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Joint Pain


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#31 rnbwdiva

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Posted 11 May 2010 - 03:23 PM


Does anyone else suffer with joint pain from being glutoned? I don't know which of my symptoms is worse... The GI symptoms, or the pain in my joints.


Absolutely! I was at the point where I had a lot of difficulty walking and was being treated for arthritis when I switched doctors out of frustration (they wanted to medicate me like crazy) and found a rheumatologist who said he didn't think I had arthritis at all... he found my many deficiencies and, one long and frustrating year later, I realized that almost all of the pain was my body swelling from the gluten.

I am trying Vit D and fish oil for the swelling, but still have many rough days. Humid, cloudy days are the worst....

Good luck!
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#32 Black Sheep

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Posted 12 May 2010 - 10:58 AM

Humid, cloudy days are the worst....


Yes, aren't they special? :rolleyes: And I am in the Great NW, where it's cool, cloudy, and humid, about 300 days out of the year. :blink:
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#33 NE Mom

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Posted 12 May 2010 - 01:49 PM

joint pain was one of my main symptoms. In fact, I was actually dx'd with Fibromylagia before discovering that gluten was actually the problem. I have also removed dairy from my diet and have noticed that any "accidental" dairy ingestion actually causes the joint pain to flare up again. You also may be suffering from other food intolerances.
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#34 SherBear

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Posted 23 July 2010 - 12:42 PM

joint pain was one of my main symptoms. In fact, I was actually dx'd with Fibromylagia before discovering that gluten was actually the problem. I have also removed dairy from my diet and have noticed that any "accidental" dairy ingestion actually causes the joint pain to flare up again. You also may be suffering from other food intolerances.



I have very bad joint pain, elbow, thumb, wrists, back heels. I found by avoiding starch, it lessens the pain. I thought it was goofy at first but in a few days to week i felt reflief. To know if the food you are eating is a starch you just add iodine to and it turns from amber to black ot dark brrwon. Make sure you never eat the test piece, because iodine is poisonous. no or low starch diets do work for relieving joint pain.
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#35 Chakra2

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Posted 31 July 2010 - 07:00 PM

I'm 33 and it was my joint pain that finally got me worried enough to see a doctor. I thought for sure I had RA-- I couldn't believe how many of my joints were hurting, even toes and fingers. I think I have had celiac or gluten intolerance all my life (lots of GI issues startng in infancy ) but have only recently found out about it. My knees and hips started to hurt as a 13-14 year old and I was told that was just because a was a girl playing sports. I have always liked to stay active so I just exercised through the pain for the past 20 yrs. Maybe not the best plan but docs kept telling me hurting was inevitable if I kept running. Um, NOT TRUE!!!!! My joints are pain free for weeks at a time if I avoid gluten, dairy, corn, soy and nightshades. The nightshades has actually been the biggest bummer but it helps a lot to not eat those foods. I was mildly glutened today and within 2-3 hours my joints were really sore. It's great to know what causes it now, though, and to know that it will pass in a day or so. Now I know I can take it easy on the days I feel pain and be back to feeling good soon. Before sinc everyone told me the pain was inevitable I just pushed through. Grrrrrrrrr ... doctors. :( I even had knee surgery -- pointless. Changing my diet fixed my knee in days. The surgery did zip. Now I want to shout from the mountaintop about trying dietary changes for joint pain before resigning yourself to less activity or having surgery. Happy bending to all!
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#36 GFinDC

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Posted 01 August 2010 - 08:52 AM

My joint pain is mostly gone now that I got off soy. It took a quite while off soy for the pain to go away, but it is much better now.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#37 bluebonnet

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Posted 02 August 2010 - 04:10 AM

joint pain seems to be sticking around for me because of unfortunate cc during vacation and working at summer camp. i washed my jeep and the next day i felt so incredibly bruised in my shoulder blade near my spine as well as my sternum that i thought it was maybe a heart attack. along with horrible knee and hip pain. its very scary to feel that bad. just that tinest bit of gluten caused so much havoc. i thought everything was prepared so carefully too. found out the hard way that wasn't the case. the joint pain seems to be the hardest to heal.
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#38 dreacakes

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Posted 14 August 2010 - 07:23 AM

I have joint and tendon pain too.
I actually was treated for a severe flare-up of tendinitis and bursitis while I was working in a coffee shop a few years ago. My condition puzzled all of the doctors because the tendinitis wasn't localized- it was completely through both of my arms, finger tips to shoulders. It was also weird because my joints and tendons never swell, but still feel inflamed. Doctors couldn't do anything to help, so they declared me "permanent and stationary".
Since then I still have arm pain every day, and the "tendinitis" has flared up in different parts of my body as well.

I only went gluten free a few months ago, so my body is still recovering. One of the trigers for me trying a gluten-free diet was because my back was spasming so badly I could barely sit-up in my college classes. And since then it has gotten way better.
I'm also sensitive to corn and nightshades. I'm actually on the couch recovering right now because I've been (stupidly) eating too many wonderful gluten-free goodies that contain potato starch. :( (I love when I get off the couch and my hips and knees are so stiff I hobble around the house like I'm 90!) Why can't they make them with tapioca starch or something!!
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Debilitating tendonitis in both arms in 2003, at age 23, declared "permanent and stationary" by workman's comp doctors.
Fibromyalgia diagnosis in 2010.
Mild hyperthyroidism diagnosis 2011.
Disc Degeneration diagnosis 2012.
Life long battle with hypoglycemia.
Gluten Free since 2010. On Paleo-type diet since May 2011.
Suffered years of brain fog, back spasms, nausea, and recurring connective tissue pain and injuries. After years of misdiagnosis, I did my own elimination diet and discovered a severe reaction to wheat gluten and casein. After going on a grain free, nightshade free, Paleo-ish diet, my symptoms are nearly gone, and I FINALLY KICKED THE BRAIN FOG!
Cheers to health! <3

#39 GFinDC

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Posted 14 August 2010 - 12:25 PM

I have joint and tendon pain too.
I actually was treated for a severe flare-up of tendinitis and bursitis while I was working in a coffee shop a few years ago. My condition puzzled all of the doctors because the tendinitis wasn't localized- it was completely through both of my arms, finger tips to shoulders. It was also weird because my joints and tendons never swell, but still feel inflamed. Doctors couldn't do anything to help, so they declared me "permanent and stationary".
Since then I still have arm pain every day, and the "tendinitis" has flared up in different parts of my body as well.

I only went gluten free a few months ago, so my body is still recovering. One of the triggers for me trying a gluten-free diet was because my back was spasming so badly I could barely sit-up in my college classes. And since then it has gotten way better.
I'm also sensitive to corn and nightshades. I'm actually on the couch recovering right now because I've been (stupidly) eating too many wonderful gluten-free goodies that contain potato starch. :( (I love when I get off the couch and my hips and knees are so stiff I hobble around the house like I'm 90!) Why can't they make them with tapioca starch or something!!


Yeah I hear you on the potato starch thing. I guess it's just so much cheaper for potato starch and that is why it gets used a lot. I can eat corn, so I don't check for that. But I can't do soy or dairy or nightshades. Anyway, Glutino has some breads that are potato and dairy and soy free. Kinickkinick hamburger buns are ok too, but their English Muffins have potato. Food for Life brown rice wraps are tater, dairy and soy free too. Check all of those for corn though cause I never look for that as a problem.

I was just looking at these Food for Life bars on Gluten free Mall and they seem like they might work too. They are on sale too. I haven't tried them myself though.

Enjoy Life Foods Soft and Chewy Caramel Apple Snack Gluten-Free Bars
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#40 Darn210

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Posted 15 August 2010 - 06:42 AM

Just wondering if any of you were tested for RA or Lupus . . . or did anyone have a positive ANA test but follow-up/more specific testing for RA/Lupus didn't result in a RA or Lupus diagnosis?
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#41 mushroom

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Posted 15 August 2010 - 07:49 AM

I was sero-negative for RA, but then psoriatic arthritis most often is sero-negative and the psoriasis showed up later. And the disease did not respond to lack of gluten or nightshades, unfortunately, although it's only been a year since I've been totally free of nightshades (forgot about that darned potato starch). I am afraid to stop the Humira I take for it because I was so miserable with it and it is totally resolved now (except for residual fat fingers and toes :P and a bit of joint damage )
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"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#42 Charli61

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Posted 10 November 2011 - 09:24 PM

This forum has been fascinating for me to read. I have miserable pain in my hands and wrists particularly. Sometimes in my ankles and feet....also back and neck. I was tested for RA and that came back negative. The 'arthritis I don't have hurts a lot' is kind of my thinking. I have only been celiac diagnosed for a couple of months now. So, I haven't seen a huge change in my wrists/hands (I spent 26 years doing percussive therapy on my daughter who has Cystic Fibrosis, so figured hands/wrist pain was kind of a RSI) BUT I have been eating dairy the last couple of weeks. (since I started having lactaid tablets for it) I am just figuring out maybe the dairy is not helping. Also I see people relating their pain to soy (oh my gosh, I am vegetarian and would really miss soy) and also nightshades (will have to google to see what those consist of) I will cut out the dairy :( and see if that helps. If not then I will try cutting out soy and see if that does it. I really thought that I was doomed to just 'hurt' But maybe there is hope yet! I will post again if I find something that helps this. But I did want to thank you all........My doctor did NOT suggest that the pain could possibly be related to the Celiac disease. Please know, all of you, your posts are most helpful!
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#43 mushroom

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Posted 10 November 2011 - 10:28 PM

My doctor did NOT suggest that the pain could possibly be related to the Celiac disease. Please know, all of you, your posts are most helpful!


I have two rheumies, one in New Zealand and one in Nevada. The one in New Zealand (my second after I gave up on my first as a fuddy duddy) when I told her my suspicions, said "Oh well, it's too late to test you now.". (too long gluten free) The one in Nevada refused to believe there was any connection between RA and celiac, said he had never had a diagnosed celiac as a patient. I asked him how many he had tested :blink: Obvious answer, none! I am seronegative for RA - most people with psoriatic arthritis are. My psoriasis arrived after the RA.

My pain started in my neck, shoulders, wrists, hands, and in the metatarsals of my feet. I was lactose intolerant (not dairy, just the milk sugar component of dairy which we have trouble digesting if we have damaged the villi in our small intestine) for several years before self-diagnosis. I can now tolerate alll dairy again. I mostly eliminated nightshades because they are known to be inflammatory for people with arthritis - tomatoes, potatoes, peppers, eggplant - and then found when I tried to eat them in any amount I had problems. Soy is a biggie for me although I can now tolerate some soy lecitihin, as in chocolate :D And I can tolerate small amounts of potato starch again after years of avoidance. So I think it is possible to heal your gut and regain some of the foods that you hav to eliminate. But I am still avoiding legumes and citrus because those came later and I have to wait a big longer. :)
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#44 AVR1962

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Posted 11 November 2011 - 12:04 AM

Last night got so bad, I thought I was going to end up going to the hospital. Today I'm back to normal. I VOW to be more diligent in reading labels!

Sorry to hear this. I too get bone pain when I get glutened. Does yours pass? Or does it come back without being glutened? Lack of vit D or inflammations can cause the pain as well. I have had a terrible time with my back and shooting pain down my left leg (scyatic nerve pain), stiff neck. I found a herbal anti-inflammatory tht seems to be helping quite a bit.
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Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

#45 domesticactivist

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Posted 11 November 2011 - 08:39 AM

Just wondering if any of you were tested for RA or Lupus . . . or did anyone have a positive ANA test but follow-up/more specific testing for RA/Lupus didn't result in a RA or Lupus diagnosis?

My son got tested for septic hip, Lupus, blood screening for leukemia, and all those were negative. He ended up with a tentative diagnosis of either septic hip or a reactive rhumatoid arthritis to pneumonia. The drs did no take into account his past, persistent joint and bone pain, either.
We have found that removing gluten removed all those symptoms, introducing it brings them back.
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Our family is transitioning off the GAPS Intro Diet and into the Full GAPS Diet.
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.


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