Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Is 3 Weeks Long Enough For A Gluten Challenge?
0

18 posts in this topic

I saw a GI today who said he doesn't think I have Celiac but said I might as well be tested since I'm only 22. I have been gluten free for 6 months so he asked me to eat gluten for 2 weeks then get a biopsy. The biopsy is actually scheduled for 3 weeks though. I'm not sure what to do. I really want to call and cancel the endoscopy and just say I'm gluten sensitive. I don't really want to eat it. And they scheduled me for a Celiac panel that I can go get done whenever I have time. Is this worth it?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I saw a GI today who said he doesn't think I have Celiac but said I might as well be tested since I'm only 22. I have been gluten free for 6 months so he asked me to eat gluten for 2 weeks then get a biopsy. The biopsy is actually scheduled for 3 weeks though. I'm not sure what to do. I really want to call and cancel the endoscopy and just say I'm gluten sensitive. I don't really want to eat it. And they scheduled me for a Celiac panel that I can go get done whenever I have time. Is this worth it?

After being gluten-free for 6 months, 3 weeks just isn't enough time to insure an accurate test result. The rule of thumb is to eat the equivalent of 3-4 slices of wheat bread a day for 3-4 months.

I would reschedule both tests for later on--the blood test probably won't be accurate either at this point.

0

Share this post


Link to post
Share on other sites

After being gluten-free for 6 months, 3 weeks just isn't enough time to insure an accurate test result. The rule of thumb is to eat the equivalent of 3-4 slices of wheat bread a day for 3-4 months.

I would reschedule both tests for later on--the blood test probably won't be accurate either at this point.

But is it even worth it? And I was confused that he scheduled the blood test and the biopsy at the same time. Shouldn't I just try the blood test and if it comes back positive then do the biopsy? I ate like 3/4 of a piece of bread when I got back and now I'm bloated. He said I had two options, just keep eating gluten free or do the testing. I'm thinking maybe I should just call him and pick option 1.

0

Share this post


Link to post
Share on other sites

Hm, I want to say go with your gut, but I think it's already biased! :) I am undiagnosed. So far, I've had no issues. I'm an adult, so I don't need to worry about school lunches or college issues (I am in grad school, and they've been great about it when I'm on campus) and other than that, I have had "gluten sensitivity" put on my medical chart. For me, a diagnosis would require funds and misery that I have not the patience for. So I'm good. But you have to do what you can live with. Good luck!

0

Share this post


Link to post
Share on other sites

I would give it longer...I just did a 3 month challenge and the results were "suggestive of mild/early" celiac. DR wants me to do 3 more months on gluten and do the endoscopy again!!!!!!! It might depend how long you were gluten free???

0

Share this post


Link to post
Share on other sites




I would give it longer...I just did a 3 month challenge and the results were "suggestive of mild/early" celiac. DR wants me to do 3 more months on gluten and do the endoscopy again!!!!!!! It might depend how long you were gluten free???

Debbie, how long were you gluten free beforehand?

0

Share this post


Link to post
Share on other sites

But is it even worth it? And I was confused that he scheduled the blood test and the biopsy at the same time. Shouldn't I just try the blood test and if it comes back positive then do the biopsy? I ate like 3/4 of a piece of bread when I got back and now I'm bloated. He said I had two options, just keep eating gluten free or do the testing. I'm thinking maybe I should just call him and pick option 1.

Positive response to the gluten-free diet, and symptoms that recur when adding it back is a valid diagnostic tool in and of itself. If you are comfortable listening to your body and don't need a firm medical diagnosis, then just go 100% gluten-free yourself. You don't need a doctor to tell you what to eat--if it makes you sick, don't eat it. :) This board is an excellent resource, and we'll do everything we can to help you.

If, and only if, you decide you want to be tested you do need to be eating gluten for longer than 3 weeks. Some doctors do the blood tests first but not all. Mine went straight to the biopsy and never did the bloodwork.

It's a personal decision and completely up to you. :)

1

Share this post


Link to post
Share on other sites

But is it even worth it? And I was confused that he scheduled the blood test and the biopsy at the same time. Shouldn't I just try the blood test and if it comes back positive then do the biopsy? I ate like 3/4 of a piece of bread when I got back and now I'm bloated. He said I had two options, just keep eating gluten free or do the testing. I'm thinking maybe I should just call him and pick option 1.

Only you can answer that. I was in a similar position (though I hadn't even been gluten free for as long as you had been) when I went in for testing. The results were inconclusive, and I had to decide if I wanted to go back on gluten for further testing. I tried one gluten challenge (made it pretty massive, but still) and felt awful. I decided that the results from the dietary challenge were enough for me, and opted not to keep eating gluten. I've been perfectly fine with my "doctor approved self-diagnosis" but it's a personal decision.

(It would make sense, if it's a reasonable suspicion, to do the blood tests and biopsy at the same time, so you don't have to be on gluten longer than necessary.)

0

Share this post


Link to post
Share on other sites

Only you can answer that. I was in a similar position (though I hadn't even been gluten free for as long as you had been) when I went in for testing. The results were inconclusive, and I had to decide if I wanted to go back on gluten for further testing. I tried one gluten challenge (made it pretty massive, but still) and felt awful. I decided that the results from the dietary challenge were enough for me, and opted not to keep eating gluten. I've been perfectly fine with my "doctor approved self-diagnosis" but it's a personal decision.

(It would make sense, if it's a reasonable suspicion, to do the blood tests and biopsy at the same time, so you don't have to be on gluten longer than necessary.)

I'm worried that I'm wrong. Sometimes I get sick after I eat, like immediately. But today when I ate that bread I just got really bloated and now I have heartburn. I don't have stomach cramps. And I have to go in between Monday and Thursday to get the blood test, they told me just go whenever. I though maybe I could just wait a week and go get the blood test done, and if its negative cancel the endoscopy. Honestly, I don't want to do an endoscopy.

0

Share this post


Link to post
Share on other sites

I'm worried that I'm wrong. Sometimes I get sick after I eat, like immediately. But today when I ate that bread I just got really bloated and now I have heartburn. I don't have stomach cramps. And I have to go in between Monday and Thursday to get the blood test, they told me just go whenever. I though maybe I could just wait a week and go get the blood test done, and if its negative cancel the endoscopy. Honestly, I don't want to do an endoscopy.

I'm with the rest of the people that gave their opinions.

Both my endo and my blood tests were normal except for the IgA levels.

I am not willing to go back to eating what I know is poison for me!!

If you want to do the blood testing, then great. If you don't want to do the endo, then great :)

If you know that the gluten hurts you and you are not planning to have children (unrecognized celiac and fertility issues are very linked, it seems), then just follow what YOU know to be good for you. You can always find a celiac support group near you, as it's full of gluten intolerant people too. You'll come away with some really interesting experiences, and very beneficial ones too.

Just my two sous,

~Allison

0

Share this post


Link to post
Share on other sites

Ah, ok now I'm feeling it. I ate some soup and my stomach feels very bloated. I also have heartburn and that tightness in my chest. How long would I have to wait to take the blood test? They said whenever, so I could do it next week. I have gluten intolerance in my family, as well as lactose intolerance. I don't know that any of them were able to test positive, and one has taken the blood test 3 times. I will definitely stay off gluten either way.

I don't mean to come off as whiny. I just really don't know what to do.

0

Share this post


Link to post
Share on other sites

I don't mean to come off as whiny. I just really don't know what to do.

You're not coming across as whiny at all!!

We all know what this hell feels like.

It will pass, sooner than later hopefully.

But it sounds to me like taking a gluten challenge is not something you are going to want to do ....

I hope you feel better soon :(

~Allison

1

Share this post


Link to post
Share on other sites

Ah, ok now I'm feeling it. I ate some soup and my stomach feels very bloated. I also have heartburn and that tightness in my chest. How long would I have to wait to take the blood test? They said whenever, so I could do it next week. I have gluten intolerance in my family, as well as lactose intolerance. I don't know that any of them were able to test positive, and one has taken the blood test 3 times. I will definitely stay off gluten either way.

I don't mean to come off as whiny. I just really don't know what to do.

It kinda sounds like you know what to do, but are not CONFIDENT. Be confident that something isn't right when you don't feel well. The exact symptoms may not always be the same, but if you eat gluten and then feel worse, that's a pretty strong sign!

If you want the tests, though, prepare to eat plenty of gluten (3-4 slices of bread a day) for a long time (3-4 months).

0

Share this post


Link to post
Share on other sites

Ah, ok now I'm feeling it. I ate some soup and my stomach feels very bloated. I also have heartburn and that tightness in my chest. How long would I have to wait to take the blood test? They said whenever, so I could do it next week. I have gluten intolerance in my family, as well as lactose intolerance. I don't know that any of them were able to test positive, and one has taken the blood test 3 times. I will definitely stay off gluten either way.

I don't mean to come off as whiny. I just really don't know what to do.

You need to be back on gluten for the same length of time for the blood test as you do for the endo. Even then false negatives are all too common. Sounds like your body is giving you the answer. The next few days may be rough. Whether you want to continue for another 2 or 3 months is up to you.

0

Share this post


Link to post
Share on other sites

Debbie, how long were you gluten free beforehand?

I had been off for 9 months

0

Share this post


Link to post
Share on other sites

You need to be back on gluten for the same length of time for the blood test as you do for the endo. Even then false negatives are all too common. Sounds like your body is giving you the answer. The next few days may be rough. Whether you want to continue for another 2 or 3 months is up to you.

Hmm, I'm not liking the word "months" there. Ok, I think I'm not gonna do it. It's not a good sign if I'm ready to give up after one day. He did say the only difference was that if I did have Celiac disease I would just have to check up with a doctor every so often, maybe get screened for osteoporosis later. I could do that on my own. He told me constipation is rare with Celiac disease (and that Celiac itself is rare) and so I probaby don't have it. I can accept just gluten intolerant.

0

Share this post


Link to post
Share on other sites

well, he's "right" when he says celiac is rare, but only in comparison to common things like how many people are likely to get a cold during cold season. :/

The rate of celiac disease incidence in the population is 1%. 1 in 133 is the last study I've read, but the numbers seem to vary somewhere between a tiny bit over 1% and a tiny bit under.

0

Share this post


Link to post
Share on other sites

well, he's "right" when he says celiac is rare, but only in comparison to common things like how many people are likely to get a cold during cold season. :/

The rate of celiac disease incidence in the population is 1%. 1 in 133 is the last study I've read, but the numbers seem to vary somewhere between a tiny bit over 1% and a tiny bit under.

Well thank you all for responding. I felt a little stressed and confused this morning, but now I think I feel confident about my decision.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,647
    • Total Posts
      918,464
  • Topics

  • Posts

    • Biopsy confirmed?
      Right, usually they do an endoscopy after a positive blood antibody test.  The biopsy confirms the antibody results.  Doing them in the reverse order doesn't hurt anything though.  Sometimes people "fail" the antibody tests but still have gut damage.  Not everybody makes the same antibodies or in the same quantities.  Anyway, you should make sure they are doing the complete celiac antibody panel, not just a ttg test. And don't worry if the celiac tests are positive for gliaden antibodies.  Going gluten-free is an adjustment to your diet. Quite a few people around here have managed to adjust successfully.  It takes some effort, but anything worthwhile does they say.
    • Celiac Night Vision
      I don't have scotomas but you might find more help on a forum dedicated to vision issues.  Here are a couple I found.  the last link is a Yahoo search for "eye forum"  There may be others found if you try a search on Google. http://www.medhelp.org/forums/Eye-Care/show/90 http://www.healthboards.com/boards/eye-vision/ https://search.yahoo.com/yhs/search?p=eye+forum&ei=UTF-8&hspart=mozilla&hsimp=yhs-003
    • Positive Biopsy, Negative Blood Tests
      BTW, all first degree relatives of celiacs are supposed to be tested for celiac every 2 years in the absence of symptoms -- immediately if symptoms present. Your kids, your parents & all siblings should be tested. And that goes for your brothers kids too.
    • Positive Biopsy, Negative Blood Tests
      I agree completely with cyclinglady! Do you even know that there is such a thing called silent celiac? No symptoms at all but the villi are damaged.  I see you joined in 2009. Why? Is that when your brother was diagnosed? IMHO you need to do a lot of research & find out just exactly what you're risking. 
    • Positive Biopsy, Negative Blood Tests
      What?  Be sure that next endoscopy tests you for lymphoma (cancer) as well!   Seriously.  You need to do some research as your knowledge of celiac disease is lacking.  Did you fail the entire celiac panel?  Or did your doctor/insurance save cash and just order the very good (but does not catch all celiacs) TTG IgA?  You have a family history, a positive biopsy, what more do you need?  You do realize that this is not about just giving up gluten, don't you?  We just had a member join this year who was told years ago that her tests were "inconclusive" and that she now has suffered with lymphoma (cancer)? Ugh!   Endoscopy in 10 years?  Who would even wait 10 years?  This isn't colon cancer and polyps!   Are you talking about a colonoscopy?  Are you even sure you had an endoscopy?   Be sure you have your bones checked too.....and forget the breath.  You might not have any teeth and implants will be out since your bones will be compromised. Sorry, if I come on strong, but when I was diagnosed I had no tummy issues.  A few months later, my bones began breaking.  I was undiagnosed for a long time because of mis-informed doctors.  At least it was not stupidity on my part.   So, I urge you to research this disease more!  Hopefully you'll ward on another autoimmune disorder by remaining gluten free.  Find what celiac blood tests were actually taken!  Even if you do not think you have celiac disease, something has caused villi damage -- like a parasite, milk, or something......even more sinister! Good luck!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,741
    • Most Online
      1,763

    Newest Member
    Roemill
    Joined