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Feeling Lousy After A Bone Scan
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I had a nuclear medicine bone scan yesterday afternoon, to hopefully explain (or rule out) causes of ongoing rib discomfort. I was injected with a radioactive dye, had to wait 3 hours then had the scan done; the scan itself took 30 min. About 4 hours later (so just after the scan was completed) I started feeling a little dizzy/woozy, but I blamed it on perhaps being a bit anxious (I didn't think I was anxious in a huge way, but who knows). Once I got home this progressed to mild/moderate headache, mild nausea, and fatigue, and I went to bed early. Slept fine through the night, but got up feeling weak (didn't resolve with eating - I was thinking low blood sugar), mildly dizzy, and with a moderate headache, and this has persisted now for 4 hours. I've been drinking lots to get rid of the stuff they injected. I can can pretty much put up with the symptoms, but they sound so much like a gluten reaction to me. Nothing I've read in my online research tells me exactly what is in the stuff they injected besides radioactive isotopes (there must be some sort of fluid base the isotopes are put into in order to make them injectable). Has anyone else had this test done? Does anyone know if there is any gluten in what they inject?

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I had a nuclear medicine bone scan yesterday afternoon, to hopefully explain (or rule out) causes of ongoing rib discomfort. I was injected with a radioactive dye, had to wait 3 hours then had the scan done; the scan itself took 30 min. About 4 hours later (so just after the scan was completed) I started feeling a little dizzy/woozy, but I blamed it on perhaps being a bit anxious (I didn't think I was anxious in a huge way, but who knows). Once I got home this progressed to mild/moderate headache, mild nausea, and fatigue, and I went to bed early. Slept fine through the night, but got up feeling weak (didn't resolve with eating - I was thinking low blood sugar), mildly dizzy, and with a moderate headache, and this has persisted now for 4 hours. I've been drinking lots to get rid of the stuff they injected. I can can pretty much put up with the symptoms, but they sound so much like a gluten reaction to me. Nothing I've read in my online research tells me exactly what is in the stuff they injected besides radioactive isotopes (there must be some sort of fluid base the isotopes are put into in order to make them injectable). Has anyone else had this test done? Does anyone know if there is any gluten in what they inject?

I've had it done with no ill side-effects. I'm sorry you feel so bad. To be clear, you cannot get glutened by injection. You can only get glutened by ingesting gluten. If you didn't eat it, you didn't get glutened from it. However, if you feel that you got sick from the procedure, you should call your doctor to make sure that you aren't having a different side effect. Better to be safe than sorry. Good luck.

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Someone in my local celiac support group had to have a CT scan for which she had to drink something. She called the hospital and had them check the gluten status first. One of the flavors did contain gluten, so she didn't have that one and everything went fine. You could try to phone the hospital and have them check for you. A little too late now, though.

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. .. . To be clear, you cannot get glutened by injection. You can only get glutened by ingesting gluten. If you didn't eat it, you didn't get glutened from it.

....

Hoping this doesn't come off as too harsh but that is simply not true.

I do understand how a celiac w/ primarily or only GI symptoms would think this.

But celiac can affect EVERY system in the body due to gluten/gliadin fragments entering the bloodstream via the leaky gut, which I believe has become acknowledged to exist in every symptomatic celiac. (See Aug '09 Scientific American)

In fact, the most promising "celiac pill" is actually a leaky gut pill, blocking the path to the bloodstream for these gluten/gliadin fragments.

P.S. After all that I have to say I can't imagine why gluten would be in any solution/substance meant for injection. :wacko:

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Sorry, I didn't see the injection part. I thought it was something ingested anyway.

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P.S. After all that I have to say I can't imagine why gluten would be in any solution/substance meant for injection. :wacko:

Have you looked much at biopharmaceutical processes and manufacturing of biopharmaceutical therapies? Many of these therapies target autoimmune diseases. These therapies (usually injectable) are manufactured using nutrient solutions (also called "media") that may be derived from wheat.

http://www.invitrogen.com/etc/medialib/en/filelibrary/bioproduction/pdfs.Par.34443.File.dat/Biopharm-article-Improving-Protein-Production-in-CHO.pdf

http://biopharminternational.findpharma.com/biopharm/Upstream+Processing/Improving-Protein-Production-in-CHO-Cells/ArticleStandard/Article/detail/522164?contextCategoryId=41918

With the drive to remove serum and products of animal origin from cell-culture media during manufacture of protein-based biologics, plant hydrolysates have become popular as feeds in fed-batch cell culture to boost productivity.

To determine the effect that plant hydrolysates or a chemically defined medium had on protein production, on days 3, 6, and 9, a 10% v/v solution of one of the plant hydrolysates derived from pea, wheat, soy, or rice (Kerry Bio-Science, Rochester, MN) was added at a stock concentration of 100 g/L to the cultures or the media were supplemented with a 10% v/v chemically defined feed, CHO celiac disease EfficientFeed A (Invitrogen, Grand Island, NY).

I don't know how plant hydrolysates are manufactured. There is a Purification process for harvesting the resultant protein therapies of these biopharmaceutical processes, but how would one determine if they evaluate gluten content?

Here is another bit about these media solutions.

http://www.masshightech.com/stories/2008/03/03/daily32-Miilipore-to-supply-plant-chemicals-from-Solabia-for-biologics.html

Millipore (NYSE: MIL) will have exclusive rights to market and sell all seven of Solabia's plant-derived hydrolysates -- also called plant-derived peptones -- for use in the media that grows cell cultures throughout the Americas, the European Economic Community and the Asia-Pacific region, company officials said.

Millipore, which is based in Billerica, provides technologies tools and services for bioscience research and biopharmaceutical manufacturing. The plant-based hydrolysates most commonly come from soy, wheat, peas, or potatoes, officials said.

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Hoping this doesn't come off as too harsh but that is simply not true.

I do understand how a celiac w/ primarily or only GI symptoms would think this.

But celiac can affect EVERY system in the body due to gluten/gliadin fragments entering the bloodstream via the leaky gut, which I believe has become acknowledged to exist in every symptomatic celiac. (See Aug '09 Scientific American)

In fact, the most promising "celiac pill" is actually a leaky gut pill, blocking the path to the bloodstream for these gluten/gliadin fragments.

P.S. After all that I have to say I can't imagine why gluten would be in any solution/substance meant for injection. :wacko:

Not harsh at all! If I post misinformation, I expect that someone should tell me.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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