensitivity Stool Panel which will also tell you if you have malabsorption problems, meaning your intestines are damaged. The Complete Stool Panel which costs $229 also includes Tissue Transglutaminase test, but the way I understand it, if you have sensitivity to gluten you need to go gluten-free so the Tissue Transglutaminase is just another test to see if you are also having the Autoimmune reaction to gluten also. Both mean the same thing...gluten-free for life so the sensivity test I would think would tell you enough (but that is my opinion) :) .

I was able to do the complete stool test and the gene test which said that I have both of the Genes that predispose one to Gluten Sensitivity. This means that I don't have to get the gene test for my children because they have one of the genes from me no matter what.

Hope this helps. I have e-mailed Enterolab multiple times with questions and Dr. Fine is very prompt in responding and very kind and informative.

Not that this helps up front costs, but if insurance won't pay for the tests, you may be able to write part of the cost of the tests off on your taxes.
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Taneil
Enterolab Diagnosed May 2004
gluten-free/CF and have both genes

Psalm 27:13-14
I would have despaired unless I had believed that I would see the goodness of the LORD In the land of the living. Wait for the LORD;
Be strong and let your heart take courage; Yes, wait for the LORD.

#45 gf4life

 
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Posted 18 May 2004 - 10:48 AM

Not that this helps up front costs, but if insurance won't pay for the tests, you may be able to write part of the cost of the tests off on your taxes.


Don't count on being able to get a deduction for this. You have to have more than 7.5% of your income as medical enpenses and then they only deduct the portion over 7.5%. My family of 5 never even came close to the 7.5% even though we have a lot of doctor copays, medication copays, dental bills, eyeglass/contacts/vision bills, and the Enterolab testing at about $350.

I wasn't even sure I wanted to risk the Enterolab bill as a write off, since it says that lab tests are deductible if ordered by your doctor. It was the if ordered by your doctor part that got me. Anyhow, we didn't meet the 7.5%, even if we tried to add in the cost of gluten-free foods we wouldn't have qualified. And I am not sure the Enterolab diagnosis would count for tax purposes to be able to deduct the cost difference of the gluten-free foods, anyhow.

Regardless of whether you are able to get a tax break, I do highly recommend Enterolab for their diagnostic purposes. I would ask Dr. Fine what test he would recommend if you were only able to afford one.

God bless,
Mariann
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~West Coast-Central California~

Mariann, gluten intolerant and mother of 3 gluten intolerant children




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